I know what you mean about it all feeling surreal, I kept bursting into tears every other day! Its ok to feel scared, although my treatment is now over I am still fearfull about it coming back in the years to come. With regards to Tamoxifen I chose not to take it. I didn't feel I would cope well with the side effects, having said that I know not every woman has all the side effects I just felt it wasnt right for me. Yes I had 15 sessions of radiotherapy which during the course of the treatment really was a doddle, no bad effects until it finished when I then developed some nasty burns which took about 5 weeks to heal but all is good now. I dont want to worry you but dont be suprised if you have to have another WLE because the margins are not clear first time round, it appears over 50% of ladies do, I was one of them. Please try not to worry about things and if you do then feel free to come back and chat on here.
Hi thankyou for responding I am now waiting for results go back on 10 November not seen my scars yet as still bandaged up did you have 3 weeks of radiotherapy? And also are you ok with the tamoxifen? Everything just seems surreal at the moment I am telling everyone I am fine but when I am on my own I have a little wobble but I think it's the not knowing . I read of so so many brave women on this site and the different stages they are all at and really I do count myself lucky but still scared
Hi, I also had DCIS which was located behind the nipple, unfortunately I lost both my nipple and areola and lost about a cup size in tissue. I know it sounds quite harsh but I still think myself as really lucky I didn't have to have a total mx and chemotherapy. My scar is about 5 inches across the middle of my breast but it has healed well and is fading every day. I also had radiotherapy but refused tamoxifen. Try not to worry I'm sure you will be fine. Take care xx
Yes, after my surgery I had radiotherapy and hormone therapy - tamoxifen.
It is all hard to take in and it does take a while to assimilate all the information. I had quite a big gap between diagnosis and surgery so I felt a little more knowledgeable by that stage but generally it does all happen quite quickly and it take your mind a little while to catch up.
Ask any questions here, all the ladies are lovely and very informative and sympathetic.
Hi thankyou for replying been for pre op today then sentinel tomorrow not really sure what to say at moment but been reading this forum and felt like part of a community have you had radium and hormone therapy this is what they say I will be needing but obviously got to wait till after the surgery thanks
I had invasive lobular but like you it was just behind the nipple. I had a central wide local excision which removed a chunk of tissue all the way down to my chest wall and it included my nipple.
Hi just diagnosed read lots of info going for surgery on 30 having a wile sentinel biopsy and lumpectomy found behind nipple think I may be losing this been reading forums but not really read of anyone having this done
