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Coming out the other side - one year on!

hollymeg
Member

Re: Coming out the other side - one year on!

Ah she bless him x

Lulu34
Member

Re: Coming out the other side - one year on!

oh shenagh poor wee Jai bet you were pretty traumatised too

im sure he looks very fetching with his red stookie.

Lxx

Mummytumbles
Member

Re: Coming out the other side - one year on!

Oh she I bet your sis is absolutely gutted for you and jai. I can remember doing a leg and a wing with gabby and dislocating her arm at least three times (which I was able to pop back). then friends girls took her out and did it and it actually green sticked the olecranon prominence (elbow to thee and me) but they didn't plaster cast it - had they, I am sure she would have had pink.

So far today my pottery has stayed intact and I have been smiling a bit lol.
Did I tell you that I saw the lymphoedema nurse on wed? She was so lovely, did some fabulous massage, and gave me such a sexy compression bra and under arm belt and sleeve that the fab man will not be able to resist me - my arm does feel better and less achy now but the bra????? 'oh lordy' as Rhian would say. Still if it makes me better.

So far my flight to Nice isnt cancelled - better get packing huh? damn that volcano
love to all xxxxx

she
Member

Re: Coming out the other side - one year on!

Just a quicky to let you know that my darling little boy has a broken leg : (

My sister in law had him yesterday afternoon and took him to the park. Her 12 year old daughter took him down the slide and somehow managed to break his leg in the process.

He now has a full leg bright red stookie (Scottish word for plaster cast) on. Bless the wee soul, he is still smiling though.

Love and hugs to all of you - you really are my rocks xxxx

hollymeg
Member

Re: Coming out the other side - one year on!

Ah rach bet your gutted you can't go and spend the weekend with your FIL .....not. I think pixie has lap top issues mate, i have contacted her about tamworth and she is joining us for both nights so dont worry she will be there mate.

Julie, glad michael is been seen and hopefully will get the support he needs. Glad collage is ok, you get stuck into that homework mate.

I am being haunted by bloody handbreaks girls, forgot to put mine on on sat but was lucky no damage done and then yesterday my neighbours handbreak failed on his slopeing drive and his car smashed into our newley built wall!!! not worried about the wall but the poor bloke has only just had the car and its a mess, bless him.

Miss all my nutty mates, luv you all NNL xxx

Mummytumbles
Member

Re: Coming out the other side - one year on!

Its all my fault gerties - the volcanic eruption that is!
I said I didnt want to go to S of F and guess what; all flights cancelled until further notice - Mea Culpa lol x

HurdyGurdy
Member

Re: Coming out the other side - one year on!

Hey ladies!!!

I'm in cp at themo and thinking of you all.

Rach - can't help with the Denby lovely - we're an imperial blue household. May I suggest that you throw something slightly cheaper???? Xx Seriously though, I hope things calm down for you and that you have a nice time with the outlaws!!

Great to hear about returnees to work - good for you ladies, but take it easy now.

Well, I met up with the nnl on Tuesday which was lovely. Very excited about the tamworth meet - be great for us all to get together again.

Well - am off to bed, those rapids have tired me out!!

Hugs to Gina - hope you're feeling better hunny.

Big sloppy kisses to everyone else.

Al
xxxxxx

Mummytumbles
Member

Re: Coming out the other side - one year on!

p.s Julie - how is everything with you boy?

Mummytumbles
Member

Re: Coming out the other side - one year on!

Gerties
DUCK!!!!!!!!!
Flying Denby

- erm if any has the baroque design which was discontinued in 1995 and they have any side plates i may be able to strike a deal. LOL

Pauline - hand break NOW! pmsl

Chris thank you you made total sense of how I am - its so blo*dy odd and you hit the nail on the head - I just need my poor fan man to have some time out.

