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DIEP booked 18 April - EEek

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Re: DIEP booked 18 April - EEek

Morning all....Hi Tracy, I have had 3 mths off already, for this op. I think 7 wks is too soon, especially if you go back lifting things. What you need to do now is go to your GP and ask him for as many weeks as he can give you at a time. Mine did 6wks and a lot more this last time. For various reasons I'm not going back until November, that fits in with the 2nd half term.
The thing is Tracy, even if you feel that you are ready physically you may not be ready emotionally....Out of the blue you may have days when the seriousness of what you have gone through, hits you. To be honest, I think at least 3months is a reasonable request, and if you need more, go back to your GP and explain....And if you feel you can go back after 3mths, then because you have had a lot of time off, you can also reasonably ask for a phased return, so that its not such a shock to your system! It'll ease you back more gently over time.....
Hope that helps love...don't feel guilty about having time off, at this time in your life this is more important, and you need to get it right for you!!! You have years to work......

Hope all are doing ok. Heidi a few more days and you will be out, hope the sun is shining for you when it does...it was for me!!

take care now
Helenxx

welcome Debs...just realised and read your post. Everyone has had a positive reaction to recon surgery on here, even those like poor Lenny who had extra stuff done to her wound. All think it is worthwhile, so if in doubt carry on reading and posting. Heidi is in hospital at the moment and we are all hoping things are well with her! Sure they are......

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Re: DIEP booked 18 April - EEek

Morning ladies,

I posted this message on another thread, so if you read it twice - sorry!!

I had my check-up with the PS yesterday and don't have to see him again until Feb 2010 when he will discuss any minor adjustments and nipple recon. They were really pleased with my progress so far, which was encouragin.

The BR nurse gave me a certificate for another 2 weeks off (which is the most the hospital can issue at one time apparently) and said 'Hopefully you will be able to go back to work after that' I was a bit surprised as I will only be 7 weeks post op by then and wanted to have another 4-5 weeks off to make sure I am fully fit as I have a very physical job involving heavy lifting and lugging about. I know it is not really down to the nurses to say now long you need off (I may be wrong) so am I worrying needlessly? I hope they don't think I'm swinging the lead, as I thought the recommended time off work was between 8 - 12 weeks.

As usual, your advice is greatly appreciated!

Love to you all,

Tracy xxxxxxxxxxxxxxxx

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Re: DIEP booked 18 April - EEek

Hi,

I'm new to posting on this site but have been reading this thread most days for about a month now as I had DCIS and had a mx with couple of nodes removed at end of June. Seeing Lyra's positive news just made me want to say a big congrats, I know what a relief this is as I had the same results given to me and I felt so so blessed.

Felt guilty at feeling so sad a few days after my positive results as I was so lucky not to have to have more treatment, what should I feel sad for!! But I think it had all caught up with me what had happened and what I'd been through, as again I feel I was lucky in that everything happened so quickly, 20 days from doctors appointment to operating table, it felt a bit of a whirlwind for sure.

You are all lovely ladies and many have had to go through further treatments which made me feel I really had nothing to complain about, again with the guilty, but I'm trying to stop this...

You have all been so brave and more helpful to me than you know in the quiet hours and I thank you all.

Reconstruction to go for me know, I have follow up appointment 7th Sept to see my surgeon and then I think he is referring me back to the ps. Already getting some flat shoes in advance after reading some of the comments 🙂

Thank you again and gentle hugs to you all.

Debs

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Re: DIEP booked 18 April - EEek

So pleased for you Lyra, what a relief!! Go and celebrate properly now!!!
take care
Helenxx

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Re: DIEP booked 18 April - EEek

Hi Everyone

Just to let you know I had a phone call from the breast care nurse this morning to say the radiotherapist says I don't need RT!!!! So relieved, I can't tell you. So now I feel I can really celebrate my results - which were no invasive cancer, and lymph nodes clear. Though she did confirm that the extent of DCIS was 18cm, which seems huge to me. I don't know how they measure these things - my husband did ask the consultant this last week and just received a withering "are you stupid or what" type look from the consultant and an evasive reply!! However 18cm diameter would be my entire breast, if not more.

The nurse said it was not their policy or NICE guidelines to give RT after a mastectomy for DCIS. Shame the consultant wasn't aware of this last Friday when he gave me my results and said I might need RT.

Hope everyone's well. Thinking of you Heidi and hoping you're recovering well.

