I really, really wanted the Cold Cap to work for me and I'm glad to read that for so many people it did. My problem is I have curly hair and that is why it didn't work.
I used it for my first 2 chemo cycles (really painful for the first 5 mintues but after that just uncomfortable and annoying!) - after my 2nd cycle my hair really started falling out which I was expecting but, as it is curly, it doesn't fall out as straight hair would, it just clings to the rest of my hair. Consequenly I ended up with matted lumps that no amount of conditioner or gentle combing (hubby did his best) - or anything could help.
I'm not bothering for the 3rd cycle as what little hair I have left isn't worth keeping and the pain and annoyance factor of the CC simply isn't worth it for me.
So, ladies with curly hair, you have been warned. I hope it is a different experience for you but this was mine and if I had known in advance I wouldn't have put myself through the CC experience at all.
Hi Lynn, I'm 3 and a half weeks post FEC T chemo and cold capped. I very nearly gave up,after number 4 but stuck with it and I'm glad I did. My hair thinned a lot about three weeks after the first chemo but after that I just shed hair gradually. I did not have any bald patches just thin and wispy hair. It started to grow back after my second T and is now coming back really quickly as I thnki the cold cap protected the follicles.
dont expect your hair to look like it did before as it will thin, but long term you will have a head start and new growth will be quick. I could not have coped with being bald and I have total respect for those who do. Cold capping was hell but it was something I had control of that at least reduced one of the many horrible side effects!
i am now using a shampoo called grow me and I even had my hair trimmed last week to get rid of the straggly ends. It's not the long blonde hair I had before but it is hair on my head!!
Good luck with it and don't be too disheartened by the initial hair loss
I am 6 weeks past my last FEC and cold capped the whole time. Lost about 2/3 and almost all on the back. Now I have dark layer of half an inch on the top of my head and starting to see new hair at the neckline, so I think coldcapping does protect the roots. It seems to just gone wild and wants to grow which is really great! I used very mild shampoo and conditioner during the treatments and only washed once or twice a week and combed as little as possible. It keeps sheding but be patient, not all of it comes out necessarily. Good luck!- Sunshiney-
Ive cold capped for EC 1 and 2 and Im due number 3 tomorrow and just not sure if its worth continuing with the cold cap as my hair started to seriously shed 3 weeks after the first treatment and has continued ever since. My hair (like so many of us) has gone on the top, at the back and there's a bald patch at the side also. I've had it cut very short as hair falling in and onto every thing was getting me down. What is left is not worth having and looks such a sight so Im covering up with pretty scarves, hats etc.
I had made the decision to shave but just I carn't. I've read somewhere that cold capping improves the condition of the new hair when it grows back. Does anyone know know if this is actually true and evidence based or just works for some and not others.....
My hair began falling out like yours after 1st FEC, it only thinned, I had it cut from bra line to shoulder length before starting. Then when it thinned I've gone between jaw and shoulder so I can still tie it up in a comb over pony tail to hide the thin top. I have not bald patches and did not lose any with FEC2 or 3. I'm day 20 now after 3 and about to start taxol. So don't go too short as you can disguise any thin bits so easily!
I was told to use shampoo and conditioner with no perfume or colourings and as natural as possible. I've been using an organic one from the health shop. Don't know if it makes any difference at all. My nurse said the no perfume bit is really because of nausea SE not for any other reason.
Hope it settles down. x
I am nearly two years passed my last FEC and I too cold capped and managed to keep 50% of my hair which started FEC as a chin length straight blonde bob. Never wore my wigs and always had enough hair to appear normal. Did get some very thin patches but was always able to disguise these. I never told anyone other than my husband and children that I was having cancer treatment and because of the hair, no-one ever knew.
When the thin patches started to sprout new hair it was coming through very grey so 6 weeks after chemo ended used a semi permanent hair colour (Naturetint from Holland and Barrett). Colour worked well and the new hair came through straight just like my own hair. I think you have more chance of your hair regrowing straight if you have cold capped, because the hair folicles are protected. Without cold cap protection the follicles becime somewhat "altered" in shape and c urly hair results. Therefore, in my opinion, the moral to this story is to persist with the cold cap. It's only really uncomfortable for the first 10 or 15 minutes and so worth it to keep your hair. Good luck with your hair. I remember how important it was to me to keep mine.
It is 6 weeks past last FEC and I am anxious! It looks that the hair has started to grow back and it looks to be very dark. I kept my fringe and thin layer all over but lost a lot of hair on the back after the last chemo. I had shoulder lenght blond hair. I just want my old beautiful hair back, this is very frustrating. But it is worth coldcapping, you will not go totally bald. That was important to me. Saw one lady yesterday who finished chemo at the same time than me and went totally bald. Her hair had started to grow immediately after the last 3 weeks past last chemo but it looked to be very fine baby hair and just a hint of it. Good luck and lot of strenght with your process. I hope I have a short twiggy at least by summer.- Sunshiney-
Thank you so much for your post. It is really encouraging to hear from someone who has been through it and came out well at the other side. I fully anticipate having to have my hair cut later on to match the new growth but wanted to keep as much hair as possible until I get to that stage. The rest of my hair has already lost a lot of the gloss I used to have but I still feel it is worth keeping until the new growth kicks in. Fortunately being winter I can get away with a woolly hat when I go out and my fringe and rest of the bob sit as normal so no-one knows. It has been a long time since I had short hair so it will be a novelty for me.
