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DLA- SPECIAL RULES 3 YEARS ON

126 REPLIES 126
OndineBlue
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Another vote here for getting Macmillan to help. They have been absolutely brilliant in helping me to get all sorts of things organised that I would never have thought of including DLA. A Benefits Advisor visited me at home, organised all the forms in advance and even helped me to fill them in.
Hope your claims are successful!
lucinda
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Sharon
As the rules stand at the moment to qualify for dla you have to be 3 months past dx and expect it to be ongoing for 6 months.I have exstensive bone mets (and at the time of applying a local recurrance in the lymph nodes) and qualified for full rate care and mobility.I did not apply under the special rules,as like you could not face doing it that way, but I did ask them to write to my oncologist to back up all i ahd put on the form.It is a long form to fill out and it is best to get help filling it out from someone like macmillan. Do not give up if you get turned down,you are often granted it when you appeal.
good luck with your application and your chemo.
L xx

Leah_BCC
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi all

Just wanted to post this link to the Macmillan information about benefits and financial help. I know lots of you will already have seen it, but there seem to be some new members on the thread who perhaps haven't http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Financialissues/Benefitsandfi...


Breast Cancer Care is also a member of the Disability Benefits Consortium, a national coalition of over 50 charities and other organisations, committed to to working towards a fair benefits system. As part of the Consortium we've just launched a survey to find out more about how disabled people (including people affected by breast cancer) are experiencing the benefits system right now. The results will inform the Consortium's campaigning work to influence Government policy. Lots of you clearly have experiences to share, so if you'd like to fill in the survey, please do so here http://www.surveymonkey.com/s/disability-benefits

with best wishes to you all

Leah

rozvi
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi all,
Julie, thanks for that information on the migration from IB to ESA, think a call to the Mac nurse is needed. This form is sitting here and has to be back by the 2nd of Sept, so I better get on with it.
Lemongrove I agree with you entirley that yes some of us would be able to walk 100yds, but they wouldnt see us at night when we cant get up out of the chair, or in the morning cant get out of bed without some manipulation, (legs Im talking about)
My thinking is that I have worked since I was 15, paid 'Full stamp, not married womens' and only had 1 yeaar off to have a baby,I am now 56 so I believe I have worked for a pension that I will most probably never take, so who will take that, the goverment. It just makes no sense.
Never come down off your soap box, we need people like you.
Love Roz

sharon2
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi having read your last page of comments i am so confused ... does not take much!!! I was dx with secondaries , lung inJune and now have started indefinite chemo. I was thinking about applying for DLA and was going to approach the Mcmillan lead nurse in the chemo unit for support as dont want to go down special rule road as dont want to put a jinx on me but now wondering if i would be entitled to anything. I feel i should as having paid in for the last 30 years!!! any points of view will be listenened to.
Thanks and hope people are doing ok
Sharon2

scottishlass
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Well said girls.

Lemongrove
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Lizcat I do agree with you that there are some who can work and don't deserve benefits, and of course that needs to be tackled. But the problem from my point of view is that there is no common sense. If someone has secondary cancer, the chances are they are not suitable for work even if employers were prepared to take them on - given that they would most likely need regular time off for treatment / sickness, If someone has metastases, they could well walk 100 yds, but be in awful debilitating pain, but with a points system you either qualify or you don't. I believe that the Govt /DWP need to relax the rules to take account of this.

JulieD
Community Champion

Re: DLA- SPECIAL RULES 3 YEARS ON

Yes I'm concerned about DLA/PIP too, mine is due for renewal next year .
In relation to migration from Incapacity to ESA, I was advised to contact them and explain that I was on special rules DS1500 and didn't believe I needed to complete the forms but should be automatically transferred to the support group.They confirmed this was the case but that I needed a newr DS1500. my Mac nurse got my GP to sign one and I sent it with a covering letter. Didn't hear anything for 3 or 4 months and then got letter saying I'd been transferred to ESA Support group!
Good luck with applications re-applications etc. As Lemongrove said on another thread, perhaps we need an action/pressure group?!
lizcat
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