Love to all
Lyra xxxxxxxx

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Re: DIEP booked 18 April - EEek

Just a quickie...looking after grandson. Hope things went well yesterday Heidi...you'll be feeling pretty helpless for a bit, but will soon come round and be sorted. Before you know it you will be home. take it easy.
Lyra hope you got sorted or will get sorted this week with their decision to give you rads or not...you take it easy too .

Hope all have a good week
catch ya later all
Helenxxx

ps Cathy My Plastic surgeon is 'easy' on the eye too mmmmmmmmmm

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Re: DIEP booked 18 April - EEek

Hi everyone

Heidi (when you get back!). My op was done by Miss McGuinness (total genius PS!) Dr Whitworth's name was mentioned - he may well have been involved as there were a couple of surgeons on the case! I'm sure it wouldn't have even crossed your mind but the anaesthetist I had at Salisbury ..... OMG, very easy on the eye! - unfortunately, he wouldn't have felt the same in return, I looked a total state that morning!! Hope you had the same excellent care that I received.

Hi Mounties - good to 'hear' you again, hope you're well.

Lots of love to everyone. Cathy xx

mounties
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Re: DIEP booked 18 April - EEek

Hi everyone. Can't believe how many people have joined what started out as such a small group of recon groupies. Fantastic the support you have all given on this posting. I know how much it helped me in my sleepless nights leading up to my op.

Great to see Heidi is finally getting her op behind her. I'm sure it won't be long before she is buying her low neckline cleavage plunging new clothes.
I went to the sales last week and it felt great being able to buy anything i liked, instead of having to be concerned with how much of my sunken chest it would display. You have to go through it to appreciate it, don't you.

I am getting on great with my new boobie and i love flashing it to anyone who wants to see my ps's handiwork. Everyone has been amazed at how neat it is.

Hope you are all keeping well and strong. Worst thing i have to face this week is a medical with the benefits agency. I am dreading it as i find it hard to believe i have to go through that indignity to prove my worthiness for £64 pw.
Has anyone else been subjected to these medicals? Are they intrusive as i imagine them to be?

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Re: DIEP booked 18 April - EEek

Thank you everyone!

Cathy - I am having my op at Salisbury - New Hall with Dr Whitworth, wonder if that is who you had?

Byeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee

xxx

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Re: DIEP booked 18 April - EEek

Hi Heidi

Just want to send my very bestest wishes for tomorrow. Hope it all goes smoothly and you recover quickly and well. So looking forward to hearing from you after the op, and about how it's all gone.

Much love

Lyra xxxxxxxxxxxxxx

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Re: DIEP booked 18 April - EEek

Hi Tracy

My goodness, you must be healing at a rate of knots!! I've just completed week 12 of recovery and my boss doesn't want to see my face back at work for another 3 weeks - and I don't do any lifting at work (lots of audio typing and sitting though so do get stiff when sat down for long periods). I really hope you do (at least) take another 5 weeks (your tummy will thank you). The 'official DIEP operation leaflet' from my hospital (Salisbury) says 'remain off work for at least 8 weeks' so you're not slacking! (as long as you are able to take the time, ie getting sick pay etc). Oh, your 'pupster' sounds so cute. My two dogs used to share my bed - I miss them so much...

One thing I'll say to all DIEP/TRAM ladies is please be careful with those tums. I decided to recharge the battery for my garage door yesterday and had to reach up and push to door onto a latch. Felt a slight stabbing pain in the lower abdomen and realised I'd tried to be a bit too clever. It's all too easy to get a bit carried away. Mind you, I'm hoping to get back into my kayak this week - we'll see!!

Right, preaching over, I'm boring myself!! Lots of love to everyone. Cathy xx

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Re: DIEP booked 18 April - EEek

Hi All,

Hope you're all well and enjoying your day!

Heidi - Good luck for tomorrow, can't believe how quick it has come round, will be thinking about you and look foward to hearing all about your op!

I'm off to see the PS on Wednesday for the first time since the op 5 weeks ago, I am hoping he doesn't say I can go back to work yet as I plan to take another 5 weeks off (I think 10 weeks is probably about right for me as I have a job involving heavy lifting)

I have the house to myself at the moment, which is lovely. Even the dog has gone out for the afternoon with my Mum and brother! He's a lovely little pooch, but is only 14 months old and looking after him can be quite tiring sometimes, especially when he wants to get in my bed at 5.30am every morning!!

Anyway, sorry to waffle - just wanted to say Hi as I haven't been online for a few days and I missed you all!

