Thank you lynette & lavender for your comments, my mind was running riot with me but after reading both your comments I have settled down abit, its just a waiting game now so trying to stay positive.
Really glad both of you are on the mend.
My dcis WAS picked up on a routine mamm last summer. When I was called to the clinic they did another mammo, and a stereotactic biopsy of one areq of the dcis with a tiny titanium marker left in, like yours.
I was then sent for an MRI and a CT scan which I gather they do to help make sure it is only DCIS. Have they told you the grade..low, intermediate or High, which they can get from the biopsy. High grade is as it sounds, more active so more risky.
Well, I had two areas of dcis and the one they tested was high grade so they recommended a mx and no further treatment necessary. If there had been just one, theycwould have done rads after a lumpectomy.
I chose to have a recon at the same time as my mx, and chose the DIEP flap type, so prior to this Op I had a sentinel lymph node biopsy (op) to check if any nodes were affected as this would change the treatment. They weren't luckily and at least the op was a practice for the main surgery.
It does feel as though you're being put through hoops, I'm afraid, and for a time you will probably be going for sveral tests and then waiting for results. At least it gets the treatment as right as possible. The meeting of specialists is usually called a MDT meeting and the idea is to make sure all the different types of doctors give their expertise to each case. It's part of the national good practice guidelines so should be part of every diagnosis. Maybe one of the experts suggested the MRI that the original doctor hadnt thought necessary. An MRI is quite expensive and in some areas women have to fight for them to improve their diagnosis.
I hope this helps in some way, its a very scary time and you're probably similar to me and suspicious about why things are being done. In my case it seems to have worked out well and been for th best so I hope it's the case for you too. The trouble with DCIs is that no one knows which cases are going to develop further and so it's better safe than sorry in treatment.
Hallo Lindsayloo, quite a few people have had similar experiences as DCIS doesn't always show up on the mammogram, but is more likely to show on the MRI. Invasive cancer is much more likely to show on mammograms or ultra sound.
I was picked up from mammogram screening, with a small invasive cancer. A mastectomy was necessary for me for various reasons, and after operation it was found that the actual cancer was surrounded by a bigger area of DCIS which had not shown on mammography.
I had an MRI of the other side to check if there was mammography "invisible" DCIS but there wasn't. 18 months on I have completed treatment and am well.
I hope you get some replies from some others who have had similar experience
This bit of being in "The Waiting Room" is worse than when they have all the info in and can make a Treatment Plan, truly, it is.
I was referred for a mammogram. Then I had to go for an Ultrasound & more mammograms and a biopsy which was taken and a small clip put in my breast to mark the area, was then told to come back the following week for the results which I was then told I had DCIS and was pre- booked for an op on the 14th May but i had to go back today for another appointment as my mammograms wheren't there to look at and the team of consultants where meeting today to discuss my case. When i went along today expecting to get the exact date for my operation, I have now been told I need to go for a MRI scan because the mammogram isn't showing anything but my Biopsy is. This has totally thrown me and I am scared the MRI shows up something more than DCIS. If anybody else has had a similar experience I would be grateful to hear about it.