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DIEP booked 18 April - EEek

amdamc
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Re: DIEP booked 18 April - EEek

Lenny, Thats Brilliant - my favourite musical. Well done him.
Cheers
Anne x

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Re: DIEP booked 18 April - EEek

Lenny- THAT IS FANTASTIC NEWS!!!! YOU MUST BE SO PROUD OF HIM!!!

XXX

Lenny
Member

Re: DIEP booked 18 April - EEek

hi all,

so good to read all your posts... to ad my bit... i was told the same as sarah about the mamogram.... she will go first so will be able to do what she always does prepare me for the worst! thanks friend. i'm completely with you ann but i suppose we will all end up doing what is necessary to keep healthy.

heidi, lovely dog and just days to go.... enjoy your kids. i went to see harry potter for the 2nd time today on orange 2 4 1... took my step mum as she is a fan and she helps me every week with the ironing.

hope you are fully recovered from the dreaded swine flu christina... not fair that you got it... i mean this year has been hard enough.

i am wearing crop tops from matalan - £2 and they are wonderful, my surgeon even commented on how good it looked.

it was really good meeting sarah and comparing scars!! it was also good finally putting a face to the name and voice.

lyra hope all is going well these really are early days take good care of yourself..... tracy you are so good walking the dog i'm sure having a reason to get out is good for recovery.

zara and jane i can't help much about the diep as i had a tram flap... very happy with results

and me.... tummy wound seems to be improving but not completely there yet (yawn, yawn) antibiotics finish on friday. we are hoping to move on tuesday and everything looks so good at the new house... we are nearly packed here, can't wait til it is all over.

feeling pleased with myself coz i drove today!! and i'm also a proud mum as my eldest boy has just landed the lead in a summer production of les miserables....

well sorry i always talk too much...

love you all,

lenny
xxxx

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Re: DIEP booked 18 April - EEek

Previous to me having a mastectomy, I treated myself to breast implants 6 years ago. When i found the lump last year they did use the mammogram, and ultrasound.I have to say it wasn't very nice and would prefer them to ultrasound in future after i have had the recon xxx

amdamc
Member

Re: DIEP booked 18 April - EEek

NO WAY - I am not putting this new baby in a mammogram machine!!!

I was told that that side will be done with ultrasound from now on - I hope that's right.

Rant over - have a good day.
Cheers
Anne x

Esskayeff
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Re: DIEP booked 18 April - EEek

Nell - I had my mammogram the week before my op and the radiographer said next year they would do the reconstructed boob as well. The thought of my new boob being squeezed in the machine brings tears to my eyes !

Another good place to get crop tops is Matalan, either their own or Sloggi brand. I wore them for several weeks and then ordered online from M&S a 2 pack non-wired white bra which is comfortable.

Met Lenny last week and we got on well - will be meeting up again soon.

I am off to a family wedding this weekend - got myself a new dress - nice to be able to wear one with a V neck and not have to worry !

Saw my GP on Monday and I am signed off until the 24th August - 3 days after we come back from Spain. It will be 14 weeks then so I suppose I should be ready to go back to work......

Hello to all newbies - our online friendships our great for advice and support.

I must get round to putting a photo on soon.

I like Heidis's countdown to her op as I go on holiday the same day !

Love to all
Sarah
x

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Re: DIEP booked 18 April - EEek

hi Christina...My mammagram is not due till Dec or Jan next year.
So good luck with yours. That was one question I asked my bcn . What did they do with the recon breast...She had to go and ask someone else, because she didn't know....she came back and told me that they don't 'do' the recon breast, but each authority might be different!

Helenxxx

mounties
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Re: DIEP booked 18 April - EEek

Hy all, hope you are all well and staying clear of the dreaded swine flu. Not nice at all.

Has everyone who has had their recon had their yearly mammogram still? I thought mine was due about now but have heard nothing. I don't want to ring up to ask in case they postpone it due to recon.

Would really appreciate knowing what has happened to all of you as far as mammograms are concerned.

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Re: DIEP booked 18 April - EEek

Morning all...Oh Heidi he is adorable! And its easy to see on the previous pics that your kids adore you too!!Whats this, you didn't include your minutes in your count down....slack, slack , slack ;-).
So you will be having an LD flap...well the girls on here will give you advice about that one. Finishing work is a big thing love and I think taking your children to the cinema afterwards is a good strategy!!Relax and enjoy this next week with them...hope the weather holds out for you.
Tracy I get my crop tops at primark. Still not in a 'proper' bra yet but soon will be. Your trip with your mum sounds like it was an interesting one....! You refer to your binder as a Jane Austen style thingy...you sound like you have the figure to appear in one of the drama periods and you already have good practise with wearing the binder hehehehe
To all those recovering...take it easy. No lifting the furniture single handed Lenny!!! To those with an op coming up...try doing a count down like Heidi does...it may make it go quicker!!!!
Anne hope the swine flu doesn't affect the wedding!!!
take care all
Helenxxx

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Re: DIEP booked 18 April - EEek

Tracey - my dog Mo! xx

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Re: DIEP booked 18 April - EEek

Hi all

Sorry to hear you have had swine flu mounties - was it horrible? My friends son had it and he was ok after 24 hours, its just worrying hearing about people with "added complications" as they call it! Anne - how exciting for you to have your daughters wedding ahead of you - have you chosen your outfit now?

