yes its day 4 and been rough. Yesterday just felt like I was extremly tired but today got up with really bad throat so on more antibiotics after talking to oncologist and watching temperature fingers crossed it will get better. No pains though and no nausea just the dreaded constipation. Is it worse than FEC no just different so far I think.
Best wishes to all of you xx
tomorrow i am to have 4 units of blood at the verlinda nr cardiif then have my last fec as bloods to low today. the nurse explaine a lot more than my oncagisty on the reduced amout of fec so feel much happiier now
They've been so good Vicky. I'm sure if he really needed time off he'd get it..... He had just over three months off when I had my procedures. We'll just have to see what comes eh. He's used up almost all of his leave entitlement, what he's left till march he's keeping some back to help our son move next month. I just need to try be stronger. I mean, what can he do? He can't make this **bleep** go away, change how emotional I am. He needs time to be 'normal' and to keep his mind off this too and throwing himself into work is his way. He only got in post July before having months off for me so trying to catch up. I'm hoping he can get more time to stay with me during rads.... I'm annoyed with myself as if this wasn't happening id be getting through this posting easily, I'd be in work during the week and when he wasn't home on weekends off I'd be travelling down to spend the weekend with him. I'll be ok, have calmed down now. Giving myself a talking to....... Xx
Hi everyone........ Day 7, slept bit better, though still waking hot/cold, flushes, feeling sick. Stomach feels so huge and bloated. Taking anti sickness and I'm eating, but then feel queasy again, especially as this horrid taste quickly returns in my mouth! My tongue is almost white!! My head is driving me insane feeling fizzy, inside and out!?
This round has knocked me for six and I can't stop thinking about having to go through it all again in two weeks time. I'm physically urging at the thought of walking in the unit, facing the smells, sounds, the cap, canula....... Getting myself in knots. Fretting over the SE to come...... I've got to stop I know or I'll drive myself insane!? I'm not the strong person everyone keeps telling me I am...... Feel so weak, angry and emotional.
Managed to get out today to collect wig. How surreal was that? She's trimmed the fringe and it was upsetting to see how my hair used to be. I look and feel so old. All this crying is not doing me any good, with the throbbing head, knot in my stomache and causing eyes to look worse by the day!
Hubby left now, yes more tears, uncontrollable sobbing. Stupid! Though I always blub when he goes away, I've gone longer with him away (and further away!) over the past 26 years, but this last two months I've found so difficult and I've cried longer and harder than ever before.......
My daughter is home tomorrow night so I'll have company for few weeks. He's not home again until 28th Feb.
Hoping tomorrow will see me a little better. I need to find some positives to focus on. Not sit wallow in self pity. Xxx Sorry for the down post .... again.......
Still got crappy taste in mouth, no taste apart from that! Sense smell so accute. I've put on so much weight it's depressing me also!!!!! $€*%#!%$¥ nuff!!! Keep bursting into tears. Blowing my nose and crap from there!? Very bloody too.
really worried as due to all the seeping i do my fec is being tweaked for my last one. i would rather keep to the normally lot , i am worried that the tweaked one will have an effect on my further health as i wont be getting the full treament and it wont being doing the right job.... my last bit tomorrow at two and so worried as i am scarred it wont be working as well as my last too. i have no one here to talk too. or share my fearers with .
Hi Amanda and Tina,
Just popped in fron jaunuary thread as I follow you on this one as you are just ahead of me. Sorry to hear about your delay Amanda. It's such a pain especially when you have things planned around the good week.
I hope you pick up,soon Tina. I am dreading next week and going through the post FEC fuzzy head, nausea and headaches again. But at least it's no more FEC for you and you are halfway!!
This cr***y disease is so hard on us physically and emotionally. It's tough.
Lots of love
Day 6 post third final FEC........ Feel soooooo crap! Anyone else feel worse after third one? Slept bit better last night but I've no energy, feel so tired, bloated, hair and head feel fuzzy! Still emotional, Get out of breath just moving from sofa to go loo..... Heart palpitating off and on still. Will this ever end....... Xx
Hope everyone who have been feeling bad/low are feeling a bit better now, it all stretches out in front of us like it is never going to end! I find just getting out a bit helps when you can, doing ordinary things like going to the shops or just posting a letter. This whole cancer and s**t treatment is so 'de-normalising' and turns you life upside down...no wonder the tears flow! Then as you say Tina, there will the the fear and dread every mammogram from now on, I've even begun to worry about my next smear and I don't even know when it's due!