Off to see my out laws in S of F this weekend - god I wish I wasnt - I am in no mood for FIL giving me grief - tried to explain that I am psycho at present and fab man said it wouldnt wash with the scaries ( our nick name for his M & d as they scare us regularly lol )So wish me luck - my wonderful GP friend has suggested regular sips of gin and valium lol
love my gerties and yes the october meeting is stil in planning
btw where is our pixie??????

cathjue09
Member

Re: Coming out the other side - one year on!

hiya all

well back to my normal hours and i am bushed, sleeping much better this week my head touches the pillow and im gone, also went back colledge last night to talk over my portfolio and she has given me heaps of home work, so sorry won`t be on fb much this week mrs p and debs, ive got 4 weeks to get it done HELP!!!.

we are all bound to get down days its all still very raw, remember the fence is just in front of use, but will get abit further away each year.

took my 10 year old for a assesment today, and i had to fill the guy in about michael over the last year, i told the guy that we had had a tough year what with me and the bc and losing my dad, at which point michael started to cry and so did i , it was awful to see michael like that, but maybe he needed to get it out, he has to now go on day release their for 3 days in june so that they can get a better picture of him, so hopefully we will get some answers

rach come and have a bounce on my trampoline that will release the tension, when mrs p picked me up she declined, think she was still in shock from handbrake episode, don`t worry pauline neil has told all the neighbours, they keep coming up and asking me lol

(((((((((((((((((hugs )))))))))))))) to everyone who is feeling down, and heres to brighter days
luv you all julie xxx

hollymeg
Member

Re: Coming out the other side - one year on!

Hi girls, sorry not been on for a while....no excuse, but maybe i'm trying to avoid straying on to threads i shouldn't.

Rachel, i have done nothing but cry today...just caus i have been for mammo, no one offered to go with me and ....got me thinking ..what if !!!!!

yesterday i was as happy as anything so in answer to your question, yes i am an emotional wreck and im on tamox too...

I was happy yesterday.....when i met up with our Ali, was great to see her in Notts, she is in CP with her lovely family.

Had a wonderful weekend with our Debbie for her 50th, picked our julie up on the way!!! if you havn't heard that story ask julie what happened or check out my profile page its on there somewhere, will make you laugh.......OMG how embarrasing!!!!!At least my guardian angel was watching over me...

So glad to see all of you back on here, would hate for our thead to go cold.....we all still need each other from time to time and its nice to know your all there.

I go back to work in 3 weeks after a year and a week off, i'm ready now but just waiting to go on holiday first.....scary!!!!

Take care all of you, june will soon be here girls then...bring on the PARTIES.......

Luv u all, Nutty Notts Lass xxx

OH when i get post off certain gerties with NNL after my name, i bet my posty thinks i am clever with letters after my name...little does he know lol cheers rach, made me smile xxx

only1chris
Member

Re: Coming out the other side - one year on!

Rachel; glad you posted that question- yes me too! One day doing well. Next as you say wont get out of bed unless i have too. The worst thing is, there is no clear pattern as to why, so i dont know when to expect it and to prepare. The holiday was a sort of unreal existence which sheltered me from how i am really feeling in normal life. Now it is hitting with a vengeance.

My friend who went through this all 7 years ago immediately understood. Her comment " you feel like when you get up you are already running on an empty tank" mirrored how i felt. Of course this depresses, angers etc.and i feel i am not making the progress i hoped for and have tried so hard to achieve,so i feel very very despondent and down. She told me to expect it to randomly strike and on those days to be kind to myself; warn OH how it feels, and try and roll with it. So will be trying to do that...

I truly think the answer is in our minds. If we can know what is normal, and so adjust to that i think we will cope better. Tablets? oh i hope not. If i get to that stage would prefer counselling, as i do believe the strength of our minds is the key and dulling down things wont help in the long term. But hey thats probably just my cranky view! Dont argue!! If you do duck... flying Denby coming your way.

I think all you girls who are coping with all this AND work AND young children are phenomenal.. but i imagine it is not at all easy.

Sray strong girls, look back on how far we have come and hope for similar forward progress in next year. Love C

katiebelu
Member

Re: Coming out the other side - one year on!

Hi Rachel, no advice really just take the moods as they come and if you want to chuck your plates and stuff around go ahead.... why the hell not.... you can always get a takeaway when the last of your plates is gone, lol.

I'm a moody cow at the best of times so dont know if I have mood swings or not. I can say though I've never really been angry, more sad, but a good doze of The Simpsons normally cheers me up, DOH....

Best wishes to everyone

Jackie X

she
Member

Re: Coming out the other side - one year on!