Tracey - I have a little dog too, king charles, so am hoping that she will get me out walking after the op to get me used to some exercise again.

Lenny - (gosh, aren't i doing well remembering everything so far! ) - how are you doing? Can't imagine how frustrating it must be moving and not being up to full fitness. Was it nice to meet Sarah?

Nell - how are you?????

Hello to all newbies!

My last day of work tomorrow, lots to tie up before i finish, feel a bit stressed! Am taking the children to see Harry Potter after school, and then have some fun things planned to do before i have the op in ....wait for it..... 1 week 5 days!!! 288 hours!! Spoke to someone at the ps today, and they are definitely taking muscle and skin from back and not tummy.

Lots of love to EVERYONE i have not mentioned.

Hides xxxx

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Re: DIEP booked 18 April - EEek

Good afternoon lovely ladies, I hope you're all having a wonderful day?

I have given myself a few hours rest from the binder/Jane Austen stylee corset and it's hanging on the line having a bit of a blow! To be honest I feel a bit lost without it now, hope I don't end up having to be weaned off of it.

My dear 78 year-old Mum drove me to Romford yesterday (which was an adventure in itself, but I'll spare you the details!) There is a big branch of Primark there and I got a lovely sports bra for £4, it's so comfortable and has a 'racer' style back (it also fastens at the back) for anyone going in for there surgery or just had it they are perfect. The only thing I would recommend is getting a cup size bigger than you would normally have, I am only a B cup but had to get a C, I couldn't be bothered to try it on in the shop so opted for the larger size.

I have been doing a bit of dog walking (don't know if I should be) but he's only a little dog and we just go over to the local park, 5 minutes away, for about half an hour. I just let him run around and then we head back home.

Hope everyone's ok and not over-doing it,

Love and best wishes,

Tracy xxxxx

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Re: DIEP booked 18 April - EEek

Afternoon all... welcome Zara. Like Anne and cathy I too had the diep. As Anne says some p.s specialise in dieps. Its all like Cathy and Anne have explained, really well, so can't add much to that. But ask your surgeon for a good website to browse on at your leisure. My surgeon gave me one and I've been looking for it to give you, but can't find it....sorry. Good luck with your decision Zara.

Oh poor you Christina, swine flu...not a good thing to have, bet its knocked you back a bit. Rest up and build yourself up again...hope you are feeling more like it soon!!

Heidi, I love the pics and think its a great idea to change them regularly. My son put my pic on when I started posting on here and I still don't know how he did it...so afraid my pic will have to stay!!

Hope Lyra and Tracy are recovering well...take it easy both of you, nice pic too Tracy!!!Hope that you don't have anymore oozing Lenny! Keep practising that 'supervising' hand ready for the moving house...hehehehe
Hi Helen how are you these days love? Tip top I hope.....
Sarah hope your and Lennys meet up was a good one...I'm very sure it was!!
Jane hope you got the advice you needed too!

Anne, hope the swine flu doesn't spoil the wedding. It does seem forever since we started doesn't it? I will be seeing my PS Aug 21st, so similar to you. Don't think I'm due to see the onc till September...they said 4 months after I'd last seen them. Not got an appointment yet, but the bcn rang up a week ago...which was nice!! Good luck with the blood tests Anne...and yep I agree, got to see them and do the relevant stuff, lay any worries to rest!!

Hope all are doing well, and its count down for 1 or 2 of you now. Its nice that we are all at different stages, and can give information to those just starting this journey.

Take care all....rest up and more importantly...shop till you drop, most important too hee hee 🙂

Helenxxx

amdamc
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Re: DIEP booked 18 April - EEek

Afternoon everybody.

Poor you Mounties - I'm frightened swine flu will affect my daughters wedding in 6 weeks, fingers crossed I'm wrong. Glad you're over it and ok.

Welcome to Zara and Jane - I had the diep for two reasons. Firstly I had the spare flesh willing and able on my tummy (hubby reckons he could have grabbed plenty from my bum too!)and also that no muscle would be involved. Plus my surgeon specialises in the DIEP and is brilliant.

Tracy - talking of Mr R., he let me leave off the binder at my 3 week check with him. It was beginning to cut into the top of my legs - thankfully the nurses cut it down by a third, otherwise it would have pressed into my chest aswell. After the 3 weeks I wore support knicks, and still do at times as they really help.

Love the pics Heidi - not long now. I'm loving trying on low cut dresses again, ready for my mother of the bride thing, and I know you will be soooo pleased when you're all done.

To those I haven't mentioned, best wishes and hope all is OK - Helen1 it really it starting to feel an age since we started this. I'm seeing my PS middle August to find out what happens next. But, before that I have to see my Onc on Friday for checkup and I hate this bit, especially now when I'm so on cloud nine from the recon. Would be nice to be left alone, but I know in my head that its important to be checked, checked again, and even more, so been good, had my blood tests and fingers crossed.

