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Confused!

30 REPLIES 30
katytc
Member

Re: Confused!

Wonderful news for you sophie that it's not bc, you have had an extremely long wait for your worries to be settled. So glad that you persevered it proves beyond any doubt that we do know our own bodies. I really can't understand though why some professionals go out of their way to make you feel silly, you were worried and just knew there was something wrong! You were RIGHT!
All the very best to you xx

Guest user
Not applicable

Re: Confused!

Phew! After seeing a registrar who made me feel very silly- asked me what I was doing there and whether I was going to keep coming back year after year for tests on normal breast tissue (nice!), I finally got to see a really lovely sonographer who reassured me that I did the right thing in coming back and discovered what was actually causing my lump. It turns out it's an inflamed rib, a condition called Chondritis which can produce a lump that feels very similar to a cancerous. one I am so relieved to finally get to the bottom of what was wrong.
The way the registrar spoke to me this morning was enough to make me feel like walking out and I was cringing waiting for my scan, feeling like I was wasting time and resources. I'm so glad I stuck to my guns and had the scan instead of allowing myself to be fobbed off with 'normal breast tissue' again. Like others have said, I think you need to persist if you feel unhappy with what you're are being told, until you have a more definite explanation.
Thank you so much to everyone who encouraged me to go back to the clinic, at least now I only have my neurological illness to deal with- I don' think I could have handled anything else too! I wish you all well with your treatment and future health
xxxx
Guest user
Not applicable

Re: Confused!

Hi
I mentioned the lump to my GP last week when I went to see him about something else and I've now got an appointment at breast clinic tomorrow morning.
I've been referred to a different consultant this time, which I'm pleased about. The consultant I saw last time has a really good reputation and was thorough- I had a fine needle biopsy, ultrasound and core biopsy. I feel a bit silly going back but I think it's best to get it checked as it's been around since last Feb and showing no sign of shifting.
Sascha- thanks for telling me about the thermo imaging, I wasn't aware of this and will look into it if I'm still concerned after this round of tests.
Is it possible the lump could have turned malignant or has always been malignant but with not enough 'bad' cells to show up?
Thanks
Sophie x
Sascha
Member

Re: Confused!

Sophie - can you ask your GP to refer you to a different specialist? I would definitely want a second opinion in your shoes, the alternative is there are places you can go to get a thermograph done and that can show up early changes before a mammogram does, that may reassure you or give you extra ammunition, only thing is you have to go private for it, but its not hugely expensive.....
Good luck but please don´t rest until YOU are satisfied and not in pain or a permanent state of anxiety...

Guest user
Not applicable

Re: Confused!

Hi mandyj,
So sorry to hear about your diagnosis, I hope your surgery went well. Thanks a lot for taking the time to reply to me despite all you are going through at the moment.
I went through two lots of tests, so would think that anything sinister would have been picked up at some point (which is reassuring) but was never given the option to have it removed. I think having put up with it being sore for almost 18 months is long enough and as you say I maybe need to shout louder. I am going to go with this approach if/ when I go back.
x
mandyj
Member

Re: Confused!

I found my lump in April this year and was told it was fat necrosis and that it may go down or if it caused me any pain I could have it removed. Unfortunately for me the biopsy showed grade 2 IDC and I had surgery this week. I am also a nurse and my advice is to go back and bother the docs if you are not happy. You know your own body and if you are stressed about it ask if they could remove it. Do not feel that you are bothering the medical profession, you are not. From my experience you sometimes only get what you want when you shout loud enough for it. Ask for a second opinion. Remember it's not them living with this worry it's you. Hope all goes well for you.
mandyj
Guest user
Not applicable

Re: Confused!

Hi
Thanks to you both for getting back to me. I suppose really I should just go back to the docs but I am dreading seeing the look on the consultants face as I think he thought I was being a bit of a drama queen. He said the only reason he did the core biopsy was to reassure!
I also have a slight swelling on the left side of my neck (lump is on the left breast) and am wondering if the two are linked. I mentioned the neck lump to the consultant but he didn't seem interested! I'm not saying I think either are sinister, just that there may be some kind of lymph drainage issue. I'm also concerned that the lump could turn into something nasty and I'd like to make sure I catch it in time!
Scottishlass- I hope you're daughter is ok, it's a scary time x
scottishlass
Member

Re: Confused!

