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Cold Cap

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Re: Cold Cap

Hi Girls,  I had my worst shed just before tax 2.  I'm now 11 days past 3rd tax and my shedding has slowed down.  I'm still loosing every day but not to bad.  My hair is very thin but I'm keeping it in a pony tail everyday and am able to hide the bald patches.  To others it doesn't look that bad.  I'm only washing once a week and I think my hair has started to get used to it now.   I change to Fec for the next 3 chemos , so I wonder what will happen then?  Good luck girls xx 

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Re: Cold Cap

Hi hopalong i was day 19 first fec when my started sheding. had 2nd fec this mon and by wed had to wash my hair and it all matted together so had to have it cut shorter to shoulder and its now loads thinner was lovely and thick up to this week. Im now wondering whether to carry on just cant imagine losing all my hair but hate it how it is now as cant do anything with it. Keep going with yout next fec and cap sounds like its helping. X
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Re: Cold Cap

Can't remember if I have commented on this thread before. I am day 17 post first EC and cold capped mine is the refrigerator unit type (walk the walk) I also hate the way my hair looks at minute to me it's really greasy and makes me feel dirty am being good and only washing once a week/ wide comb use. Am starting to shed lots today only have to move my head and it falls on to face and shoulders. Am wearing my towelling turban to bed tonight. And wondering if it is worth continuing becausr i really dont like the way i look at the moment. Went to supermarkets in a scarf and felt more confident than when i went with greasy hair. seen by a lovely wig lady today and she had a really good look at hair and said it was doing well and no bald patches and to keep going and you will know if it works after 2nd more than 1st. She said the key to its success is the fit/tightness of the cap.

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Re: Cold Cap

Hi again Nutty and all,

 

I`ve had 3 tax and 1 CEF (different combination in my country), 3 docetaxel and 3 CEF) and 2 CEF to go, second last next week, so counting days now to December! Saw my doctor this week and she said that she could not believe that I still have my hair, she says that 99% lose it. In my country only few use the cold cap and I have, so it definitely has helped me. My hair is thinner but it is still there. I keep it still on a pony tail and use a hair band as well but because I have a frindge, I look just normal. The frindge has not come off at all! I try to pull it, but no hair comes off. I was afarid that this CEF will take it- let`s see. My doctor told me that different countries have different regimes and combinations of these meds, about 4 different ways to proceed. I eat very healthy diet at the moement and I believe it helps. I believe in vitamins. I hope this ends soon though. Regards Sunshiney

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Re: Cold Cap

Hi everyone in new to this thread in on oct chemo thread at moment. Had my first fec on oct 20 and used the cold cap all was good and didnt start losing any hair till day 19. Bit only strands as i brushed.
Had second fec this mon 10 nov again used cold cap. Wed this week washed it and all changed - for some reason my hair matted together and as i washed it over the bath it stuck to the top of my head. My lovely hairdresser who has been through BC herself came and had to chop it out im now left with thinning over the top of my head and very concious. I think i will carry on reading some of your comments its helped me.
I have 1 more fec for around 1 dec then move to t for last 3. Xxxx
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Re: Cold Cap

Just wondering how cold caps are going - I've had 3rd tax now - still got hair - thin - but it's there - move on to Fec next
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Re: Cold Cap

Hi angelafitness. Re: nausea/sickness after chemo

 

I was very sick after my first chemo too. I let the nurses know and they changed my antisickness tablets for the next cycle - I think it was called Emend? and this did the trick. Let the staff know if it's still a problem, as there will be other meds you can try. Take care x

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Re: Cold Cap

Hi,
It seems that others are less bothered than us- all my friends just tell me to go bold- it`ll grow back, they say. But that is not me! I have bought extensions and ponytails and create different hairdos with those. Still got hair and fourth treatment tomorrow. I think I will cut a shorter bob when the chemo is over, if any hair left that is! Take care Nutty! I am sure you still look beautiful you!
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Re: Cold Cap