It's all so wrong isn't it? There are so many people in my area who have never worked and have no intention of working because they think they are somehow owed this money and it's an alternative 'occupation'. I can remember being at work and asking customers what their income was and where they worked and the number of them who quite proudly said they had never worked as they got more money on the dole/sick etc, etc and thought it was their right.....
I had a letter a few weeks ago about a review of my IB so rang them and the woman said it wasn't a matter of making people go to work, it was just to ensure that everyone was getting all the benefits they were entitled to and not taking money off people - what a blatant lie!! The form came and I filled it in with loads of info, sent it back and haven't heard since. I was pensioned off early on ill-health grounds on full pension and under those terms, I'm not allowed to work ever again. We shall see what happens and if I'm called for an interview, I'll stop taking my prozac chill pills and be the absolute woman from hell.....My DLA is up for review in Feb so I could well be having to curtail my jaunts and lunches out somewhat drastically.
Liz

scottishlass
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

It just fills me with despair. Having this worry added to our existing ones. I can hardy carry a cup of tea right now. Using crutches and awaiting to see Orthopaedic Consultant tomorrow re another operation.
It is the not knowing what is going to happen whether it is results, operations, chemotherapy, outcome or if I will have enough money to live on. I don't often get down but having this noose around our necks when most of us are really struggling just to get through the day. Benefit changes are needed but why pick on the most vunerable of society when other rich cats seem to get off Scot free. Rant over. Val

katytc
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

I find the whole set of changes disgusting and so frightening, I feel you have enough to worry about without the added pressure of wondering if you will qualify for DLA, everyone agrees there has to be change but to penalise you because you are disabled or have a terminal illness is beyond belief.

Lemongrove
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Thank you Rozvi and Marilf. I feel quite worried about these changes, Unfortunately the GP who did my original DS1500 has retired, so I guess I will have to see if another doc in the practice still thinks DS1500 is appropriate (but as the DWP have tightened up the terminal definition, perhaps that will be problematic).
No doubt people on this site think I'm forever on my soapbox, but it is just so disgusting isn't it ?. The UK has very high unemployment, and I would have thought that in most cases employers can take their pick. So why do the Govt seem to think that employers would be happy to take on someone with secondary cancer. The fact of the matter is that most people with secondaries will be involved in ongoing treatment, which will probably require regular time off. Many will also have ongoing problems with pain, and be unable to turn up every day - and nobody with secondaries can offer a guarantee of how long they will be around.

Marilf
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Lemongrove - when I had to reapply for DLA in 2010 (six years after my GP had signed a DS1500!), my onc wouldn't sign one for me, so I had to pretty much complete a full re-application form. You might find someone who will sign another DS1500 for you, in which case you should continue to get your current level of DLA for the time being. HOWEVER, you (and all of us) need to be aware that, from 2013, the Department for Work & Pensions (DWP) will start reassessing everyone "of working age" who gets DLA, to see if we qualify for its replacement: Personal Independence Payment (PIP). And all new applications will be for PIP from April next year as well.

Issues we need to be aware of:
- The "descriptors" (i.e. qualifying markers) for PIP are very much narrower than for DLA; the Government is determined to reduce spending on DLA by 20%, therefore it will be harder for us to qualify. Basically, they have redefined sickness & disability in order to do this.
- so far, although there is provision in the PIP draft details for "special rules" for people with a terminal illness for the care element, it seems we'll have to go through the full assessment for the mobility element. BUT be aware that the DWP have also tightened up on its definition of "terminal"; doctors have to be prepared to give a solid commitment that we'll be dead in six months - this might be difficult for most of our oncs to do, unless we're very poorly indeed.
- the private firm ATOS has been awarded the contract to undertake PIP assessments on behalf of the DWP; there has been a huge amount of criticism of their assessment methods relating to the DWP's Employment Support Allowance (replacement for Incapacity Benefit), so this isn't good news for those of us who will be forced to migrate to PIP from DLA.

Like many of us with BC mets, I was granted "indefinite" DLA for both care (middle rate) & mobility (higer rate), but the changeover to PIP will override that decision for all of us "of working age". This has been defined as aged 16-64, but I fall into an uncertain category of being 62 & having been able to claim my state pension at 60, unlike many younger people, who are having to wait longer because of the changes to retirement age. So I'm not yet sure when my DLA will be "migrated" to PIP.

Although much of this is pretty depressing news, I hope it helps you get an idea about what is likely to happen next with your DLA.

