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Darling Rads of August

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Re: Darling Rads of August

Hi Maggie, all done and dusted 😃 I hope to feel more positive soon but am just so tired - think I only had an hours sleep last night. Am seeing GP Friday to see if he can give me something to help. My friend came round for a couple of hours - had a nice walk round the village and then a cuppa and chat. She brought me some lovely flowers too 😃 My appointments were mainly mornings, I had a couple of lunchtime ones and one afternoon one. I got given a list of appointments when I went to planning appointment but on first day of rads was given another list with a couple of changes but they didn't alter after that. Took some nice biscuits and a thank you card in for the staff today as they have all been so kind to me. Aqueous cream has worked for me, my skin has held up really well. I have been using a body wash from Holland and Barrett called Allergenics which is made from plants and has no soap or unnatural ingredients- don't know if this has helped too. Going to keep using it for a couple of weeks. I have very sensitive skin so have to be careful what I use. Another tip is to keep your cream in the fridge - it's really soothing then after rads. I will keep in touch as I would like to know how you all get along with your treatment. Sharon xx

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Re: Darling Rads of August

Hi Jennifed    thanks for the reassurance.    My heart felt like it had literally flipped over with a thud couple of times, forgot to mention it today at Rads as I thought it was like you say just all the nerves messing us about. but having heard you had flutters I am taking it that it is ok.     2nd Rads was fine for me I was not at all nervous now I know what to expect and it was even quicker than yesterday about 10mins of treatment if that.

No side effects at moment they said may kick in 2nd week.

All but two of my appointments are at 11.30am and I suppose because I need to use Ambulance Transport they try to keep them to a bit of a schedule.  I dont think I would like to be messed about changing the appointments on last minute but I suppose they think we have "no life plans" or families to look after still? but I was amazed how big the Christies Manchester is and how many people are there with Cancer!! it certainly made me look at things in a different way.    Take care    Maggie XX

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Re: Darling Rads of August

Hi Jobey68      thanks for your comment    that just lets me know there is light at the end of the tunnel around 2 months after rads even though I know we are all different, that why I like this site, as you can browse and then someone will brighten up your day eventually, hope everything gets better each day for you  take care Maggie XX

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Re: Darling Rads of August

Wow Sharnie you are packing a lot into that day  best of luck to you.  Enjoy . Maggie XX

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Re: Darling Rads of August

Hey Sharnie   I am sure your Daughter is stressing more as she wants to make you happy, I am sure she will as you sound positive about her results.  Good Results and a good holiday for you on prescriptionHeart  Maggie XX

 

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Re: Darling Rads of August

Hi takeadeepbreath I think you will have finished your rads now?? if so well done, you are all so strong on here, I flit from thread to thread and then get lost!! not very good on navigating computer sites but still I have found a lot of support on here, I may not have got back to  some well wishers, sorry but thats because I dont know where tjhey have gone, anyway you now need to get yourself back to "normal" as they say all the very best, I am only on my second rads today  take care Maggie XX

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Re: Darling Rads of August

Hi Sharnie    well done I suppose it will be over now and finished??   hope you could enjoy your coffee with friend and you now get that new burst to get sorted  and back to normal  as soon as Heart keep chatting.. Maggie XX

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Re: Darling Rads of August

Hi Aura    Its understandable that you are nervous for your first Rads Thursday whatever anyone tells you you will have to see for yourself.   I was dead anxious about the machine, will I feel anything what about s/effects.

Dont be, I went for my first one yesterday and felt exactly the same as you, my stomach was churning in the waiting area and I paid three visits to the loo in the space of 45 mins, its natural nerves and a fear of the unknown.

First I saw a Radiologist in a room and she went through what I was having done etc etc and that I still agreed, and did I have any questions. 

