Hi Christine thanks for reply, it was a bit cheeky of me after I had sent it! My husband is up at 4am and out 5am he drives for the hotels at the Airport-moving cars from hotel to secure compounds when you leave them to go on holiday and then brings them back for your return - he loves it, drives some dream cars, we just need the lottery he is retired but still wants to work, he retired from his proper job after 39 years and got this one after about 3 months retired --- he had trouble working the hoover
I found after surgery my body clock went to pot - in fact it went haywire when they told me I had cancer! I am usually half awake when he gets up and if I have a cuppa thats me wide awake, but I then go back about 5.30am and up again 8- ish its just all broken sleep.. I have been dozing just and have come up to bed but I know I will be awake abut 2am and then probably 5 as he goes out - I hate it. take care Maggie X
Sheena it was only when I started rads that I became a bit depressed.. like you I thought it was the saddest place. everyone looks a little lost and you see all varying stages of peoples treatment, health.. it's heartbreaking really. I didn't like seeing all the masks and body cages in the rad room either.. god help who ever has to wear them in there, I don't think I could! On a happier note, you do get used to it. I have 2 more! can't quite believe it and sure I will want to be checked for every little pain. I guess we have to learn to live with the fear too eh.
Glad you survived holding your breath... soon all be over, these past 3 weeks have gone quickly x
Hiya ladies, just passing by, me and my now slightly cooked boob -- and greatly enjoying the Poldark cross-thread contamination :D. -- [waves little hand] 🙂 xx
Evening all, sorry to hear about lump Sheena. I had a lump appear a couple of days ago - I was told just to keep an eye on it! Mine is above boob not as far up as shoulder. It does seem to have gone down a bit now - I think it's the tissue underneath swelling due to rads - I was panicking about mine but the radiographers didn't seem to concerned with it. Skin is feeling a little sore tonight and and am a bit tired but been shopping this afternoon. Poldark has just made me a cuppa and I'm chilling on sofa. This time next week all rads will be done and dusted
Thanks ladies, Jennifer you have made me laugh so much x tried pressing it just now but no farts came out xx
Hey, I'm sure it's just a lump of fat, need to stop being a drama queen
Oh poor you Sheena. Could the lump be wind? Don't laugh, when I had my ovary out last week ( I get all the fun) I had a pain in my shoulder which I was told was wind. Fortunately it didn't come out of my ears but went downwards, where of course it should have been in the first place, and now my shoulder is ok. Seriously this is the truth. You might just have wind in your shoulder!! Mad isn't it?
Dear family tree -, the holding the breath was no problem but I didn't have to hold for very long at all. So no bed wetting so far!
Well done tweasel! And a fetching purple jacket, lucky you, I get a pillowcase to cover me!
good idea to take oh to appointment, I find it an incredibly sad place to be, the staff are lovely but I think it really hits home what we've all been through and what the future may hold
I made some fudge yesterday to hand in to the staff and gave it to them this morning, they were delighted.
I also had my first review meeting, I explained that right from 1st session I was sore, hot and nneeded to take paracetamol. So off with the top again and she agreed that I was very very red and hot. Most alarming of all was that she felt a lump on my collarbone, she got a "spare"onc to come and see and he has ordered an ultrasound, hopefully nothing but erring on the side of caution
Somebody cheer me up!
I've just returned from my second session. The first was at 5.30 pm and second at 9.05 am today so my husband booked us into a hotel and saw a show in town Last night. That was nice. The rads - well I didn't feel a thing, the breathing was fine and I wasn't asked to hold for more than 16 seconds which was ok for me. I didn't pass out and I didn't wet myself. I got a numb arm and a tingling sensation for about an hour afterwards but nothing you would call pain. What isn't nice is the state of my boob today - the scar is looking much more prominent and slightly puckered which I hadn't noticed before, it is also rather red and all my veins seem quite blue. Ugly. My husband came with me and until now he has been firmly in the " you're over-reacting" " it's all gone so why so miserable?" Camp. Well he's not now. After sitting in the waiting room and seeing lots of women with no hair, some with picks still in their arms from the chemo and one woman so utterly scared and upset that it took the staff well over half an hour to calm her down, he seems to have suddenly realised what a big deal all this is. It isn't anything like treating a bunion is it? 13 more to go........
I'd say a complete nutter told you that. Mind you, it's easy to see how you go nutty with all these hormone blockers and radiation being flung around. Flippin' eck. Never heard anything so daft.
Hi Napping girl. We sound like we're on the same journey. I had 2 WLE in April and May intermediate and high grade DCIS. I am 17 down, 8 to go. Then that's it unless I decide to go for a nipple reconstruction and a "tit-tat". Will quite miss the lovely radiographers at Leicester Royal
8 down 17 to go. Had my first review meeting today, only last 5 mins. Basically said the x rays are purely for positioning as I'm left side. I asked about damage to my lung as, although my heart is now out of the way,my lung is closer to the beams. He said there would be some minimal damage daily but that the cells would repair as they do in the breast. He also said that later in life my ribs would be more brittle on the left due to the radiation and there may be some lung fibrosis but these things were possible and not probable. Everything else, the tiredness, sore boob inside, 'electric shocks' etc were all normal and would settle down when the rads are complete. Upward and onward then..
The lung effects were explained as I might get a dry cough, but it would pass. I hope it doesn't permanently affect my lung capacity. I'm only 54, I need to do another half marathon - it's the milestone that will prove this is behind me.
Hi Maggie, thanks for your lovely comments. I'm just back from today's session. I don't know why I have suddenly got pain in my neck/shoulder but I suppose it's the amount of sessions I'm having. These booster ones are just so long as they have to take X-rays first every day to check where the clips are. They had trouble again today. I was all set up ready to go and then they came in and told me they weren't happy with my position so I had to sit up and start the process all over again. It wasn't quite as long as yesterday - was probably about 20 minutes of laying still today. By the way I had no idea I had clips in my body til this week! I did ask if they would beep at the airport but apparently they don't - I think they are really small.
Jill - Brad will be free after next Wednesday as that's my last session - can't wait - will definitely be opening a drop of something nice that day!
Got to take my daughter to doctors this morning as she has had chest pains all night - never a dull moment! Hopefully it's just indigestion but she doesn't look well.
Have a good day everyone