Lots of love,

Tracy xxxxxxxxxxxxxxxxxxxxxxx

amdamc
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Re: DIEP booked 18 April - EEek

Heidi
Just a quick note to say all the very best for tomorrow - will be thinking of you and look forward to hearing all about it soon.
Cheers to everybody - off to BarBQ, will catch up soon, enjoy the sunshine.
Anne x

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Re: DIEP booked 18 April - EEek

Hi Cathy...I don't actually sleep on my front completely yet. I can manuoever a bit that way, but not all. That hard tissue on my breast makes it uncomfortable, otherwise I think I would be willing and able , so to speak.....hehehehe

Hope your wounds are healing really well , its marvellous what they can do nowadays!!!
Well I'm off to watch Harry Potter soon with my grandson and daughter. I've watched all 5 on DVD this last week in preparation....sad eh!

enjoy the rest of the weekend Cathy
catch ya later
Helenxx

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Re: DIEP booked 18 April - EEek

Hi everyone

Heidi - just wanted to wish you all the best and hope everything goes/has gone really well. Good luck x

Helen - you're just fab, looking out for everyone. Are you able to sleep on your front yet? I'm so impatient, can now sleep both sides and as you're a couple or so weeks ahead of me, I thought I'd ask if you'd found this possible yet?

Hope everyone's well and recoveries are all going smoothly!

Lots of love to all. Cathy x

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Re: DIEP booked 18 April - EEek

All the best Heidi...you're there at last. Will be thinking of you tomorrow, it will all be just fine....bet you don't sleep much tonight!!! And just think this time next week you'll be on here telling us how fantastic is your boob and cleavage!!!
Take care Heidi

Helenxx

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Re: DIEP booked 18 April - EEek

Hi all

Wow, tomorrow is nearly here. just wanted to write to say bye bye for now as know i won't get time tomorrow morning. Fingers crossed it will all go smoothly.

Lots of love to you all, thankyou all for your support and friendship.

Heidi xxxx

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Re: DIEP booked 18 April - EEek

Morning all...Oh Lyra, poor you. You are upbeat because of your op and then get thrown yet another worry. Cathy and Heidi have said everything...know that we are here for you. Your reaction is normal, we would all be feeling the same, don't worry about that.
I had a skin sparing op like Cathy and there is always the niggle at the back of your mind about what if one cell is still there. But you can't forever have the worry , you have to move on and try and get life back to 'normality'.
I do not understand though why your bcn told you that DCIS is not true cancer...if that is the case, why are there so many ladies having mastectomies because of DCIS? I think its a hard one to grasp even for the medical staff!
Fingers crossed about the rads love, don't really know much about their effect on reconstructed breasts....but positive vibes coming your way.
take care Lyra and have a cry and know we are here for you.

{{{{gentle hugs}}}}
Helenxxx

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Re: DIEP booked 18 April - EEek

Hi

Thanks Heidi and Cathy for your concern and assurances. I've decided to ask for a copy of the pathology report and it's interesting what you say about being ER positive - I haven't been told whether I am or not - just that the DCIS was 18 cm (ie the whole breast) so they can't be sure they have removed it all even with a mastect. and when I asked about other options such as tamoxifen, they just said it was localised and drugs were used for systemic not local treatment.

I am trying to find out as much as I can about effects of radiation treatment. Will post again later.

Lyra xxxxxxxxxx

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Re: DIEP booked 18 April - EEek

Hi Lyra

Believe me, not everyone is always so positive all the time (you should read a few of my posts on other threads!) but you need to release all the fear/frustration/anger and negativity just as well as trying to be positive etc, both effect healing (if that makes sense), that's what this site is all about.

I know exactly where you're coming from with results. I was DCIS med grade (although since found out high grade since removed breast tissue was examined and some was invasive so it was right for me to have mast). Like you, I had skin sparing mast so pretty much all of breast (just different filling!) remains and no muscle etc has been sacrificed. I share your concern about the extend of DCIS (mine was 10.2 cms in the 'upper left quadrant' and I too fear whether there could be any stray cancer cells but have been 'assured' that tamoxifen should 'block' any stray cancer cells' ability to take in oestrogen as I'm ER positive, but I still have a niggling worry, I think that's normal. The 'team' discussed me too and there was a question raised as to whether I would need rads due to the size of DCIS and that fact it had subseqently become invasive in 4 areas. Happily I do not need rads and I truly hope this will be the outcome for you (depending on type of DCIS etc). As for reconstruction 'damage', I was told by one surgeon that some reconstructions 'can' sometimes withstand rads reasonably well so may be worth asking (all opinions seem to difer on this one).