I was really surprised that the "machine" was different from the one they did the planning on, it still had the same seating sections to get you comfortable, but the machine itself was just a saucer shaped thing (quite big) on a big arm that just moves over your body, no noise at all, not too close to feel uncomfortable and nothing touches you at all.  The radiologists will get you comfortable on the bed make a few more adjustments to get you perfect, talking between themselves a load of numbers, but they told me each step what they were doing and explained the different noises/bleeps I would hear. They will leave the room, they have you on CCTV and you just wriggle your fingers if you want them to come in, just relax and I think it was only fifteen minutes all done, I honestly felt nothing. They said it would be quicker today as no measuring to be done, they still take a few mins to get you onto right position on bed I was on bed and out in less than fifteen, I bet my treatment was around 10mins.  As yet dont know I have had anything done but am using Aqueous cream as Radiologist said yesterday E45 does have something in it and "some" people can have reaction, so I said may as well use Aqueous cream from day one then.

Did they give you a jacket type gown to keep and use each session, they did me, fetching colour turquoiseWoman LOL   hope this settles your nerves, you will be fine,after first one the relief is great, another little hurdle over. keep in touch let me know how you found it went.   take care Maggie XX

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Re: Darling Rads of August

I'm ok christine thanks..a little tired and reflective but been too much going on to rest that much lol. Fingers crossed those pills agree with you more x
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Re: Darling Rads of August

Hi Maggie - just to reassure you that I had the heart flutters after my first rad session.   I've had a mild one since but otherwise ok and I've had 7 sessions . Number 8 today.  I think it was all the pent up stress and anticipation that caused it.   My appointments are literally all over the place and I don't think I've had/got 2 at the same time for the entire 15 days.  My routine has been totally disrupted - just can't get anything done at all.  They even change my appointments the day before which is a further complication and a nightmare for anyone coming with me.  Yesterday I just said " no" to a change for today (which has been changed once already). - I know they are under pressure but daily changes are just not fair.  Hope your appointments run smoothly.  Jennifer

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Re: Darling Rads of August

Hi Lorna
how are you feeling sftet rads hope your not to tired take it easy im on third day of new tabs got a fuzzy head today gonna try stick em out for a while x
christine x
christine x
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Re: Darling Rads of August

Oh glad you're coping. It will fly by Maggie. And it's never boring hearing anyone's accounts. We all need to hear it, it helps. New woman in every day sadly. X x
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Re: Darling Rads of August

Hi Lorna     thanks for thinking of me for my first rads, you were right I was fine, I was in and out of the treatment room within abut 15mins, I was surprised how quick it was once I was settled on the bed and I felt absolutely nothing and only heard a slight buzzing when machine giving treatment and it was better than the closed planning scanner  this was only like a space ship hovering over me.    I am getting ready now to go for 2nd and am not at all bothered.   I know we all get side effects at some point but I am not dwelling on it or looking for it, what will be, will be.   I am thankful though that I asked  if I would be on any of the horrible tablets you ladies are on and they said no none at all just Rads.(triple negative).

My life is quite boring cmpared you some of the "young" ladies on here so I will speak soon, not going to bore you every day with Rads.    Take care  Maggie XX

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Re: Darling Rads of August

Hi Sheena     thanks for your thoughts for yesterday the day was quite full really, I went about 10.30 and got home 2.45 but I do have to use Ambulance Transport and waiting to be collected is the problem.  The treatment was fine literally just lying on a bed quite comfortable and for only about 15 mins in all and that was being moved about to position as well!   The machine was different from the other one so not as closed in feeling, I am ok now not bothered about going today she said will be quicker next time.

