Oh,Sueb,understand completely.I had 13 years between DCIS right side,and again on right side.It was like being in the bottom of a swimming pool,or in cotton wool..people's mouths would move,but couldn't hear!
Then telling people,then the tears.....
when you look back,it is like "did it happen to me"?
the first time I went completely cold,with shock.Next time I almost laughed,as told my husband. Will have a glass of culled wine ,whatever the outcome.I had several glasses.
you are n this bubble.....take care.💓
I dint know if this is of any help but I would recommend you do some research with regard to the LORIS trial.
I think there is some info on the Macmillan website. It is a new trial for patients with low risk DCIS. Patients are split to follow either the surgery route or careful observation and monitoring. There is a debate on going about patients going through mastectomy or WLE plus radiotherapy for low grade DCIS as for many women this is considered over treatment.
Maybe you could discuss the trial with your consultant especially if you are concerned about losing your breast for something that may well never become invasive.
I was diagnosed back in January...I went into the consulting room and came out a different person. I thought why me! And went into a bubble ,thankfully my husband was with me and he became my ears. he came home from The hospital went straight on the computer to understand more of what we had been told. It was a question of mastectomy or not due to DCIS. I chose ma sector followed by immediate reconstruction...this was my choice and thankfully my margins were clear which meant no Radio or Chemotherapy. We are now 8 months on reconstruction felt alien at the beginning but like everything else the body needs time to get use to being traumatised, Syemtary was carried out on my other breast and at the age of 61 feel like new. Reconstruction is not everyone's choice but it was mine. virtual hugs to you for your coming journey.
Hi Sue, sorry to hear of your diagnosis. Exactly the same happened to me, routine mammogram recall, DCIS, 2 biopsies and mx . I found at the time the whole thing did feel quite surreal, maybe it's our way of coping, perhaps we detach ourselves until we have had chance for the shock to subside! If you have been through it before you will know what to expect but it sounds as if like mine, they have caught it early. Are you having reconstruction? Do you have a date for your surgery? Nicola xx