Lyra, L'm so sorry your going through this extra hassle and can only empathize with you by sharing the above. Please feel free to PM me (I know Heidi's also very kindly offered you support - as you'll have from a few others no doubt), thank god this site is here and doesn't close at 5pm on a Friday!!

Lots of love and let's hope all goes well next week.

Lots of love and to everyone else here. Cathy xx

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Re: DIEP booked 18 April - EEek

Lyra - are you still on line? Do you want to phone me for a chat?

I will message you my number in case you do.

All entirely normal what you are feeling. Phone me

xx

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Re: DIEP booked 18 April - EEek

Hi All

Just back from getting my results - they moved the appointment yet again, but this time forwards because the consultant's on hol next week. Well my results were good - in that they didn't find any invasive cancer and the lymph nodes were all clear - but the DCIS was very extensive - they now say 18cm, so the entire breast and because of this the consultant can't be sure even the mastectomy will have removed all the DCIS cells, especially since it was a skin sparing one. So, I may need radiotherapy just to be sure, and they'll discuss this next Tues withthe radiologist and let me know then what he thinks.

I've texted all my friends, and everyone says "Great!!", including my partner, and is happy - but I don't feel happy at all, and by the time I got home (an hour and a half journey to the hospital) I was in floods of tears. I am so scared that radiotherapy will mess up the immed recon... I am glad they didn't find anything worse that DCIS of course BUT am really alarmed at the possibility of having rads and the size of it. Plus the breast care nurse kept referring to DCIS as not "true cancer", and my partner keeps saying but I've got the all clear - but I'm possibly not clear of DCIS otherwise I wouldn't be contemplating rads, and for something that's not "true" or real cancer - well it's been pretty harmful to me - I've lost a breast and weeks and weeks of living in anxiety, plus undergoing major surgery and now time off work...just can't stop crying now...

I shall know hopefully on Tues whether it's rads or not. Sometimes I feel my life is ruled by these dates - appointments, results and I just "cope" from one to the other. Or, not really cope.. And now the prospect of finding out all about radiotherapy...am getting a bit weary of "finding out" all about these things. Does anyone else feel like this? Everyone else sounds so positive, and maybe I'm just focussing on the negative, but I can't ignore how I feel, or pretend to be happy with the results when I just feel sad and scared again.

Would love to hear some responses from people, who hopefully know what I mean.

Thinking of you too Heidi, with the final countdown to Monday, and really hope these last few days and the op go soo smoothly.

Was that what your appointment was about Nell - to arrange the MRI?

Hope everyone else is well,

Lyra xxxxxxxxxxx

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Re: DIEP booked 18 April - EEek

Will be thinking of you then Heidi.
I'm having a head MRI next week, simply because I've had an unsteadiness for a few months and a couple other symptoms. My GP referred me to the breast care team and thats why my onc wanted to check me out. The MRI is next Friday, and the week after that I will see my onc for the results. Its just an elimination test, which normally a GP probs wouldn't do, but because of cancer history, I guess he is covering all bases.

Are you packed up Heidi, with your button up the front pjs? So close now.......
take care all
Helenxx

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Re: DIEP booked 18 April - EEek

Lots of love and luck for today Helen.

My op is at 1.30pm on Monday afternoon.

Heidi xxxx

amdamc
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Re: DIEP booked 18 April - EEek

Wishing you all the best for today Helen - let us know how you go.
Cheers
Anne x

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Re: DIEP booked 18 April - EEek

OOh that would be good Sarah...the pic to go with the words!!

Esskayeff
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Re: DIEP booked 18 April - EEek

Helen - hope onc apptmt goes well.
I tried to load a photo last night but it didn't work so will try again later.
x

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Re: DIEP booked 18 April - EEek

Hi all...glad you enjoyed the wedding Sarah...great that you were able to stay in your heels for a long while...it does pull the tummy though, guess its because you have to stand more upright. I was told to massage regularly too. I've not had that chat about further work with my PS yet, guess he'll do that in Aug when I see him.

Heidi is your op on the Mon or Tues? bet you're quivering with anticipation....love your pic. Great you have hubby there too....
Lenny hope your moving went smoothly and you get up and running with the internet as soon as....
Anne when is the wedding? Did you get heels?
Lyra and Tracy ....hope you are continuing to recover well.
Helen, you have gone quiet, hope all is ok with you love.
Hope Christina, Cathy, Zara and Jane are all doing ok too. What rotten weather we have had, but hopefully its on the turn for the better today...fingers crossed.

I have an appointment with my onc today...not quite sure why, but guess I will find out.

take care all
catch ya later
Helenxxx

Esskayeff
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Re: DIEP booked 18 April - EEek

Hi all
Heidi I can remember the last few days before my op and I couldn't sleep either - mine wasn't excitement, it was Nerves !