Hi Sunshiney and all

Still got hair - it seems really thin to me - but others say they can't really notice - keeping my hair in ponytail all the time - only washing it once a week now . Just wondering if any one has worn wig to go out? I'm not sure if I wear mine when I go out it will make hair shed worse? I hate the way my hair looks now - I know I shouldn't complain because I still have quite a bit - but they way it looks just isn't me . Thanks Girls - take care xx
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Re: Cold Cap

Hello Nutty and all,

 

I can share my further experience. I am now 2 weeks past my third chemo and the hair is still there. I am sheding everday but the past 4 days hardly any, so maybe it goes in "lots". So do not give up! My hair is thinner but still no one else notices it. Keep your hair in a ponytail or hairclip so that they do not fall all over the place. I use luke warm water and very gentle shampoo and conditioner. Make sure to eat vitamin rich foods everyday, prepare berry smoothies and vitamic C rich fruitsmoothies. Eat fish, nuts and seeds for good fatty acids and also protein rich food, because hair cells need protein to survive. I will have my fourth chemo next week and refuse to give up yet :)-. 

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lsRe: Cold Cap

Hi girls.  I used the cold cap before my first chemo treatment and changed it out every 30 minutes and kept it on for 3 hrs after and 30 minutes before.  I am now 20 days post first chemo treatment and the last 2 days I am losing too much hair.  I followed the directions of the cold caps and wet my hair and used a plastic cover to protect the scalp.  I wonder if I will lose all of my hair.  I go again in 2 days for my second chemo treatment and will go ahead and use the cold caps again.  My husband is my ice man and changes out the caps for me as we bring dry ice to the oncologist.  I have been using baby shampoo but rinsing my hair in warm water because when I went on line and listened to the Penguin cold caps he said to use warm water.  I see on some other posts that people are using cool water.  Wonder which is correct.  I have a wig and will probably start to use it after my second treatment but since I purchased 4 of the cold caps will go ahead and use it till the end as I only have to have 4 treatments in all.  I think even if I lose patches of hair the cold caps will help to preserve what hair if left and maybe won't be so bad when it grow back after the last treatment.

Any suggestions from anyone would be greatly appreciated.  Good luck everyone it helps to be able to post what is going on and hearing support is great.  Thanks. 

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Re: Cold Cap

Hi Girls - had my second (T) on Tuesday - and my hair seems to have slowed down with the shed - not sure if it will speed up again but not as bad as before. I didn't get a headache from CC - but my head did feel tingly - good luck girls xx
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Re: Cold Cap

Hi Tanz

I have also used the cold cap and am now on day 15 of my first chemo. I have still got the headache but not sure if I would have had it as a normal side effect.  On my 13th day I have started to shed quite abit of hair and the itching is so annoying.

I am due my next chemo next Wednesday and am not sure if I will do the cold cap again changing my mind all the time, I think if much more falls out there is no point and I will have it shaved. My hair has been the hardest thing to cope with but it would be so much easier to go in get the chemo and come out, not having to sit with the cold cap on.

I wish someone could decide for me but life is not that simple. Let me know how you get on x

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Re: Cold Cap

I am now on day 6 after first chemo session and having used the cold cap.  Is it typical to still have a niggling headache/thick head?  I only really expected for the first few days but it just seems to keep lingering around.  It isnt bad, just constantly there.. But at the same time I am now wondering if it is worth it?!?  Feel like I am carrying a hangover (I wish! Lol) with no guarantees that it is going to work.  Also wonder if mother nature is telling me to forget the cold cap s headaches aren't worth the hassle?!? 

How are others getting on with the cold cap?

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Re: Cold Cap

Hi Sunshiney - thank you for the tips - it quite scary how much falls out. I am wearing mine in a low pony tail too - my hair look so horrid at the moment - I haven't dyed it since the beginning of August . I keep reading that if you keep cold capping you hair grows back quicker - this is what I have to keep in mind. I'm counting my days down - I should finish on 6th Jan - I've got an app with a count down on and each day I take a look - Good luck with the rest of your treatment - take care xx
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Re: Cold Cap

Hello Sunshiney

 

Welcome to the forums.

As well as the support you will receive on the forums we also have a free helpline where you can talk things through with a member of staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.

