Hi Girls, I had my worst shed just before tax 2. I'm now 11 days past 3rd tax and my shedding has slowed down. I'm still loosing every day but not to bad. My hair is very thin but I'm keeping it in a pony tail everyday and am able to hide the bald patches. To others it doesn't look that bad. I'm only washing once a week and I think my hair has started to get used to it now. I change to Fec for the next 3 chemos , so I wonder what will happen then? Good luck girls xx
Hi again Nutty and all,
I`ve had 3 tax and 1 CEF (different combination in my country), 3 docetaxel and 3 CEF) and 2 CEF to go, second last next week, so counting days now to December! Saw my doctor this week and she said that she could not believe that I still have my hair, she says that 99% lose it. In my country only few use the cold cap and I have, so it definitely has helped me. My hair is thinner but it is still there. I keep it still on a pony tail and use a hair band as well but because I have a frindge, I look just normal. The frindge has not come off at all! I try to pull it, but no hair comes off. I was afarid that this CEF will take it- let`s see. My doctor told me that different countries have different regimes and combinations of these meds, about 4 different ways to proceed. I eat very healthy diet at the moement and I believe it helps. I believe in vitamins. I hope this ends soon though. Regards Sunshiney
Hi angelafitness. Re: nausea/sickness after chemo
I was very sick after my first chemo too. I let the nurses know and they changed my antisickness tablets for the next cycle - I think it was called Emend? and this did the trick. Let the staff know if it's still a problem, as there will be other meds you can try. Take care x
Hello Nutty and all,
I can share my further experience. I am now 2 weeks past my third chemo and the hair is still there. I am sheding everday but the past 4 days hardly any, so maybe it goes in "lots". So do not give up! My hair is thinner but still no one else notices it. Keep your hair in a ponytail or hairclip so that they do not fall all over the place. I use luke warm water and very gentle shampoo and conditioner. Make sure to eat vitamin rich foods everyday, prepare berry smoothies and vitamic C rich fruitsmoothies. Eat fish, nuts and seeds for good fatty acids and also protein rich food, because hair cells need protein to survive. I will have my fourth chemo next week and refuse to give up yet :)-.
Hi girls. I used the cold cap before my first chemo treatment and changed it out every 30 minutes and kept it on for 3 hrs after and 30 minutes before. I am now 20 days post first chemo treatment and the last 2 days I am losing too much hair. I followed the directions of the cold caps and wet my hair and used a plastic cover to protect the scalp. I wonder if I will lose all of my hair. I go again in 2 days for my second chemo treatment and will go ahead and use the cold caps again. My husband is my ice man and changes out the caps for me as we bring dry ice to the oncologist. I have been using baby shampoo but rinsing my hair in warm water because when I went on line and listened to the Penguin cold caps he said to use warm water. I see on some other posts that people are using cool water. Wonder which is correct. I have a wig and will probably start to use it after my second treatment but since I purchased 4 of the cold caps will go ahead and use it till the end as I only have to have 4 treatments in all. I think even if I lose patches of hair the cold caps will help to preserve what hair if left and maybe won't be so bad when it grow back after the last treatment.
Any suggestions from anyone would be greatly appreciated. Good luck everyone it helps to be able to post what is going on and hearing support is great. Thanks.
I have also used the cold cap and am now on day 15 of my first chemo. I have still got the headache but not sure if I would have had it as a normal side effect. On my 13th day I have started to shed quite abit of hair and the itching is so annoying.
I am due my next chemo next Wednesday and am not sure if I will do the cold cap again changing my mind all the time, I think if much more falls out there is no point and I will have it shaved. My hair has been the hardest thing to cope with but it would be so much easier to go in get the chemo and come out, not having to sit with the cold cap on.
I wish someone could decide for me but life is not that simple. Let me know how you get on x
I am now on day 6 after first chemo session and having used the cold cap. Is it typical to still have a niggling headache/thick head? I only really expected for the first few days but it just seems to keep lingering around. It isnt bad, just constantly there.. But at the same time I am now wondering if it is worth it?!? Feel like I am carrying a hangover (I wish! Lol) with no guarantees that it is going to work. Also wonder if mother nature is telling me to forget the cold cap s headaches aren't worth the hassle?!?