Love to all.
Cheers
Anne x

PS - I'm an Essex Girl.

mounties
Member

Re: DIEP booked 18 April - EEek

Hi all, sorry i haven't beeon on recently. I got the dreaded Swine flu bug and it is awful. Really knocks the stuffing out of you for a few days. Thank God for Tamiflu.

I am amazed at how much this little group has grown since i was last on here. It is wonderful that Anne posting her original topic has ended up helping so many others.

Glad to see you are all recovering well. In answer to Heidis question i live in Leicester. Does anyone else live near me?

Love to all of you and will be back soon. xx

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Re: DIEP booked 18 April - EEek

Hi everyone

Hi Zara and welcome. You'll no doubt have loads of replies so I'll keep mine brief. I had DIEP operation which was right for me. I made the decision after much 'fact finding' so felt confident with my decision which was a great help.

Firstly, I note that you are having 'partial' mastectomy. I only speak from my understandng of 'total' mastectomy.

I was told that if I had LD flap, for me this would mean I would need a reduction on the 'good boob' as I have large breasts and LD is 'usually more successful on small - medium sizes' (as the consultant put it). Also, I do a lot of kayaking and the consultant said I would 'possibly lose strength and not be able to do the long distances I enjoy' although from what I understand, LD doesn't always compromise strength. Also, LD would have involved an implant behind the muscle and I didn't want to have to have further op down the line to have another implant replaced.

The DIEP suited me as I had plenty of belly (!!) which they need to 'fill up' the breast skin. Although this is the longest operation, for me this meant that the mastectomy was done (cut round areola), and then tumy incision made (hip to hip). They then took fat from tum and an artery from muscle (although muscle isn't taken out) and 'connect' a blood supply in your chest to the 'flap' which is a patch cut from your belly (can be tiny or can make the 'whole breast' in some cases). For me this was best as I now don't have to have good side reduced, I keep my stomach muscles and my back is unaffected.

That's a 'nutshell' from me. Feel free to ask any questions and I know you'll have lots of information from the lovely ladies here by the end of the day. My advice? Ask, ask, ask and then ask again until you are happy with the op which will be right for you and if they don't do the one you want, ask if you can be referred elsewhere.

Good luck and lots of love to all. Cathy xx

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Re: DIEP booked 18 April - EEek

Hello My name is Zara,

I am new to this site.I have been offered the LD flap for a partial reconstruction and my op is scheduled for 6th August.I am wondering why many seem to go fo the DIEP, is there a benefit to this over the LD flap? I would be really interested to here some of yr experiences. I am going back to see my consultant on Wednesday armed with many questions:}

x

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Re: DIEP booked 18 April - EEek

Welcome back Lyra, have been thinking about you. Sounds like the anaesthetic really made you sick, like Nell said,now is your time to be looked after and given lots of tlc. Rest up, I am convinced that if you try and rush recovery that it sets you back. (remind me of that please when i am back from hospital and trying to cope with 2 children on my own!)

Yes Nell it is another new pic, think its quite a nice way of 'sharing' with you. This was from last night at our friends house. There were 10 adults and 11 kids and we all had alot of fun. Needless to say i staggered home at about 1 am giggling all the way. Slight headache today but well worth it.

Two weeks to go for me now. 🙂 The children break up on Wednesday, and I will finish work that day too, that way i will have a week with the children before i go into hospital. Am going to try and pack as much activities into the week as possible to make up for the remainder of the summer holidays! poor kids, its not their fault.

Righty o, lots of love to all. Lenny hope you have stopped oozing.

Hides xxx

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Re: DIEP booked 18 April - EEek

Hi everyone

Lyra! Welcome back. You sound like your doing really well now your home I took 9 days in hospital as slow to be able to get off bed (4 days!) due to low blood pressure - and fear I think! Like you, I didn't have any bandaging - wierd but OK.

As for the tummy support. I phoned the plastic surgery outpatients to check that one as the weather was roasty toasty when I was wearing mine. They explained that the support was needed 24/7 for 6 weeks to 'stop fluid build up' around tummy wound. Must admit I gave myself the odd few hours off. Just be careful about what you try and lift (I set myself back a little when I ignored the 'nothing heavier than a kettle for 8 weeks' advice)

Few more weeks and you'll be offering advice (I'm still learning 10 weeks on!!).

Hope all's well with everyone. Lots of love to all. Cathy xx

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Re: DIEP booked 18 April - EEek

Hi Lyra,

So lovely to have you back on the forums.

10 hours - what a long surgery! I know what you mean about the first couple of days afterwards, I wondered whether I had done the right thing I felt so awful, but as the days went on and I began to feel better I was pleased I had gone through it.

I have been wearing my bra day and night and the binder too - which I have to carry on for another 5 weeks. It is getting a bit uncomfortable to say the least as I don't normally sleep on my back and wake up feeling really stiff and 'achey' I am tempted to have a night off and not wear it, but knowing my luck something dreadful would happen - the dog would probably leap on my stomach or start licking my wounds!