Hello my friends

I am sorry for not posting for so long - blooming work keeps getting in the way of my social life!!

Far too many posts for me to comment individually, but wanted to say well done to everyone who has passed their One Year Anniversary - I have that to look forward to next month. Have decided to take the day off work and go somewhere nice with John and Jai.

MummyT - you are totally not alone in feeling like an emotional monster and I'm sure plenty of others on here will agree. I am still on anti-depressants and am not even thinking about coming off them for a while yet. I think the Tamoxifen coupled with everything we have been through in the past year or so is definitely affecting us emotionally. I feel sorry for John cos I keep taking it out on him, especially just before my period is due (which at the moment is every two weeks or every eight weeks!!). Just remember, that we might be feeling a bit crappy, but at least we're here to tell the tale lol.

Lots of love to you all

Shenagh xxxxxxx

P.S. Any update on our October break???

Mummytumbles
Member

Re: Coming out the other side - one year on!

Got ask my darling gerties - are any of you turning into an emotional monster? I am springing back and forth between being happy and confident and 'normal' to down right awful snappy miserable and struggling to get out of bed.
I dont want to go to the Docs and say hey about 50% of the time I am gr8 and 50% so depressed you might want to send me for immediate psychiatric help cos I am lethal with plates and mugs; they keep hitting wall and floors as I fling them with all the force I can muster.
Not only am I feeling bloody awful but my best Denby dinner service has taken a right old battering I can tell you - I only have 2 out of 8 side plates left that match the rest and as for wine glasses - if you pop round to me for a glass of wine you will get in an IKEA kids plastic tumbler.
All joking aside I can only think my emotional lability is due to the tamoxifen and that this time last yr I was ignorant and innocent of the sh*t that was about to happen. If others are feeling the same then i know I am all right!
Girls love ya and up yr viva xxxxxx

debs
Member

Re: Coming out the other side - one year on!

Hi girls,
well had a fab party, made even better cos Pauline and Julie were there!! Look on facebk for pics!

Rach and Lulu hope you have good time when away.
Jayney your hols looks fab! I wear my glove on and off, when it comes up I wear it again, think it will be an ongoing problem, wondering if some of my aches are due to lymphodeama too!

Have enjoyed my break from work with the Easter hols, definately needed it!

Christina glad everything is good for you, your hair looks great,
Chris good to hear from you too!

lots of love to all Debs xxx

Jayney
Member

Re: Coming out the other side - one year on!

Ohhh forgot to say, at last Rach, you are seeing the lymph nurse! My hand has been fab, no swelling at all on hols or on the flight (I did wear the glove on the flight), but since I have been home it has really swollen, I suppose I have been doing more but I have been wearing the glove. Its a bit of a nightmare. It too gets painful and is very weak. I am a good girl and doing my exercises and using hand weights etc so doing all I can (bandaging at night etc). Arm is fine though, just hand that is the bu**er. Good job it's my left or I would be scupered! Hope you get on ok and get a bit of relief.
xx

Jayney
Member

Re: Coming out the other side - one year on!

Have a great time Rach - re-charge those batteries. Place in France sounds fab, you have one interested gertie here!

You too Lulu, Belgium sounds lovely. Enjoy. You still have so much to get your head round. How you coping and are you any further forward. Your new job sounds fab - you will be great.

Christina, so glad scans were clear and your hair looks fab.
Hope the rest of you gerties are all ok?
Herceptin No 9 today, so halfway through now! Had heart scan so get results next time. No piriton this time as it makes me feel very sleepy, but still had to come home and sleep for 3 hours! Strange stuff. Work on Wed for me - now that will be a shock to the system!
xxx

Mummytumbles
Member

Re: Coming out the other side - one year on!