Marilyn x

rozvi
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Lemongrove,
I know how you feel, when mine came up for renewal I was very frightned, but thanks to some good advice from Dawn I put my Doc down as the person to tell them about myBC and was awarded it again, mine is also due to run out in Aug next year, (god how time flies), so please think carefully about who you put down on question 4.
I had a letter last week from ESA saying they are sending me a questionaire to fill in as my incapacity is changing to ESA and I will have to go and get assesed, it was a shock as everything I have read has said that terminal, DS1500 claims would automatically go into support group, think I might ring Mcmillan for some advice, the form has arrivec this morning, not good.
Love
Roz

Lemongrove
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Just wondering how the people who have posted got on with their re-assessments. I currently claim under DS1500, but the three years expires next year (2013). When I was first diagnosed the docs really thought I wouldn't make six months (as cancer aggressive), but thanks to fairly progressive treatment I'm still here. However, my cancer has progressed quite a bit recently, my receptors have changed, and I've been switched to more heavy duty treatment, so things are still uncertain. Is there likely to be a problem getting DLA under DS1500 again? What is the general experience?

dawnhc
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

I'm really pleased Tina that it was all so straightforward for you. It just. It seems really hard that we have to be put through these hoops. I just loved your reply to them - but it is all so true, if nothing has changed maybe that is all they want to know! Your story is very similar to mine - I first claimed in 2006 with 2ndary bones only! but at the time chose not to ask for mobility. 2 years later when things got worse I wrote and asked, thought I had nothing to lose LOL and was amazed when not only did they award the highest rate, but backdated it to the Aug.2006 claim. There is just no real consistency in the way they deal with claims though.

Dawn
xx

Tina67
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Thought I'd share my recent experience as I didn't follow any of their stupid requests. I was diagnosed with primary and secondary (bones only) in August 2006 and on advice of my palliative nurse, applied for DLA under special rules for highest care and whatever mobility component I could get. My GP gave me my DS1500 and I was awarded the highest care component and the lowest mobility. In 2008 I had a lot of pain in my hip, couldn't walk without a stick and needed radiotherapy. My palliative nurse wrote to the DWP and they awarded me the highest mobility component with no input from me or any of the doctors, nor a new DS1500.

Earlier this year, my award came up for renewal. I was not in the best of moods and basically filled in the form with as little information as possible, stating that they already had all this information and unless they knew something I didn't, Stage 4 cancer is still incurable. The bit where they asked for a DS1500, I wrote 'you already have this and nothing has changed'. I was awarded both components at the highest level again within a few weeks. I had expected to get a narky letter or something but I think they got the message...

Marilf
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Glad to hear you have been granted DLA again, Alison - I, too had to re-apply last year, as my onc laughed when i asked him to sign a DS1500 (my GP had signed one in 2003). Nice woman from the DWP rang to discuss my application with me, and urged me to review whether I needed support at night (I don't), so she could approve both elements at the higher/highest rate. I did get awarded mobility at the higher rate, and home care at the middle rate (no night care needed - yet). It was very stressful to have to go through the full application process, but I fear that the replacement for DLA will be even more difficult for us to receive - watch this space, I guess. xx

alisonm
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hello, just thought I'd share my recent experience when reapplying for DLA 3 years on. Having originally applied with a DS1500, I approached my onc for another DS1500 but this time around he refused, on the grounds that I have bone mets only, ie not in a life threatening organ, so don't fulfil the 6 month criterion. My GP also refused, so I applied under normal rules.

The way I filled the claim form in was to virtually ignore the tick boxes and to just provide lots of information in my own words, mostly on separate sheets of paper that I just attached to the form. I found that many of the questions on the form really weren't relevant to bone mets. Anyway, I think this approach worked. I also asked my GP for a letter in support of my claim, and sent her a list of ways in which the bone mets, treatments and medications affect me. She provided me with a letter which basically just referenced my list, which I included with my claim. And I think that with the DLA you have to show how the award could or would make a difference (even if you don't already have any help or don't even intend to access any help), ie how having the award would help, not just say how bad things are. I wrote things like I needed my Motability car in order to attend regular secondary support group meetings, as they were in another town and public transport was too tiring etc, and I needed to attend these meetings for my mental wellbeing. Without the car I wouldn't be able to attend

I was really worried that applying under normal rules I would have to wait months for a response, but actually once my claim form went in I heard back very quickly, and was awarded higher rate moblility as before, with the care component being downgraded to lowest rate. To be honest, I was surprised to get anything on the care side without the DS1500, so guess my claim had been dealt with by someone with compassion!