Had a good time at the wedding last weekend - managed to stay in my shoes all day but I have to admit I didn't feel up to doing any dancing.

Had a check up with my PS on Monday but he was away so saw another doctor instead. I asked about some areas of my scar that feel very hard and she said I should be massaging the scars vigourously with cream for about 15 minutes a day! I've just been rubbing a drop of bio-oil in every morning. When I said I still had stiffness in my tum she was going to refer me to the physio but she was busy. She came back and told me that the swimming on holiday will be the best thing for me for stretching the muscles. Just got to take things slowly - not that I would be able to do anything else !
She also talked about further work on boob. Having a nipple on new boob can be done with local anaesthetic but she thought as the other boob was droopier (my word) matching the nipple would look a bit odd. It would be better to have nipple moved up on old boob and then new nipple would be easier to match. That would need a general anaethetic. She ended up drawing all these pictures of boobs,nipples and scars in my notes - don't know what PS will think when he sees them !

Lenny - home Tom's performance in Les Mis went well.

Got to start packing soon - looking forward to some proper sunshine.

Hope everyone is doing ok.

Sarah
x

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Re: DIEP booked 18 April - EEek

Hi all

Lyra - it is incredibly frustrating when appointments get cancelled, changed etc. I think they sometimes forget that we are people and that every day feels like a lifetime when you are waiting for results. It is very difficult just being a name on a piece of paper, and in my experience, surgeons/consultants don't always have the best bedside manner! Its so funny being on this website, as i forget that we are all suffering from this bloody awful disease, think its a testament to us all that we manage to keep going, smiling and coping despite what gets thrown at us. Girl power at its best, hugs all round. I did have radiotherapy, 25 sessions. Didn't feel anything for first 3 weeks, then got pretty tired, and unfortunately by week 5 i got an infection and blistered all over right side of my torso, not nice, but faced with people who have chemo, was probably like a walk in the park!

Lenny - you are probably in your house now, hopefully with everyone helping and sorting things out, wishing you all lots of health and happiness in your new home.

I can hardly sleep at night now, 5 more sleeps. I feel like a child, am bursting with excitement. Jim seeing doc tomorrow to get signed off for 2 weeks, so i will have some help with the children for the first week home from hospital, and then i will just have to sellotape my 2 monkeys to a chair for the remainder of the summer (said loosely) holidays!

Right, time to get my little lot to bed, saw ice age 3 with the kids at cinema today - loved it.

lots of love to you all

Heidi xxxxx

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Re: DIEP booked 18 April - EEek

Hi everyone

Good luck with the move Lennie. A new beginning...

Thanks for all the comments on bio-oil. I used it once, then decided like your comments suggested it was too soon. Am interested in the silicone strips though, Cathy and shall ask about these when I finally get to see someone. The more I think about my appointment last week at the dressings clinic the more pissed off I feel. I live an hour and a half from the hospital where I had my surgery, and they insisted that it being my first dressing clinic that i attend it there. Had to wait about half an hour and then was in for less that 5 mins. They had to ask me what surgery I had had, and the nurse took such a cursory look at my wounds. When I asked questions such as - how long do I need to wear support knicks for - they had no idea - said ask my ps! It was this nurse who also said veyr casually to start using bio-oil. At the time I thought never mind I'll be back next week for my results appointment. But now that has been cancelled till NEXT week. I did phone up yesterday and eventually got to the bottom of why it had been postponed. Apparently they have to get the original biopsy from my local hospital to compare with the results they have. So my appointment has been moved to next week. And I won't get to see the ps at that appointment, just the breast surgeon/oncologist or one of his team. The only other appointment I have scheduled is'nt until late september - so does that mean I don't get to see the ps until then? What's the follow-up like for others? Also a bit anxious about my results, as I'm really hoping I don't need radiotherapy which might damage my new breast. Also been getting quite a bit of pain/soreness in that area....Has any one else had to have radiotherapy?

Must stop worrying!

Any way, Heidi - been thinking of you and how you manage these last few days before your op! You're bound to feel excited - this is the event you've eagerly anticpated for so long. But do try to rest up and take care of yourself physically so that your body is at full strength. And let people know if you have any concerns, or there is anything you want to know - big or small - so that you get any assurances you may need.

Love to all,

Lyra xxxxxxxxxx

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Re: DIEP booked 18 April - EEek

Hi Anne glad you have your outfit, and a low one as well, good for you girl! I was going to suggest a fascinator, two of my friends have been to recent weddings...ones today.....and both chose a fascinator over a hat. Bet you can't wait now!