hello gorgeous girlies
I am off for along weekend in the S of France on friday morning - kids going to the tennis, me to beach bliss x I will have to keep an eye out for the whaling fleet tho'
I hope to see the lymphoedema specialist on wed and not before time - I am now in so much pain day and night my arm is huge and my arm pit now hangs down and over my bra - so I have almost given up wearing one. I need a cup to fit under my arm cos I swear its a double D.
Hope to book a trip to Brittany in July - just a quick cheapy trip to a self catering apartment. I would love a small 2 bed apartment in Carnac for keeps you know? then i could let it to all my chums on here just enough to cover the mortgage not to make a profit - that would be good i think. fab man and I call it using my boob money for fun (as you know I got a small payout from my critical illness cover) We could use that as a deposit and then take out a french mortgage (fab man is french and italian you see) Anyhow its all pie in the sky at the mo.
love you all my darlings - nearly a year ago for me and the sh*t hitting the fan time of BC. Funny I wouldnt be here now if it wasnt for my docs and nurses - hugs xRx

Lulu34
Member

Re: Coming out the other side - one year on!

christina glad your scan was normal.... now you can really enjoy your holiday.

jayneypops its lovely to see you back again... iv missed you hunny.... your holiday looks fabuloso.... good luck with work.

walt and i are going to Belgium for a weekend in may before i start my new job, not quite the Caribbean LOL.

Sally i think mine was just bleached using an ordinary dye but was just the ends that were done, but i think if you dying right to the roots your best to use something natural until you pass the 6 months post chemo stage.

chris cant believe how much energy you have had to do all that walking and jogging... im still a couch potato and looking forward to starting work just to motivate me to get off my butt and become more active.

im still on my low fat diet to help my cholesterol, got to get my bloods checked again on wed and start on 40mg simvastatin... being referred to the lipid clinic to get tested for familial hypercholestraemia gene.... maybe im a supermutant.

found out i got the BRCA 2 from my dad even though there are no other episodes of ovarian or breast cancer for the 3 generations, but his brother is now gonna have a test too as his daughter (my cousin) is 33 and probably at an age where genetic BC would start to manifest.

loveeee huggles to all

Lxx

krisid
Member

Re: Coming out the other side - one year on!

Hello ladies,i had my scan yest so ovarys and wumb ok ...it looks like my periods return back -i think someone here was asking ,but we shall see next months ,lady from us yest say she can see my right ovary ovulating ....we are off to Ibiza and Mallorca tomm for 7 days,cant wait to go ,it it is year for all of us and it has been so long jurney that it did seem endless last year BUT we have done it...that is my new hair ...Sally i will recomend the hair color from health shop where they are all natural as i had mine done month ago and it has been succes ...all the best to everyone Christina

Jayney
Member

Re: Coming out the other side - one year on!

Wow gerties, just trawled my way through 6 pages of posts! You lot do chops! Just back from hols in St Lucia - was fab and just what the Doc ordered. Re-charged my batteries ready for work next week (eeek). Just doing 2 x 3 hour days and then building it up. Feeling ok, although had a horrid cold just before I went which took a while to shift. Diet is now starting in earnest. Caro, Sandals is lethal, there is just sooooo much food and drink.
Well done Lulu on getting the job!
Hope you are all doing ok gerties, what do you think of the hair?? I am liking it, it's very dark. Will visit FB tomorrow and catch up with you all.
Much love
Jayney
xxxx

only1chris
Member

Re: Coming out the other side - one year on!

Hi everyone,

So much to read but delighted to see everyone is doing well and reclaiming their lives. Just back from 10 weeks in Sunny South Africa - enjoy Caro!- where i started a get fit mission. Seemed like mission impossible at first but walked at best speed 6kms every morning against a stop watch and gradually added 100 metre jogs until we were doing 1100 metres! !st 6 days were agont then hey ho slow improvements and started to feel better. 318kms total at end of hols... and a LITTLE slimmer i think. Also have the furry face; anyone asked about it? Will it go?!!!

Lots of love to us furry bunnies hop hop
C

sunflower65
Member

Re: Coming out the other side - one year on!

hi all

well done Pauline and any others reaching their year milestone...who'd have thought it a year ago.Hope you all have a nice time with Debbie

What hair dye have people used as I want to dye mine now but not sure what make to use, want to go blonde again.

Hope everyone is well and enjoying the lovely sunshine

love Sally xx

hollymeg
Member

Re: Coming out the other side - one year on!

Hi ladies yer another anniversery, 1 year today!!! this time last year i had been told a few hours ago and our world had been turned upside down!! well look at us all now, kicked cancers ass...made loads of new amazing friends and going on holidays and back to work....see i always said we could do it girls!!!