Went for bloods and assesment this morning (FEC 3 due Thursday) and mentioned my arm felt a bit 'bruised' and pointed out a vaguely red spot abou the size of a £2 coin with little hard lump in...she said I have to see my GP. So went to GP and she agreed with chemo nurse that it might be 'cellulitis' and put me on antibiotics. Phoned the chemo unit and they say I can't go on Thursday because you have to have been on antibiotics for at least 72hrs! They contacted my oncologist and she has said next Thursday, the 11th! Not happy as this means (assuming I don't have further delays) that I will be getting my first T on my youngest daughters 21st birthday and also, I will also probably have to cancel my appointment with the special I have for 17th Feb about my prolapsed bladder as I will be right in my low immunity after the FEC 3! I've got an appointment with my Onc tomorrow, so I will ask whey I have wait a whole week.
Oh well, it could be worse but I just want it over with and this delay it drags it out longer! 🙁
so sorry some of you are feeling so low about this whole journey and having atough time. The BCC helpline is supposed to be very good might be worth talking over how you feel with one of the nurses, the number is on this site.
Had my first T today and was a nothing to worry about to be honest I was so worried about reactions and things but the steroids obviously do the trick. So heres what happens, I had my steroids last night 8mg and was only dosing most of the night but it was very windy here in Northumberland and our aerial blew off the roof which didnt help. Got to hospital at 10 and explained since I have taken the steroids I have bee weeing for England, turns out I have a mild water infectin so have given me antibiotics but went ahead with my chemo. Had the canula in my foot this time as my arm is still sore from the fec. It was ok hurt a little whne they put it in butx was ok. Then I had the Aloxi antisicknes and steroid injection. Then they hook up the Docetaxel to a pump and infuse it for an hour folowed hy a saline rinse. i had no reactions whatsoever and felt fine. Came home and had a greggs pasty (naughty but they told me I have lost 3 kilos so a treat).
She says to expect any pain etc to be about day 4 or so. I have lansoprazole for the stomach acid, my antibiotics, my movicol, my steroids, metaclopramide in case I feel sick but am fine so far and codeine incase pain is bad. I need a granny tablet box !!! But four down now and two to go. Hope taht reassures you who need T next, I will keep you posted.
Feeling grotty today and I would welcome some wise words from you. I'm on AC and so I think that only one of you is having the same drugs as me.
Today is day 5 after dose 3 (of 4) and I had hoped to be more or less back to normal as usual. My white cells/neutrophils were a bit low the day before chemo and so they had to retest on the day and decided to go ahead with the chemo. I'm wondering now if this was a bad idea but I too was keen to get it over with.
Today I have a lowish temperature 36.4 ( normally always over 37.) I took it after I thought I was going to faint on the loo when I got up this morning and had to lie down! Then I sneezed once, coughed once and blew my nose, and tried to tell myself it was nothing to worry about. Then my cheeks and chest flushed red but temperature still normal. Then I straightened my arm and ouch - a painful lump in the vein in the crook of the arm where they took blood the day before chemo. The 5 other puncture wounds in my hand and lower arm where they tried to get the cannula in all look colourful but don't hurt at all. And now I feel queasy and there is phlegm in my throat.
So many minor minor things that I would normally ignore but are making me anxious, especially as I've not had them before or not at this stage. I wanted to go out for a short walk but I don't even have the nerve to do that in case I feel funny again.
All in all, a bit down and the lack of sleep doesn't help. Advice please, fellow travellers!
Thanks Nadz, 😢 trying not to cry reading your post. I'm in the north of Scotland. I've got lots of offers from friends to come with me, pop in etc..... But I'm feeling I can't face anyone other than close family right now. Think I'd just not stop crying if it was friends or strangers. Thinking its inner strength to stay stronger in front of family? Hubby home now till Thursday, then my daughter home on placement for 7 weeks so I'll have company at home over next month.
Feeling so tired this morning, not going out anywhere today what with the heavy rain and very heavy wind!!! Have got washed and dressed. Have developed a painful bruised area in crook of elbow, running along good arm on vein where that cow put canula FEC 2 in pad of thumb area..... 😖 I'll be ok..... Hubby here to keep me going xxx
Hi guys, what a **bleep**ty roller coaster since Friday's third FEC...... Thought I'd never get through the last hour and quarter. Think it was partly to being the last one in unit, sitting on my own, feeling emotional, sorry for myself and fed up! Cap felt colder, due to thinning of hair? Had silent tears to myself, pulled myself together before nurses saw or I would've not been able to stop crying. Sobbed my heart out when I got home.
