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Chemo.

21 REPLIES 21
maggie59
Member

Re: Chemo.

Hi Ladies

 

I dont know what it was, most strange. Only thing I can think of was dentist but never happened before. Mind a lot of things are happening that I have never experienced before Smiley Sad

 

Hot ginger, lemon and maybe some Manuka honey and whisky later - yuuuuuuuuum.

 

Got to go out and do a bit of work for an hour and then back in and to bed I think.

 

Annie - what a Christmas present! At least hopefully the onc will be in a good mood!!

 

Maggie x

Katherine62
Member

Re: Chemo.

Hope you're feeling better today Maggie love. It is all a DREADFUL performance isn't it?

Keep on with the lemon and ginger

XX jane

Annie25
Member

Re: Chemo.

That's awful - perhaps a combination of stress, anticipation and cold winds ?- fingers crossed for you . Try a hot ginger and lemon? Had a terrible dream last night about first meeting with oncologist ( looks as if this may be Xmas eve now!) . Sending you toasty hugs and get well wishes. Love A
maggie59
Member

Re: Chemo.

Hi

 

I have had problems with the T of the wound opening up and was on anti-biotics for a while. That seems to have sorted itself out with the inidine although being checked weekly. The side of the breast looks red but the surgeon saw it on Friday and says that he just thinks it is bruising coming out.

The good news is that my temperature is back to normal this morning so hopefully they will be able to proceed with my portocath and chemo. Will get the breast checked at the hospital though and might ask for some antibiotics in case.

I dont think that I have ever felt so cold. Husband came up to fnd me in bed, wearing dressing gown with hood up, duvet and fleece throw over me shaking like a leaf.

Does your temp go down on its own or do you have to take the antibiotics?

Sorry to hear about your implant - sounds awful - good luck today.

 

M x

riversidedawn
Member

Re: Chemo.

Maggie do you have any redness of swelling? You need to watch out for infection and get antibiotics. I'm on my third lot post op and always starts with feeling freezing cold! My wound had opened up and I can see the implant! Nice! Seeing surgeon today, hopefully she'll sort me out but I keep imagining I'll have to have an op to remove it and start again. Happy Christmas!
Balli-Boo
Member

Re: Chemo.

Sorry to hear this Maggie. I dont know anything to help other than what you have already done. 

ie. called the emergency number. 

Wishing you a speedy recovery.

x

 

maggie59
Member

Re: Chemo.

Hi Annie

Not having much fun at the mo...

Went for pre op assessment ( before GA to have Portocath, yay) and was ok but felt cold and blood pressure sky high as usual. White coat syndrome!

Then went to dentist for replacement filling then into town with son to get more skiing gear. Felt really really cold and shaky and when got home came to bed buried in fleeces.

Temperature now nearly 39c. Called the hospital and the said paracetamol, fluids and to call the ward if gets much above 39. I hope that because it came on so quickly then it will go equally quickly or all my best laid plans will be put back another week.

Really really fed up. Feel like I have been through a mangle.

Maggie x
Balli-Boo
Member

Re: Chemo.

Thank You.

really appreciated.

 

How are you ?

 

 

 

riversidedawn
Member

Re: Chemo.

I think you've got it covered. They will tell you loads anyway. Some people have mentioned a diet sheet which I didn't get. Can't think of anything else. Good luck
Balli-Boo
Member

Re: Chemo.

Hi.

Hope your ok. 

 

Hope the cold cap is working for you and that your not suffering too many nasty side effects. 

 

I decided to stay off work the whole time. I usuall commute on rush hour trains.

I am a very emotional sort of person and just burst into tears ever so often. I couldnt handle the physical aspect of getting into work nor the hassle of work itself. 

 

I am seeing oncologict Fri 2pm. 

I am planning to write  down my list of questions.

 

Other than what drugs / how are they given / what intervals and side effects/ plus cold cap or not 

What else in your opinion, do I need to ask ? 

 

I thought I would ask you as your a month or two ahead of me me.

Really appreciate any comments you may have.

Thank You and good luck.

xxx

riversidedawn
Member

Re: Chemo.

Bali boo, HER2 took ages for me too!

Masa vid good news re scan, all the best for your busy week x
Balli-Boo
Member

Re: Chemo.

Hello ladies.