Alison

lucinda
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

hi
you need to be in receipt of the higher rate of mobility allowance to apply for a car.If you go onto the mobility web site you will see the list of cars available.There are all makes,and types.Many you can get without making a down payment and some you may be requied to make a small deposit.Depends on the make and model you choose.DLA will then deduct the amount of the mobility car from your payments and send it directly to motability.If you go onto the motability site it explains how everything works.
You do not have to be the driver youself so don't worry if you are not up to driving.You can nominate another driver and they automatically insure it for 2 named drivers,
I have had my car for 12 months now, and it was great not to have to pay for the service,the insurance and the tax.It is the only way I could afford to run a car and I could not get around without it.

Linda x

laura64
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

hi ive just got dvla u norm get it for 3 yrs it shld tell u on the paper work im looking into a car but i drive manual but also like u im on chemo so im not going to get one yet it will sit out side while im on chemo so im gona wait to sept when new plates come out they look well posh lol tc laura

veggiebab
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

My friends husband had a brain cyst a few years ago and is on DLA and is still getting it. They just keep reapplying for it every couple of years.

ziska2
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

hiya girls, iv just been given my blue badge, and im in a bit of a haze about getting a moblity car, do i get an automatic/ manual? at the moment im on chemo and the weakness in my legs is bad, but when i stop chemo it will go back to normal, im hoping so...And i havn't asked how long iv got,so is is worth it? just found out at the end of may it had spread, got diognosed in june 2010, spread to lungs, liver,lymph nodes, so head is full of questions, sorry for being a muddle head....who would be the person to ask....ziska2

laura64
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi my gp done the special rules forms I also have sec to lungs and arthritis you have to put it down on form how she is on bad days cannot walk 100 yards and needs help I know I do some days my oh as to take me to loo otherwise u won't get it tc Laura

Shelley181146
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Alex hi,

My sister isn't in contact with any MacMillan staff this time around. She has been refused DLA under the normal rules but now I have seen her application form and what she has said it is no surprise why they have refused. I have since spoken with her oncologist secretary and explained this and she will make enquiries and come back to me later this week.

Having now explained things a little to my sister, it may be that she accepts that this is the only way forward, to claim under special rules.
Would appreciate any advice.

Shelley

AlexD
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Shelley,

It is difficult to come to terms with a diagnosis of secondary BC. I was advised to apply for DLA under special rules by a McMillan Psychologist. I was told that I was eligible under special rules because no one would be surprised if I died from cancer within 6 months, this is not the same as a prognosis. I have been on DLA for 2.5 years, there are other women who have had it for a lot longer and are still going strong. My DLA will be reviewed at the 3 year point.

Alex

Shelley181146
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

I encouraged my sister to apply for DLA as she has multiple secondaries, (breast,lung,neck but not sure about bones)but she felt uncomfortable claiming under special rules (incase it jinx'd her) so completed the normal forms. She has today been refused on the basis that she can walk 100 yards, needs to assistance for washing and dressing etc.

I did speak to the onc secretary (in confidence)and explained they may receive correspondence from DLA (DWP) and asked them to complete regarding my sister's condition. I'm not sure whether this has been done but how else can I go about getting her help with this?

She does have Arthiritus in both her knees and walking is difficult for her but they said she can walk 100 yards albeit, slowly, blah,blah.

I should say at this point my sister is in denial but that is her coping mechanism and I do have to approach this carefully and sensitively.

Who are the 'specialist benefits officer's' to which you refer to on here? Where are they based?

Would appreciate any help/advice please.

rozvi
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Dawn, Just thought I would let you know that thanks to your advice to look at question 4 and think about who to put down I have had a letter this morning to let me know that my DLA is staying the same.

So to everyone who gets the letter to say they are looking at the DLA you are recieving, dont panic, put down the person you are most in touch with and who knows you beast.
Dawn, I have been reading your posts on other threads and send you all my love and hugs. xxx

Lots of love Roz xxx

Jodie1
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Rozvi, That's marvellous news. She will have to provide a letter to say that you are ill etc. etc. but the advisor will sort that out for you, so you shouldn't have a problem.

Hope you are feeling well today along with everyone else. Take care, lotsa love, Dianne x x x

rozvi
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Jodie 1,
Thanks for ur reply, just come back from my doctors to ask her if ok to put her down as the person to best tell them about my condition, and she was great, said she will do whatever it takes, which makes me feel a lot better, will let you know how it goes,
Keep safe and well all you ladies and gents.
Rozvi

Jodie1
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Rozvi, Good luck with the forms, hope it all works out well for you. I know what you mean about not wanting to tell your family how much something is affecting you. Good luck with it and let us know how you get on. Take care of yourself.

