Hi Maggie, all done and dusted 😃 I hope to feel more positive soon but am just so tired - think I only had an hours sleep last night. Am seeing GP Friday to see if he can give me something to help. My friend came round for a couple of hours - had a nice walk round the village and then a cuppa and chat. She brought me some lovely flowers too 😃 My appointments were mainly mornings, I had a couple of lunchtime ones and one afternoon one. I got given a list of appointments when I went to planning appointment but on first day of rads was given another list with a couple of changes but they didn't alter after that. Took some nice biscuits and a thank you card in for the staff today as they have all been so kind to me. Aqueous cream has worked for me, my skin has held up really well. I have been using a body wash from Holland and Barrett called Allergenics which is made from plants and has no soap or unnatural ingredients- don't know if this has helped too. Going to keep using it for a couple of weeks. I have very sensitive skin so have to be careful what I use. Another tip is to keep your cream in the fridge - it's really soothing then after rads. I will keep in touch as I would like to know how you all get along with your treatment. Sharon xx
Hi Jennifed thanks for the reassurance. My heart felt like it had literally flipped over with a thud couple of times, forgot to mention it today at Rads as I thought it was like you say just all the nerves messing us about. but having heard you had flutters I am taking it that it is ok. 2nd Rads was fine for me I was not at all nervous now I know what to expect and it was even quicker than yesterday about 10mins of treatment if that.
No side effects at moment they said may kick in 2nd week.
All but two of my appointments are at 11.30am and I suppose because I need to use Ambulance Transport they try to keep them to a bit of a schedule. I dont think I would like to be messed about changing the appointments on last minute but I suppose they think we have "no life plans" or families to look after still? but I was amazed how big the Christies Manchester is and how many people are there with Cancer!! it certainly made me look at things in a different way. Take care Maggie XX
Hi Jobey68 thanks for your comment that just lets me know there is light at the end of the tunnel around 2 months after rads even though I know we are all different, that why I like this site, as you can browse and then someone will brighten up your day eventually, hope everything gets better each day for you take care Maggie XX
Hey Sharnie I am sure your Daughter is stressing more as she wants to make you happy, I am sure she will as you sound positive about her results. Good Results and a good holiday for you on prescription Maggie XX
Hi takeadeepbreath I think you will have finished your rads now?? if so well done, you are all so strong on here, I flit from thread to thread and then get lost!! not very good on navigating computer sites but still I have found a lot of support on here, I may not have got back to some well wishers, sorry but thats because I dont know where tjhey have gone, anyway you now need to get yourself back to "normal" as they say all the very best, I am only on my second rads today take care Maggie XX
Hi Sharnie well done I suppose it will be over now and finished?? hope you could enjoy your coffee with friend and you now get that new burst to get sorted and back to normal as soon as keep chatting.. Maggie XX
Hi Aura Its understandable that you are nervous for your first Rads Thursday whatever anyone tells you you will have to see for yourself. I was dead anxious about the machine, will I feel anything what about s/effects.
Dont be, I went for my first one yesterday and felt exactly the same as you, my stomach was churning in the waiting area and I paid three visits to the loo in the space of 45 mins, its natural nerves and a fear of the unknown.
First I saw a Radiologist in a room and she went through what I was having done etc etc and that I still agreed, and did I have any questions.
I was really surprised that the "machine" was different from the one they did the planning on, it still had the same seating sections to get you comfortable, but the machine itself was just a saucer shaped thing (quite big) on a big arm that just moves over your body, no noise at all, not too close to feel uncomfortable and nothing touches you at all. The radiologists will get you comfortable on the bed make a few more adjustments to get you perfect, talking between themselves a load of numbers, but they told me each step what they were doing and explained the different noises/bleeps I would hear. They will leave the room, they have you on CCTV and you just wriggle your fingers if you want them to come in, just relax and I think it was only fifteen minutes all done, I honestly felt nothing. They said it would be quicker today as no measuring to be done, they still take a few mins to get you onto right position on bed I was on bed and out in less than fifteen, I bet my treatment was around 10mins. As yet dont know I have had anything done but am using Aqueous cream as Radiologist said yesterday E45 does have something in it and "some" people can have reaction, so I said may as well use Aqueous cream from day one then.