Lenny hope the moving went well....remember, you are only supervising! As long as you have your mattress there with some bedding, you'll be ok for tonight!!! 🙂
Heidi just 6 days now!!
Well its rained most of the day, do you think we have had our summer?

Helenxxx

amdamc
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Re: DIEP booked 18 April - EEek

Hi everybody
Might be too late for this but good luck Lenny with your move. Hope it all goes to plan, and take it easy.

Not long now Heidi, Re. pain killers, I only had a couple of strong ones on days 1 & 2, then after that it was para and ibro. Didn't need morphine thankfully but whatever they gave me resulted in me singing evidently!

Hiya Helen, you talking about watching rugby sounds all too familiar. Both my men play and for the last twenty odd years have spent my weekends either watching it, shouting at it, or washing kits after it. Must say I love it too.

Lyra - I bought bio oil, tried it at about 4 weeks and it stung and felt awful. I now use only savlon cream when it feels a bit tight or itchy. Diepcat, let us know what you think of the silicone strips, not heard of those, may ask my PS in a few weeks.

I have a dress!! Its pretty, not too dressy, most important it has low neckline hehee. So now its shoes and bag mission. Not sure about hats, after having had to wear wigs/bandanas I'm not so keen to have anything attached so not sure. May try a few fascinators, just to give my mates a good laugh!

Cheers
Anne x

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Re: DIEP booked 18 April - EEek

Hi all...Take it easy Lenny, an exciting, busy and very tiring day ahead!! Bet you can't wait to get things all in their place...but don;t overdo it!! Good luck...lots of good vibes your way to help the move along!!!
Heidi. can't believe its just one more week! Where has the time gone!
Hope all are recovering well...or are 'motoring' along at a steady pace. I had my grandson to look after yesterday and today, so just a quickie post this morning!
Anne hope you got your outfit.
Lyra and Tracy hope your recovery is going fine.
Christina hope you have 'picked' up after your bout of flu.
Sarah how goes things with you?
Zara, Jane and Cathy....hope things are fine with you too.

catch ya later
Helenxx

Lenny
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Re: DIEP booked 18 April - EEek

hi all,

this might be my last posting for a while as i move tomorrow and we forgot to do anything about the phone line until today!!! my excuse is chemo brain but not sure what hubbies is!!

well it's all packed,the decorating is finished and removal men are booked for 8am, so thunderbirds are go!

talk to you all when i am next connected, thanks for all your well wishes, really hard trying not to do too much.. hope it is dry tomorrow.

thanks for the info cathy, heidi are you counting the hours yet? and sarah how was the wedding are you packed for spain yet? everyone else in the words of my youngest son - 'chill!'

love you loads,

lenny
xxxx

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Re: DIEP booked 18 April - EEek

O N E W E E K T O GO !!!!!!

Can't sleep so excited.

Love to all

Heidi xxxx

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Re: DIEP booked 18 April - EEek

Hi Lenny

The CICA silicone strips are actually for healing. You just press them against your skin and they stay there under underwear. I think we've not been told too much about them as they're about £35 off prescrition! I googled these and they do sound good so I asked the plastic surgery dept and they confirmed that these are available on prescription - maybe see what your hospital says (I'm trying them anyway!)

Lots of love to all. Cathy xx

Lenny
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Re: DIEP booked 18 April - EEek

hi all,

i had a lovely evening out last night with my men. we went to 'jazz in a summer meadow' - very english, everyone brings a picnic, chairs etc and a jazz band plays all in a big field.... it was a lovely break from the move!

wow helen, edinbrugh fringe! i was part of a theatre group there many moons ago and my boy tried to persuade me he could go with one this year but at 16 we decided he was too young. i hope you son has a great time and the play is a success.

lyra take it easy don't try to run before you can walk, it is a slow process.

heidi hope you recovered enough to enjoy the sunshine yesterday - we might not get anymore.

anne hope you enjoyed shopping... i did b n q again yesterday o and a little of tk max. all close to where we live.

sarah hope you had a good time at the wedding, what a lovely day for it.

cathy no i haven't heard of them, who suggested it to you? and are they a cover up job or do they do something to the scars themselves?

tracy, helen2 christina, zara hope you are all ok,

lots of love,

lenny
xxxx

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Re: DIEP booked 18 April - EEek

Hi everyone, hope you're all well.