Hope everyone is well today. Lots of love, Dianne x x x

rozvi
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi dawnhc, Thank you for responding and thank you very much for the advice, I didnt even see question 4 although I have looked through the form quite a lot, ( I must be going mad, or getting old) Yes I do get the highest rate on both and would be lost without it. I have got a great doctor so will put her down. Will let you know how I get on.

Jodie1. Thanks for your response, I will follow dawns lead and hope all turns out ok.
It is just good to talk things over with people that are not so much involved, I dont mean that in a bad way, but sometimes you dont want to show your family how much things affect you.

Take care you all.xxxx

Jodie1
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Everyone, Had a great week with my parents although my poor bones are suffering today with all the driving. Still, it was worth it as I saw lots of old friends.

Rozvi, hope you get the form sorted out soon. Just follow Dawn's advice and you shouldn't have a problem.

Marina, hope you're getting somewhere with your claim, let us know how you get on and I hope the headaches have cleared up now.

Take care everyone, hope you are all feeling well today.

Lots of love, Dianne x x x

dawnhc
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Rozvi,

I have been on DLA at the full amount for both parts since 2006.
I received the DBD551 form a few weeks ago. All you need to do is fill in the information requested BUT be sure that for question 4 you put the name of the person you think will best support your claim. Then send it back to them as requested within 2 weeks. They then contact the person you name and ask them for information about you.

You shouldn't have a problem - if you are claiming both parts at the highest rate (assuming you are because you mention the DS1500) they will confirm that you are on the correct amount and leave you alone for another 3 years hopefully!

This is all part of their checking on people after receiving DLA for 3 years. If I can answer any more questions then please do ask - either here or through a pm.

Dawn
xx

rozvi
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi everyone, Im new to this, but you all sound so friendly, so here goes. Was diagnosed in dec 2005 with breast cancer and secondries in bone after fracturing my hip, have mets on spine and ribs, and bone in other hip is getting worse, orthopedic surgeon keeps eye on it and will operate on it when needs be, but I am still here after 4 years and thank my lucky stars every day.
What brought me to this site was the fact I recieved a DBD551 form this morning and I must say my stomach did a few turns. When I first went on DLA my mac nurse took the form and filled it in under the special rules.Having read all the posts from you all I am very confused, I presume it is not the form to renew the DLA but one to check you are getting the correct amount, does anyone know if I need to get the DS1500 form as well, and is this from the doctor.
Thanks

bertie
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Dianne,

Just to wish you a lovely week with your parents, hope you are feeling ok and have a good time. Look forward to hearing from you when you return

Lots of love
Marinax

Jodie1
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Everyone, I agree Snoogle, they're a nightmare to complete on your own. My benefits advisor was brilliant thank goodness.

Marina, you're very welcome for the tips I gave, I do hope you get it sorted out soon. So sorry to hear you had such a bad headache and I hope you're feeling much better today. I'm going away next week for a few days to visit my parents and they don't have internet access so I won't be able to post until next Friday. In the meantime I hope you and everyone else stays well. Take good care of yourselves, lots of love to you all. Dianne x x x

snoogle
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

I used to have a job that dealt with loads of paperwork, but I found the DLA form so daunting that I ended up getting the help of a Macmillan Benefits Adviser to fill out the form. If all benefit forms are like that it is no surprise that so many pensioners do not claim their entitlements.

snoogle
x

bertie
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Dianne,

Thank you so much for your advice and help. Sorry I didn't respond yesterday I went out with my daughter, granddaughters and some friends to a beautiful lavender field not too far from us, but I started off with a headache and by the end of the day was in bed with really bad migraine and feeling very sick, so what should have been a nice day turned a bit grotty, never mind!! Hope you are feeling ok today.

Once again thanks for your help, I think they make these benefits so difficult to access hoping we wont bother!

Love Marinaxxxx

Jodie1
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Everyone, Just to say that I'm absolutely delighted for you Scaryfox, what a relief. Marvellous news.

Hope everyone else is feeling good. Take care of yourselves and have a good and painfree day.

