Any news when starting radiotherapy, someone I met yesterday who went through it all 4 years ago and is now 30 said radio was a breeze just sore skin. Xx
Morning, doing okay still no appointment will be 2 weeks this Thursday since the news so will ring soon if not heard. All a bit strange as my school has advertised for a part time teacher even though I could be back, so strange knowing life goes on. How are you x x x
Thanks, everyone knows someone that has fought the battle. Mastectomy was definitely right, really missing normality especially as no idea when it will get back to normal..either January or much later in terms of back to work. Least plenty of time to sort moving things just got to make sure rest which I am finding difficult. Be so glad when oncologist appointment comes through. How are you? Xxx
That is FANTASTIC news I'm so pleased for you, sense of relief. I guess radio is an option as you didn't have a mastectomy. I'm hoping for positive today and leaving with an appointment for a prosthesis, I'm doing really well since op, wearing a bra makes the scar a little more but I know it will get better. So when will you next see the consultant?
So so pleased for you xxxx
Doing really well, drain came out on Monday and that was the most pain I had, nurse said it was because I was so slim so taking that as a compliment they really pleased with how it is healing, feeling a little imbalanced and resenting the good boob but still early days. Still keeping fingers crossed for lymph results net Thursday but certainly staying positive as NHS and Breast Cancer Care have been fabulous.
How are you?
Reconstruction was ok, originally I wasn't going to have it but then decided as they were offering to do it all in one operation that I might as well. The recovery was uncomfortable for a while and I had to take it gradually and there is still some stiffness under the arm 18 months on but I am pleased with the result and in a bra or bikini you can't tell the difference. It's a very personal decision though and you need to consider all the options. I waited about 6 weeks from diagnosis to op but that was because I wanted to wait for a particular surgeon who specialised in that type of recon. I think without recon they would have done it within 3 weeks! Hope your results are good. Xx
Teaching is a ridiculous workload even when you are fit and well so I would take some time off to get your head round everything and check out the gland you are worried about. Once you know what your next steps are and when your op is , you may feel glad of the distraraction of work, but if not then take the time off. The one plus about teaching is there is a good sick pay package ! Xx
Hi Michelle, I'm also a primary teacher and was diagnosed with DCIS in Jan 15. Like you I had two patches so needed mastectomy. In the end I chose to have immediate reconstruction with an implant and mesh. I had 8.5 weeks off from the date of op then went back on a phased return. I did work until op but luckily had a student on placement which took some of the pressure off as it is hard to focus! I didn't need any further treatment apart from tamoxifen. I hope all goes well for you and you soon have a date. Xx
Bless ya, what age do you teach? I've just moved schools in our federation and started a promotion so timing is pretty rubbish, but everyone has been brilliant. Had yesterday and today off (have my biospy today) and hopefully will be okay for Thursday and Friday and then next Thursday should have the full results and dates of what is happening when. It is this waiting that I am finding the hardest.
I have a whole list of questions for the nurses/consultants so might get some answers today.
I've already had a week off when they took the milk ducts out but be looking at mastectomy not sure how long will need especially as teaching isn't sitting at a desk. Came home today as head wasn't right hoping to be back Thursday and Friday so will wait and see. All a bit up in the air with dates, will feel better I think when fully know. School have been great, just guess finding it hard to focus on me...have you had your op? Definitely thinking will need gradual back to work once things all sorted....thanks for all support x x x
HI Michelle, it is a difficult time when you first find out, so much to get your head around and what seems like so many unknowns - as others have said, things do improve as results and a treatment plan gradually fall into place. I'm no expert but I have had genetic testing - I had cancer in both sides (tho thankfully both DCIS and only a very small area on the left) and also some other stuff going on which lead the medical team to question if there was something genetic. I think if enough pieces of the picture (family history, specific medical symptoms) are present then they will look at testing - I don't know if your age is a factor in this.
Re the lymph nodes - my consultant said it would be standard to do a sentinal lymph node biopsy with a mastectomy even though they were fairly sure it hadn't spread as it does give a way of double checking. I think this is fairly standard but of course your team / BCN will know for sure.
Hope things start to fall into place a little for you soon xx
I was diagnosed with low grade DCIS and other suspicious cells in August , the type of DCIS I have has determined that I am lower down the ladder for timescale to op , this is absolutely fine with me . I too have to have a mastectomy and it was mentioned at the first consultation when I was told of my diagnosis . I am very lucky in comparison to some ladies in that at present I dont have to have chemo . The thing that I have learnt is that the picture unfolds more with every visit and until the tissue from the mastectomy is sent off for histology the final picture will not be clear . I was very impatient initially and very anxious about the unknown and waiting . I now have a plan and dates and I feel much better . I am having my lymph node ( 2 or 3 ) biopsy on 17th Nov , results 30th and op on 5th Dec . As well I have to start on Tamoxifen and have a CT on my abdomen to check if blood vessels are viable as this is where the tissue is hopefully being taken from for my reconstruction . So I guess moral of story is everyone is different and timescales differ although like you I wanted to know so I could sort it out in my head and plan . the gene part I have no idea except someone I know has been gene tested and they did it after she had her mastectomy and treatment . Your breast care nurse should be able to tell you . I spoke to my breast care nurse from hospital and the nurse on this site quite a few times initially beacause I couldnt make sense of things . All nurses were lovely and even though Im sure some of my questions were silly I felt that they were listening to me . The girls on here are fab too and Iv had so much comfort from coming on here . Steph xx