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December 2015 chemo

Nadz
Member

Re: December 2015 chemo

Nearly vomited everywhere immediately after chemo. On reduced dose too. Very shakey and weak straight off.
Was it Tina talking about a white tongue? Sounds like thrush my dear. Warm salty mouth rinses and contact gp. You will need to change toothbrush after too. I've been changing toothbrushes after each chemo, to reduce any extra bugs. Try and stay away from corsodyl ladies. If you need it for sore gums..and I really mean sore gums, use it but you can only use it for 10 days. It is a medicated mouthwash and it will take away your sense of taste and cause bad staining. Going to try and go back to sleep now.
Loved the post about the crackers - need more posts like that in my life, made me giggle! Thanks Vicky
red_robin
Member

Re: December 2015 chemo

😯 oh dear. Is it just a funny throat because you are low white cells or a se?
I am on antibiotics too after seeing my gp today. I have a cough that is quite chesty and temp slightly up but not by a lot. Chest clear at the moment but really wheezy so on them as a precaution seeing my youngest has had bacterial tonsillitis and chest infections caused by same germ. Haven't called into unit but as seen gp I am guessing that's fine.

Hope you feel better soon Gillian.

Hugs everyone xxx
Gfnich
Member

Re: December 2015 chemo

Hi Vicky,

 

yes its day 4 and been rough.  Yesterday just felt like I was extremly tired but today got up with really bad throat so on more antibiotics after talking to oncologist and watching temperature fingers crossed it will get better.  No pains though and no nausea just the dreaded constipation.  Is it worse than FEC no just different so far I think.

 

Best wishes to all of you xx

red_robin
Member

Re: December 2015 chemo

Don't know why but I have major cravings for Jacobs salt and vinegar cracker crisps! Just thought I'd share, they are yummy lol!
Tandy 4
Community Champion

Re: December 2015 chemo

Good luck Nadz...... Hope all goes well xxxx 

red_robin
Member

Re: December 2015 chemo

Good luck Nadz.
Gillian hope you are ok. Today is day 4 isn't it when they said things could be painful with se's. Thinking of you xx
Nadz
Member

Re: December 2015 chemo

Well today's the day for me. Find out if my last fec is going to be reduced or not due to how bad my see were last time. Dreading going in. Ah well, needs must! See you all on the other side. Big hugs Tina, enjoy having your daughter round xx
red_robin
Member

Re: December 2015 chemo

Fred flowerpot thats good! Thought it would work out xxxx
fredflowerpot
Member

Re: December 2015 chemo

tomorrow i am to have 4 units of blood at the verlinda nr cardiif then have my last fec as bloods to low today. the nurse explaine a lot more than my oncagisty on the reduced amout of fec so feel much happiier now

 

red_robin
Member

Re: December 2015 chemo

Ok Tina. As long as you are okay hun. Pm me anytime if you like.
I think you are amazing doing this with him on tour, as are all the other ladies doing so.
Vicky xx
Tandy 4
Community Champion

Re: December 2015 chemo

They've been so good Vicky. I'm sure if he really needed time off he'd get it..... He had just over three months off when I had my procedures. We'll just have to see what comes eh. He's used up almost all of his leave entitlement, what he's left till march he's keeping some back to help our son move next month. I just need to try be stronger. I mean, what can he do? He can't make this **bleep** go away, change how emotional I am. He needs time to be 'normal' and to keep his mind off this too and throwing himself into work is his way. He only got in post July before having months off for me so trying to catch up. I'm hoping he can get more time to stay with me during rads.... I'm annoyed with myself as if this wasn't happening id be getting through this posting easily, I'd be in work during the week and when he wasn't home on weekends off I'd be travelling down to spend the weekend with him. I'll be ok, have calmed down now. Giving myself a talking to....... Xx

red_robin
Member

Re: December 2015 chemo

It's good to get it out Tina. I feel a little bit better today. Less flushing in the day, more at night now. I have found I am so susceptible to the cold that if my head gets too cold it seems to make the hot/cold flushes worse. I think my body is struggling to control my temp a little especially with less thick hair to keep my head warm. Always have been one who feels the cold though.
I can't imagine doing this without Leo. I wouldn't cope either. You are such a brave lady. Could they not give him some time to come home and look after you or a post on a local base just for the time being? It is quite exceptional circumstances after all.
Keep strong Tina. Sending lots of big hugs xxxxx
Tandy 4
Community Champion

Re: December 2015 chemo

Hi everyone........ Day 7, slept bit better, though still waking hot/cold, flushes, feeling sick. Stomach feels so huge and bloated. Taking anti sickness and I'm eating, but then feel queasy again, especially as this horrid taste quickly returns in my mouth! My tongue is almost white!! My head is driving me insane feeling fizzy, inside and out!? 

This round has knocked me for six and I can't stop thinking about having to go through it all again in two weeks time. I'm physically urging at the thought of walking in the unit, facing the smells, sounds, the cap, canula....... Getting myself in knots. Fretting over the SE to come...... I've got to stop I know or I'll drive myself insane!? I'm not the strong person everyone keeps telling me I am...... Feel so weak, angry and emotional. 

 

Managed to get out today to collect wig. How surreal was that? She's trimmed the fringe and it was upsetting to see how my hair used to be. I look and feel so old. All this crying is not doing me any good, with the throbbing head, knot in my stomache and causing eyes to look worse by the day! 

Hubby left now, yes more tears, uncontrollable sobbing. Stupid! Though I always blub when he goes away,  I've gone longer with him away (and further away!) over the past 26 years, but this last two months I've found so difficult and I've cried longer and harder than ever before....... 

