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DIEP booked 18 April - EEek

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Re: DIEP booked 18 April - EEek

Hi there Anne ...back in the land of the living. How did it go for you eh! I found the excessive heat and total dependance on the nurses the hardest thing!! Being in one postion for nearly 4 days was hard too resulting in continued backache...having said that, each day definitely gets better physically and emotionally. How are you Anne?
take care
Helenxxx

amdamc
Member

Re: DIEP booked 18 April - EEek

Hi mounties

I have just replied to your other posting, then came across this one and felt I needed to reassure you.

Can totally understand your worry re. the complications after such a large op, but would say when I had mine done this week, we were giving blood thinning injections from the night before the op, everyday until leaving for home, thigh length anti-embolism?? stockings worn again until leaving, plus special "boots" that pulsated to keep blood flowing constantly.

I would voice all your fears to the consultant - my fear was MRSA, I lost my dad to that after an operation three years ago and it was the real frightener for me when deciding to go for this. Just ask questions until you're happy with the answers.

As I said in the other posting, the pain wasn't so bad, only had strong painkillers during the first 24 hours and now coping with para plus ibro alone.

Hope this helps.
Cheers
Anne x

mounties
Member

Re: DIEP booked 18 April - EEek

Thank you Hezb, you have put my mind at rest and hopefully i'll have my op and be able to come back on here and sing the praises of my op too.

Do you know when you will have the other one done or even if you will have the other one done?

hezb
Member

Re: DIEP booked 18 April - EEek

Hi mounties, I can understand why you feel so scarde after what happened to your mum. Just want to reasure you that it is not as bad as you expect, I had Ld recon in november, 6 hrs in surgery and i have got to say that i didn't have much pain at all just felt stiff, You have constant pain relief when you wake up so you wont feel much discomfort and the result is sooo worth it. Good luck to you Helenxx

mounties
Member

Re: DIEP booked 18 April - EEek

AMDAMC, I hope your op is behind you now and you are feeling the benefits of being so brave.

I have a LD recon booked for May 11th so would love to hear from you how yours went and how much pain you were in after the op?
I have only ever had one op in my life, which was my mastectomy. I get terrified just thinking of the op again and worry about whether i'll wake up after. I know that sounds daft.

My mum 14 years ago had skin cancer on her face very badly and went in again and again for skin grafts. After her final op, she had a massive stroke due to a blood clot and lost the ability to see, walk or talk.It was awful. That is what most scares me.

Jo_BCC
Member

Re: DIEP booked 18 April - EEek

I have posted this for new user, Sarah
Jo, Facilitator

Hello everyone who has been leaving little messages for me - I really cannot get the hang of this forum - I can't remember how to get back to the right place whenever I log on.

Anyway, my diep is booked at the Royal Marsden, Fulham Road for next Wed 29th April and on a good day, I'm all up for it and then on a bad day I want to ring and cancel!!!

I have already had a double mastect ten years ago and i have continual capsulectomy so I will be glad to get rid of these implants. I have a CT scan this wednesday to check my veins - fingers crossed!

By the way, if any of those nurses come towards me with those MRSA sticks that get stuffed up your nose, I'm off!!

Spent quite a few weeks in the Ellis Ward at Royal M so it does seem nice to have a "home from home" kinda ward!

To everyone out there pre or post op - hang on in there - we are all fighters!

Thank you all for your support - my silent helpers!

Sarahxx

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Re: DIEP booked 18 April - EEek

Oh Anne ...poor you definitely 'sods law'. I hope it goes ok for you .Unless you are terribly 'clogged' up, they will probably go ahead with everything! I have everything crossed., Funny isn't it what you 'hope' will happen!! Who would choose to have an op!

I think all the stuff you seem to be having before you go in, will happen to me on Sunday, before my op on Monday.

The waiting is rubbish...but you are nearly there now love and so am I.
Hi Janet hope all is going ok with you. Keep your chin up.
Hi Sarah hope everything is ok with you too. It's not long until your op is it. Is your op next Thursday?
Take care all
Helenx

amdamc
Member

Re: DIEP booked 18 April - EEek

Hi everybody.

Just 48 hrs to go and what do I do??? come down with a cold. Not had one since chemo 18 mths ago, sods law or what!

Phoned consultant's secretary who says still come in and if the aneathywotsit (sorry spelling not up to much) can get the tube down and my nose is ok it will hopefully be alright. Not allowed to take vitamins, just vick rub and steam.