My daughter recently found a lump and like you had an ultrasound and a needle biopsy.( I had BC in my late 30s). If you were my daughter I would say if it is worrying you go back and have it checked out. It is probably nothing but do not ignore it and you are obviously worried about it. Is there a Breast Care Nurse at the hospital you attended who you could speak to on the telephone to discuss your concerns? I am not saying that there is anything nasty there but if you are stil worried have a chat with someone. It can be such a worry and it can be difficut talking to family or friends. That is why this site is so good. We know just how you feel. Take care and let us know how you get on whatever you decide to do. Val

Sam_BCC
Member

Re: Confused!

Hi Sophieone

If you need some extra support whilst you are going through this tough time please do give the BCC helpline a call on 0808 800 6000. Here you can talk through your concerns with a memeber of staff who will offer you a listening ear as well as emotional support and practical infromation. The lines are open Monday to Friday 9 to 5pm and Saturday 10 to 2pm.

Best wishes Sam, BCC Facilitator

Guest user
Not applicable

Re: Confused!

Hi
I am wondering if anyone couild give me their opinion/ advice on my situation? Last year I posted about a lump I was worried about. A few months after my last post I went back to breast clinic and had a core biopsy which came back as normal tissue (got my results in June 2011), however, the lump is still there and still bothering me as it's painful.
When the consultant did the core biopsy he took the sample from another part of my breast, saying that the mass was spread across it. I don't agree and can feel a hard small lump that feels like it's attached to my chest wall and doesn't move. My breasts are lumpy according to where I am in my cycle and I wonder if the mass he could feel were just hormonal changes and that he thought this was what I was describing as my lump. The lump does seem to be more inflamed at some times more than others but there's no clear pattern.
I am just after some advice before bothering my GP and breast clinic yet again! My tests last year involved fine needle and core biopsy and ultrasound and all came back ok so I feel like I'm being a bit hysterical going back again. I don't know whether to just accept its presence or go back to the docs? Part of me just wants it removed so it's no longer bothering me! I'm not sure whether I mentioned but my mum had BC when she was 43, and ironically was under the same consultant that I saw- I think this is why it worries me.
Thanks
Sophie
Guest user
Not applicable

Re: Confused!

That's rubbish that you're still sore from November!

Funnily enough the lump seems to be a bit smaller today so maybe it's just going to disappear. Bizarre! If it's still there when I have my next appointment I'll definately be asking for the whole works again lol!

xxx

ChoccieMuffin
Member

Re: Confused!

Yes, do ask for an ultrasound for that extra reassurance. My tumour couldn't be seen on mammogram but was visible on ultrasound. The doc checked out other side really thoroughly and I felt so much better when the doc said she couldn't see anything of any concern at all.

Guest user
Not applicable

Re: Confused!

Phew!

On the biopsy front my boob is still sore from the stabbings which happened in the middle of november, i worried about this too but had my consultant check it out and reassure me.

When you go for your next appointment i would ask for an ultra-sound if poss as this can show up things that can be missed on a mammogram, although it sounds like evryone is pretty sure about what's what.

Have a fabulous weekend!

Guest user
Not applicable

Re: Confused!

Hi

Thank you, I'm pretty relieved too, I must admit.

Good point about my next appointment, I'd like to know more about what it actually is and this will give me chance to ask questions, but think what you've said is right- boobs just have minds of their own!

I don't have any bruising where the needle went in which is wierd- but then there's not much boob to bruise in my case lol.

Thank you for all your kindness and support- it's really helped me through this scary and rocky time and I really appreciate it.

xxxxxxx

ChoccieMuffin
Member

Re: Confused!

Sophie, that's really really good news, so you can have a relaxing weekend without fretting. Brilliant!

Breasts seem to have a mind of their own and things can flare up almost overnight.

As women head into their forties, breasts change naturally, and sometimes these natural changes make the breasts lumpier than usual. It's good that they're asking you to keep the appointment you have because that will give you the chance to ask any questions you may have, and to get some reassurances and a fuller explanation of the path report they have received. You may even be able to get the registrar to do an ultrasound and point out the various bits that were checked and show you. He might be a bit more forthcoming with explanations now they are happy that there isn't anything in there to worry about.