I asked if I would be on any Tabs, she said none at all so I wont get the horrible side effects you ladies are suffering with as well as Rads - I feel for everyone of you as I realise I have been so lucky I just think you are all amazing strong ladies no doubt we are the stronger sex  Woman LOL

Well I am getting ready to go now once I have chatted on here as I didnt get chance yesterday to thank everyone as I went straight to my Grandsons 2nd Birthday party had good chatter with family got home about 7.30pm and just sat and relaxed.    Have a good day whatever you do  Maggie XX 

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Re: Darling Rads of August

Hi Sharnie     Sorry didnt say thanks for thinking about me yesterday but I had my first session and was anxious about what it will be like but I was fine and once over I am not bothered now only waiting for s/e to come not going to dwell on them or look for them, the only thing I noticed last evening was my heart "flipped" a couple of times??? or maybe that was all the tension coming out of me?  I am only worried about my heart with my heart condition, I was probably being paranoid.

I went at 10.30am (had to have Ambulance Transport) treatment was 11.30 but they were 45 mins behind I got treated at 12.15 but then had to wait to be taken home, they sent a taxi eventually as there had been a lorry overturned on M60 stopping our Ambulance Transport getting through so got home 2.45 still got to my Grandsons Party though it was for Nannas/Grandads and family, but just as many kids as were at the party on Sunday for his little mates!! chaos   but it kept my mind off things - not that anything was bothering me -- early days yet!

I asked if I would be on medication and she said none at all, If I was it would have started by now and nothing n file.   I just didnt want the s/e you ladies are going through, so I am so lucky and you are all so brave on here.

Are your appointments all different, I have a sheet of paper with every day/time 11.30 on it and thats when they collect me.  Oh I have 2 appointments at 2.00 I think these are Specialist review days??

Ok will get off now will be going soon take care have a good day sun shining here in Cheshire. Maggie XX

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Re: Darling Rads of August

Hello Tweasel     thanks for thoughts,   I had my first one and was a bit nervous in waiting area, you tend to look at other people and think OMG how are they dealing with this.   I was in and out within fifteen minutes once they got me settled on that bed thingy.   The machine was different from the planning meeting one better if anything it was just a saucer shaped machine that scanned across me, I am not scared of the treatment itself now only waiting for the s/e I might get? 

Our Logans party went well, he had so many presents from his little friends and then this party for Nannas and family he is really spoiled at moment.  I felt really good after treatment nothing to even talk about but family chatter cheered me up anyway.

I have found out that I wont be having any tables/medication at all before rads or after/longterm (triple negative) I was worried about the meds you ladies are on and the side effects that are making you all miserable at times, she said I would have been on them by now and nothing in file.  so pleased about that as well, I say thank you every day now as I realise more and more how lucky I have been at moment.  Good luck to you and any s/e I hope are manageabe.   I will be off for 2nd session in short while she said could be quicker this time.    take care Maggie XX

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Re: Darling Rads of August

Hi Marcella     first of all well done for finishng Rads hope you pick up well have you anything in store?

My first rads was no problem, and nothing to feel or see from first one!!  I am just going to wait and see and not dwell on s/e happenning if they do then I will deal with them.  I was on "casting couch" moved about a bit until they got me right and was out of there fifteen minutes about.   I felt nothing at all and it wasnt scary just like a big saucer like space ship moving across my top half and a buzzing when giving treatment, I was anxious but not bothered now can relax.

The Party went well Logan had so many presents again very lucky boy, I wasnt tired and even stayed to clear up a bit like Nannas do!   

take care I will let you know how I get on thanks for asking. Maggie XX

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Re: Darling Rads of August

Thanks Jo, I have just found I have been getting more tired since having my booster sessions. My appointments have mainly been mornings but four and a half weeks of going backwards and forwards to the hospital is tiring in itself! Will have a glass of something nice to celebrate later on! Might start packing today - just can't get my head into holiday mode until I finish my rads. Glad to hear you are back to normal now. I can't wait to get back to my fitness routine. Been eating really healthily this week to try and shift a couple of pounds before I go - will probably put it back on but that's what holidays are for ha, ha! 