Not sleeping great, I too am getting worse palpitations this time, though nausea eased. Hot flushes are lot more often, though I was told it could happen. Period due, but also told that may not happen. Day 2 felt unusually 'OK', 3 went down emotionally and physically. I got very upset thinking about going through the sessions and cold cap again. Hubby home for few days Sunday night, needed company! Day 4, Still had fuzzy head feeling, very tired, disturbed sleep, eyes feel dry like pee holes in snow!
Managed to travel to hospital to see plastics consultant yesterday. He was pleased on healing of procedures and explained that post radiotherapy size, shape and appearance could change. I'm to Let him know when radiotherapy finished to discuss options of reduction on other side if that's what I want to even things up. I'm about a cup size different at the moment. Then if surgery decided on it'll be once rads treatment settled down.
Other thing I'm dreading is when this treatment is through the tests again to see if it's all ok....... How the hell do we get through this?!? What happens next? When chemo and rads finished? Another mammogram? MRI?
Day 5...... Another disturbed night, hot/cold, face flushes, heart juddering. Let's see what today brings......
Think I'm going to have another look at the SE of these steroids. I've been given same steroids ready to take day before first T (am & pm) and the morning of session. Know what the anti sickness ones for clearly, but can't remember what or why I'm getting steroids? Brain is fried!!!?! The injection? White blood cell reboot?
What meds is everyone on? During this crap I've been given Ondansetron 1x 8mg twice day for 5 doses, Domperidone 1x 10mg up to three times day as required and Dexamethasone 4 x 2 mg twice a day for days 2, 3 & 4, so these finished yesterday at 5:20pm. I've only been having the one injection given by district nurse 24 hr after session on day 2, that being Neulasta 1 x 6mg.
Ive got the same question re cold cap and T sessions..... I'm sure someone mentioned it needn't be on for so long? Dreading the SE to come on it, feeling very emotional about having it on again but told my hair holding up good and don't want to give in...... But the sick feeling in the pit of my stomach every time I think of it again!!
The smell of it and conditioner...... 😖 Jesus will this ever end?
Keep being told how well I'm doing, don't feel it myself 😢 Trying to find my positivity, so sick of the lot of it, I know I'm luckier than many others, but feel so down and dont want to show family I'm not coping.
Hope you guys have a good day xxxx Sorry for the rambling. Xx Tina
had bloods today and first T tomorrow at 10.00am so have had 2 8mg doses of steroids today. They make me wee for England and have to dash when I need to go.
I met a lovely lady at the look good feel better day who had her first T Friday and she w ent out to lunch today for her birthday, that made me feel better as have been worried.
Will let you all how it goes.
Hope you are all ok, not sure if you know but if you are a woman, under 50, suffered morning sickness, suffer with travel sickness and arent use to coping with an in frequent moderate alcholol intake you are at higher risk of suffering with chemo sickness - its on the Emend website.
Keep your chins up girls, there will be a starting in March group soon, we are getting there xx
had bloods today ready for Thursday . due to being metastasis i have double fec but as this time i have been pretty poorly i am not having a double lot but a normal does .so pleased to hear this . tho been warned that next lot will knock me for six . oh eck .
I had my third dose of AC yesterday and then vomited in the night; I've never vomited after previous doses. Anyone know why this might happen?
I've just taken the steroids and I hope I can keep them down.
They got the cannula in to my arm on the 5th attempt - not a happy experience!
Still, only one more dose to go, then I am finished.
Hope you all recover quickly from this tiresome process.
Hi RedRobin, I'm from January chemo post, I've just been reading some of December posts and picked up that you haven't been too good with FEC, I think I am having the same symptoms as you! I have just had my 2nd today, they have changed my anti sickness to Emend as I was sick after my 1st cycle, so I thought I would be OK. I was finished my chemo by 11.15, then started feeling sick by 2.30, my head and eyes are also very achy. I'm now lying in bed after taking a metoclopramide anti sickness tablet. It's awful, I really thought I would feel ok this time. Have you just had your 3rd and how are you feeling? Do you have any tips?
Oh Vicky (red robin) I feel you anguish! I'm in at 1pm and have had another **bleep**ty night! Waking every couple hours, feeling awful! My head is aching with the worry of it all, stomach churning and I already feel nauseas before any crap is put in me!!!! On my own, trying not to have a melt down........
By now you're there, by time I go in you'll be home Hun...... Rest up.hope your little one feels better soon, and by Tuesday you'll be feeling your starting getting out if the SE.........
Half way house for us today..... Just got to keep telling ourselves WE CAN DO THIS!!!!!! 👊🏼