Anwyay, it's lovely to have you back and know that you're feeling ok. Try and take it easy and let everyone pamper you.

Love and best wishes,

Tracy xxx

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Re: DIEP booked 18 April - EEek

Hi all...how great to hear from you Lyra....You've had quite a rough time of it...definitely...so some tlc and loads of pampering for you too! My tummy skin is still a bit paler than the rest of the breast, but guess in time it will change a bit. Drink is good...thats all I did the first few days...didn't eat much. It is funny having the other scars as well..mine look like a roundabout, with the option of turning off left or right ....bit like a road map, hubby thinks it may come in useful heehee 🙂
It seems to be different about what to wear. I wore my crop top because it was gentler on my boob, but pants to begin with, simply so the covers didn't rub on the scar. So play it by ear love and see what is most comfortable for you.
I love the Pullman books and thats what your name reminded me of.
Take care Lyra and you must rest up and sleep whenever you need to, don't feel guilty about it. You've been through a major operation and it will take time to build up your stamina again. Nice to see you posting. {{gentle hugs}}

Hope everyone is having a lovely weekend. Its chucking it down here and has done for several days...bummer!!
Heidi...you've changed your pic again....very nice too!!

take care all
Helenxxx

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Re: DIEP booked 18 April - EEek

Hi everyone

Well, I'm finally back and have just read through all the posts since my op. Wow, how wonderful of you all to keep me in your thoughts - I feel very moved. I got home on Friday, so quite a stay in hospital, but am now feeling well. The first couple of days I found really difficult, so confused and very nauseous. Then I rallied a bit - felt miles better, even a bit normal and was able to start moving a bit - but then the nausea overcame me again and I've spent days on anti sickness tablets. The op was 10 hrs so I think really took it out of me, and maybe the nausea was a reaction to all that general anaesthetic. The surgeon kept telling me I had been very "oousy" (!?) which I think meant I bled a lot, and they kept having to do blood tests. At one point they talked about maybe a blood transfusion, but decided to just keep monitoring me 'cos the new blood would be thicker and they thought might jeopardise the flap. Also the flap (my tummy skin) was sooo pale they kept having difficulty seeing any reflux - but it was ok just that my skin is very pale - tummy never sees the light of day!!

Anyway NOW I am feeling really well. Nausea gone, eating again (is it ok to have a drink??) and flap looks the same colour as my breast. I think it is so amazing what they do. My recon breast looks more or less the same size as my other - though I know its still swollen, so may be a little smaller - but as they did a skin sparing mastect, it just looks the same - I've even still got the 2 small scars from the biopsies!! How amazing is that. I am wearing a bra and can shower every day. Can't get over not having loads of dressings and the wounds being glued on the outside!! Just one thing - I am wearing my bra all the time, but the support knickers I don't wear at night - should I be wearing them all the time too?

Well enough of me. Good to catch up on how everyone is doing. Heidi I so admire you (and all the others) doing the Race for Life thing. Well done! You're daughter looks lovely - bright as a button!

Lennie - hope you have no further trouble with infection and that the latest antibiotics get rid of that. Moving house at the end of the month - wow what stamina you must have. Even not doing the physical work, the emotional side of it all is still very tiring - so extra tlc and self pampering is called for methinks. And yes, I chose the name Lyra from the Philip Pullman books - I used to read them to my kids whe we were on holiday and we all loved them so much.

Tracy - how amazing being filmed. Hope you are recovering well.

Thanks to Cathy, Ann and Sarah for all your kind thoughts and support.

And welcome Suzan and Jane.

Helen (Nell) - good to read your always sound advice, and I echo all the comments the other lovely ladies have made about how generous you are in supporting us all and amazingly keep track of us all.

Sorry have gone on a bit - making up for lost time!! But loads of love to you all - and apologies to anyone I've missed - it's not intentional just confusion!!

Lyra xxxxxxxxx

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Re: DIEP booked 18 April - EEek

Thanks Heidi, that is so lovely - and has really boosted my confidence!

Wishing you a great weekend,

Tracy xxxx

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Re: DIEP booked 18 April - EEek

Tracy - with bone structure like you have beauty never fades.

xxxx

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Re: DIEP booked 18 April - EEek

Afternoon all!...Hope you're all ok. I was also told I was possibly too thin for a DIEP, but I did manage to put on some weight between my initial consultation with PS and having the actual op. Infact my new boob is probably very slightly larger than the real one so I may have to have some minor adjustments at a later date, but I'm really pleased with the result.

Thanks for all the nice compliments about my new piccie, I must admit it was taken in about 2002 and I certainly don't look like that now, mores the pity!

Hope you all have a lovely weekend,

Love and best wishes,

Tracy xxxxxxxxxxxx

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Re: DIEP booked 18 April - EEek

Hi Jane

I had my mastectomy a year ago and have my recon in 2 weeks. I too have been told that i am possibly to slim for tummy and back. I see the consultant for my pre op this week and i think they are going to make a decision then about where to take muscle and skin from. Will let you know what they say!!