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Re: Darling Rads of August

Congrats on getting to your last day Sharnie! It's a lovely feeling 😊 I founds rads fine but I was starting to get fed up with all the rushing around, I had mine after work every day so was lovely to be able to come straight home again, I'm 2 months on now and life is back to normality and I'm loving it!! Have a great holiday Xx 

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Re: Darling Rads of August

Yes, it's strange not going to the hospital for rads. It's good not to have to organise the day around it. I am extremely tired, though. I know what you mean about the sleep issue. I slept dreadfully on the Letrozole and was beside myself with tiredness but have slept well since coming off the meds on Friday. See the onc on Monday for new ones, which I'm dreading.
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Re: Darling Rads of August

Thank you - just need a decent nights sleep! I have doctors appointment on Friday so might see if they can give me some sleeping tablets. I think I have got to the stage where I'm too tired to sleep if that makes sense! It's going to be strange tomorrow not going to the hospital! I do have a busy day though, collecting daughters exam results first, then she has a blood test, then off to have a haircut then have afternoon tea for my friends birthday! Hope I will be able to keep awake! I am meant to be working on Friday but am going to see how I feel,

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Re: Darling Rads of August

Morning all. Thought some of you might be interested in the Pink Ribbon Programme, which offers Pilates classes for women with breast cancer led by instructors who've been trained in the effects of surgery and treatment. I was referred by breast cancer nurses at hospital and start my classes in September. Here's the list of trainers (page down for UK): http://www.pinkrp.com/instructor_finder.cfm#UK%20Channel%20Islands
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Re: Darling Rads of August

Good luck for your last session today, Sharnie. x
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Re: Darling Rads of August

Awake again 😁 Last day today, I think I would like Brad and Poldark to come with me today in the Limo Jill. I hope there is champagne on ice for the journey home! My daughter is really stressing over her getting her exam results tomorrow. I'm sure she will be fine but she is really worrying! Roll on Sunday and holiday!

Member

Re: Darling Rads of August

Glad to hear you are near the end now - it's gruelling isn't it? I'm on number 7/15 - no tiredness yet but I'm bracing myself.
Member

Re: Darling Rads of August

It will all go well and there is no need to be nervous. I was too but it was being reminded that I had had BC that got to me not the treatment itself. I have tried to do something nice everyday and that has helped. Once you start you just get your head down and get through it.
Community Champion

Re: Darling Rads of August

Yes ,hopefully you will have 2 things to celebrate, if not ....well at least you don't have to go to sodding Preston every day ....
Community Champion

Re: Darling Rads of August

How are you feeling J?Have you done a week now?
Member

Re: Darling Rads of August

Yes ...exam results stress I can do without!

Member

Re: Darling Rads of August

Gosh yes. I think the ongoing emotional impact is far harder to live with than the physical scars.
Member

Re: Darling Rads of August

Of course you need some time off following rads and I'm sure the doctor will sort you out with a note.  It's all about you and your recovery at the moment so don't worry about work.  X 

Community Champion

Re: Darling Rads of August

Glad you nearly there Sharon , long job.Who would you like to pick you up in chauffeur driven Limo tomorrow and take you to dinner.....
Member

Re: Darling Rads of August

Hi all one more day to go 😃 Been feeling awful today, lack of sleep not helping - feel sick with tiredness. Really hope I get some sleep tonight. Tiredness really does kicks in at the end - at least I have next week off to try and recover. I have 9am session tomorrow and hoping to see my friend for coffee and chat after. Can't wait to start getting my life back on track.

Community Champion

Re: Darling Rads of August

We done for getting through them!!!!Does teenager have exam results Thursday?
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Re: Darling Rads of August

I have had 14 out of 15 treatments so far and am so glad I haven't had to work through them. The tiredness is unpredictable and I have suddenly had to take to my bed without warning. Today I had to sit down on the floor of the changing rooms in New Look while teenager no 2 spent ages trying stuff on. The assistant was quite worried about me!

Only one more to go though the radiologist told me not to return to work for three weeks as the tiredness is worse afterwards apparently.

