Are you Her2 + as well? This is a protein that encourages growth as well so the two together can make things grow quicker , If so you will be offered chemo as you will need Herceptin and they don't give this without chemo, you will see your oncologist who will go through your results with you and discuss what treatment plan they have set up, ask everything you need to and don't be afraid by it all, it's over whelming but they know what they are doing and will have devised the Best course for you. I didn't have chemo, my treatment was lumpectomy followed by Radiotheraphy and now I'm taking Tamoxifen for 5 years as I'm hormone positive , I was HER2 negative , it's all ok and I'm 4 months post treatment and doing great now, once you know for sure what will be happening you will feel so much better Xx Jo
Thanks Jo x I think I understand the tumour is stimulated by the hormones which is what its rapid growing it is treatable and can be responsive to chemo because of the HER........I feel it's all I focused on initially.....
i read the treatment post and feel ill informed......when you have the "chemo chat" is this when you find out all about Meds and things xxx Paula 🎀
Hi Paula, it's all like a foreign language to begin with but never be afraid to ask your team to explain when you don't understand, my hubby did most of the listening for me as I was struggling to take it in but then I would come home and go over and over it all until I understood, knowledge is key to making some sense of it all!
I'm not sure was proliferation means but it may be your 80% hormone positive, mine is 8/8 so 100% .
just try to focus on one step at a time and not the bigger picture, once treatment gets underway things will seem a lot clearer, we all found ourselves in a daze in the beginning so your not alone, it takes a while for the shock to settle but once you start to understand what is happening it does get easier! Xx Jo
wow my head is mashed.....I feel I have no idea what anything means...please help....what does all the abbreviation mean....I have either not taken anything in or haven't been told. Diagnosed just over a week ago. Told 3cm hormone recep positive 80% proliferation!!!!!!! what on earth.....
have to have chemo so suggested stating that....if shrinkage then lumpectomy if not then mastectomy followed by radio and drugs........
chemo to start nor week and I really don't feel I have a handle on this.......can anyone advise x huge hugs Paula
Just been diagnosed a week ago. Terrified and feeling apprehensive to say the least. My doctor and nurse indicated that I would have chemo to shrink the tumour ( 4cm! ) then mastectomy. I will keep you posted asi I find out for certain on Friday. All the best❤️
I to will have chemo first as the tumour has invaded chest wall, had a CT last week and go to see the oncologist this Wednesday where I hope we can discuss a plan fingers crossed
PS: The chemo really did shrink my lumps to almost nothing... does make lumpectomy option easier. Enables removal with clear margins without doing too much collateral damage.
Hi - I had this too, it is really common, don't worry.
I have lumps both sides. One is HER2 . No lymph involvement though.
Think the Her2 drives the decision to do chemo first as it is a bit more aggressive and they want to blitz any stray cells before they camp elsewhere.
I am almost through chemo now, finished the 4 x EC chemos, now onto 12 weekly Paclitaxel infusions (and Herceptin 3 weekly for a year... plus 10 years Tamoxifen) (I have to work through my chemo hence on a more gentle regime, doing Taxol over 12 weekly infusions gives you no side effects. If you can get this ask for it, it is great, though it does stretch out chemo, I get no metal mouth taste/ nausea/ tiredness etc. Worth asking. Also worth asking if you can have just EC, not FEC. Ask your oncologist the differences and reasons why she advises one over the other. )can be budget I'm afraid 😞 )
(My onc would give everyone the 4 x EC then 12 x Paclitaxel if she could. Really reduces SEs)
(you may have 4 or 6 sessions of FEC, then Taxol after, they mix it up)
I finish chemo on 22/10 so expect op in Nov.
I'm opting for double mastectomy and recon (lumps both sides)
Happy to chat
I was diagnosed 3 weeks ago and was told that I would have Chemo and then a mastectomy. It took a little while to accept that it needed to be this way to reduce the tumour prior to surgery. I am also Her2 + so am having FEC T with Herceptin prior to the mastectomy. Friends who have had mastectomy have all had surgery first and then chemo so it did feel like I was the only one going through it this way. I know there are bound to be other women out there going this way round and like you would find it helpful to hear how they deal with it.