Lyra - definately hold off with the Bio oil until you are ready. I was told on week 4 to 'start rubbing' tummy scar. I did so and ended up wth 2 minor wound infections! Definately best to do it when your scars feel OK and you know your body best. I'm really impressed that you went out for a meal 2 weeks after op!!

NOTE TO ALL RE CICA CARE SILICONE STRIPS

Just thought I'd share with you all that I'm trying out the CICA silicone strips (clear, self sticking stuff which are supposed to make your scars beautiful!), you cut them to size. They last for between 2-4 weeks. Best of all, they are available on prescription. For DIEP tummy & boob scar, I was able to cut enough from a large pack (6" x 5"). Has anyone else tried these yet?

Lots of love to everyone. Cathy xx

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Re: DIEP booked 18 April - EEek

Morning all...Lyra I bought some bio oil, because I saw it advertised,but only just recently. I forget to use it to tell the truth. Use it when you feel comfortable about doing so. Yep its frustrating at times, when you want to do things but then the 'tiredness' happens. It will pass over the next few weeks, but its a major op you have had, and need lots of rest. I still get quite tired and I'm 3months down the line, mind you also older than you I think!!! Its all a waiting game , but hope you get the desired results.
Sounds like the night out was all it promised to be Heidi, hope your feeling much better now....(all said with a whisper, just in case).

Good luck for Tuesday Lenny. No running round lifting stuff...just supervise. Like you Lenny I am very proud of my son too...he's taking a play that he has written, up to the Edinburgh festival in August. Its been a dream of his for a long time......nice feeling isn't it!

Morning to everyone else, hope the sun is shining for you this morning...its pretty dull here....again!

catch ya later
Helen ..........ps Anne did you get your outfit??

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Re: DIEP booked 18 April - EEek

Hi everyone

Thanks for asking after me Heidi. I'm ok. Still feeling incredibly tired after the least exertion. Had lots of visitors the first few days I was home and I was so pleased to see people, I think I didn't realise how much it took out of me. Yesterday my husband took me out for lunch and then did a little shop round sainsbury's afterwards - and today I'm exhausted!! Getting a bit frustrated... After feeling so much better getting out of hospital, that was such a big shift, now I feel a bit stuck at this stage of feeling tired and pretty incapable. Reading loads of books, but feeling very lazy.

Heidi - not long to go now. The build up to and op itself is still so recent for me (2 weeks ago) that I'm almost reliving the steps as you speak! I remember feeling excited and nervous at the same time. About painkillers, I came home from hospital with paracetemol and ibruprofen, and am still taking the paracetemol, though not as often. So I guess it varies from person to person how much pain relief they need. Before I wouldn't have believed this would be strong enough, and friends look at me incredulous when I tell them I just take paracetemol - but it is enough and does work. I'm also sleeping lots - and I look upon this as the bodies natural way of healing.

I went to the dressing clinic the other day and all is fine. They said to start using bio-oil, but it feels a bit early, and I'm a bit skeamish (is that a word?) about rubbing the scars. Want the gle to last as long as possible!! What do others do?

It's lovely to hear people getting on with life and doing things. Amazing how your son can prepare and do the show so quickly, Lennie. This will be something you can treasure forever. And weddings, and shopping and shoes - these are the joys of life!!!

I just heard this morning in a letter that my appointment this week for my results has been cancelled to the following week. Really keen to know if I need further treatment. Hope I don't since radiotherapy my mess up my reconstruction I believe .... Think I might phone them on monday and see if they'll give me my results over the phone.

Love to everyone

Lyra xxxxxx

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Re: DIEP booked 18 April - EEek

Fab news Ann.

darkened room with cold flannel over my head and no one speaking louder than a whisper today.

had a fabulous night

x

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Re: DIEP booked 18 April - EEek

Hi all...just a quickie, got to go and watch grandson playing rugby. Congratulations to Tom Lenny...I love les mis..seen it twice and its a heart jerker! You must be busting with pride....lovely!

Anne ..the heels might stretch your tummy a bit, just enjoy trying dozens on before you decide. hehehe Tell us all about your outfit when you decide on what you are having. Fantastic news with the all clear! What a great present!
Heidi, love the pic....not long now. Impressed with the count down!!
It all sounds like its going to happen soon. They may change their minds about the painkillers, and you can always ask before you come out of hospital. Try not to worry.
Sarah enjoy the wedding you are going to....its great to have a reason to dress up for isn't it!!
You sound to be recovering just fine Tracy, brilliant.
Hi Helen and Christina hope all is going ok with you too! Hope the swine flu hasn't left you too tired Christina!
Lyra how is your recovery...going well I hope.
Hi Cathy, Zara and Jane ....take care.
Hope I've not missed anyone ....take care all

catch ya later
Helenxxx

Lenny
Member

Re: DIEP booked 18 April - EEek

enjoy shopping ann such good news - i'm at the 6 month stage. i have to do all my shopping on line these days... really miss the shops. have a good weekend one and all, looks like today is going to be nice weather...

