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DCIS

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kate
Member

Re: DCIS

Hi Lindalou, Click on my name and that will take you to my profile, then click on send a message, and when you are ready click submit. Did you get my message I sent yesterday. Hugs Kate

lindalou1952
Member

Re: DCIS

Hi Kate I did send you a message but probably you didn't get it can you tell me what to do. do I send it to a certain address Takecare & hugs Lindalou

kate
Member

Re: DCIS

Lindalou, I checked my inbox but I don't appear to have a message.I have sent you a message please check you have received it. Hugs Kate

lindalou1952
Member

Re: DCIS

Hi Kate I have sent you a message hope you got it. Let me know if you didn't. Takecare & hugs Lindalou

kate
Member

Re: DCIS

Hi Lindalou, I have sent you a message, my laptop was await getting repaired. How did your blood test go. You see in my message that it's my little grandaughter's birthday today. Hugs kate

lindalou1952
Member

Re: DCIS

Hi Kate don't seem to be able to send a message to your inbox so I hope you are doing alright. i have tried to send you a message but not sure if you got it or not. I have been back to the doctors as I have not been feeling very good. I have to go for blood tests just to see if i am okay I do get tired very quickly when i have been to work. Are you keeping fine and free of infections. My little Grandson will be one next week the time has gone so quick. Hope your Grandchildren are okay . Takecare & hugs Lindalou

Biker_Babe
Member

Re: DCIS

Lizzie,
Whatever do you mean a few months down the line? I have been visiting today then made a nice fish pie for dinner. I really do feel as though nothing is wrong today just the scar is getting a wee bit itchy.
No one has said not to go back to work next week so I am thinking it should be OK even if I find I cant work the whole day.

BB

LMxxxx
Member

Re: DCIS

Now then, you, Biker Babe! - steady up a bit! I made the mistake of feeling good about 4 days post op - and did too much. Then felt like I'd been run over by a steam roller! I think there is a bit of euphoria kicking in, relief at getting the op over with - but, please - do take it easy and look after yourself. Plenty time to get back to being wonderwoman a few months down the line!

Glad to hear you are feeling good, but DO NOT OVERDO IT!! Promise?

Take care
Lizzie

Biker_Babe
Member

Re: DCIS

Hi Missm,
Good that you dont need chemo, how long do they say for the rads?
I have had the nurse in this morning checking the would and she says it is fine. Hoping to get to work for a couple of hours tomorrow just to break me back in. Feeling so much better today.
xx

missm
Member

Re: DCIS

Hi again Biker Babe
Not sure when the next round of treatment starts as the scars need to heal. I have to meet the oncologist on Monday. My surgeon said I should only need to have radiotherapy and hormone treatment as my lump was very small and only my sentinel lymph node was involved. I really don't want to have chemo and apparently in my case there is little benefit in having it. I'm keeping my fingers crossed.
I hope you are making a good recovery from your surgery.
XM

Biker_Babe
Member

Re: DCIS

Hi missm,
Are you going to have radiotherapy too or chemo? When will you get started on that?

missm
Member

Re: DCIS

Hi Biker Babe
Sorry your scar is so big- you do get used to them. I now have 2 scars as I had axillary lymph nodes removed as well. They look pretty horrible at the moment but they are healing well. I had the good news yesterday that no further nodes were involved so there is no need for chemo. I am so relieved- I feel like i have won the lottery. I hope your results are good too. Try to keep busy as the worst bit is waiting. Good luck
XM

Biker_Babe
Member

Re: DCIS

Hope your results were good missm, I get mine on 6th Nov. I got home last night and got a good nights sleep. OH was horrified when he seen the scar, didnt expect that. It's 5" and looks a bit like a smile. I had thought they were going to make it 1"-2" so it was a bit of a shock to me too. Hopefully it will go back to a more normal shape for a breast when it heals a bit.
Let us know how you got on with your results if you feel up to it.
xx

missm
Member

Re: DCIS

Good luck tomorrow Biker Babe
The operation is not too bad- waiting for the results is worse. I was the same as you - my lump was found on by mammogram and removed on September 2nd.
Unfortunately my seninel lymph node showed some signs of cancer so I had to have axillary clearance on Oct 8th. I have my results on Tuesday and I am beginning to panic. I hope everything goes well for you tomorrow- you'll be fine!