Lots of love to you all, Dianne x x x

dawnhc
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

WOOHOOO great news Scaryfox. It is such a relief isn't it, but so wrong that they put us through this sort of uncertainty. My biggest surprise came when I applied for the motability part of DLA. I hadn't felt it right when I first claimed under DS1500 so only claimed the care part. When things got worse I wrote and asked for the mobility part and then found, like you, a large sum in my bank account. They only went and backdated the mobility part to when I first started claiming the care element!! Enjoy it 🙂

Dawn
xx

scaryfox
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hooray!!

Just checked my bank account and there is a big payment in there from the DLA - backdated I assume from when I applied about 3 months ago!

Havent recieved any letter or anything so not sure how much I'm getting per week exactly, but it looks like enough to top up my (now greatly reduced) salary quite a bit!!

Thanks for all your support xx

Lucy_BCC
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi all

Here's the link to the Directgov website which has information about claiming DLA:

http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport/DG_10011731

you may also find the BCC publication 'Breast cancer and benefits' helpful too:

http://www.breastcancercare.org.uk/healthcare-professionals/publications/financial-and-practical-adv...

Best wishes
Lucy

Jodie1
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Everyone, Scaryfox, good luck with your application, you are entitled to it so don't give up. Try not to let it stress you out as I'm sure it will sort itself out this time.

Marina, you most definitely are entitled to this whether you are working or not and it's tax free. Ring your local Macmillan centre and ask to be put in touch with their benefits advisor who should come out to your home, sort the forms out and that should be the end of it. You are also entitled to a blue badge for your car which they will sort out as well.

Debbie, I don't understand your GP or the ONC refusing to help with this. What the hell are they thinking about, I just can't believe some of their attitudes. You're entitled to this, believe me I was nervous about it as well but in the end it was so easy. Your GP and ONC need to look at the rules. Anyone with a secondary diagnosis is eligible for this, so have another go, it makes me furious with some people's unhelpful behaviour. Don't we have enough to put up with without some snotty know-all blocking the way. I keep asking this question ' Why are some people so unkind?'

Well, that's my rant for the day, I'll put my soapbox away now!!! I hope that you all feel well today and take good care of yourselves.

Lots of love to you all, Dianne x x x

catsmother21
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi

I don't know if this will help anyone. I live in Leeds and we have an organisation called Welfare Rights and they have helped lots of people I know, myself included with benefit/DLA advice. They also help to fill the forms out with you because they can be very daunting in that they are very long - they really help to take the stress out of things. I don't know if Welfare Rights are nationwide but there may be something similar in your area. I got the number from my local Job Centre. Hope this helps.

Deborah

Debonair7
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi, I have secondaries to the bones and take medication - spoke to my oncologist about signing the form and he refused - he said I had many years left - obviously its the best news I could ask for but I am sure others who get the allowance also have many years left - my GP signed to release a personal pension to me under serious ill health rules but she didnt feel comfortable signing for the DLA ?? Dont really get it - suppose it depends on who your GP/Onc is which isnt really fair ! Still, will focus on being well and happy and not worry too much about it, at least I have my pension payout to fall back on so all good and I am gonna enjoy life - good luck with your applications ladies ! Debbie x

bertie
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Everyone,

Hope you are all ok. Do you think I will be entitled to DLA, I had primary bc in 2006 and secondary in lung diagnosed in Nov 2009. I am not working, I am not sure if I qualify maybe someone can advise me. Thanks for your help

Love Marinaxx

scaryfox
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Thanks guys, saw the advisor, apparently my oncologist has filled out another DS1500, in addition to the one my GP did, and the macmillan lady has sent a letter asking them to reconsider... we can only wait, but this is not helping my stress levels! x

Jodie1
Member

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi Scaryfox, good luck for today, can't wait to hear what the advisor says. Julie is right, you should get it backdated to the original application date.

Hope everyone is well today. Take care, lots of love, Dianne x x x

JulieD
Community Champion

Re: DLA- SPECIAL RULES 3 YEARS ON

Hi scary fox,

The others are right, you are entitled, there is an appeal procedure and you should definitely appeal! You say a Macmillan volunteer helped, it may be she doesn't know the system well enough, my Mac nurse did mine for me or there are dedicated benefits advisors, ring your Mac support and see if they can get someone with more knowledge on your case to appeal, I also think when you do get it it should be backdated to original application date.

Anyway, good luck! Hope it gets sorted quickly, let us know how you get on.

Love Julie