Well done for the great results, I'm very happy for you. As for being sore, your poor boob has been stabbed with a biopsy needle so don't be surprised if you have shooting pains or general aches as a result of the biopsy. Don't know about yours but my poor boob was all colours of the rainbow for weeks and I got all sorts of odd twinges.

Guest user
Not applicable

Re: Confused!

Hi

The registrar finally rang me back. He said the results of the biopsy didn't show anything sinister- just that it is normal glandular breast tissue. I don't see how it can be as it doesn't feel anything like anything I've ever experienced before, but very relieved it's nothing bad.

Because of my family history he still wants me to attend my appointment on 23rd March to review how things are. I think he wants to see if it goes away during my next cycle. If it's still the same, he wants to do another biopsy. I've been aware of it for almost two weeks and it's pretty sore at times too so can't see it going anywhere but fingers crossed.

Thanks to everyone who has supported me through this time, especially as you are probably in far more worrying situations than myself.

xxxxx

ChoccieMuffin
Member

Re: Confused!

I have to say I'd phone the clinic and explain what the secretary had said about the registrar phoning you. The worry is horrible, and being promised a phone call and then not getting it is double torture.

Guest user
Not applicable

Re: Confused!

I'm sure it's 'no news is good news' as they don't hang around if it's a real emergency, but a shame that the registrar didn't call back.

If you're worried try calling the Breast Clinic as they will probably be able to explain the timetable/procedure they follow in your particular area.

Try not to panic, although appreciate how awful the waiting is - been there, done that!

x

Guest user
Not applicable

Re: Confused!

Hi

Just to update everyone- the registrar never rung and when I rang the consultant's secretary I got a message telling me she's out of the office until Monday and to ring her colleague if it's an emergency. I don't think this is an emergency so I'm hoping the results come through the post (I don't know how this can happen since the secretary's not in to write it!) over the next few days!

I'm hoping this is a 'no news is good news' situation as the doc obviously doesn't need to contact me urgently!

xxx

Guest user
Not applicable

Re: Confused!

Let us know how you get on x

Guest user
Not applicable

Re: Confused!

Hi

Thank you for helping to calm me down. I'm sure you're right. Hopefully the registrar will ring today- this waiting is driving me mad!

Thanks again for all your support

xxxx

Guest user
Not applicable

Re: Confused!

Don't panic.

The secretary won't be in a position to be able to give you the info as she won't be able to explain anything. She'll be getting the reg to call you because you phoned - i doubt if it would be any other reason - my consultant will always return calls as will the nurses but never phone me out of the blue.

I always get letters after seeing the docs as they go thru' all the things brought up in the time we see each other, so don't worry about that, it will just be normal procedure.

You are in the worst bit, which is the waiting. Try to rememeber that most lumps are nothing - AND DON'T GOOGLE!! You'll convince yourself that you have everything!!

Best of luck x

Guest user
Not applicable

Re: Confused!

Hi Annie

Thanks for the reassurance, I think you're probably right. I'm sure he will just be ringing me to let me know it's benign ss I'm expecting it to be. It just made me feel a bit anxious when she said he'd ring as it made it seem more urgent somehow!

I don't think he'll be ringing today as it's late now, so hopefully it will be tomorrow now.

Thanks again for the reassurance

x

Annie22
Member

Re: Confused!

Sophie,

I don't think it is usual to have bad news over the phone; it is generally against all guidelines and wouldn't be considered good practice; so I would think would only be something anyone would do in exceptional circumstances. But, there are bad practitioners out there. The only 'bad' news I have had over the phone is to ask me to come in again to discuss something and to have more tests - which is frustrating and in a way, I would prefer to just be told, but at least I had all the support there when receiving the bad news.

However, I was told that one of my results was a benign tumour of the liver - not a cancer secondary - so it seems that good news is OK over the phone.

Not sure this helps, but it is my experience.
Let us know what happens

Annie

Guest user
Not applicable

Re: Confused!