 

With best wishes

June, moderator

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Re: Cold Cap

Hi Nutty,

 

I have had 3 rounds of Docetaxel now and 3 rounds of CEF will follow. I have used the cold caps now during all three treatments. I have, I think about 2/3 leaft of my hair. It started to fall out around the second treatment and it comes off every time I comb. But, I only comb it twice a day now and keep it in a pony tail, so that the hair is not all over the place. I wash my hair twice a week only. I use a special shampoo from the pharmacy and dab it on top of my head and gently wash my hair. I use nearly cold water. Then I dab conditioner the same way and gently rinse it off. When the hair dries out, some falls out but amazingly, a lot of it is still there, no one else has noted the difference than me. I see it is thinner but it is still there! I had medium long hair and it was dyed as well. I have bought ponytails that I use if I go out, to add to the fullness. My nurse thinks that the cold cap has definetly helped, there was one other patient who had lost all her hair already and she also had her third chemo. She is not using the cold cap. So I will try to stay positive. To me this is a big thing, I will not look great bold. And my wig is not natural, it has too much hair. I am not totally obeying patient, so I am taking silicon powder and zinc and try to make sure I eat all healthy fatty acids every day and vitamin D and C. I was told that vitamin A and E should be avoided a bit during cancer treatments, because it can affect the possible cancer cell growth. But I believe (just my own belief) that if I provide my hair the nutrients it needs, it can better survive the treament and maybe the new groth is protected. My body hairs start growing during the third week after the treament. So maybe the hair does too? Here my experience so far. Counting the days to Dec 9 which is my last chemo date. Kr. Sunshiney

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Re: Cold Cap

Hi

Just wondering how your getting on with the cold cap - I have my 2nd chemo on Tuesday (all being good with me bloods). I'm having Fec-t having the t part first. My hair has really started to come out over the last few days - but I don't think its noticeable yet .
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Re: Cold Cap

Hi

I've just finished four sessions of Taxotere and cyclophosphamide with Herceptin. I wore the cold cap each time and although I shed a lot no one would notice (except my family) and I haven't needed hats. IFound it uncomfortable for about ten mins and then your head goes numb. Make sure hair very damp and put on conditioner. Also make sure the fit is tight. I think it very much depends on your treatment regime too. Good luck xx
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Re: Cold Cap

Hi had a look on the website for the weaves they look amazing, how much did you donate? Did you order just one or two?
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Re: Cold Cap

I went for my first chemo session wednesday and decided against the cold cap because 1. The success rate is not very good. 2. I have fine hair. 3. I suffer a lot with headaches already and have problems with my sinuses so feel it was the best decision for me. Having the treatment was ok, I even had a lady give me a lovely foot massage, this helped to pass the time. I felt ok when I come home but then around tea time the sickness started omg thought I was dying! Anti sickness tablets did not seem to work, really scary stuff. This morning however a have managed to have a piece of and cup of tea and kept it down. My face this morning seems a little flushed but upto now feeling ok. Anybody felt the same as me? And how have you coped with the sickness?

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Re: Cold Cap

I used www.heathershair.co.uk as had thin hair and a wig just seemed way too much hair. Loved my weave and it saved my sanity. Just having some hair poking out of my hat was enough for me. Take care ladies...

 

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Re: Cold Cap

My first chemo was 4th September I tried the cold cap, I dealt with it really well. But sorry to say, all it left me with for 14 days was a horrible migraine, my head felt like the cap was still on my head. Today, day 19 all my hair has fallen out, so it didn' work for me. My nurse advised me that it is very rare to be successful when having FEC. I hope it works for you and give it a try, but ask your oncologist and nurse as to what they have to say.

I had my hair cut shorter because when it falls out its not to much of a shock.

I am going to see the girls at HAIRBREAST FRIENDS in Hull where they have wigs that have been donated, to try some out, winter is coming and hats are to be this years must have fashion assessory so off to Prospect Centre to this fab hat stall to get stocked up.

Good luck with everything.

