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Confused

13 REPLIES 13

Re: Confused

Lisahall, sorry you find yourself here but you will receive incredible support and make some lovely friends.  There really is no easy way to receive the words "you have cancer" and we have all struggled just like you in the early days.  It does get easier but it's very overwhelming early on.  I was diagnosed in March 2017 stage 3 and had the maximum of all treatments.  Take one step at a time and don't look too far ahead. You'll get there.

Here is my story which I hope you find comforting: http://lifeafterlola.blogspot.co.uk/

I recommend joining the going through treatment threads once your chemo is started to chat with others going through the same.  Hugs and best wishes. Xxx

Anniej
Community Champion

Re: Confused

Lisa, welcome to this very special group of warriors. After having gone through all my treatments last year

( surgery, chemo, rads) at the age of 70 I can tell you it's very doable . Not an easy journey, but you will get there. Your medical team are your champions, and your success is their success. I accessed Maggies near me, and attended a sleep workshop, a mindfulness course and excercise classes. I still don't sleep wonderfully,  but much better than I did. Have you anything near you? Massage etc is offered by some hospitals. Macmillan also can be helpful, especially with family.

Glad you've found us, and we'll help you on your journey. Keep asking those questions, and good luck. X🍀

Re: Confused

Hi Lisa,
Glad you found the forum & don’t worry about posting in whatever section, just go where you feel you need to.
This is the best place to start when newly diagnosed, whatever your diagnosis is, then ‘going through treatment’ when you start active treatment.
You have had one of the worst shocks anyone can have, but it does settle down & what you describe is common to most of us.
Do come & chat or vent whenever you need to.
Sending hugs
ann x

Re: Confused

Thanks for replying Dolly, it,s scary isnt it. Hope you find this website and forum useful as am sure I will. Am still so confused am not sure am replying on the proper sections! Oh well, have an excuse not slept for ages!! Sending hugs. X

Re: Confused

Hi Sunflower, thanks for your replying. It is really helpful to share with people going through the same things. I am sure being on the forum will help. I do wish you well. I will ask lots of questions tommorow. I better get a notebook! X

Re: Confused

Thank you for replying, makes me feel not alone during this scary time. I have surgery around October time after six months or so of chemo, I may break before then! Take care. Sending hugs. X

Re: Confused

Hi Lisa just wanted to say I know exactly how you feel. I have recently been diagnosed with invasive lobular cancer with lymph node involvement. I start chemo on Monday, then a mastectomy, then radiotherapy and hormone treatment. Sending Hugs xxx
Sue C
Community Champion

Re: Confused

Hi Lisa

I certainty wandered around in a daze for a few weeks, while the world carried on without me. I, like Helena, had a good cry after surgery. For me, that was the toughest part.

It will take a while to come to terms with it, but you will get through it. There are many ladies on here who have been through treatment and have come out the other side.

Hugs

Sue xx

Re: Confused

lisa

 

Oh absolutely stay away from generally googling, that is one thing we say to all the ladies on here, you will only terrify the living daylights out of yourself because there is so much out of date and misinformation out there.

 

Let us know how you get on tomorrow, write down what they tell you and if it is not clear ask them to go through it again, this is after all your treatment plan.

 

Helena xxx

 

Re: Confused

Thank you for your reply, its scary isnt it... Am sure going to find this recommended site useful to me. I write questions down, they must just be basic ones as when have been asked ‘any questions’, it seems I have none as they have been answered! 

 

Am going for my pre assesment tomorrow before my chemo Friday so will ask nurse to tell me everything again in plain english, hopefully that will go in my brain!! 

 

Nice to know I am normal... am sure the flood gates will open soon...

 

hugs coming your way.

 

xx

Re: Confused

Thank you so much for your replying. Am finding using this site helpful, havent wanted to just google any sites so am sticking to recommended ones. I do hope you are getting the love and support you need. X

Re: Confused

lisa

 

Hello and welcome to the forum where you will get loads of help and support from the wonderful ladies on here.

 

Yep, what you are feeling is normal, you are having to take in a lot of information with terminology which is totally alien.  Take each day as it comes and you will get there xx

 

You have a breast care nurse, give her a call and ask her to clarify what the means for you.  They know that you are not going to be able to take everything in all at once and will be very happy to help to put things in laymans terms so that we understand it.  Dont know if you have got a notebook to write down all the questions you have so that you can ask them as and when you feel you want to, but have the comfort of not forgetting something.  I actually used mine to write down all the emotions I was feeling as I found it easier to deal with them that way and it helped me move forward.

 

I did not cry for ages in fact was a couple of months after I had surgery that I cried, and of all places in the doctors surgery where I had gone to get my prescription, she asked me how i was and I just burst into tears. 

 

That is the beauty of this forum, we can say things that we are scared to say to our family and friends for fear of upsetting them, but the ladies on here get you and know exactly what you are going through, you are not alone when u you have us lot around.

 

Sending you hugs

 

Helena xxx

Re: Confused

I understand exactly how you're feeling. Being diagnosed is such a shock. This forum is so helpful as everyone on it knows how it feels and they have got through it. Give yourself time. Be kind to yourself. It will sink in gradually and those who love you will support you. 

Confused

Hi, first time on here, not sure what to write except that I am very confused and frightened. Have been diagnosed with stage 2 and 3 BC with axilla?? (You can see how confused I am!!) . Am starting six months chemo in two days time, then double masectomy followed by possible radiotherpy which will be decided after operation..  I dont know how to feel, my family have cried, I find I cant cry, not sure if its because It hasnt sunk in yet or am frightened of upsetting my family even more than they are. I want to cry... I want to be angry but nothing is coming. Work is just plodding along and so am I. I havent been told a prognosis and not sure if I should ask what is my success rate, not sure if want to know. Sorry this isnt really a question but I guess somewhere to just say how I feel.. confused, am I normal???