Did they give you a jacket type gown to keep and use each session, they did me, fetching colour turquoise hope this settles your nerves, you will be fine,after first one the relief is great, another little hurdle over. keep in touch let me know how you found it went. take care Maggie XX
Hi Maggie - just to reassure you that I had the heart flutters after my first rad session. I've had a mild one since but otherwise ok and I've had 7 sessions . Number 8 today. I think it was all the pent up stress and anticipation that caused it. My appointments are literally all over the place and I don't think I've had/got 2 at the same time for the entire 15 days. My routine has been totally disrupted - just can't get anything done at all. They even change my appointments the day before which is a further complication and a nightmare for anyone coming with me. Yesterday I just said " no" to a change for today (which has been changed once already). - I know they are under pressure but daily changes are just not fair. Hope your appointments run smoothly. Jennifer
Hi Lorna thanks for thinking of me for my first rads, you were right I was fine, I was in and out of the treatment room within abut 15mins, I was surprised how quick it was once I was settled on the bed and I felt absolutely nothing and only heard a slight buzzing when machine giving treatment and it was better than the closed planning scanner this was only like a space ship hovering over me. I am getting ready now to go for 2nd and am not at all bothered. I know we all get side effects at some point but I am not dwelling on it or looking for it, what will be, will be. I am thankful though that I asked if I would be on any of the horrible tablets you ladies are on and they said no none at all just Rads.(triple negative).
My life is quite boring cmpared you some of the "young" ladies on here so I will speak soon, not going to bore you every day with Rads. Take care Maggie XX
Hi Sheena thanks for your thoughts for yesterday the day was quite full really, I went about 10.30 and got home 2.45 but I do have to use Ambulance Transport and waiting to be collected is the problem. The treatment was fine literally just lying on a bed quite comfortable and for only about 15 mins in all and that was being moved about to position as well! The machine was different from the other one so not as closed in feeling, I am ok now not bothered about going today she said will be quicker next time.
I asked if I would be on any Tabs, she said none at all so I wont get the horrible side effects you ladies are suffering with as well as Rads - I feel for everyone of you as I realise I have been so lucky I just think you are all amazing strong ladies no doubt we are the stronger sex
Well I am getting ready to go now once I have chatted on here as I didnt get chance yesterday to thank everyone as I went straight to my Grandsons 2nd Birthday party had good chatter with family got home about 7.30pm and just sat and relaxed. Have a good day whatever you do Maggie XX
Hi Sharnie Sorry didnt say thanks for thinking about me yesterday but I had my first session and was anxious about what it will be like but I was fine and once over I am not bothered now only waiting for s/e to come not going to dwell on them or look for them, the only thing I noticed last evening was my heart "flipped" a couple of times??? or maybe that was all the tension coming out of me? I am only worried about my heart with my heart condition, I was probably being paranoid.
I went at 10.30am (had to have Ambulance Transport) treatment was 11.30 but they were 45 mins behind I got treated at 12.15 but then had to wait to be taken home, they sent a taxi eventually as there had been a lorry overturned on M60 stopping our Ambulance Transport getting through so got home 2.45 still got to my Grandsons Party though it was for Nannas/Grandads and family, but just as many kids as were at the party on Sunday for his little mates!! chaos but it kept my mind off things - not that anything was bothering me -- early days yet!
I asked if I would be on medication and she said none at all, If I was it would have started by now and nothing n file. I just didnt want the s/e you ladies are going through, so I am so lucky and you are all so brave on here.
Are your appointments all different, I have a sheet of paper with every day/time 11.30 on it and thats when they collect me. Oh I have 2 appointments at 2.00 I think these are Specialist review days??
Ok will get off now will be going soon take care have a good day sun shining here in Cheshire. Maggie XX
Hello Tweasel thanks for thoughts, I had my first one and was a bit nervous in waiting area, you tend to look at other people and think OMG how are they dealing with this. I was in and out within fifteen minutes once they got me settled on that bed thingy. The machine was different from the planning meeting one better if anything it was just a saucer shaped machine that scanned across me, I am not scared of the treatment itself now only waiting for the s/e I might get?
Our Logans party went well, he had so many presents from his little friends and then this party for Nannas and family he is really spoiled at moment. I felt really good after treatment nothing to even talk about but family chatter cheered me up anyway.
I have found out that I wont be having any tables/medication at all before rads or after/longterm (triple negative) I was worried about the meds you ladies are on and the side effects that are making you all miserable at times, she said I would have been on them by now and nothing in file. so pleased about that as well, I say thank you every day now as I realise more and more how lucky I have been at moment. Good luck to you and any s/e I hope are manageabe. I will be off for 2nd session in short while she said could be quicker this time. take care Maggie XX
Hi Marcella first of all well done for finishng Rads hope you pick up well have you anything in store?