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Re: Cold Cap

Thank you tough one I will keep you posted, I go Tuesday for a chat with chemo nurse then 1st treatment Wednesday. I think I will give the cold cap ago!
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Re: Cold Cap

I used the cold cap for my first two chemo sessions. I had think shoulder length hair and lost quite a lot after the first time as I think my hair was so thick it didn't get through enough. After that session I had my hair cut shorter and used it the next time and hardly lost any more really - it is considerably thinner but if you didn't know me you wouldn't notice! However I have to say, the first 10-15 minutes was extremely painful, to the point I was crying. I decided not to use it this time as to be honest I'm not too fussed about the hair loss thing and realised I was doing it more for everyone else to stay looking 'normal!' . Everyone's experience will differ, good luck whatever you decide. Xxx
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Re: Cold Cap

Hi yes I'm having a lot cut off first then have yo dampen and slather on conditioner will advise how it goes . I am keeping the hair in case I want extensions made with my own hair x
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Re: Cold Cap

Hi Samantha. Did you not try the cold cap? I am the same as you with fine hair,so don't know whether its worth going through the extra discomfort of the cold cap.
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Re: Cold Cap

Hi debtex. How did you get on with your pre chemo meet with the nurse? Did she give you any advice on whether or not to have your hair cut? Are you still going to try the cold cap?
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Re: Cold Cap

I have thinish hair anyway, and decided to lose my hair and enjoy a luxurious wig. In the warm weather it gets hot, but I couldn't cope with headaches and lengthened time in the day unit.
Being baldish also reminds me and others that I am battling something. I have however clung onto eyelashes and eyebrows with a product from spacenk. Talik
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Re: Cold Cap

yes, damp hair and conditioner. Sorry, what I meant about contact was with the top of your head! The cap should fit and touch your head on top. The first one I tried was too small and so it stuck up at the crown - I think this is why I lost hair in this part of my head. Sorry for confusion - I'm still suffering from chemo brain ten weeks on!! x
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Re: Cold Cap

Thanks cheery 13 . Did u damp ur hair & slick conditioner on ? I'm confused about the cap making contact with scalp how can it if u have a full head of hair ? Help ! Thanks for the beach tip club tropicana all the way !! X
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Re: Cold Cap

Hi ladies! I started chemo in March and completed it in July. I used the cold cap and found that I kept a lot of my hair, though it did thin a bit. I did lose hair on the top of my head, which I think may have been due to the cap being too small at the first session. To be honest, I was so stressed and anxious about the chemo that I didn't really pay as much attention to finding out about the cold cap before treatment. My advice would be to make sure the cap fits well onto your head and is in contact with your scalp. The info booklet for Paxman (the system used by the hospital I attend) gave good advice on this, saying go for the bigger size if between 2 sizes. Unfortunately I only saw this info after my first session, by which time I had lost the hair! However, what I found was that I hardly lost any more hair over the next 5 sessions, so it's definitely worth getting the fit right. With hindsight, I would definitely have spent more time checking this out on my first session!  The good news is that the hair on my scalp has now grown in really well, and again I think the scalp cooling has helped with this.

 

I had shoulder length hair when I started my treatment and was told that I didn't need to get it cut. It's a personal preference I think. It may be easier to manage a shorter cut, but long hair can be tied back/pinned up.

 

Something I found helped was picturing myself on a lovely warm sandy beach during the first 20 mins/half hour of treatment. I also sucked mints, and I had magazines which I could flick through, as I couldn't concentrate on reading much. 

 

Hope this helps (and makes sense!). Good luck to you both. 

 

Love and hugs xx

 

 

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Re: Cold Cap

Hi Angela I'm going to try cold cap too and I don't know what to do with my hair either ! It's long and thick , no layers and dark brown but really it's grey ! One of the chemo nurses told me not to bother cutting it if I didn't want to but I can't see how the cap can work unless it's shorter and layered . I'm going again for a pre chemo check on weds so will ask more . I quite fancy a complete change whether or not I manage to keep or loose my hair . I think colour and be damned ! Let me know how it goes x
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Cold Cap

Hi can anyone help me decide what to do, I start chemo next week and have asked if I can try the cold cap,as Im told it minimises your hair loss.  Not sure what to do with my hair, I have shoulder lenght hair at the moment, and I am off to the hairdressers Tomorrow, shall I go even shorter? Should I still have it coloured as well?