If all goes to plan have to go in Friday night for blood thinning injection then get to hosp by 7.30 am, Saturday. Just nobody take my blood pressure, what with the nerves and this cold thing I'm sure its through the roof!

Cheers
Anne x

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Re: DIEP booked 18 April - EEek

Thanks for the tips Anne..
Helenx

amdamc
Member

Re: DIEP booked 18 April - EEek

Hiya - nothing specific from the hospital, but girls who have been through it suggested sports bra, maybe one that does up the front for ease. Big knickers, but I think I might be supplied with "corset" from the hospital. Front opening pjs, books and mags. Happy shopping!!

Cheers
Anne x

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Re: DIEP booked 18 April - EEek

Hi Anne....have you been asked to bring in any specific things? It's just that I'm going to go shopping with my daughter tomorrow and will gather together things I think I might need.
catch ya later
Helenx

amdamc
Member

Re: DIEP booked 18 April - EEek

Hi Helen

Easter was good, but now I'm starting to wobble a bit. Wishing everyone the best with their recons and roll on when we're all back on here chatting.

Cheers
Anne x

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Re: DIEP booked 18 April - EEek

Hi Anne and Sarah hope you had a nice Easter. Are you both prepared for your ops? Is it yours this Saturday Anne,and yours next Thursday Sarah? Good luck with it all. I go in on Sunday and my op is on Monday, so we are all close together. It would be interesting to come back and compare notes. Hope all goes well for you both.
Helenx

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Re: DIEP booked 18 April - EEek

You've been through a lot. I haven't had chemo or rads, and won't need them now! I was DX on Jan 2nd 09. I had a WLE with SNB on 9th Feb....one node removed all clear. On 6th March I had a further excision. And now last week was told I need a mastectomy. I'm having immediate reconstruction...and that op is on 20th April. The Bradford clinic there with the bcn was brilliant.
I asked the girls on another thread to explain about chemo, as a few of them are going through the treatment...so realise how hard it is. It seems you have a 'small' window where you feel ok then its feeling tired and a bit low again. Have you tried the chemo threads, you will find them useful too. I can't know how you feel....but keep your chin up!
Helenx

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Re: DIEP booked 18 April - EEek

I had left mastectomy 17th Dec and SNB, micromets found in 1st 2/20 nodes so axillary clearance 27th Jan. Had 2nd EC chemo last Friday - not too badly affected s/e wise so far *touching wood* but emotionally up and down. Been to BC Haven in Leeds today to book appointments for complimentary therapies - need all help I can get. Hair thinned a bit but hanging on in there - used cold cap during chemo. So have 2xEC and 4 Taxol to get through.

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Re: DIEP booked 18 April - EEek

What ops have you had Janet and are you going to have a mastectomy?

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Re: DIEP booked 18 April - EEek

LOL Helen! I've had 2 ops in Hx (Mr Modgill) and my chemo is there too - pretty impressed (only a couple of blips). BCN is wonderfully supportive too at Macmillan Centre and I have every faith in them. Just don't really know anyone close who's going through this.
Janet x

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Re: DIEP booked 18 April - EEek

Hi Janet...I had my last op done in Halifax 4 weeks ago. I'll soon be able to write a star rating for 'hospitals in yorkshire'!
lol
Helenx

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Re: DIEP booked 18 April - EEek

Good luck Helen. I'm in Yorkshire too - Halifax actually. Are there are other people close by who would like to get in touch?

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Re: DIEP booked 18 April - EEek

Hi Anne...I'm in a Yorkshire based hospital... I've done the rounds of them just recently, but I believe he said Bradford for this one. His staff are qualified in this kind of 'stuff'...He said I'd be in for 6days...but I guess I'll find out more when I go in on the Sunday before!!!
Helenx

amdamc
Member

Re: DIEP booked 18 April - EEek

Good luck Helen, where are you based?

Are you in for the week aswell?

Cheers
Anne x

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Re: DIEP booked 18 April - EEek

Hi Anne
I've just been told that my op is on the 20th April, and I have to go in on the 19th a Sunday, to get bits and bobs done.
I remember the MRSA thingy, thankfully they say it lasts for 3mths, so shouldn't need one this time round.
So Good luck Anne with your op, hope all goes well.

Helenx

amdamc
Member

Re: DIEP booked 18 April - EEek

Had my pre-op today - different!!