Can't wait to see loads of you in june, fb messaged u all today.

Off to celebrate debbies 50th on saturday, picking julie up...anyone seen the film thelma and louise????

big breast buddie hugs to you all, nutty notts lass xxx

lisa_lisa
Member

Re: Coming out the other side - one year on!

Hi Ladies still follow thread but not posted for a while , Great to see we are all getting on with our busy lives , its been just over a year and had first day back at work today ..Yes mines curly too lol !!!
Apart from loads of cramp and a few tumy probs I to am almost back up and running ....
Every think Im doing I keep thinking well this time last year !!!
So on wards and upwards ladies ..
Keep Well Love Lisa x

cathjue09
Member

Re: Coming out the other side - one year on!

hello all

what was that about hope you all had lots of choccys at easter, i didn`t get one, not to bothered though as i could do with losing some weight,

thanks esme and rach as re to my son, he has been perscribed cetirizine,was abit miffed when the doc said tablets, his skin is very flacky now but still looks red underneath, i do have some hydromol so have put that on, i think it was a allergic reaction, and the one thing that was new to michael was radox bubble bath, so he wont be bathing in that again,

well debs i too had a tiny trim which cost me £13 will go to the barbers next time, and yes i too have the fuzzy face,, also my arm and boob did begin to feel abit less sore, that was until i bought "just dance " on the wii, anyone else got it, its fab,

caro , have a fantastic holiday,

thinking of all my cp buddies and all other lovely ladies on here
love julie x

Lulu34
Member

Re: Coming out the other side - one year on!

caro have a fabby time in SA... your looking great hunny.

Debs im thinking of getting a trim too... despite having hair down my back this time last year it now feel too long at 2 inches LOL... like your new pic hunny.

sally what colour are you dying yours?.... mine still has its blonde CP tips that Shazza did.

had a scan today of a lumpy bit on my right breast and it was absolutely normal... so i feel happy now to start my new job in a few weeks time.

love as always

xxxxx

sunflower65
Member

Re: Coming out the other side - one year on!

Hi everyone

Just thought id pop on and see how everyone's doing.We all seem to be getting our lives back on track and having our year anniversary of diagnoses and how well have we all done hey.
Well i had an echo last week 'cos of having herceptin and it came back normal also a pain i had been getting where my boob was is ok too so im so relieved.The scan on my ovaries was also 'just' cysts so im happy too about that.

Ive just had my younger brother and family and younger sister and family up to visit so that was lovely, those of you on FB can see photos.

Ive devided ive had enough of being a silver vixen and am taking the plunge and dying my hair next week.

Hope everyones doing ok. love to all

sally xxxxxx

debs
Member

Re: Coming out the other side - one year on!

Hi girls, hope you all had a good Easter! and lots of chocolate.

i have had the furry face too, but it seems to be going not as noticable now!
I have a big gap in one eyebrow, just doesnt want to grow!
Had my first trim up (and a colour!) to get rid of the grey fluffy ends, never thought i would have a hair cut again!

We are all having or had that one year anniversary, how far we have all come and its great to see hair photos!!
Al it was so good to see you and have a chat, we will do it again soon now i know where starbucks is! lol!

Caro have a fab time in South Africa

love debs xxxx

caro111
Member

Re: Coming out the other side - one year on!

Hello ladies. I hope the easter bunny brought you all lots of yummy chocolate!

Here's the latest hair; still v short but at least it's hair! Rach, love your purple dye job, you look stunning, and well done on passing your exam(s). Am trying to decide whether to go blonde or dark?!

Al/Lyn, I've also got furry face, wtf?! Hope you had great time in Bath and CP Al.

We're off to South Africa on Thursday for 3 weeks, woo hoo!!!

Can't wait to see you all again in Tamworth in June. Love to you all. xxxxxCaroxxxxx

biggles
Member

Re: Coming out the other side - one year on!