How are others getting on with the cold cap?
Welcome to the forums.
As well as the support you will receive on the forums we also have a free helpline where you can talk things through with a member of staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
With best wishes
I have had 3 rounds of Docetaxel now and 3 rounds of CEF will follow. I have used the cold caps now during all three treatments. I have, I think about 2/3 leaft of my hair. It started to fall out around the second treatment and it comes off every time I comb. But, I only comb it twice a day now and keep it in a pony tail, so that the hair is not all over the place. I wash my hair twice a week only. I use a special shampoo from the pharmacy and dab it on top of my head and gently wash my hair. I use nearly cold water. Then I dab conditioner the same way and gently rinse it off. When the hair dries out, some falls out but amazingly, a lot of it is still there, no one else has noted the difference than me. I see it is thinner but it is still there! I had medium long hair and it was dyed as well. I have bought ponytails that I use if I go out, to add to the fullness. My nurse thinks that the cold cap has definetly helped, there was one other patient who had lost all her hair already and she also had her third chemo. She is not using the cold cap. So I will try to stay positive. To me this is a big thing, I will not look great bold. And my wig is not natural, it has too much hair. I am not totally obeying patient, so I am taking silicon powder and zinc and try to make sure I eat all healthy fatty acids every day and vitamin D and C. I was told that vitamin A and E should be avoided a bit during cancer treatments, because it can affect the possible cancer cell growth. But I believe (just my own belief) that if I provide my hair the nutrients it needs, it can better survive the treament and maybe the new groth is protected. My body hairs start growing during the third week after the treament. So maybe the hair does too? Here my experience so far. Counting the days to Dec 9 which is my last chemo date. Kr. Sunshiney
I used www.heathershair.co.uk as had thin hair and a wig just seemed way too much hair. Loved my weave and it saved my sanity. Just having some hair poking out of my hat was enough for me. Take care ladies...
My first chemo was 4th September I tried the cold cap, I dealt with it really well. But sorry to say, all it left me with for 14 days was a horrible migraine, my head felt like the cap was still on my head. Today, day 19 all my hair has fallen out, so it didn' work for me. My nurse advised me that it is very rare to be successful when having FEC. I hope it works for you and give it a try, but ask your oncologist and nurse as to what they have to say.
I had my hair cut shorter because when it falls out its not to much of a shock.
I am going to see the girls at HAIRBREAST FRIENDS in Hull where they have wigs that have been donated, to try some out, winter is coming and hats are to be this years must have fashion assessory so off to Prospect Centre to this fab hat stall to get stocked up.
Good luck with everything.
Hi ladies! I started chemo in March and completed it in July. I used the cold cap and found that I kept a lot of my hair, though it did thin a bit. I did lose hair on the top of my head, which I think may have been due to the cap being too small at the first session. To be honest, I was so stressed and anxious about the chemo that I didn't really pay as much attention to finding out about the cold cap before treatment. My advice would be to make sure the cap fits well onto your head and is in contact with your scalp. The info booklet for Paxman (the system used by the hospital I attend) gave good advice on this, saying go for the bigger size if between 2 sizes. Unfortunately I only saw this info after my first session, by which time I had lost the hair! However, what I found was that I hardly lost any more hair over the next 5 sessions, so it's definitely worth getting the fit right. With hindsight, I would definitely have spent more time checking this out on my first session! The good news is that the hair on my scalp has now grown in really well, and again I think the scalp cooling has helped with this.
I had shoulder length hair when I started my treatment and was told that I didn't need to get it cut. It's a personal preference I think. It may be easier to manage a shorter cut, but long hair can be tied back/pinned up.
Something I found helped was picturing myself on a lovely warm sandy beach during the first 20 mins/half hour of treatment. I also sucked mints, and I had magazines which I could flick through, as I couldn't concentrate on reading much.
Hope this helps (and makes sense!). Good luck to you both.
Love and hugs xx
Hi can anyone help me decide what to do, I start chemo next week and have asked if I can try the cold cap,as Im told it minimises your hair loss. Not sure what to do with my hair, I have shoulder lenght hair at the moment, and I am off to the hairdressers Tomorrow, shall I go even shorter? Should I still have it coloured as well?