Hi CK - you are indeed most welcome to come to me - I feel our experiences are good to share.
The pain you describe is very similar to the one I encountered and I put it down to the GCSF injections too - it always coincided with the timing of them. As long as your temperature is ok - I'd advise taking paracetamol just to keep the pain under control (rather than 2, I used to take 1).
Also, try some epsom salts in the bath water - they really are brilliant!
Hi CK, the community nurses administered my gsf, cos I'm a wuss! Fiona, the first nurse who came advised me to have a short walk after the injection. She arranged visits for lunch times so I could have my injection, then eat, giving my stomach something else to think about, and afterwards take a gentle walk to exercise muscles . Pleased to say that worked perfectly . X
Thank you CK for letting me know your chemo. It is just interesting to know a bit about others going through a similar treatment. I have noted what you said about hair loss........I find the idea of losing hair very strange at this stage! My little grandaughter loves combing my long straight hair, then plaiting it, bunching it, tying it up, then starting again! I don't know how she will react to a bald gramma! And you seem to let tiredness take its course........nap when you need it. I will follow that too. And getting through the day on croissants and milk also sounds like you 'go with the flow' and again I have taken it on board. So thanks again for just putting your experience out here for others to share. I normally just get on with life, but in this boat it is nice to share others' experience. It gives support and strength to carry on.
So......take care yourself. You have made a good start! You sound positive in what is a very hard situation. I too will be going on herceptin........that is why I have to have docetaxel. These days you must have 3 to 6 rounds of docetaxel while starting herceptin. Then herceptin continues......that is for me as secondary. I will be on it as long as it works. I think the herceptin is not too bad. It is the docetaxel I am braced for!
Again take care of yourself.....you have made a good start!........and do update on the forum so anyone reading can see how you are doing. There will be people reading who don't post. Off to bed for me!
CK.....first of all thanks for giving a description of your first few days post chemo. Can i ask which chemo you are on? I am probably.....seeing onc Tuesday post MRI.......starting docetaxel soon, so any help with coping is useful. You sound as though youare managing very well so far. I have never had chemo before, and am almost 3 years since secondary dx. My primary was in 2001. Thanks again,