Hi everyone, sorry have not posted for ages,in fact have not been on the site at all - wish i could give a particular reason but i do not have one....think of you all often and glad to hear that we are all getting on with it all!!!!!!!!! I know have lovely thick CURLY hair, they said it would i did not believe them, never had a curl in my life- i actually quite like it xxxxxxxxxxx

Lulu34
Member

Re: Coming out the other side - one year on!

looking forward to seeing the purple princess pics rach.

julie and dawn sending big hugs to you both.... so much has happened in a year... its two weeks (17th) till my 4th anniversary of being diagnosed with tumour numero uno.

Lynn shenagh is in spain at the mo visiting her family... her dad lives there.

pauline have fun in tamworth... its becoming yotu second home.

kris hope the tamox isnt causing you too many problems.

Al im dry as a bone again, dry skin, dry mouth, dry eyes, dry Poo!!! the moth gel is called biotene oral balance... def recommend it.

anyway big huggarooos to everybody and have a very happy easter... hope the easter bunny is good to you

Lxxx

Mummytumbles
Member

Re: Coming out the other side - one year on!

Girls I am going upstairs now and dying my hair purple - wot the hell - why not I say
HAPPY EASTER - EAT LOADS OF CHOCOLATE!

Julie - re your boy and dry skin - I am confused as the tabs - are they piriton by any chance? if so they are to make him sleepy and stop him itching and scratching. You really need to see the Dr again for a prescription for an emollient cream, bath oil/shower gel - double base is good and possibly a low dose steroid cream - say diprobase or doublebase emollient and 1% hyrocortisone (dont apply to face unless told its ok to do so) In the mean time buy some diprobase or aqueous cream from the chemist, stop using soap use the aqueous cream instead. cut his nails really really short and avoid bathing too often - no bubble baths as this dries the skin out. then get the dr to do his bl**dy job and treat the skin if he doesnt know what it send your lad to a dermatologist who will.

BTW - I was told I passed one part of the exam at the time but the other examiner just said well done that was good - ?? but did i pass????

love you, you marvellous bl**dy fantastic gerties xxxxx

drabble
Member

Re: Coming out the other side - one year on!

hi everyone hope your all well,its a year ago 2day i found my lump,felt all alone then i found you lot and you have helped me so much over the year,cant wait to see you all in june,anyway my hair is goin curly it has a mind of its own fallin in every direction andcant do anythin with it lol,hope you are all well love and miss you all xxxxxxxxxxxxxxxxxxxx

hollymeg
Member

Re: Coming out the other side - one year on!

Hi gerties, glad to hear you all seem chipper at the minute...probably the prospect of a party weekend looming girls. lol. I am off to tamworth to stay with our mrs focka and my jump buddy lisa in an hour. We are fund raising then mrs f is throwing a party to celebrate her 1 year anniversary. Think i might force myself to attend lol, will raise a glass too for u julie and me as it is my 1 year anniversary on thursday too. What a long long way we have all come.

Hope you all have a crackin easter....get it? crackin......oh never mind lol

Luv and miss you all and can't wait to see you all in tamworth in june, oh mrs focka is planning something and wont tell me what!!!! she just says we all have to meet outside the holiday in at 4pm on the saturday....more details to follow on the 10th june??????
Any ideas gerties????? nutty notts lass xxx

Gemjunkie
Member

Re: Coming out the other side - one year on!

ps loving all the hair Ali and Sue and blondie Rach - Debs looks gorge too - where's Sheenagh? - come on Caro show us your new hair too xxxxxx

Gemjunkie
Member

Re: Coming out the other side - one year on!

Hello all my lovely breastest friends - finished rads last Friday - whoopie = saw my surgeon on Monday and after poking around my non-cancer breast decided I am ok for another 6 months - phew.
Having bone scan on Tuesday as starting arimidex and need to keep a check for oesteoporosis !

I've got fuzzy face too Ali weird! I nevr completely lost my lashes but they are still short and stubby - never mind - I get lots of comments on my silver hair- last night it was 'classy' it's been cheeky, sophisticated, chic - they all plead with me not to dye it??? The only neg comment was from my sis in law who said when its grown abit I should have a more feminine style lol. Will post some new pics soon.

dreading starting the arimidex as I already have pains in my joints and climb the stairs like a 90 year old - bring it on !

ent to see my usually very unhelpful Gp yesterday and when I said I do not feel mentally or physically able to return to work right now - she signed me off for another 3 months - whoopie - really don't want to go back there but gives me time to sort it out in my head.

