Why is it weird to want to feel safe in the knowledge that I was doing all I could to get rid of my squatter? I've suffered worse things than BC. I have Rheumatoid Arthritis, Sjorgren's Syndrome, Bronchiectasis with Pseudomonas colonies in my lungs, Hypertension, Osteopenia, Nodular Prurigo (15 months of constant, intense itching) Lichen Simplex, and now to add to my list, Rheumatoid Vasculitis. At least 3 of those conditions could be fatal (RA, RV and Hypertension) am I weird for knowing that all the treatments are in place to keep these things under control? I don't think so.
You all seem so strong and possitive, the chemo road is long and scary but I am so impressed by everyones strength.
Cold cap or not to cold cap, at the moment I am going to give it a go, if it doesn't suit me I can at least say I tried. Went for a stress and relaxation class today a Macmillan and met a lovely lady who had just had her second round of fec-t last week and she looked lovely and can I say she was sporting a really lovely wig. This made me feel more possitive although I am still quite attached to my own hair.
Hope everyone has a good day tomorrow or should I say today, one step closer to beating this x
Yes ......it's a tough decision but if it's offered..........go for it...............
You won't regret it...............
Thank you for the advice and good luck with the radiotherapy.
There are so many decisions to make and any advice given from you lovely ladies is appreciated. To be honest my husband will not be back from work till 14 days after my first chemo and I would really like to greet him at the airport with my own hair, at least if it goes after that he will be there for the big shave
I did try the cold cap but my hair has still fallen out anyway although it was about 2 weeks after my 2nd lot of FEC when I really noticed it. However I am really pleased with my wig and have got quite used to it now. I just have radiotherapy to go now and see my oncologist tomorrow to start planning it.
Good luck with the chemoMel67.
PS if you get the choice of having a pic line or porta cath go for the porta cath. I have one and it is brilliant as it is completely under the skin and offers no risk of infection and you can shower normally.
Was told by the onc i will need six rounds of fec-t starting on the 1st October, will not need radiotherapy but will have 18 shots of heceptin.
Just spoke to the breast care nurse and she has arranged an appointment for the 30th September to go for a wig. Yesterday I was sure I was going to wait for my hair to start to fall out and then get it all shaved off but today I am considering the cold cap and quite fancy getting it cut like Meg Ryan (not that I will ever look like her - I wish) this will mean i dont need to touch it with the straightners x
I had chemo before surgery so not really in the same position as you. However I am glad I had it as was told by my consultant I would definitely have to have a mastectomy and removal of lymph nodes. After my FEC-T my tumour had shrunk so much I only needed a WLE and node clearance. I really feel chemo is worth having and not as scary as I thought it would be. Hope that helps.
I like you had a breast removed and all lymph nodes 4 weeks ago and am waiting to see the oncologist on the 25th re chemo and radio-theraphy. I have already been told it will be 6 sessions. How many sessions do you need? I am a little daunted about it all and losing my hair etc but I guess after what we have already been through it is small compared and hopefully once I have had it all explained next week it will be easier. Try and keep positive.
I loved having chemo, it made me feel so safe. Remember, it's YOUR body, nobody elses. Good luck, whatever decision you make. xx
I had my onc appointment yesterday and they didnt give me a decission it was a case of your having chemo, I get where your coming from about having to decide I dont know how I would have coped. I feel like I have been put on a rollercoster and they wont let me off.
Life at the moment is not good but we have to be strong and you need to do what is best for you as you have the rest of your life in front of you
Sorry to hear you're in such a predicament, not knowing what to do for the best. Please do give our helpline team a ring and talk through your thoughts/feelings with them. It's often good to talk to someone independant from family and friends as you get unbiased answers to your questions. Lines are open now, and until 5pm tonight. 0808 800 6000