Sorry you haven't had a response yet and that you are confused about her treatment plan, but I'm sure other users will be along to show support and share their experiences soon.
In the meantime you can always post on our Ask the Nurse board or call our helpline on 0808 800 6000, who will be able to talk you through any questions you have and offer a friendly ear. The opening hours are below:
Monday-Friday, 9am-5pm Late opening Wednesday, 9am-7pm Saturday, 9am-1pm
Writing this on behalf of my missus. She is brca1 and on the screening programme which picked up a lump about a month ago.
Had lumpectomy and result is 13mm stage 2 invasive ductal hormonal responsive cancer. Lymphatic nodes (4) removed and found clear so told probably no chemo and would have radiotherapy and tamoxifen for 5 years.
Subsequently got told that lumpectomy was not the right surgery and should have had a bi lateral mastectomy instead. So gone from thinking cancer free no surgery needed, to being confused as to what's going on and facing serious surgery imminently.
Anyone have any idea why the sudden change in treatment plan?? Apparently the doc was unaware of her brca1 gene status previously. Will know more very soon just wondering if anyone can fill the gaps why lumpectomy suddenly was not right and why mastectomy now is?