lots of love,

lenny
xxxxx

amdamc
Member

Re: DIEP booked 18 April - EEek

Morning all

Am up early - going dress hunting for the wedding and so over the moon as got all clear yesterday from onc for another 6 months - he was well impressed with recon. Was like a bear with sore head yesterday, but now on cloud nine again. Want some killer heels, but maybe tum won't let me??

Hope you all have a lovely weekend.
Cheers
Anne x

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Re: DIEP booked 18 April - EEek

Hi All,

Sarah, your shoes sound lovely! Might be a good idea to take a pair of flatties for later. Have a wonderful day, it is supposed to be nice and sunny tomorrow.

Lenny, wish your son all the best for Les Mis next week, I am hoping to see it when I feel better - all my friends rave about it.

Heidi, say hello to Meg too! I loved the photo of your dog, what a beauty. I'm glad your pre-op went well, as for the paracetomol I was sent home with a box and never needed any. Infact, I refused it after a few days in hospital so don't worry. Your night out sounds as if it is going to be fun, shame we all don't live a bit nearer!

Sorry if I have forgotten anyone, but I wish you all a fab weekend.

Lots of love and best wishes,

Tracy xxxxx

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Re: DIEP booked 18 April - EEek

Hi Sarah - shoes sound great, shoes are my weakness! Hope you have a lovely time at the wedding.

Lenny - if you normally cry at the show then i bet you are going to be in floods this time! We want to see photos! Glad your meeting with Sarah went well.

My daughter Meg is insisting that i say hello to you all!! She is here reading over my shoulder!

Well I had my pre-op assessment yesterday and it all feels like its really going to happen now! (10 days to go! 240 hours, 1440 minutes)(used a calculator for that one Nell!) They reckon i will be in for 5 days and told me they would send me home with paracetamol??? Will i not need anything a bit stronger after 5 days than paracetamol? What did you all have? Went shopping with the kids after the appointment and i felt so emotional looking at the clothes thinking i am going to be able to wear what i want again soon, not just what i can wear that won't show a massive gap where my boob once was.

I have big celebrations tonight with all my girlfriends. About 25 of us are off to a restaurant/club for the evening, starting with champagne at my house. My one year anniversary of diagnosis is on the 11th August, and I will be in hospital then, so tonight is to celebrate one year on and new beginnings. Am so looking forward to it. Feel emotional about tonight too! Think I am going to spend the next week in between happy tears! I feel so incredibly grateful to have had such a strong support network from my friends, could not have got through it without them.

So no doubt there will be a hungover Heidi tomorrow!

Lots of love to you all, Lyra - you ok? Not heard from you on here recently?

have a lovely weekend

Heidi xxx

Lenny
Member

Re: DIEP booked 18 April - EEek

hi sarah thanks for congrats, have a lovely time at the wedding, hope the weather is good to you, the sandals sound great shame if you can't wear them. toms show is on thursday and friday next week, they do it in 10 days... like a summer school.

have a lovely weekend everyone, we are nearly packed the removal van is booked, new house here we come...

love,

lenny

xxxx

Esskayeff
Member

Re: DIEP booked 18 April - EEek

Lenny - send Tom my congratulations on getting the lead part. What date is the production ?

My mum came to stay yesterday so I tried on my outfit that I am wearing for the wedding this Saturday to show her. I have got silver wedge sandals that are higher than I normally wear and I noticed today when I tried them on that my tummy was pulling so I don't know how long I will last !! Must have made me stand in a different way !

Have a good weekend everyone

Sarah
x

Lenny
Member

Re: DIEP booked 18 April - EEek

thanks i told tom, my boy of your congrats and he was quite moved... and this is my fav musical, i cry from beginning to end, no idea what i will be like with him in lead role...

anyway just read some one liners that seemed relevant and made me smile so i thought i'd share them with you all....

'I don't suffer from insanity; I enjoy every minute of it.'

'I used to have a handle on life, but it broke... '

'You're just jealous because the voices only talk to me'

and finally ...

'I'm not a complete idiot -- Some parts are just missing.'(not for long heidi!)

o and regarding chemo brain...

'Out of my mind. Back in five minutes.'

well they made me smile,

love

lenny
xxxx