Biker_Babe
Member

Re: DCIS

Heading up the road at about 2pm today after no sleep at all last night. Even had time to watch all the bike racing live from Malasia this morning.
Just wish it was all over with.
Sorry for the moan!

Biker_Babe
Member

Re: DCIS

Hi LM & Kate,

I have been told I will need 5 weeks of radiotherapy up at The Beatson at Glasgow, going up on the Monday morning and coming home on the Friday. I have been told that there are no bc patients in on Monday, I am the only one.
Trying to look quite confident about it but absolutely dreading it inside. Again, its the lack of control and not knowing what to expect. Apparently the fact I have an auto immine problem can cause problems with the radiotherapy and the oncologist has told me if they have to 'pull the plug' on the radiotherapy they will have to do a mastectomy - I know a lot of ladies have had this and got thru it - but it terrifies me. Sorry, I'm a wimp with a big yellow streak down the centre of my back.

kate
Member

Re: DCIS

Hi Biker Babe, I agree with Lizzie that this is a great place for advice and support. I still can't belief that I had DCIS. I know you will be anxious about going into hospital. I was admitted with other ladies undergoing all different types of breast cancer op and they where great company. I had never heard of DCIS before then.
I had a chest infection before being dx and I have only recently been cleared of it, you do worry and you can chat about other problems not just DSIS,so that is why Lindalou and post comments to each other.
I will be thinking about you tomorrow and Monday. The worst part is waiting for the results. But with DCIS the good news is that it's treatable.

kate
Member

Re: DCIS

Hi Lindalou, I have sent you some information to your inbox.You will be able to access this when you sign in. Any propblems let me know.Hugs kate

LMxxxx
Member

Re: DCIS

Hi Biker Babe

I too was picked up on my first mammo, on hitting the big 50, last January. I still remember the feelings of disbelief - "this is happening to someone else, not me!"

The lumpectomy is fine - anaesthetics are much kinder than they used to be - I was positively high as a kite when I came round!! - think they had sneaked it a cheeky gin!

I then had radiotherapy - tiring, skin was sore - but very doable. I'm now back at work, yes, still get tired - but did before! - and I know I will be very "twitchy" around check up times.

This is a great site - loads of good advice and support. Obviously, everyone's story and journey is different, and I feel very lucky that I did not have chemo to deal with, as my diagnosis was just DCIS.

Kate and Lindalou have obviously had a tough time, as they seem to be having lots of ongoing infections and ailments. I don't know if that is because chemo affects the immune system? - and maybe means you have to be more careful to avoid infections?

Biker Babe, can relate to the control freak comment - that was me! You really have to let go, and go with it - one day at a time. Do you have a treatment plan beyond the op? - keep in touch, and ask any questions you have - there will be someone on here with an answer - promise!!

Lizzie

lindalou1952
Member

Re: DCIS

Hi Kate Hope you are feeling alright, We do seem to be getting all the ailments under the sun don't we. I hope your Grandaughter has a lovely time at her party. I have heard from the medical people they say I cannot get anything to help me even to make up what I used to earn, but I almost knew what the answer would be. I had my extra hours cancelled as well, I don't understand it as the manager said to reduce hours and then they set three more people on. I did see my little Grandson hes so lovely he will be one next month. Are you looking forward to Christmas this year hope everything goes okay after Xmas as that is when I will have to go back for the start of mamagrams again and to see the specialist again. well takecare & hugs Lindalou

Biker_Babe
Member

Re: DCIS

Hi ladies,

Hope you dont mind me joining in?
I too was picked up at the mammogram and am still feeling quite strange about it. It feels as though I will wake up and it will all have been a nightmare. Anybody else felt like that or is it just me?
I go in for my lumpectomy on Sunday with the op on Monday afternoon. Feeling a bit scared as I am a control freak and am finding it very difficult not having any control over this.

