I feel exactly the same as you. My DCIS was 10mm high grade with no invasive cells found . But having read so many articles on the subject it worries me that although the prognosis for DCIS is good because it is high grade it has a higher risk of coming back than if it had been graded as low or intermediate.
Blimey Jill I've just posted the very same words.... Cancer is cancer!!! Separated at birth 😂
Hiya, welcome to the forum Plucky Ducky , great name under the circumstances!! 😜 DCIS isn't "pretend" cancer and you should in no way feel guilty and have every right to feel sorry for yourself! My diagnosis was relatively minor if there is such a thing and I too felt like I had gotten off lightly and had no right to get myself is a state over it but Cancer is cancer! I lost my mum to BC 13 years ago and when I was diagnosed I freaked out and thought I was going the same way but our diagnosis were poles apart and I soon learned I would be just fine, my 2 sisters have been for screening and thankfully are both fine, it's totally overwhelming but you will get your head around it all and always someone here to lean on 😍
No idea why or how I am typing in bold BTW!! 😜 Xx Jo
Hi I'm new here and was told yesterday I have dcis very scared ,have to have op ,day surgery ,and then possible radiotherapy I feel sick thinking about it ! Breast cancer runs in my family unfortunately.anybody had the same ?
Hi I'm waiting for lumpectomy on March 24th was diagnosed in February after routine mammogram, I too hadn't found a lump. I've been told its 1.9 cm & hopefully I won't need chemotherapy but won't know til after the op. It seems ages til my op everyone else seems to have them quickly once they're diagnosed. So in my dark moments I imagine it growing & spreading. I can understand perfectly where you're coming from Aggielou I know even after treatment if I'm told I'm o.k. I shall worry about it coming back & every mammogram will terrify me. Being able to talk to others going through the same is helpful though. Anita x
Hi Lambykin and Julia1 and anyone else who can offer any thoughts.
I haven't contributed to this thread since my first time-.was trying not to read too much and concentrate on my surgery. Had WLE ON 4 Feb. Biggest fear was actually having anaesthetic cos never had one before but was fine. Had wire put in at 8.15 and then waited for the op - I was late on list so didn't go down til about 3 pm.All went fine , only needed paracetamol for discomfort- no real pain..
ANYWAY.... Went for results on Mon (22nd) Was good news - all DCIS with no invasive cancer found . Have oncology appt to plan radiotherapy as was high grade. Surgeon said he had been concerned that there would be some invasive cos it was larger than thought( 5.3 cm) and had formed a lump . So I feel very lucky.
WHY THEN..... Over past 2 days since having that good news ,do I feel low and can only think about high chances of recurrence ( esp as was high grade) and despite going to have annual mammograms what if still recurs ..
Also - have read that some hospitals give tamoxifen following radiotherapy for DCIS if it is oestrogen receptive as research shows that it further reduces risk of recurrence. Not routinely given where I live but can discuss with oncologist. Again , feel worried cos if its left up to me , won't know what to choose as tamoxifen has risks of its own. .
Think I should feel much more positive than this. Maybe it's just the culmination of the ups and downs since being told on Christmas Eve till now when I got definitive diagnosis. Has anyone else felt like this?
Hi Julia- thanks for quick reply. Am a complete newcomer to forums. Sorry to hear that more DCIS has been found but feel you are making the right choice , despite it being very difficult decision. Do you mind me asking how your DCIS was picked up if out didn't show on mammogram? Also, what were the further tests after the unclear margins? Not just being nosey- it helps to hear other people's experiences as it broadens understanding so I can add medics more questions as they arise. Had prep assessment on Weds but still can't quite believe will actually be having surgery next Thurs and it will be over this time next week. My BCN advised 2-3 weeks off work but will have to wait and see X
Hi- recently diagnosed with DCIS ( first lot of biopsies taken on Christmas Eve , then had to wait for 2 weeks for results cos bank hols) Those results inconclusive so more biopsies which came back as high grade DCIS. Am having WLE on 4 Feb and probable radiotherapy . Have never had an operation so worried about that but my main worry is that they may find some invasive cancer cells in amongst the DCIS which I know is not uncommon . So ,instead of focussing on fact that DCIS is a better diagnosis , I'm worrying about getting worse news! Anyone else felt the same? Am not even really sure what my breast will look like after the surgery - am only 32-34B to start with.
As if you haven t got enough on your plate, you would think hospital would get it right. All bit up in air with me too as consultant said in on the 12th for guide wire, op on 13th and then home on 14th but nothing in writing. Didn't t say I could come home after the guide wire. I ll check with them tomorrow if staying in or not. I m bit gutted as its my daughters 13 th birthday on the 14th and I won t be there in morning to see her. I haven t told my children yet that I m going into hospital as don t want to worry them. If you want me to give you my e mail address to keep in touch, let me know x
I would just like to say good luck to you all I was diagnosed with DCIS 5 years ago had mastectomy and no further treatment except hormone therapy you must make sure to to ask if your DCIS is hormone related in which case you will have to have tamoxifen or letrozole for 5 years.
Hi all I hope that you all managed to have a good Christmas despite the anxiety. We met my surgeon on Thursday - he was very reassuring that the cancer is in it's earliest stage and he is confident that if it's treated now it won't affect my long term health. He hopes radiotherapy won't be required as you only get one shot at it ... I had not realised that. My sugery is on 22nd Jan - longer than I had hoped but not to long. I am trying (not suceesfully) to put it to the back of my mind ....
@julia1 How did appt go? Were results available?
Hi all I hope that you all mana gaged to have a good Christmas despite the anxiety. We met my surgeon on Thursday - he was very reassuring that the cancer is in it's earliest stage and he is confident that if it's treated now it won't affect my long term health. He hopes radiotherapy won't be required as you only get one shot at it ... I had not realised that. My sugery is on 22nd Jan - longer than I had hoped but not to long. I am trying (not suceesfully) to put it to the back of my mind ....
To you and the other ladies that are recently diagnosed. I was diagnosed on 2nd April 2014 with high grade 5cm dcis underneath my nipple, at first I was told this was a papilloma which is a non cancer tumour but biopsy results showed DCIS. I ended up having 2 Lumpectomies and removal of my nipple and aerola, plus 15 radiotherapy sessions.
I totally understand how frightened and alone you can feel but please believe me this will pass and you will be totally fine. The treatment is really ok, and radiotherapy as scary as it sounds is not too bad at all.
I might have a boob that is smaller than the other and looks different but it is a small price to pay for good health. If I knew then what I know now, I would tell myself to put things in perspective and not to dwell each day on what is happening and try to get on with life as normally as possible. DCIS is very early cancer and in comparision to other cancers this is the most treatable/cureable.
Please please talk things over with your breast care nurse and or friends or just come on here and ask questions, do not feel alone and scared we are all here to help and support you.
You can ask me anything and I will answer honestly.
Take good care of yourselves xx