My first rads was no problem, and nothing to feel or see from first one!! I am just going to wait and see and not dwell on s/e happenning if they do then I will deal with them. I was on "casting couch" moved about a bit until they got me right and was out of there fifteen minutes about. I felt nothing at all and it wasnt scary just like a big saucer like space ship moving across my top half and a buzzing when giving treatment, I was anxious but not bothered now can relax.
The Party went well Logan had so many presents again very lucky boy, I wasnt tired and even stayed to clear up a bit like Nannas do!
take care I will let you know how I get on thanks for asking. Maggie XX
Thanks Jo, I have just found I have been getting more tired since having my booster sessions. My appointments have mainly been mornings but four and a half weeks of going backwards and forwards to the hospital is tiring in itself! Will have a glass of something nice to celebrate later on! Might start packing today - just can't get my head into holiday mode until I finish my rads. Glad to hear you are back to normal now. I can't wait to get back to my fitness routine. Been eating really healthily this week to try and shift a couple of pounds before I go - will probably put it back on but that's what holidays are for ha, ha!
Congrats on getting to your last day Sharnie! It's a lovely feeling 😊 I founds rads fine but I was starting to get fed up with all the rushing around, I had mine after work every day so was lovely to be able to come straight home again, I'm 2 months on now and life is back to normality and I'm loving it!! Have a great holiday Xx
Thank you - just need a decent nights sleep! I have doctors appointment on Friday so might see if they can give me some sleeping tablets. I think I have got to the stage where I'm too tired to sleep if that makes sense! It's going to be strange tomorrow not going to the hospital! I do have a busy day though, collecting daughters exam results first, then she has a blood test, then off to have a haircut then have afternoon tea for my friends birthday! Hope I will be able to keep awake! I am meant to be working on Friday but am going to see how I feel,
Awake again 😁 Last day today, I think I would like Brad and Poldark to come with me today in the Limo Jill. I hope there is champagne on ice for the journey home! My daughter is really stressing over her getting her exam results tomorrow. I'm sure she will be fine but she is really worrying! Roll on Sunday and holiday!
Of course you need some time off following rads and I'm sure the doctor will sort you out with a note. It's all about you and your recovery at the moment so don't worry about work. X
Hi all one more day to go 😃 Been feeling awful today, lack of sleep not helping - feel sick with tiredness. Really hope I get some sleep tonight. Tiredness really does kicks in at the end - at least I have next week off to try and recover. I have 9am session tomorrow and hoping to see my friend for coffee and chat after. Can't wait to start getting my life back on track.
I have had 14 out of 15 treatments so far and am so glad I haven't had to work through them. The tiredness is unpredictable and I have suddenly had to take to my bed without warning. Today I had to sit down on the floor of the changing rooms in New Look while teenager no 2 spent ages trying stuff on. The assistant was quite worried about me!
Only one more to go though the radiologist told me not to return to work for three weeks as the tiredness is worse afterwards apparently.
I'm very lucky that the royal is 30 minutes from home, and then the office 10-15 minutes from there. Basically I can leave the house at 8, be zapped at 8:40 and be in work by 09:10. They've only twice been running late.
Thanks everyone, that's very helpful. Can't believe you've worked all the way through Maria_B, I've been lucky that I work in a school so it's been the school holidays. I'm not sure I could have worked, the journey and treatment take 2 and a half hours each day and then I seem to sleep for an hour in the afternoon! I think you have more than done enough! x
I've worked all the way through, (except 4 days and 2weeks off after first and second surgery) but this week is just a write off. I've 4/25 to go, but I'm exhausted, not thinking straight, so about to ring in sick. Impatient to feel well again
I'm lucky in that I can work from home - it would be a nightmare if I had to go into work whilst having rads every day. I had a review appointment after my treatment today and the senior radiographer also said that the tiredness peaks 1 - 2 weeks after treatment finishes. I'm on holiday then so hope it's not too bad xx
Hi nappinggirl. At my hospital the surgeons will sign you off for two weeks after the ops, but all other sick notes have to be requested from the GP. I have been off work since my first operation in April. I imagined I'd work during rads but everyone advised against it. My GP signed me off for two weeks at a time, then I saw a different one while she was on holiday and he signed me off till October because he said I must recover from the radiotherapy fully before going back to work. It was a huge relief. I know everyone is different, and it depends on your company's sickness policy whether you get paid leave or not, but I would take off any time you can - everyone advised me to do that, particularly a colleague who said she went back to early and ended up getting an infection in the site of the tumour. Don't be afraid to ask the GP for what you need - it's not like you're skiving!