Heidi x

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Re: DIEP booked 18 April - EEek

Hi everyone, hope you're all well

Hi Jane. Like Helen (Nell), I also had mast + immediate recon. My hospital only did LD flap and the surgeon told me that I'd need a reduction on the good side as LD flap possibly not as good a result for my build (size 16), also, I do a lot of kayaking and she felt that my strength may be impaired. My surgeon refered me to another hospital to have DIEP op. I'd definately ask your surgeon\BCN's about all options and don't stop asking until you're happy! I'm obviously 'for' for DIEP but it's worth scouring these threads for advice from many different ladies who have had LD's & DIEP's.

Hi Lyra (if you're home yet). Hope all's going well so far.

Lots of love to everyone. Cathy x

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Re: DIEP booked 18 April - EEek

Morning all...Hi Jane. My experience was a little different from others on this thread, because I had a mastectomy with immediate reconstruction. But I believe you are right and this is an op that is not 'done' by all surgeons. You would need to ask around your authority and ask if they can suggest anyone who could do it, if they can't you may have to ask further afield. The diep is a good op, and the surgeons who do it seem to take pride and artistic pleasure from what they do...all good!! Oh and a tummy tuck as a bonus...although you don't seem to need one. Hope this helps a bit...the other girls will offer their advice too.
The assemblies are great aren't hey Heidi...and totally designed to pull at the heart strings, including the teachers and children themselves...awwww!! Its a biggie when they move up isn't it.Hiedi I didn't even use my morphine button, which the doctor was pleased about...not enough pain to warrant it! So you will be fine.

Thanks for your thoughts Lenny...I'm just fine. Love the idea of the sleep over, hope it went well...bet it was loud, funny and sleepless!Glad it wasn't me suppervising though. Or were you very sensibly elsewhere!!!
Tracy the photo is lovely...I too didn't have a binder to wear, all hospitals are different aren't they.Hope recovery is steady for you.

Sarah hope your and Lennys meeting goes well...I think you were destined to be friends, all the coincidences point to it.
Hope your recovering well Lyra...early days yet, same for Tracy.
Are you still swimming Anne now that you are home? I still have under the arm 'pulls' so don't think I'd be able to swim just yet. Have you chosen your wedding outfit? Bet you can't wait, what date is the wedding?
Hi there Christina...sounds like your going great guns...good for you!
Oh I'm going to meet a schoolfriend that I haven't seen for over 10yrs, on saturday....can't wait!!:-)

Have a good weekend all
catch ya later
Helenxxx

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Re: DIEP booked 18 April - EEek

Hi, just joined the Community. I had a mastectomy back in October 2003 and last year sought advice re reconstruction. Was advised that using back muscle was best option for me as too slim for tummy flap or implant alone. I've just heard of a friend undergoing the DIEP method and she's thrilled with it, but not sure if this is an option for me as I'm in a different health authority (Leicester. Do all surgeons offer this method, it seems to be a relatively new procedure but sounds favourable to the other options. any advice?
Jane

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Re: DIEP booked 18 April - EEek

I purposefully read through last few threads so that i could comment to you all individually about your posts, and i have forgotten who wrote what already!! I am so rubbish.... what i can remember..

Welcome Suzan!

Lenny and Sarah - you are meeting up in person! wow! Would love to know where we all are geographically in England, i know that you two are oxford, I am near Southampton. Where are the rest of you from? Wouldn't it be fab one day if we could find a central point to us all, book a travel lodge or something and all meet up.Wonder how many bottles of wine we would sink? Something for us to think about in the future maybe?

Tracey - you look amazing in your photo!!
Nell - you don't look old enough to be a Granny.

I have just got back from my son's leaving assembly from Infant School, he moves to Junior School in September. It was a lovely concert and they played on all our heart strings until most of the audience was in tears! He looked so little but so grown up on the stage, where does time go eh?

Only 2 weeks 3 days left till i have 2 boobs again!! Bring on the morphine then Lenny!!!

Lots of love to all

Hides xxx

Lenny
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Re: DIEP booked 18 April - EEek

hi everyone in the 'recon clan'

i like that ann, i wish i could go swimming in spain... have fun with the dog.

i hope you are all well. welcome suzan, i would just add to those who have written advise, i think the end result is well worth the op we have to go thru' to get it. i didn't realise how much i missed my boob until i got my new one! i feel balanced now. i think we were all terrified before the op and that is normal coz it is a big one. also remember the drs have to tell you all the things that can go wrong but that doesn't mean it will.

heidi, there is more pain than mx but there is wonderful pain control and they work really hard at keeping you pain free... i loved my morphine on a the press of a button! my pain has all been in the tummy.

helen(nell) i won't mention it again until you do but you know we are all there for you for your appt in august... we could all learn from your attitude, you're amazing, thanks for the update.

cathy i have been sleeping on both my sides for a while, i don't sleep on my tummy but my discomfort has gone while sleeping.( i am 5 weeks on) i think ps have a thing about picking the scabs, as mine always does it... maybe because they like to see the results.

tracy love your new photo, sarah and i did not have to wear a binder, every place is different.