Thank you for the valuable information and thanks for sharing.

It really does help.

 

Still waiting on HER2 result. Not sure why its taken so long.

 

Wishing you all the best.

Keep in touch. 

Xxx

Annie25
Member

Re: Chemo.

What a week Maggie ! Hope you have some fun stuff in between times. Love A
maggie59
Member

Re: Chemo.

Morning. Someone else who can't sleep?! What are we doing awake at this time on a Saturday morning?

I heard yesterday that my bone scan is clear so that should be the final one, oh except for the heart scan that they want to do as a benchmark before starting chemo.

Fun week for me. Dentist Monday for replacement filling that needs to be done, Portocath being fitted Wednesday then first EC chemo Thursday. Have to say I will be glad when it's over.

Hats and wig at the ready although not getting the latter properly fitted and styled until my own hair has fallen out as it sits a bit 'high'. Won't bother with cold cap as it prolongs being at the hospital.

I will join you in the December and January chemo threads.

Maggie x
riversidedawn
Member

Re: Chemo.

Hello ladies, I'm a bit ahead of you, started chemo end October had 2nd round last week, so am part of October and November groups,

Ball boo your oncologist and surgeon will decide the best way forward for you. They are the specialists so you don't get a choice of what you have. Chemo is given by a series of syringes into a vein in your arm or you have a line or port fitted in your chest which I have.

Depending on your chemo regime you will have a number if sessions over possibly 3 of 4 months. For me on FEC-t it's 3 sessions of FEC at 3 weekly intervals follow by 12 weekly sessions of taxane. The FEC is 3 different drugs, I think there's 3 syringes of each, it takes about an hour to administer. I'm also using a cold cap to hopefully reduce hair loss, thus goes on before treatment and stays on for a while after, so the whole thing is about 3 hours.

Annie I think chemo is always suggested if lymph nodes are involved.

Again Elaine, the ct scan is to check there's no spread. I had one as I had 26 lymph nodes affected plus 2 large grade 3 tumours. CT was clear but having chemo and radio to mop up any stray cells .

Keep reading the posts and asking questions, I didn't find the forum til after surgery and first chemo - went back to surgeon armed with questions I should have asked earlier!
Woodview
Member

Re: Chemo.

Hi all I got my results Tuesday no sentinel node spread but triple positive o+ p+ her2+ so having chemo,herceptin and hormone treatment I see oncologist Monday for plan of action and having a CT scan ,have any of you ladies had to have a scan ? I think I will also be joining the December /January thread ,I too value the support and have been reading the comments in preparation
And so the journey starts
Annie25
Member

Re: Chemo.

Hi all - am at similar stage I think to many of you. Mastectomy 19/11; results today- 13mm tumour, grade 3; ER neg, PR neg; HER2 unclear- sent for re -testing . Micro amount of cancer cells <2mm in 2 lymph nodes. Chemo (a surprise -had hoped to avoid this- is policy changing re this?) plus rads after that. No date for onc yet but prob mid jan and starting chemo soon after that. Feels like life for next 9 months suddenly put on hold. Value the info and support here v much - thanks to all. Keep updating and I guess we'll meet up on a January chemo thread!
Balli-Boo
Member

Re: Chemo.lp

Hi. Thank you for replying. 

 I was just reading the December thread.

It helps somewhat. Then leads to more questions.

Like everyone on here am very emotional.

It is good to hear how everyone is doing.

Thank you to everyone who posts here.

I have picked up lots of info, perhaps a little early, but I am one of those people that need to know well in advance. 

 

Not sure about the meds, how they will be given to me, do I have any choices. Just more questions.

 

I received my appointment date today. 

Its for Friday 12th - 2pm. First appointment with an Oncologist.

So will know more then.

 

How is your treatment going ? 

 

Thanks for your help.

 

All the best.

 

 

 

Peta
Member

Re: Chemo.

Hi Balli-Boo

It's good to meet you. Many people say that the waiting around is the hardest part, it certainly was for me! I'm half way through chemo now, having another one tomorrow.

I've find the monthly chemo discussions really helpful. I started chemo in October so joined the October discussion, which you can see here

https://forum.breastcancercare.org.uk/t5/Chemotherapy-monthly-threads/Starting-Chemo-Dec-2014/m-p/91...