So glad that there has been good news for most of you lovelies with new lumpy bits - hope you get your lymphodoema sorted out. My skin is very sore in the booster/scar area so slapping on the silver cream until tomorrow and have brilliant dressing stuff to stop the rubbing and keep underboob dry.

Love you all and hope to see some of you at Shazza's 40th - mad Notts lass there is no stopping you - go girl! xxxxxxxxxxx Lyn xxxx

Gemjunkie
Member

Re: Coming out the other side - one year on!

Hello all my lovely breastest friends - finished rads last Friday - whoopie = saw my surgeon on Monday and after poking around my non-cancer breast decided I am ok for another 6 months - phew.
Having bone scan on Tuesday as starting arimidex and need to keep a check for oesteoporosis !

I've got fuzzy face too Ali weird! I nevr completely lost my lashes but they are still short and stubby - never mind - I get lots of comments on my silver hair- last night it was 'classy' it's been cheeky, sophisticated, chic - they all plead with me not to dye it??? The only neg comment was from my sis in law who said when its grown abit I should have a more feminine style lol. Will post some new pics soon.

dreading starting the arimidex as I already have pains in my joints and climb the stairs like a 90 year old - bring it on !

ent to see my usually very unhelpful Gp yesterday and when I said I do not feel mentally or physically able to return to work right now - she signed me off for another 3 months - whoopie - really don't want to go back there but gives me time to sort it out in my head.

So glad that there has been good news for most of you lovelies with new lumpy bits - hope you get your lymphodoema sorted out. My skin is very sore in the booster/scar area so slapping on the silver cream until tomorrow and have brilliant dressing stuff to stop the rubbing and keep underboob dry.

Love you all and hope to see some of you at Shazza's 40th - mad Notts lass there is no stopping you - go girl! xxxxxxxxxxx Lyn xxxx

HurdyGurdy
Member

Re: Coming out the other side - one year on!

Helloooooooooooo lovelies, how are we all today??? Been reading all your news, but as always just can't keep up. Hope everyone is doing ok.

Fluffy faces!!!!!!!!!!!!!!!!!!! My husband is in hysterics everytime there is a bright light behind me?? Please tell me it will go all on its own?? It's very very fine, downy, white and you can only really see it in the light, but hubby keeps pulling it and even joked that he used it to wrap around himself when it was cold the other night - I know, I live with a comedian.

Alsssoooooo, I am weeing 4-5 times a night and have the driest mouth ever!! (I will go to get that stuff you said Lulu - seeing GP next week). Mind you if a fluffy face and pissing for England are my only tamoxifen SE's then I can cope!!!!!!!!!

Easter hols - yay!!!!!!! Hubby is taking me to Bath today for 3 nights in a luxury spa hotel - can not wait!! Then, next Friday, we're taking the kiddies to CP in Nottingham!!!!!!!!!!!!!!! Will reminisce and drink for you all.

Debs - looking forward to coffee on Tues, 11 is fine, Starbucks? Bentalls???

Caro, Rach, Julie, Pauline, Shazzas, She, Lulu, Pixie, shouldn't have started as know I will have forgotten, Sally, Knitnut, Krisd, Sueevie and everyone else who is reading - EAT SHED LOADS OF CHOCOLATE - IT's REALLY GOOD FOR YOU, THE MORE THE BETTER!!!!!!!!!!

Love ya all, up yer viva!!!!!!!!
Al
xxxxxxxxxxxxxxxxxxxx

Esme
Member

Re: Coming out the other side - one year on!

Hi Julie,

Sorry to hear your son is suffering with eczema. I was just wondering, did your doctor only give him tablets? It sounds like he could do with some kind of topical preparation like diprobase and maybe aqueous cream to wash with rather than soap. My eldest son used to get eczema, he's 28 now and luckily seemed to 'grow out of it' in his teens. I hope your son is ok very soon.
Congrats on your 1yr! I had my first year in Feb and it felt really good, coz I still remember vividly being given my dx and wondering if I would see next year. My friends came round with wine and we celebrated that the little b****r hadn't got the better of me!

Wishing everyone a happy Easter weekend. Hope the weather gets bit more into the spirit of things!