I will definately persevere with the cold cap I found that after the first 15 mins your head is so cold you don't really feel it but thanks for the warning that it might get worse for the last two sessions.
I really appreciate you taking the time to post a reply as I could find quite a lot from people going through chemo but very little for those who had finished and had continued using the cold cap so many seemed to give up.
Regarding thin patches on scalp, someone on here mentioned using powder to help disguise it.Their's was about £25. Looked on amazon today and there is one that is only £5.99 and has good reviews so might try it when the time comes. Thought it might be worth a mention. Am having No. 2 tomorrow and used the cold cap last time and still have most of hair although is falling out a little. Will use it again tomorrow. Was able to tolerate and even had a layer of ice on it when it was removed. lol Marli x
Thanks Riverside dawn. I was coming my hair over at first but now the loss on top has spread to the sides so a comb over no longer works. Hiding the loss at the moment with a wide headband which is OK at the front but you can still see a gap at the back.
Welcome to the forums.
As well as the support you will receive on the forums we also have a free helpline where you can talk things through with a member of staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
With best wishes
Hi, I'm new to the forum and have had 2 FEC sessions using the cold cap. Have however lost a lot of hair from my crown which at the moment I'm hiding with a wide band. I have straight dark hair in a short bob. My concern is if I continue with the cold cap, how will I look if the new growth is a different colour and curly. Will it blend in OK or will it look odd? Did your new growth blend in well with the hair you kept? I hate the idea of being bald but don't want to look odd when the hair starts to regrow. Would really appreciate others experience. Thanks
Hi, I had cold cap 2 sessions but it started deserting me so i decided forget cap & go for it. Had a no.4 head shave like G I Jane. I actually like it. Its so short i havent needed to touch it or wash it so its hanging in there even after 3 rd treatment. The wigs are really great looking, realistic. Go for it ,theyre worth it.
Hope you having a lovely holiday....
I have cold capped for first 2 sessions of EC and hair started to shed lots just before the second treatment. It came out in clumps which was very upsetting. It has continued to shed since.
Im on day 12 following 2nd EC and had my hair cut very short last week. It looks terrible though and it's getting me down. I'm tired of hair being in and on everything, dreading washing it, clogging the plug etc etc ........ Like you, I've been a highlighted blond for longer than I can remember so, 'Ive decided to accept that the hair has to go now and I'm going to get creative with wigs and head gear. For me it's for the best
I think the cold cap has most definitely saved some of my hair but my god it looks and makes me feel just awful.
I will keep fingers crossed for no more hairloss Riversidedawn! I lost mots of the hair with FEC, not with T...I should maybe cut the hair as well but now at least I can attach a fake ponytail..so nor sure what to do yet. Will go on short holiday first, where I can wear sun hats 😄 take care XXX Sunshiney
I finished 3 Tax and 3FEC on 9 Decmber and used the cold cap every time. I saved some hair all over, very thin but when on a ponytail, can fool people that do not know me. I had shoulder lenght blond hair so now all the blond highlights are gone and left is the "lower layer" thinly. But, I have a fringe which stayed nearly as it was, which is strange but having it fools people when wearing a hat or a hair band so overall, the result is sort of ok. But now I am anxious to get my hair back, so wondering how soon the sheadind stops, it is 3 weeks past the las chemo on Tuesday. Hair still comes off (of what is left!).
Thank you for your replies Nutty and Julie. Good to hear that you were fairly happy with your outcome. I had chemo 5 years ago and lost all of my hair. Had tried the cold cap the first session but it was the one where they kept them in the freezer nand changed them throughout the session and it was a poor fit. After the first one almost all of hair disappeared. They have the machine this time so thought it was worth a try. Got short hair and not sure how easy it will be to hide any thinning. xx
Just had my first chemo today and used the cold cap. Followed advice found on thread and took warm clothes etc., especially making sure it was a good fit. and a was advised to use a stretchy headband to protect forehead and ears. Was able to tolerate it well and when nurse took cap off there were ice crystals on my hair. Keeping my fingers crossed it helps and will keep trying.
Evening all. gave my hair its weekly treat today (for 3rd time) it came out in handfulls and shower trap was full, Was dreading looking in the mirror, but not that bad. There is a bald patch on my crown but not too big approx 2cm so will definitley be using the cap again this week.
Hope everyone else is going on ok and sticking with it. x
I didn't have long hair but a bob style and I did have cut a bit shorter. I have heard that cutting long hair does work better if you plan to use the cold cap. I did try it on my first chemo session but my hair still started coming out after a few weeks so I decided not to use it after that. I used to colour my hair but it is not advisable and I stopped straight away. I finished chemo a few months ago, my hair is slowly growing back but I don't plan to colour it for quite a long time. I still wear my wig and feel very comfortable in it. Have you thought about getting a wig yet?