kate
Member

Re: DCIS

Hi Lindalou, Hope you are feeling a little better. It maybe just a coincidence but I seem to have had one chest problem after another before being dx and this whent on for months after the operation. I have no problems with my chest now. No wonder you are feeling down you must be really tired, I am sorry about your dog keeping you up at night, but it's difficult when you get so attached to them. I hope he settles down soon. My oldest grandaughter who will be 5 is having a party and is inviting her class. Did you see your little grandson at the weekend. Take care and hugs Kate

lindalou1952
Member

Re: DCIS

Hi Kate Hope you are keeping fine. The months are going by aren't they. I have done a few hours extra and I am doing a few more next week. My dog still keeps getting me up at about three or four o'clock. The doctor i saw last week says that is why I keep getting everything that's going about and I have had this for eighteen months now and I must admit it is getting me down. Will your Grandchildren be having any parties, it seems to be getting nearer that i will have to go back to the hospital and start having tests again but this time I don't think I am going to tell anybody and go on the train by myself. well takecare & huga Lindalou

kate
Member

Re: DCIS

Hi Lindalou, No I have been lucky so far as I have not had any coughs.I think you are right we are picking up infections more than we did before being dx. I hope you are coping with the extra hours.Maybe your daughter's friend was thinking she was helping with your grandson and giving you time to yourself. How is your dog this weather is it any better sleeping at night. I cant beleive that halloween is in the next couple of weeks and then Guy Fawkes. Both my grandaughter's have birthsday in November. Take care and lot's of hugs Kate

lindalou1952
Member

Re: DCIS

Hi Kate I hope you are okay are you getting any of these coughs thats going around. I did have a good time he was good no, he never cried and i didn't see him that much about 15 minutes. I didn't know if I had upset a few people as my other daughters friend wanted to feed him and i was feeding him, I felt as though i shoun't have had him even if it was only a short time. I still haven't heard anything from the medical services they are taking their time i have tried to have a few more hours at work as i need the money what with xmas coming as well. I hope you keep well as you have had a lot to deal with too. I think my immune system is not that good that is why i keep getting ill. Take care & hugs Lindalou

kate
Member

Re: DCIS

Hi Lindalou, I hope you had a great day on Sunday. I bet your little grandson was really cute at his christening, did he cry. I hope it's a little bit better at work, I know it must be difficult to carry on working when you are feeling so bad, but I hope your cough is not so bad. Have you heard if you will get help to make up your wages, you should get help after all you are trying to return to work.
I don't think I have gone through more as the trauma is still the same. I know you don't want Christmas to come, but once you have the mammo and see the doctor you may be glad that it's over with. I know we will still have more years of check up's, but I hope it will get a little easier. I have to wait until March. Take care and hugs Kate

chipper
Member

Re: DCIS

yes, the wire guide is pretty much similar proceddure..ultrasound to locate the area and then local anaesthetic followed by the wire - quite honestly painless !

Wiz1
Member

Re: DCIS

Thanks River for encouraging words - have had a good chance to check out the forums today and I am overwhelmed by what people are dealing with. Some days better than others but it's just the uncertainity of so many things - no good for a control freak like me!!! But then maybe I am learning the 'day at a time lesson'. Can anyone tell me - is the guided wire that they insert prior to WLE a similar sort of procedure (in terms of discomfort/time etc) as stereotactic core biopsy? Wiz

river
Member

Re: DCIS

Hi Wiz,
Snap! Mine was picked up in my first screening mammogram too - we're the one in 100, according to my GP! 3 months on, it still feels as if it's happening to someone else, but it's true that taking it one step at a time keeps it manageable-ish. Inevitably, you gallop ahead at times, but I've found it better to pull back and focus just one step ahead. There are lots of threads on here which will help and I'm sure people will support you as much as you want. You're definitely not alone! I can't beleive you were given the original news over the phone...
Latest part of my BC journey is to go on holiday to the sun tomorrow and try to forget about it!
River