christina how many more bycicle pumps have you got to go? and i never new underwired bras contributed to bc.

sarah finally tomorrow we meet, now i need to say please forgive how my house looks, we have seriously started packing... we will have to do the race for life together next year!

lyra are you back yet, looking forward to hearing how you are doing and hope you are ok helen....not sure if i got everybody, hope so.

well i just wanted to say yesterday was a strange day for me, it was the 1st anniversary of my mx, should i be celebrating? coz i felt like i was mourning but the day ended well coz i went with my 3 men to see the new harry potter, first day of general release. it was brill, i've read all the books. tonight we a doing a party at the new (empty) house for my boys birthday - seemed a good idea at the time.... a bunch of 16 year olds, sleeping over night!!!!

well this is really long sorry,

love to you all,

lenny
xxxx

suzan
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Re: DIEP booked 18 April - EEek

hi ladies, thanks for your warm welcome and all your replies.I must admit I feel petrified at the thought of another op and am convincing myself it will all go wrong, but on the other hand cant really feel that I can be comfortable living my life feeling like I do, I find the prosthesis very uncomfortable especially in the hot weather and get very frustrated at the clothes buying situation.I think after 18 years I hadf convinced myself it was behind me, wrong !if its one thing cancers taught me its never to be complacent.Were any of you treated at east grinsted hospital ?once again many thanks for all your replies love suzan.

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Re: DIEP booked 18 April - EEek

Hi Anne et al!!

I am doing ok, went to the hospital yesterday for physio and my first check-up and they seem really pleased. I go back on the 5th of August for more physio and to see Mr. Ramakrishnan, so I am sure he will say whether he wants to do any adjustments (he did mention lypo-styling later on if necessary). I am still delighted with the results and love my flat tum - just hope it stays that way for a while! The binder is getting on my nerves a bit and keeps moving upwards, but I have to wear it for another 6 weeks apparently.

Welcome Suzan, you have certainly come to the right place! I don't know what I would have done without these lovely ladies to help me through the last few months of cancelled ops etc. They are certainly all very inspiring to say the least. I had my DIEP two weeks ago and although the first 48 hours after the op were hard going, I am so pleased I had it done and would do it again if I had to.

Love to you all,

Tracy xxxx

amdamc
Member

Re: DIEP booked 18 April - EEek

Welcome Suzan

Your story is almost identical to mine, just different years, 1996 and 2007 and had diep a few days before Nell. Cannot praise my surgeon enough and am so very very pleased with the result. Have put my prothesis under back wheels of my car (that felt soooo good) and now have a cleavage to be proud of.

My advice is to start reading this thread from the beginning and you will great a brilliant cross section of experiences, good and not so good, it started with me at the stage you are at now, with help and support coming from all sides and now a bunch of amazing friends either been there or waiting for recon.

To all the recon clan - Hiya, my mum has now gone home and I'm babysitting a labrador whilst the neighbours are on holiday - I'm shattered, its harder than looking after kids!!

Helen1 - I've done it, slept on my front, woke up like it yesterday, felt really strange, sore and stiff, but it must be getting better as it didn't wake me up immediately.

Hope everyone is ok - well done Heidi, I really missed doing the RFL, my first one was 1997 and was inspired by so many women fighting cancer that I've tried to do it eversince to do the same but will make sure I'm out there next year again - brilliant day.

Sarah - it was me who went to Spain,and I did swim, it was lovely, arm was a bit weak to start but gradually got better.

Hope you're doing ok Lenny and Tracy, how are you doing?
Love to everyone.
Cheers
Anne x

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Re: DIEP booked 18 April - EEek

Hi Suzan

Well, you couldn't have come to a better place and you've got one lady (Helen (Nell)) above your post & little ole' me below, as well as many ladies here on this thread (read back, you'll discover loads!) who have had the DIEP op. Just like you, I was terrified (and then some!). This was my 1st ever op, 8 hrs long and I was convinced the worst would happen. Well to nutshell it, the 8 hrs seemed like 2 minutes, the pain management was excellent and I an truthfully say was never in pain, just some discomfort which was easily handled by painkillers. You'll receive so much support here so I won't ramble on for now. All I will say is yes, I too was terrified but after this - I'm not scared and would do it again.

Ask any questions, PM if you wish. Good luck and lots of love. Cathy xx

PS: Happy with result - just need nipple!!

suzan
Member

Re: DIEP booked 18 April - EEek

hi ladies looking for any advice you can give me. I was originally diagnosed 1990 had lumpectomy and rads, reoccurrence 2008 so mast and chemo, have just seen a plastic surgeon re DIEP as that is the one she recommends, although I would like a reconstruction I am equally scared of the operation, could you tell me your experiences good and bad and were you pleased with the final result, many many thanks suzan

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Re: DIEP booked 18 April - EEek

Hi Cathy...I can't manage front lying...not comfortable. But up to a point I have been able to lie on my 'tummy boob' side for a few weeks now. I still only lie on it for a short time, because the hard tissue hurts after a while.. after its been squished. So don't worry about it...but maybe you could try it for short periods of time. I have a sausage shaped, small 'bean'cushion that I put under my arm sometimes to stop the rubbing between armpit and boob. Good luck!