Haven't had these MRSA swabs before, wondered where she was going next with her little sticks lol. Blood tests done, even after all the chemo, seeing those needles still makes me cringe, another ECG, telling me I'm overweight (again), just tooo short for my weight me thinks. Then the graphics of what happens after the op - too much information: 2 days in HDU, no sleep for two days cos they have to check the boob every ten minutes, catheters, bed pans etc etc - nearly did a runner, but sooooo want to ditch the prothesis so will be a good girl and turn up for my blood thinning injection the night before the op.

Fingers crossed all results are ok, looking forward to having a cleavage for my daughters wedding in August!!

Cheers
Anne x

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Re: DIEP booked 18 April - EEek

Thanks for the information Anne. I have made up my mind to have the DIEP done...so just waiting now for my bcn to ring and let me know a date! They told me it would have to be within the next month...but I'm still getting over the 2nd op (further excision of WLE). So 2 weeks from now would probably be better. It's all a waiting game isn't it?
Helen x

amdamc
Member

Re: DIEP booked 18 April - EEek

Hi Nell

Was talking to my plastic surgeon this week and he was telling me that so many mastectomies are now done with recon at the same time. I was not that lucky, bc rather large and I think they thought it had probably already spread so was not allowed to have both together.

There are pros and cons for both, depending on your further treatment, the op combining both will obviously be longer, but then its done and over with in one go.

Talk it over with your breast surgeon, the plastic surgeon, women who have had the same op by the same consultant, your bc nurse, and your onc. Don't rush, be sure in your mind what you want.

Good luck with whatever you decide.
Cheers
Anne

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Re: DIEP booked 18 April - EEek

Hi there....I was told yesterday that I needed a mastectomy and I could have immediate reconstruction. An appointment was made to see the surgeon in the afternoon. I came away with info overload, and am now trying to make a decision whether to have recon or just mastectomy. If I have recon it will be the DIEP, surgeon sounded very animated at the thought of doing that one. I have looked up a web site about this op and am in the process of understanding all the ramifications of it....pros and cons. Did anyone have any problems after the op and how long was their op. sorry but my mind is full of questions, and this thread seemed the most appropriate one to ask them.
Helenx

amdamc
Member

Re: DIEP booked 18 April - EEek

Thanks twinny2 - pj's at the ready!

Tomorrow have got Doppler (spelling??) scan, is this like having ultrasound. Understand its to see the state of my stomach veins, fingers crossed all ok.

Best wishes everybody.
Cheers
Anne

twinny2
Member

Re: DIEP booked 18 April - EEek

All the best for your operations Sarah and Anne. Please, do report back on how you get on. I’m now 12 weeks in from my delayed DIEP and I do truly love having my cleavage back. In a bra you simply wouldn’t know I’d had Plastic surgery and my friends are all amazed at the result(and jealous of my flat stomach...tee hee). I’m sooooo pleased I had the op, it was the right choice for me. (I’m a D cup by the way).

Top tip - if you take in pyjamas that do up the front it makes examinations easier!

Take it easy.

Xx

amdamc
Member

Re: DIEP booked 18 April - EEek

Welcome Sarah

All the very best for the 23rd, mine's on the 18th so we will be able join each other on here when recovering!!

Cheers
Anne

Jo_BCC
Member

Re: DIEP booked 18 April - EEek

I have posted this for new user Sarah
Jo, Facilitator

Thanks everyone - my diep is booked for 23 April and everyone around me has gone into freefall. Friends offering their concerns; my daughter thinking I am going to die and my husband trying to hold my hand all the time!!! All your comments were positive and supportive so I am pressing ahead and wishing the day would arrive sooner rather than later!!

Can't thank you enough -

Sarah
xx

twinny2
Member

Re: DIEP booked 18 April - EEek

Hi Anne

I would say you definitely need someone to fetch and carry for you, as moving around is quite an effort and you’ll need to rest. I was discharged 5 days after the operation and hubby took time off work to stay with me for a further 3 days. After that I was independent during the day, but planned my days so I didn’t have to lift or stretch for anything. I would describe the first week as uncomfortable, during the second week I felt sore, but mobility increased well and by the end of the week I was walking slowly to the local shops for a paper. Weeks 3-4 were quite frustrating as improvement was slow, although I wasn’t taking pain killers I felt quite tender around the tummy area. I felt comfortable to drive at the end of week 4, but only short journeys at first. I would suggest you get plenty of books, DVD’s and magazines and just snuggle up and rest as much as you can.