Wiz1
Member

Re: DCIS

Diagnosed with DCIS 10 days ago - high grade. Completely unexpected -picked up on my first 'over 50' mammogram. Am a healthcare professional - feel like I should be able to cope with this as I keep being told it's 'treatable' as found at an early stage but feeling really low and scared. Didn't help as I was given the result over the phone. Have now seen the surgeon and chatted with a BCN but just feel like I am starting on a journey over which I have little control - planned WLE in the next few weeks and then radiotherapy - don't know about plans for anything else - not even sure what questions to ask. Really trying to keep things in perspective. Anyone else out there going through similar? Wiz1

lindalou1952
Member

Re: DCIS

Hi Kate I hope you are feeling a bit better. It is nice that we can chat to one another about how we feel after all we have been through although you have had a lot more treatment than me and I personally don't know how you did it, I don't know whether I could have done. I did go back to work but I am still feeling ill it's an effort to go at all. I still have a bad cough which doesn't seem to go and I don't think I dare take anymore time off. I still haven't heard from the Medical Services if they might make my money up to what I was earning last year. I am dreading Xmas as I know straight after I have to go back to hospital for a mamagram and then see the specialist again. I wish i could get better and stay well but it doesn't seem to be happening, I worry if I still have it as I don't seem to get better at all. My grandson the one who is nearly one is being christened tomorrow which is Sunday 4th October. A lady was saying on the tills today as he spotted us as his mum was at the cashpoint getting money out that his little face beams when he saw us. They do make you feel like its all worth while don't they.Its nice to hear from you Takecare & hugs Lindalou.

kate
Member

Re: DCIS

Hi Lindalou, Sorry it has taken so long to reply. The reason was my laptop was playing up and I could not access the internet. Did you go back to work last week, if so I hope it went ok for you, I was thinking about you.It was my birthday in August, so I think I am a month older than you. [I am 57] Here's to the next 20 years.
I know what you mean about picking up one virus after another, I hope you are feeling a little bit better. Did you see your grandson this week, I was at the balls with my grandaughter's last week, I was shattered afterwards. The youngest one who is 3 said I know what 1 and 1 is, 11 she said. They are so funny and make you feel special. I think that how you feel to. I don't speak to any one in the family either about my feelings, so it's great we can expres our feelings to each other. Hugs and take care Kate

lindalou1952
Member

Re: DCIS

Hi Kate Glad to hear that your appointment went okay, was you feeling a bit scared as i know I would have been. I do agree with you it does seem as though they are saying an awful lot of maybes don't they and that must be frustrating for you I know it would have been for me. It was my birthday on the 18th I had a nice day but i did say to my mum and sister that i didn't think I would be here to celebrate it. I am going back to work on Tuesday not that I want to as I have had enough of them, I seem to get over one thing then I get another are you the same ? My hubby seems to understand that I go on this site to talk to you I know it helps me, I don't know about you but I still cannot to talk to anyone in the family as it is easier talking to you. Its because we both have been through the same thing apart from you having to have Rads. Well Take care & hugs Lindalou

kate
Member

Re: DCIS

Hi Lindalou, Hospital appt with the bcn went ok, in and out in 5 mins. I was going to ask a few questions but I don't know why I felt she was to busy and never asked. I have to go back in March and I may or may not get my mammogram done on that day, depends how busy they are. The only question I asked was will I get the results after the mammo, she said maybe or maybe you will have to wait. { I think there is to many maybe or maybe not] they must know how we feel.
Sorry you are still feeling unwell, but good to hear that you answer your neighbour back. I think your hubby thinks he is helping you,and you can just go back to normal!. But we both know how difficult that is, my hubby thinks I should not be on this site, and should be moving on by now. I told him how it helps being able to speak to you as we can help each other.
I have a grandson he is 18. I feel if it was only yesterday he was just starting school. It is so good to be able to express our feelings. Take care and hugs Kate