The ladies in there are all at the same stage as me, and it's so helpful to talk to other ladies in exactly the same position right now.

If you think you may be or are starting in December, go to the December discussion, it's just started and the ladies are talking about how they feel about starting chemo - I hope you find it useful! I'll drop by to see how you are doing. They'll be a January one along later no doubt!

I'm happy to chat here though too, so keep us updated, we are all here to help each other. Xx
Balli-Boo
Member

Re: Chemo.

Hi Elaine.Thank you for taking time to reply.

Really appreciated.

 

Its a lot to take in and to understand some of the terminology used.

 

I havent yer received all of my results.Still waiting on the HER2.

Not sure why the delay. My biopsy was done 20.10.2014.

 

My surgery was 12.11.2014.

 

I have just today received my oncologist appt date. Its 12.12.2014. Next Friday.2pm.

 

So my treatment was  surgery  then looking like  chemo, more surgery, radio, hormone treatment herceptin and tamoxifen.... as I said, havent got all results in yet.

 

I cant face work so havent been in at all since I had my biopsy.

It took a couple of weeks to heal and by then I had been diagnosed. I have been so emotional and no way could I have worked. I am going out to the park, bit of shopping here and there, trying to eat really healthily, and doing lots of exercise. I couldnt do this at work. 

 

I agree it is very supportive to hear what we are all going through.

This is a great forum and I am learning bit by bit from the women that have already been through all this.

 

I am not sure why the CT scan but hope all goes well. My next appt is 12th so will catch up after that if not befor.

You take care. 

 

Bel.

xx

Woodview
Member

Re: Chemo.

Morning Balli-Boo I too had surgery on the 19.11.14 my tumour was less than 1cm grade 2 duct all invasive I got my results on Tuesday no invasion of sentinel nodes so they are happy that I don't need further surgery but it was a bit of a double edged sword I have triple positive BC which I think me and that I am p+ o+ Her+ therefore because all hormone related I now have to have a CT scan Chemo and Herceptin ,the BCN said it's a really good diagnosis as there is no spread ,but I am terrified trying to keep a lid on it for my family
My wounds are fine I can drive again so going to go back to work I need some focus rather than sitting thinking
I seem to be sleeping ok dreaming a lot of rubbish but once I wake up my mind is going to places I don't want to go must say once I am up I am more logical if that makes sense ?
I suppose it's natural to feel like we do we have a journey to go through but with the help of our family and friends we can get through this this forum helps to talk about our anxieties without upsetting our loved ones .
I know once I have been through the next scan and seen the oncologist and start my treatment I will feel a little more under control
Please keep in touch and we can go through this together supporting each other
Take care and good luck with your next stage
Elaine
X
Balli-Boo
Member

Chemo.

I had a wire guided local excision and SNB 12/11/2014.

 

My tumour was 1.2cm.grade 2. Ductal invasive. 

All went ok apart from me being allergic to the blue dye. Came out in wheals blue/green. also red rash in places.eyes looked like i had blue eye shadow applied. Arms and legs had swelled a little. 

 

Recovered from all that. Wounds healing ok.Feeling fine.

 

Got my result 12 days later.Last Friday.

Tumour was slightly bigger 1.6cm. 

Was shocked to find it had spread. They found a dot less than 2mm in one of my nodes.

 

So now I am waiting for appointment to see the Oncologist as chemo recommended.

My appointment to see consultant again has come through for end of March.

So I had a biopsy initially (20.10.2014 ) then surgery.

To be followed by chemo, then more surgery ( axilla clearance ) then radiotherapy.

 

 Obviously no one wants to go through any of this.

I was initially told I wouldnt be having any chemo, 

So now have to get my head round that.

 

Just wanted to say Thanks for the support so far to all on this site.

 

Is there anyone else that was allergic to the blue dye ? 

With regards to chemo are there any choices about the type/ combination of meds? 

How is it administered ? 

 

I should really wait to see what my treatment is but no idea how long it will be before I see oncologist.

It shouldn't be too long as I haven't had too long to wait so far for any of my appointments. 

Its still a wait and I am scared. I was scared of the operation before as up untl now had been ok health wise.

 

Its just the waiting and not knowing keeping me awake. I cry myself to sleep most nights.