I'm glad to hear people are doing well post treatment or coming near to the end.
I think I'm at the 'diagnosed it, treated it, get on with life' stage now though having been in the situation years ago I am maybe better prepared for the 'getting back on with life' bit.
Hope things go smoothly for those still having treatment.
Finish tomorrow with treatment review this afternoon after my session - all gone well boob is definitely pinker than the other one and starting to get a bit sore around the nipple area. Still not sure about the lumpy bumpy area above the spot they operated on whether this is still where they manipulated during the operation or something else may call my BCN. Feels odd to be finishing treatment - still on the letrozole but life will start returning to normal but not sure I am ready for that especially at work where they want me to start on quite a major project in next few weeks. Good news is my critical illness insurance is paying out so might be able to start some plans that dont include my current work / life balance. Good luck to everyone else xx
Hi Pam, I had several reiki sessions whilst having chemo and could feel the heat from her hands on my left boob, my right knee which is arthritic and around my kneck (don't know what that is, hope nothing serious) Afterwards my therapist got really bad headaches ( she thinks from all the toxins in my body) so we stopped for a while but we are going to give reflexology a go next week instead. I also had some massage and reiki at my chemo centre, I do think these alternative therapies are very good some therapist's just hold hands a few inches away from your body and some actually lay their hands on you. Mine costs £30 per hour which I can claim back on Medicash. I see lots of colours when having treatments but never gold.
Had number 8/15 today and clavicle area is a bit prickly tonight so hope it doesn't break out. Sue x
Dear Darling Rads of May, especially Pamela, Eileen and Judith and thank you for your lovely words and virtual hugs. Betty ( Boob ) is turning slowly darker by the day. The spots are standing out more, but not showing signs of erupting at the moment. Am feeling tired but that is mainly to do with driving 70 miles to Mum's house and spending all day running around sorting things out to get it on the market. Just wanted to share something with you. The other day I had my first ever Reiki session with a lovely lady called Annie. Didn't know what to expect but thought it couldn't hurt. Anyway, I was amazed at the amount of hear coming through her hands. I found it incredibly relaxing, and sometime into the session, I started to see tendrils of gold lights dancing around my eyelids. They became brighter and more intricate, and as Annie moved around me I as able to see her outline through my closed eyelids as the gold lights were so bright. When the session finished after an hour, she brought me a drink of fresh lemonade. As I drank she asked me if I had seen any colour, and when I told her they were gold, she was amazed. Apparently these are very powerful and not seen by many. As a Reiki master of many years, she has seen various colours when having a treatment herself, but never been lucky enough to see gold (her words). As well as feeling relaxed when I left after the Reiki, I also felt at peace as well as invigorated. Family and friends in the ensuing days have commented on how well I look, and my husband tells me I seem calm and contented. I am going to see Annie again this week. Virtual hugs to everyone. I hope you are all keeping well. Petra xx
Fingers crossed things don't get too much worse and virtual hugs to all.
I've thought I am a little wheezy, tight chested but when I mentioned it during treatment I was told it was nothing to do with rads.
I've just got copies of my Drs notes from radio, chemo back in 1993 and I see that on finishing radio (20 doses with 5 boosters) my Dr was told all went well though I developed a chest infection requiring antibiotics.
Hello all. Today was another momentous day. Had my last radiotherapy session and received the probate grant for Mum's estate. This brought it home to me that she has really gone, and I got a little teary. But the lovely young ladies at radiotherapy brought a smile to my face again. I have very red skin and a rash which they tell me may get bigger and then blister. We will have to see. All in all I count myself as being one of the lucky ones and intend to keep looking forward.
Just checking in with an update as I've found hearing how others were getting in very useful.
I'm now 7 days after my last of 15 sessions.
I've decided I was only tired as I sit at a PC screen for work and too long in front of one of those can send you to sleep even in the best of health! 3 day weekend I was out and about and had no tiredness (other than doing the 15 mile trail run!!)
Boob is a little achy. I don't like to put pressure on it when sleeping. All this bashing it about with surgery and radio.... I'll be glad when I can sleep without having to make allowances for it.
Scar tissue smarts a bit if I've been too energetic!
Nipple is quite tender.
Skin is holding up fine. No dryness or itching. Fingers crossed long may it continue.
Best wishes to everyone.
Interesting stuff Whitfield.
I've actually felt very tired these last two afternoons. I work from home, sat in front of a pc, and by 4pm yesterday I could have gone to bed for the night. I thought it might be because I worked the whole day whereas I've been finished at 2.30 to take myself to treatment.
Today I made sure I had an hours break and took myself off for a nap and I NEVER have a nap, I'm like the Duracell bunny !
Funny though, I'm wide awake now.
Hope today went well. I start rads next Thursday. No side effects from Tamoxifen yet!
Im now on the June blog as well.
Afternoon. I finished yesterday.
Been told again to expect side effects to increase for up to 10 days yet but as I'm not having any problems with anything I'm not going to panic about the possibility.
I'm telling myself to rest up a bit but have already signed up for a 15 mile trail run on Sunday morning. There is plenty of time to complete it in so I'll have some long walk sections if need be 🙂 I'll rest again Monday if I've overdone it.
Best wishes to everyone midway or yet to start.
Hello everyone. Have been following you all on here. I'm now 8 treatments into my Rads and the skin is very pink but otherwise everything is fine. Have met some lovely ladies and gents in the waiting room, and the young ladies carrying out the treatment on me are all fab. We usually manage to have a laugh. The centre is funded by donations and they are having an open day soon so people can see the rads machines as well as helping to raise funds by having stalls, a tombola and refreshments. Have persuaded my husband and others to come with me. The centre needs to raise £750,000 towards a new scanner and I hope to be able to volunteer to help with efforts once I am through this. Hope you are all doing well, now off to get ready for todays treatment.
Hi, corfuchick, im same as you triple neg- lumpectomy, told all clear now 7/15 & all seems ok. No se's as yet :). Positive attitude is needed & we'll be thru this in no time at all. Cant wait to get back to work- not julsx
Hi Shell, I am pretty much same as you. Same results and just had planning last week. Start Rad on Friday 22nd May for 15 sessions. Not sure what to expect, everyone seems to have different experiences but I have warned my employer I will probably take some time off...(I only took two weeks after my surgery but then I only work part time too). Maybe we should compare notes as we go along - are you suffering any side effects from Tamoxifen yet? I seem to be having problems sleeping...my body is cream crackered but I can't switch my brain off!!! Good luck to everyone with their rads this month... Sue x
I hope everyone is enjoying the weekend and 2 days off from the radio commute.
I've 3 more to go and things are starting to look like treatment is really doing something (I was beginning to wonder if they forget to turn the machine on !! 😉 )
I've a large pinkish square from my under arm, down my side, across to mid chest and back up. But my small boob itself is normal white with a hint of blue still in the centre.
It is a very fetching look 🙂
Hi, I was diagnosed with Adenoid Cystic Carcinoma associated triple negative and had my lum removed with margins and lynphs clear. I am waiting to meet with my oncologist to discuss my radiotherapy course, which I hope will begin by the end of May or early June - anyone else have/had the same as me ?