If you have any other questions ask away…

amdamc
Member

Re: DIEP booked 18 April - EEek

Hiya twinny2

Thanks for the reply - how long did you take to recover?
Did you need someone at home with you after hospital, when could you drive again - questions, questions, sorry.

Cheers
Anne x

twinny2
Member

Re: DIEP booked 18 April - EEek

Hi Anne

I had my DIEP operation on the 18th Jan and now 9 weeks on the result is spectacular. After the operation I woke up wearing a frumpy ‘surgical bra’ which was mine to take home…gee thanks. Now it is a redundant piece of clothing, as lacey bras have replaced it…hooray for Plastic Surgeons!

I was given a girdle to wear and it was no bother at all. In fact it gave me a great deal of support and held me all together in the early weeks. I still wear it sometimes, particularly towards the end of the day when the old stomach ‘scar’ feels a bit tender.

One thing that freaked me out was that my new boob did swell quite a lot to start off with and it took a few weeks to settle down.

Good luck with the op.

amdamc
Member

Re: DIEP booked 18 April - EEek

Thanks Jackie

Have now been to Asda to stock up - just wish time would fly, starting to get the jitters. Did you have the stomach girdle thing??

Thanks again for the tips.
Cheers
Anne x

Guest user
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Re: DIEP booked 18 April - EEek

hi
I had my recon done on 28 jan
love my new boob
I was told to bring in a sports bra 1 cup size bigger than normal but ended up sending other half back to marks for next size up & normal cup size (ended up with 34C & 36B)
asda is doing basic sports bras at £4 which are realy comfy
I would also surgest you take in some loose tracky bottoms to come home in as your belly will be quite tight, I'm living in them at the moment. Dont buy new slippers unless you break them in, my feet swelled up a bit and I couldn't get mine on.
I was told to cuddle a cushion or rolled up pillow when laying on my side as my boob felt heavy
cant think of anymore I hope this helps

jackie

amdamc
Member

Re: DIEP booked 18 April - EEek

Thanks Pancake (love the name!)

Just what the doctor ordered. Anything I should take in with me - comfy bra, little/big knickers etc etc. All hints and tips appreciated.

Thanks again, am actually getting excited.

Anne

Guest user
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Re: DIEP booked 18 April - EEek

Hi

I had a diep on Feb 28th. I asked myself why I was doing it, the answer was because I can which was pretty daft. My op seemed ages away so I didnt worry too much then all of a sudden it was the next day and all my doubts surfaced.

Its now 12 days later (I know its still early days), but I can honestly say that I have had no pain, I am walking nearly straight, the only thing is that I sleep alot, (But I think its cos I am bored) My result on the recon side are fantastic.

So far my advice would be - dont worry, let everyone else do the worrying, you just concerntrate on yourself, easier said then done until you experience this wonderful pain free operation.

Good luck and dont worry

XXX

amdamc
Member

Re: DIEP booked 18 April - EEek

Thanks Sophie

Know exactly how you feel. Have gone over this over and over again with family/friends/brain and didn't finally make up my mind until I discussed it with the surgeon who then put me in touch with women who had undergone recon. They were brilliant and very brave ladies and I hope I have the nerve to show my battle scars to others in the not too distant future.

Thanks for your kind words and good luck with your decision.
Cheers
Anne

Sam_BCC
Member

Re: DIEP booked 18 April - EEek

Hi Sophie

If you are undecided about having a reconstruction you may find the BCC booklet on reconstruction helpful. It includes a lot of information on different types of reconstruction which could help. If you would like a copy please go to the following link:-

http://www.breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publication...

BCC also run information sessions on reconstruction in different areas of the country. If you are interested please go to

http://www.breastcancercare.org.uk/server/show/nav.532

I hope you find this helpful.

Kind regards
Sam (BCC Facilitator)

vercors
Member

Re: DIEP booked 18 April - EEek

Good luck. I just wish I could make up my mind on what to do about this cleavage of mine. I feel I can't move on until I have decided what to do. I wish you all the best, I am sure it will be fine.

Cheers
Sophie

amdamc
Member

DIEP booked 18 April - EEek

Hi everybody.
Two years on from mastectomy am now booked in for my new cleavage! Really strange feeling, excited - be only tooo pleased to be rid of that squishy heavy thing that hangs in my bra - but really nervous, why am I putting myself through more stress?? I know the answer of course, just now the dates actually booked I'm starting to freak.

Am having this done with plastic surgeon Mr Ramakrishnan at Nuffield Hospt. Brentwood and any advice/tips/encouragement would be most welcome.

Cheers
Anne x