My op was on the 20th April...12 weeks this Monday gone......

Helenxxx

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Re: DIEP booked 18 April - EEek

Hi everyone, hope you're all well

Helen (Nell), may I pick your brain please? I think you're 3 weeks ahead of me in the DIEP recovery (11 May for me). I've started trying to rest (for short periods of time) on my r/h side (recon is l\h side) and return to the 'back' when tummy's had enough. Just wondered if you've managed side/front (oh, can't wait!). Also, are you able to walk fully straight yet? I find I keep 'relapsing' into a slight stoop (naughty me!). Do hope your recovery's going well.

Tracy - hope recovery's going OK. As for work, I'm 10 weeks post op and, although I'm starting to think about the 'road back to work', I'm still finding tiredness (especially pm's) so will give it a while yet & be guided by 'Occupational Health' Dept at work as boss wants me '100% up & running' (hee hee!).

Lenny - how's the tummy? I was 'lucky' in that I had minor wound infections which seem to have cleared but still being careful with them as 2 delicate areas still)

Heidi - congratulations on the run. You look so slim in the picture - I'm amazed you have any tummy 'spare' for the DIEP! Good luck with your op when it comes round.

Lyra - don't think you'll be back just yet but can't wait to hear how you've got on.

Got to share something funny (strange humour me!) with you all. I went to see PS last week and still had some gluey stuff frm belly and scabbing around boob scar which my Dr had said 'leave to come off on its own'. Oh, not my PS - she pulled off all the remaining scabbing from my tummy and THEN picked off all the scabbing around the boob 'flap' (good job it's only small flap). Worryin thing is she was laughing (mind you, so was I - hysterically!) whilst she was doing this. Mind you, it does look a lot better.

Lots of love to everyone - 'happy healing' or 'good luck'. (I know I haven't remembered everyone!). Cathy xxx

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Re: DIEP booked 18 April - EEek

Morning all...I only scroll back when writing some posts....because I have a brain like mush at the minute!!!! But thanks!!

MUMMY!! Well thats definitely better than grandma...which I am and love being!!

Lenny...where I am at the minute is...I went for an ultra sound last Friday to check on the hard tissue in my breast. It is crescent shaped and about 4ins long and hard. They rung me up out of the blue and asked if I wanted my appointment then. Basically the nurse did a thorough scan then called in a radiographer for a 2nd opinion. Both admitted to not having seen such a large amount of damaged tissue before. After chatting amongst themselves....the radiographer said he would send his report to my PS..who I will be seeing in August.
He thinks the tissue shape fits in with the history of the operations I've had. So unless I hear different...then I will find out in 6 more weeks when I see my PS. So gonna put that out of my mind!! Think I am out of it sometimes..lol Hehehehehe

Hope you all are just fine and recovering without too much impatience!! Understand about the stiff tummy Sarah..I still get it too, but as everyone keeps telling me...you have gone through major surgery...give it time!! (I'm impatient too).I'd love to see Oliver!

Take care all
Helenxxx

Esskayeff
Member

Re: DIEP booked 18 April - EEek

I agree with you about Nell as I am always impressed with how she keeps track of us all and what we have had done/about to have done !

Heidi - well done with Race for Life - great photos on Facebook. I did it in 2007 and found it very emotional. Hopefully I will be fit to do it next year. I bought a pedometer today - thought it might be useful to chart my walking progress! Your question about driving - I drove at 4 weeks but I think you may be able to drive sooner after the LD operation which you are having. Christina may be able to tell you. I am finding the recon op harder to recover from but it was much more invasive - still worth it even though I am getting a bit fed up with the stiff tummy now.
Hope Lyra is doing ok - she should be back with us soon.

Had a trip to London on Saturday with our friends to see the show Oliver - tickets had been bought a year ago! Rowan Atkinson was great as Fagin but Jodie Prenger(won the Nancy part on TV show) was ill and didn't appear. It was a long day and has taken me a few days to recover !

Lenny and I are hoping to meet up on Friday.
Hope everyone else is well. I can't remember who went to Spain recently - did you do any swimming ?

Love to all
Sarah
x

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Re: DIEP booked 18 April - EEek

Thanks Jo, I hereby name you BIG BROTHER!

lol
heidi

Jo_BCC
Member

Re: DIEP booked 18 April - EEek

Hi Heidi,

No need to worry about the length of the threads, if they are getting too long we'll let you know so that you can start a new thread.

Kind regards,
Jo, Facilitator

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Re: DIEP booked 18 April - EEek

Just want to echo what Lenny said - nell you are so wonderful at remembering 'where' everyone is and asking after everyone. I am hereby naming you as MUMMY of our little group! Thank you for being you and for all of you being such a wealth of support and encouragement.

Am worried that the bc site stops these threads when it gets to a certain number of pages - they don't do they? What if we lose each other!?!

Lenny - hope the oozing is slowing down and you don't have an infection. Just out of interest - compared to the mastectomy, is the recon MUCH more painful as I didnt' have any probs after that but know that this is much more complex!!

