Chemo.

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I had a wire guided local excision and SNB 12/11/2014.

 

My tumour was 1.2cm.grade 2. Ductal invasive. 

All went ok apart from me being allergic to the blue dye. Came out in wheals blue/green. also red rash in places.eyes looked like i had blue eye shadow applied. Arms and legs had swelled a little. 

 

Recovered from all that. Wounds healing ok.Feeling fine.

 

Got my result 12 days later.Last Friday.

Tumour was slightly bigger 1.6cm. 

Was shocked to find it had spread. They found a dot less than 2mm in one of my nodes.

 

So now I am waiting for appointment to see the Oncologist as chemo recommended.

My appointment to see consultant again has come through for end of March.

So I had a biopsy initially (20.10.2014 ) then surgery.

To be followed by chemo, then more surgery ( axilla clearance ) then radiotherapy.

 

 Obviously no one wants to go through any of this.

I was initially told I wouldnt be having any chemo, 

So now have to get my head round that.

 

Just wanted to say Thanks for the support so far to all on this site.

 

Is there anyone else that was allergic to the blue dye ? 

With regards to chemo are there any choices about the type/ combination of meds? 

How is it administered ? 

 

I should really wait to see what my treatment is but no idea how long it will be before I see oncologist.

It shouldn’t be too long as I haven’t had too long to wait so far for any of my appointments. 

Its still a wait and I am scared. I was scared of the operation before as up untl now had been ok health wise.

 

Its just the waiting and not knowing keeping me awake. I cry myself to sleep most nights.

 

 

 

 

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Morning Balli-Boo I too had surgery on the 19.11.14 my tumour was less than 1cm grade 2 duct all invasive I got my results on Tuesday no invasion of sentinel nodes so they are happy that I don’t need further surgery but it was a bit of a double edged sword I have triple positive BC which I think me and that I am p+ o+ Her+ therefore because all hormone related I now have to have a CT scan Chemo and Herceptin ,the BCN said it’s a really good diagnosis as there is no spread ,but I am terrified trying to keep a lid on it for my family
My wounds are fine I can drive again so going to go back to work I need some focus rather than sitting thinking
I seem to be sleeping ok dreaming a lot of rubbish but once I wake up my mind is going to places I don’t want to go must say once I am up I am more logical if that makes sense ?
I suppose it’s natural to feel like we do we have a journey to go through but with the help of our family and friends we can get through this this forum helps to talk about our anxieties without upsetting our loved ones .
I know once I have been through the next scan and seen the oncologist and start my treatment I will feel a little more under control
Please keep in touch and we can go through this together supporting each other
Take care and good luck with your next stage
Elaine
X

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Hi all - am at similar stage I think to many of you. Mastectomy 19/11; results today- 13mm tumour, grade 3; ER neg, PR neg; HER2 unclear- sent for re -testing . Micro amount of cancer cells <2mm in 2 lymph nodes. Chemo (a surprise -had hoped to avoid this- is policy changing re this?) plus rads after that. No date for onc yet but prob mid jan and starting chemo soon after that. Feels like life for next 9 months suddenly put on hold. Value the info and support here v much - thanks to all. Keep updating and I guess we’ll meet up on a January chemo thread!

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Hello ladies, I’m a bit ahead of you, started chemo end October had 2nd round last week, so am part of October and November groups,

Ball boo your oncologist and surgeon will decide the best way forward for you. They are the specialists so you don’t get a choice of what you have. Chemo is given by a series of syringes into a vein in your arm or you have a line or port fitted in your chest which I have.

Depending on your chemo regime you will have a number if sessions over possibly 3 of 4 months. For me on FEC-t it’s 3 sessions of FEC at 3 weekly intervals follow by 12 weekly sessions of taxane. The FEC is 3 different drugs, I think there’s 3 syringes of each, it takes about an hour to administer. I’m also using a cold cap to hopefully reduce hair loss, thus goes on before treatment and stays on for a while after, so the whole thing is about 3 hours.

Annie I think chemo is always suggested if lymph nodes are involved.

Again Elaine, the ct scan is to check there’s no spread. I had one as I had 26 lymph nodes affected plus 2 large grade 3 tumours. CT was clear but having chemo and radio to mop up any stray cells .

Keep reading the posts and asking questions, I didn’t find the forum til after surgery and first chemo - went back to surgeon armed with questions I should have asked earlier!

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What a week Maggie ! Hope you have some fun stuff in between times. Love A

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Hello ladies.

Thank you for the valuable information and thanks for sharing.

It really does help.

 

Still waiting on HER2 result. Not sure why its taken so long.

 

Wishing you all the best.

Keep in touch. 

Xxx

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Bali boo, HER2 took ages for me too!

Masa vid good news re scan, all the best for your busy week x

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I think you’ve got it covered. They will tell you loads anyway. Some people have mentioned a diet sheet which I didn’t get. Can’t think of anything else. Good luck

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Maggie do you have any redness of swelling? You need to watch out for infection and get antibiotics. I’m on my third lot post op and always starts with feeling freezing cold! My wound had opened up and I can see the implant! Nice! Seeing surgeon today, hopefully she’ll sort me out but I keep imagining I’ll have to have an op to remove it and start again. Happy Christmas!

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That’s awful - perhaps a combination of stress, anticipation and cold winds ?- fingers crossed for you . Try a hot ginger and lemon? Had a terrible dream last night about first meeting with oncologist ( looks as if this may be Xmas eve now!) . Sending you toasty hugs and get well wishes. Love A