Love Esme x

krisid
Member

Re: Coming out the other side - one year on!

Hello everyone nice to hear that you all doing well,nice to hear about Sue,julie,Debs,Pauline,Lulu and all ...i am on tamoxifen with next folow-up 07.07...Christina

cathjue09
Member

Re: Coming out the other side - one year on!

hello to all my breastest buddies
well its ayear tommorrow since my dx, and boy have i come along way, met lots of wonderful people, and it has certainly whittled who are my true friends and who is not,still have lots of se from op and chemo, but if its the price to pay for kicking ass of bc then its worth it, the special bond i have with all you wonderful people will never go.

lulu good luck for the 7th, and for the start of your new job, cannot beleive you have snow up there again

rach i have noticed my brows are thinning again and have even started pencilling them in again

well need advece again gerties, my 10 year old over the last week face has gone so dry and sore, now its on his neck and creases of his arms, it was raging red, took him docs who said it is excezma and gave him some tablets, can excezma come on just like that,

hope you all have a lovely easter, love you julie xx

evie2007
Member

Re: Coming out the other side - one year on!

Rach i did too.

Evidently if you loose all your lashes and brows they regrow at the same time then after 10wks they drop out as part of their life cycle.

We normally grow and loose lashes at different times through that 10 wks so we dont notice them thinning and re growing.

Mine are stable now but i lost the end of each eyebrow and a mass of eyelashes.

Mummytumbles
Member

Re: Coming out the other side - one year on!

girls help!
I am losing eyebrows and lashes again = ahhhhhhhhhhhhh
what am i to do - and i still have soft downy hair on my belle visage lol
xxxxxx

debs
Member

Re: Coming out the other side - one year on!

Rach I'm sure you did well! let us all know!

Lulu your hair looks fab!

thanks for your birthday messages, i went to edinburgh and had a lovely time, my first time in Scotland and it snowed!!

Hope you all have a lovely easter and lots of chocolate!!
love debs xxx

Mummytumbles
Member

Re: Coming out the other side - one year on!

hi Pauline - yep efexor is linked with cardiovascular problems - so it is probably linked with you high BP - can you do with out the anti - d? but if your BP is very high then they will probably still want to treat you - dont worry too much babe - I'm sre you will be ok
Sally - heart scans every three months are part of the course with herceptin cos it can damage your heart - I know a lady that was refsed herceptin because she didnt pass the scan - she was on nicotin replacement therapy to try to stop smoking - we took her off the NRT and her scan improved and she had herceptin (but wnet back on the fags love her)
Jackie - salads are good lol- for kenya you will also need anti malarials - I suggest malarone - its easy to take and effective if slightly expensive - dont touch lariam - nasty yukky stuff
Girls the exam went well - i think I passed - i had two clinical stations a shoulder pain and depression - neither areas had i revised before going in lol typical huh - spent the whole night going thru also sorts of disease senarios even in my sleep lol but I at least did know how to examine and treat shoulder pain and depression.
love you all xxxx R xxxxx

knitnut
Member

Re: Coming out the other side - one year on!

hollymeg,
venlafaxine is linked to increasing blood pressure. its in the info leaflet they give you.\i had to go on anti hypertensives whilst I was on it! Mind you I'm still on them,long story.

hollymeg
Member

Re: Coming out the other side - one year on!

Hay girls, anyone else been diagnosed with high blood pressure, mine is really high and go back next week to get it checked again and possibly start treatment. I wonder if it is linked to tamoxifen and venflaxine?

Hope you all have a lovely easter if i dont get on here again, off to tamworth for the weekend, catch some of u on fb in the mean time, luv and miss u all, nutty notts lass xxxx

Lulu34
Member

Re: Coming out the other side - one year on!

sally the tamoxifen has drying out effects so causes dry skin, dry mouth, constiaptaion etc so i think peeing more than usual would go along with those symptoms and im sure i have heard other women saying they pee more than usual.

rach good luck with your exam.

didnt have my back to work interview today cos the weather was awful and i didnt want to travel all the way to glasgow and get stuck in the snow.... so its gonna be rearranged for another time.

got appt with new occy health dept on 8th so things are starting to happen.

Lxx