Hi Debbie- I too have had all these tests recently and have the same diagnosis as you ,with a 10cm tumoour. It is worrying but i have just had my first chemo on Tuesday and although felt a bit rough till now i feel really ok today. We all go threw the rollercoaster of emotions and it sucks. However the only option is positive thinking and i have been fine so far. Keep busy and keep talking and u will get threw this.
Hi Debbie - so sorry to see you here but welcome! I have Grade 2 mixed type (invasive lobular & ductal) with +ve lymph nodes. I start chemo on 16th and have had bone scan, ct and go to have tracer coil fitted on Tuesday. I am having FEC-T so expect it to be a bit rough, then have to have surgery and rads but at the end I will be healthy and cancer free (+ve thinking!!!). This is the only outcome I am prepared to consider as otherwise what is the point of going through all this crud!! Just take each day as it comes if possible and deal with them one at a time. Many people in this site will offer advice and support so keep posting and just allow yourself to feel whatever comes. Sending lots of support and best wishes.
Debbie I am so sorry for what you are going through. If my experience can help you at all I thought I would share it. I had the blue dye and sentinal biopsy. It wasn't that bad and I didn't have to stay in overnight.
I then had chemo before surgery. For me, the chemo was very effective and because the lump was still there I was getting constantly monitored and we watched the lump shrink! It was great to know the chemo was working, I think if you have chemo after surgery you just have to HOPE it's doing something, whereas I had MRI evidence (and I could feel it myself) of how much it was shrinking with every treatment. That's the way I chose to look at it anyway!
Another good thing is that I was then able to have less of a surgery. Because the lump was quite big at the start I definitely would have had to have a total mastectomy, as it happened by the time it came to surgery time there was hardly anything left to remove and so I only had to have a partial mastectomy.
There are no two ways about it the next few months are going to be challenging. But there is a lot of support available on here. A year ago I didn't think I could do it either. It is a horrible place to be in so I just wanted to let you know you are not alone. Very best wishes to you xxxxxx
I got the results of the biopsy yesterday, I am constantly being told to think positively so I had almost convinced myself that they had made a mistake and the results would be good news.
Unfortunately, yet again, positive thinking didn't change the news.
Invasive Lobular Carcinoma.
The action plan is as follows:
Today - phone call at 9:30 asking me to come in for pre-op at 10:30 (I was still in bed and the hospital is 30 mins drive) 3 hours at the hospital being questioned about everything, weighed, measured, prodded and bled.
Monday I have to go and be injected with blue radioactive s**t that will turn the lymph nodes in my armpit blue. This will be followed by and xray.
Tuesday I go in for sentinal node biopsy - I may have to stay in over night although I hope not.
Thursday I have to see the oncologist to discuss when I start Chemo.
I will also have to have a CT scan and a bone scan.
I have been told I will have to have about 4 months worth of Chemo followed by a mastectomy.
I am terrified, and think that this is the beginning of the end. I would love to hear from anyone who has been through what I am going to go through.