 

 

 

 

 

Community Champion

Re: Darling Rads of August

Excellent !!!
Member

Re: Darling Rads of August

Full report coming your way Jill on Thursday Evening x
Community Champion

Re: Darling Rads of August

Hope it all goes smoothly , going every day for 3 weeks I guess we are going to be pretty laid back about the whole thing once the first few sessions are over.Make sure you report back , you are the advance guard!!!!
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Re: Darling Rads of August

Hi iv also been back at work for 4 weeks now had my WlE in May then 2 Nd op in June to get clear margins then had an infection . I have gone back on phase to return so I work until I'm tiered then go home .plus I don't work full time . I start rads on Thursday and have decided to work the first week then go sick again. Getting a bit nervous now as Thursday approaches . X
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Re: Darling Rads of August

I'm very lucky that the royal is 30 minutes from home, and then the office 10-15 minutes from there. Basically I can leave the house at 8, be zapped at 8:40 and be in work by 09:10. They've only twice been running late. 

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Re: Darling Rads of August

Hi ladies
I had my opp in April and im still off my doctor just give me another 4wks off I just ring up when sick note runs out she says your not going back till your 100% she has been really goos with my ive never been on the sick before hopefully when my acupuncture finishes and I get the jab for my frozen shoulder thats two appointments off my list finished..then just need to tackle these new tablets out third nt tonight ..ive gone on decaff coffee for my hot flushes see how it goes because ive noticed when I have a coffee I seem to get flushes after ..but ive still got quilt on quilt off all night too..its been a long process this cancer malarky longer than I thought but gotta be light at thee end of the tunnel onwards n upwards ladies xx
christine x
Community Champion

Re: Darling Rads of August

Totally right Lorna.
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Re: Darling Rads of August

Mine signed me off for 8 weeks after op and when that ran out gave another 8 weeks...take as much time as you can and spoil yourself for a while. I think we will all have emotional scars as well as physical x x
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Re: Darling Rads of August

Thanks everyone, that's very helpful.  Can't believe you've worked all the way through Maria_B, I've been lucky that I work in a school so it's been the school holidays.  I'm not sure I could have worked, the journey and treatment take 2 and a half hours each day and then I seem to sleep for an hour in the afternoon!  I think you have more than done enough! x

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Re: Darling Rads of August

I've worked all the way through, (except 4 days and 2weeks off after first and second surgery) but this week is just a write off. I've 4/25 to go, but I'm exhausted, not thinking straight, so about to ring in sick. Impatient to feel well again

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Re: Darling Rads of August

I'm lucky in that I can work from home - it would be a nightmare if I had to go into work whilst having rads every day. I had a review appointment after my treatment today and the senior radiographer also said that the tiredness peaks 1 - 2 weeks after treatment finishes. I'm on holiday then so hope it's not too bad xx

Community Champion

Re: Darling Rads of August

My G.P just asked me how long I wanted off.
Community Champion

Re: Darling Rads of August

They will have all info from hospital so know you are going through treatment .My Onc said don't go back to work til 2 weeks after finishing if poss due to fatigue.
Member

Re: Darling Rads of August

Hi nappinggirl. At my hospital the surgeons will sign you off for two weeks after the ops, but all other sick notes have to be requested from the GP. I have been off work since my first operation in April. I imagined I'd work during rads but everyone advised against it. My GP signed me off for two weeks at a time, then I saw a different one while she was on holiday and he signed me off till October because he said I must recover from the radiotherapy fully before going back to work. It was a huge relief. I know everyone is different, and it depends on your company's sickness policy whether you get paid leave or not, but I would take off any time you can - everyone advised me to do that, particularly a colleague who said she went back to early and ended up getting an infection in the site of the tumour. Don't be afraid to ask the GP for what you need - it's not like you're skiving!  

Community Champion

Re: Darling Rads of August

If you ring your GP they will prob do a sick note for you without seeing you ,mine did after op and although I have seen him since for a note he said just ring up if I need further time off.