Love to all (wonder how Lyra is getting on??!)
xxxx

mounties
Member

Re: DIEP booked 18 April - EEek

Lenny i love your image of me at the end of a bicycle pump!! It is similar to that in a way as i am attached to a small hose, not a garden one i hasten to add. Ps then puts in 50 ml a time with a syringe and i sit there amazingly watching my boob grow.It is totally painless and very quick.Hopefully after today i will have 2 more expansions then be left until October to have second op. Ps keeps taking photos of my new boob every week, i think he is so proud of his handiwork. They are amazing what they do for us aren't they. They do really seem to understand what we have been through to get here. You wouldn't get better treatment if you paid for it.

Did anyone see the lady on gmtv yesterday who has won 2.5 million on the lottery and has breast cancer? She said she starts chemo tomorrow and is terrified. Very true what she said about the one thing all her money cannot buy her, which is her health.

I am now wearing my old prosthetic bra's as until i know what size i will be there seems no point in buying new ones. I don't think i will ever wear a underwired bra again as they have had quite a bit of bad press in relation to bc.

Fantastic the way you are all progressing, good luck with the house move Lenny. Make sure you just direct others to do the work.

Heidi thank you for your comments about the rfl, i will certainly do it next year. Be good to give something back.

Lenny
Member

Re: DIEP booked 18 April - EEek

nell you are just great at not only remembering us but at what stage we are at!but you haven't said how you are, are you almost back to normal?

well done heidi for sunday and congratulate your daughter for me, now you've just got 3 weeks until your big adventure..... make the most of them, coz as good as the results are, the op really does knock your body for six.

christina good to hear from you... i have this cartoon image of you and the surgeon with a bycicle pump.... i'm sure it's not like that but that's what comes into my brain everytime you tell us... i know sad!

i do hope everyone is moving forward at whatever stage they are at... i feel a little as if i am standing still, was back on the ward on friday as my new wound had begun to ooz, just a little and they had told me to take no risks and i am now on more antibiotics. saw ps yesterday and he wants me to take even more and go back again in 3 weeks, there is a chance that there might be some bacteria lurking on my mesh..... hey ho. we have seriously started packing now, not me of course but my home no longer looks like my home.... but it is all a means to an end.

now girls where are we on the bra front.... who at what stage is wearing what? when can we get a serious under wire one? all advise accepted.

well helen, anne, tracy, lyra and sarah you are often in my thoughts hope all is well with all of you, sarah sorry i had to cancel,

love to you all,

lenny
xxxx

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Re: DIEP booked 18 April - EEek

Morning all...Well done Heidi for the RFL and yep you've only 3 weeks, it will both whizz by and go slow, very contradictory!!!
Christina how many more expansions do you have to have? Like Heidi that concept is new to me too! And a levelling up op in October....Something to look forward to. I might get to know the same when I see my PS in August.

Tracy how are you recovering ...well I hope...still do the resting thing, its really early days yet.
How is your wound now Lenny...better than before I hope and its not long before you move house too...so you rest easy as well.

Lyra hope your op went well and it won't be long before you are out of hospital and reading all the posts here. Sleep and rest, don't do anything strenuous!!
Hi Helen...hope you are feeling as chipper as you were last week!
Hi Anne and Sarah hope you are enjoying your new found 'freedom' with your new boobs!!!!
Hope things are going ok for you too Cathy and Karen.
take care all
Helenxxx

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Re: DIEP booked 18 April - EEek

Hi All

Christina - there were 9,500 women running the race yesterday and the age ranged from about 2 up to about 80! Some walked it in groups, some ran it alone, some held hands and walked, it was amazing to see so many women there for a common cause, all completing it for someone they know touched by cancer. Go for it next year - believe me you will have made friends with someone by the end of it!

How exciting to have rapidly expanding boobs! Is it painful when they do it?

Well its 3 weeks today and it will be my turn, can't wait. Finding it difficult to sleep at night because am so excited. How long do you reckon it takes before you can drive again?

Lots of love

Heidi xxx

mounties
Member

Re: DIEP booked 18 April - EEek

Hi everyone. Heidi I think you and your daughter are fantastic running the Race for Life. You are a real inspiration to all of us couch potatoes. I would love to take part in something like that but have nobody to run with me. Do most people run in groups they already know or do people run alone?

Great reading all the recent posts on how well you are all doing. This group keeps growing every day and getting so popular for anyone who is having this life changing op.

I have now had 3 expansions and will have the fourth tomorrow. My boob is growing nicely though still very numb. Has anyone else had that problem and does feeling ever come back?

My ps is planning to do second op now in October so that my body can have a chance to rest before he does the levelling up.Really looking forward to having 2 boobs as perky as my new one is.

Lovely to be back on this great site again with my great bunch of friends, long may this post continue.

Christina xx

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Re: DIEP booked 18 April - EEek

Well done Heidi, you and your lovely kids did great!!!!

Tracy xxx

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Re: DIEP booked 18 April - EEek

Fantastic Heidi...well done you and yours...lovely pic!

Helenxxx