Hi

Being the impatient person that I am, I rang the clinic to ask if my results letter had been sent yet. The consultant's secretary said she'd find out whether the results were back from the lab and ring me.

She's just rung and said she's got all my info and passed it on the registrar I saw on Monday. She said she can't give me my results over the phone and the registrar is in clinic but she'll ask him to call me later this afternoon or tomorrow.

Does this sounds a bit odd to anyone? I expected her to say the letter will be in the post after the registrar has looked at all my info. I'm not sure why I merit a phone call out of all the other people who must be waiting for their results! Has anyone else had bad news over the phone?

Thanks

Sophie

Guest user
Not applicable

Re: Confused!

Hi

That's what I kept reminding myself- the unlikelihood of it being malignant. It did help calm me down a bit!

I'll have a root round for the leaflet you suggest and may well ring the number too.

Thank you xxx

ChoccieMuffin
Member

Re: Confused!

Wot she said.

9 out of 10 lumps referred to breast clinics turn out to be non-cancerous. There's a leaflet in the Publications section on this site which you might want to read that talks about what happens at the clinic, perhaps a mod can add a link?

also give the helpline a ring tomorrow, they're very good and will give you solid, sound advice.

Guest user
Not applicable

Re: Confused!

Hi

Thanks so much for getting back to me so quickly, this is such a supportive forum and I really appreciate your replies.

I was actually surprised they didn't say it was malignant as so many things led me to think it would be. It's even in the same area as my mum's and none of the benign lump descriptions fit mine!

I know there's a still a slight chance it could be cancerous but at the moment I'm just so pleased that this is unlikely. I tested positive for a serious genetic illness a few months ago and I don't think I'd have the strength to deal with anything else right now!

I hope your situations have had happy outcomes. I've never realised the importance of being well and in good health until these past few months!

Thanks

xxx

Guest user
Not applicable

Re: Confused!

Aaah the joy of breasts! They are naturally lumpy and change daily. Great.

I would try to stay on the positive side. Both the professionals you saw were thinking it was probably nothing.

- now immediately you have jumped onto the word 'probably', which is what we all do. 'Probably' just doesn't sound good enough. Try to see that the tests are to confirm what they think, rather than prove them wrong.

Unfortunately a lump is a lump and so impossible to say. I had 2 lumps appear (over night) which unfortunately did turn out to be cancer, however, saying that 3 years ago another lump turned out to be nothing.

best of luck and remember that the odds are in your favour.

x

Minimunchkins
Member

Re: Confused!

Hi Sophie,

Fingers crossed for you. My SIL was out of her mind a couple of years ago with something similar - it turned out to be nothing more than calcification. The lump was removed but she unfortunately gets them a good couple of times a year.

I don't know if hers was an age thing though - she was nudging 50 when she found her 1st one.

Easier said than done, but try not to worry - you've done the best thing in getting it checked out. Don't think your concern or situation is any less significant than anyone else on here - everyone will cheer your news that it's something like fatty tissue but we'll equally all be here for support if it's not.

Best Wishes xx Chris xx

Guest user
Not applicable

Confused!

Hi

I feel a bit bad posting on here as I know a lot of people who use this forum are in far worse situations.

Last Sunday I noticed a bruised feeling to the right of the nipple in my left breast and under it a lump- it's hard, not mobile and feels like it's stuck to my chest wall. I went to the doctors and he referred me urgently to the local breast clinic as my mum had breast cancer, ruling out it being a cyst.

I attended the clinic today. At physical examination the doctor reckoned the lump was 1.2 cm long. The sonographer thought the lump was fat necrosis. This would make sense as I have a toddler who's going through an aggresive phase! She sought a second opinion and the lady said it wasn't fat necrosis but normal breast tissue and that I wouldn't need a biopsy.

I then saw the registrar again who asked to examine the lump again. Said he was sure it was nothing nasty but there was part of it that was a bit bumpy so took a biopsy as a precaution.

I get my results within a week but am concerned about what this lump is. I've got lumpy breasts but this doesnt feel normal. It's tender and in a wierd location. I was just wondering if anyone else has had a similar kind of lump and if so what it was and whether it turned out to be cancerous or not?

Thanks

Sophie