lindalou1952
Member

Re: DCIS

Hi Kate I wil be thinking about you on Thursday. when you see your BCN. I am still off work at the moment. My hubby says I should be doing more hours. like I did last year but i know I can't do it. I have my neighbour giving her remarks, as I am not at work saying I shall not have any money, but I did give her a reply back saying that you cannot go if your coughing over everybody. It does seem easier having you to talk to you know how we feel and thankyou for your kind words It brings me back to reality and to see all we have been through I don't seem to have that many people around me to cheer me up, my Mum and sister are very good. My little Grandson is lovely I hope your Grandchildren are alright did you say you have a Grandson as well. Well Takecare & hugs Lindalou

kate
Member

Re: DCIS

Hi Lindalou, Sorry to hear that you have a chest infection. I think after dx and treatment our immune system must be low. Your grandson sounds like a little angel. I am going on Thursday to see the bcn, but it's just for a check up, but I still hate going. I know when it's time for your hospital appt you will feel the same. Maybe the next year will not be so bad.(I hope so). Don't worry about your work as you are more important. Take care and hugs. Kate

lindalou1952
Member

Re: DCIS

Hello Kate How are you have you been to see your BCN yet and how did it go ? I am still not very well it has gone on my chest now so I am still on the sick. I am glad your Grandaughter is settled at school it is a big thing for them isn't it. I still have my Grandson on a Monday and a Friday he looks at you and your heart just melts and for a bit i forget my troubles but i know the date is coming nearer when I will have to go back and at the moment I just don't know how I will get there. Welltake care & hugs Lindalou

shenay
Member

Re: DCIS

thanks Chipper

i will ask her when i see her again, also about tamoxifen and % percentages about reaccuring cancer as i have had enough of tamoxifen and thinking of giving up, only on it since august 4th.

chipper
Member

Re: DCIS

DCIS often has an invasive carcinoma intermixed with it - often not clear until a biopsy is taken..if there is any invasive cancer present they will then check some lymph nodes. Ask your bcn to give you your pathology results to see what grade it was xx

shenay
Member

Re: DCIS

i was diagnosed june 5 with DCIS, hight grade, had a lumpectomy and two weeks later informed they found small about a centimetere of invasive cancer, i didnt know what that meant, but then i had to have second lumpectomy and 4 lymph nodes to be tested, they were clear. What i dont understand is even when they say its DCIs, they can stil find envasive. It was until i loooked at discharge form i knew i had invasive carsinoma as well as DCIS, it was small are and i still dont know the grade of that, only that DCIS was high grade.i am on tax and start radiation soon.

kate
Member

Re: DCIS

Hi Lindalou, Sorry I have not been on for a few days had problems with my laptop. Sorry to hear you are not well, I hope you are a little better now. I know you worry about your work, but try not to, as your health is the most important thing just now.Are you still looking after your grandson this week. Grandchildren are fine just now, the one that started school seems to have settled down well. Take care and lots of hugs Kate

lindalou1952
Member

Re: DCIS

Hi Kate I have found it a bit difficult to get on this site today hope you are feeling okay and I hope your appointment with your bcn goes okay I have not been on this site this week as i have been ill I seem to get one thing out of the road then i crop up with another.I had to ring in to work they did not even say anything. I think I will have to go on the sick again as i feel to ill for work just now. How are your grandchildren hope they are okay they do cheer you up, I looked after my eight year old grandson last week he said he could easily bump me through the window for something that belongs to is DXbox that he forgot. Well takecare & hugs lindalou

chipper
Member

Re: DCIS

hi avis - sorry to hear about your diagnosis..was it DCIS or invasive carcinoma - DCIS isn't invasive as it's still 'in situ' within the ducts..it comes in three grades,high,intermediate and low. An invasive carcinoma is graded 1,2 or 3 . What a pain about the scan - try not to worry,though I know it's easy to say that.
xxchipperxx

avisg
Member

Re: DCIS

I was diagnosed with DCIS last Friday, invasive, grade 3 and told I need an MRI scan to tell if I need a lumpectomy or a full mastectomy. The waiting is hell as you all know.

Yesterday I got home at 6o/c to find an message from the MRI unit asking me to call to arrange the scan. Rang the number for over an hour this morning with no reply, finally got the main switchboard to put me through on the internal phone, only to be told the woman who arranges the appointments is now off until Tuesday and that I have to wait another 4 days to arrange the scan!!

kate
Member

Re: DCIS

Hi Lindalou, That's a shame you never got any sickness benefit. I hope they can help make up your hours. Happy to hear that your shoulder is a lot better, just don't lift any thing heavy for the time being. I think the first mammagram and consulant visit will be really difficult, after that maybe it will get a little easier. [hope so] No wonder you dread Xmas after receiving that letter during the Xmas holidays. I am feeling ok but just dread going back to the hospital in 3 weeks, I know it's just a check up with the bcn.
Your little grandson sounds so much fun. You can just be yourself with the grandchildren. Take care and hugs, Kate

lindalou1952
Member

Re: DCIS

Hello Kate My shoulder is a lot better as I am trying not to pick up heavy things. They say i am not allowed any sick benefit as I have a husband, I still don't feel able to do more than two hours work at a time. I haven't heard from the medical people yet whether they can help to make up the hours that I used to do. How are you feeling ? My grandson is quite a little character laughing he makes you feel a lot better. I bet your Grandaughter cheers you up. Your right we never knew what we were in for did we although when I received the letter on the 29th December that I had to go for more tests I knew that I wasn't well. I was diagnosed January 6th 2009 and from then to now I still worry about it i have to go for a mammagram after xmas this year then to see the specialist in Feb 2010, I don't know about you but i am dreading going even xmas brings it all back. It is a good thing we can talk to each other about it as nobody else understands better than we do. Well takecare & hugs lindalou

kate
Member

Re: DCIS

Hi Lindalou, I hope you get sickness benefit you deserve it. How is the pain in the shoulder now, I hope a little better. My grandaughter will be 5 in October, she seems to enjoy school. How is your little grandson, they make you forget your problems. I know it will be on our minds at Christmas, but thank god it's not last year, we never new what was in store for us. When do you go for your follow up. I was dx in Feb and had my operation in March, I am due to see the bcn next month but that is just for a check up. I don't think I have been through more as we both had dcis, the trauma is still the same. We can express our feelings to each other, as it's difficult to explain to our family.
Take care and hugs, Kate

lindalou1952
Member

Re: DCIS

Hi Kate I haven't been on this site for a few days, I haven't heard from the Medical place yet. I don't expect them to give me any sick benefit as everybody says i won't get any. I hope you are keeping well and when you go back to the hospital I hope it all goes well. How old is your Grandaughter ? I bet they cheer you up. I still feel as though work is too much for me also it is coming nearer to Christmas again and it brings it all back what we went through.Do you feel like that too, although you have been through more than me.Takecare & hugs Lindalou bye

kate
Member

Re: DCIS

Hi Lindalou, Sorry I have not logged on for a few days.I am glad your x-ray went ok, it's a shame you are still in so much pain. My grandaughter started school on Monday, she looked so cute.[ School holiday times are differnt in Scotland.] I am keeping ok just now, but the weather here is so awful raining most of the time.
My next appointment at the hospital is next month. I don't really see my own GP that much, as I have been going to the hospital'
I hope things improve with your work, I know it must be difficult to see a way out of it just now. Take care and hugs, Kate

lindalou1952
Member

Re: DCIS

Hi Kate I should get a decision after two weeks which should be about next Tuesday,my x-ray is okay nothing too serious but it is painful. I hope you are okay have you been for your appointment yet to see the Specialist or Doctor I hope it will be good news for you. I saw my Doctor today he has been very understanding and he talks to me in a kind manner, does your Doctors understand you with everything you have been through ? I don't enjoy my work anymore it's all too much for me. My little Grandson makes me laugh, he looks at me when I have him and he cheers me up when I am down. Well takecare & hugs Lindalou Bye