My daughter is home tomorrow night so I'll have company for few weeks. He's not home again until 28th Feb. 

Hoping tomorrow will see me a little better. I need to find some positives to focus on. Not sit wallow in self pity. Xxx Sorry for the down post .... again.......

red_robin
Member

Re: December 2015 chemo

Nadz you are so right. Thank you for your positivity. You have made me realise I am mopping a bit. Will do better to think positive. I lost that for a bit. So unlike me.
Don't think I am going to make it back to work for Friday at this rate but at least it means I can look after myself and have 3 extra days before returning. (See trying to find the positive side already!)

Fredflowerpot talk to us hun. We're here for you. They know what they are doing. Peoples bodies react differently to these drugs. There is no one size fits all so they are just tailoring it to you so it fits better like a custom made suit or dress. It's still there doing its job. They wouldn't let you down on that. They seem to always start these things higher then come down if necessary. My onc said it may be that way with the t and the steroids.
Hope everyone else is doing as well as they can be.
Think of something positive like Nadz said.
Hugs xx
Nadz
Member

Re: December 2015 chemo

Hi all, hate seeing us all suffering. Just remember, the end is when we can live again, get back into activities that will make us happy, lose or gain the required weight. We have all come so far, with people on their last fec and even starting on the T. We are here for eachother, we have bonded through this. Fredflowerpot talk to us about it all.
Tina and Vicky I know it's hard to imagine it now, but think of the good week that's coming, write down something each day that you want to do during the good week.even if it's just being able to have someone round for a cuppa!
Amanda I'm so gutted for you that it's changed the date for you but at least they are treating what is needed and aren't taking any risks by just going ahead. (trying to think of the good points)
I am getting very anxious about this Friday,I'm trying to prepare again, learning from what my last cycle was like. I have a goal..my friends have organised a girls night for next sat..I know it's very soon but I'm going to be thinking healing thoughts just so j can go out with them. Despite being at low immune then I am really hoping il be OK. That night out is going to push me through the horrible loss of self,fuzzy head,and pain.
I know I'm saying all this stuff and that come my day 5 I will be on here talking about how I hate it all. I just need..we all need..to think of something to get us through it. That's my dream anyway..that something will help us
Tandy 4
Community Champion

Re: December 2015 chemo

Still got crappy taste in mouth, no taste apart from that! Sense smell so accute. I've put on so much weight it's depressing me also!!!!! $€*%#!%$¥ nuff!!! Keep bursting into tears. Blowing my nose and crap from there!? Very bloody too. 

fredflowerpot
Member

Re: December 2015 chemo

really worried as due  to all the seeping i do my fec is being tweaked for my last one. i would rather keep to the normally lot , i am worried that the tweaked one will have an effect on my further health as i wont be getting the full treament and it wont being doing the right job.... my last bit tomorrow at two and so worried as i am scarred it wont be working as well as my last too. i have no one here to talk too. or share my fearers with .

red_robin
Member

Re: December 2015 chemo

Yes Tina. Feeling the same. Just want to feel better again.
Hugs xxx
Cs66
Member

Re: December 2015 chemo

Hi Amanda and Tina,
Just popped in fron jaunuary thread as I follow you on this one as you are just ahead of me. Sorry to hear about your delay Amanda. It's such a pain especially when you have things planned around the good week.
I hope you pick up,soon Tina. I am dreading next week and going through the post FEC fuzzy head, nausea and headaches again. But at least it's no more FEC for you and you are halfway!!
This cr***y disease is so hard on us physically and emotionally. It's tough.
Lots of love
Claire xxxx

Tandy 4
Community Champion

Re: December 2015 chemo

Day 6 post third final FEC........ Feel soooooo crap! Anyone else feel worse after third one? Slept bit better last night but I've no energy, feel so tired, bloated, hair and head feel fuzzy! Still emotional, Get out of breath just moving from sofa to go loo..... Heart palpitating off and on still. Will this ever end....... Xx

A.Faed
Member

Re: December 2015 chemo

Hope everyone who have been feeling bad/low are feeling a bit better now, it all stretches out in front of us like it is never going to end! I find just getting out a bit helps when you can, doing ordinary things like going to the shops or just posting a letter. This whole cancer and s**t treatment is so 'de-normalising' and turns you life upside down...no wonder the tears flow! Then as you say Tina, there will the the fear and dread every mammogram from now on, I've even begun to worry about my next smear and I don't even know when it's due!

 

Went for bloods and assesment this morning (FEC 3 due Thursday) and mentioned my arm felt a bit 'bruised' and pointed out a vaguely red spot abou the size of a £2 coin with little hard lump in...she said I have to see my GP. So went to GP and she agreed with chemo nurse that it might be 'cellulitis' and put me on antibiotics. Phoned the chemo unit and they say I can't go on Thursday because you have to have been on antibiotics for at least 72hrs! They contacted my oncologist and she has said next Thursday, the 11th! Not happy as this means (assuming I don't have further delays) that I will be getting my first T on my youngest daughters 21st birthday and also, I will also probably have to cancel my appointment with the special I have for 17th Feb about my prolapsed bladder as I will be right in my low immunity after the FEC 3! I've got an appointment with my Onc tomorrow, so I will ask whey I have wait a whole week.

 

Oh well, it could be worse but I just want it over with and this delay it drags it out longer! 🙁

 

Amanda x

red_robin
Member

Re: December 2015 chemo

I wish I wasn't. Can't seem to stop it. Think it must be the medication or the stress or something but it won't stop. I would rather be putting it on so more to absorb the poison so hopefully didn't feel so crap. Think me loosing messes up the dosage more.
Also means if I want to loose the expander implant I will have to probably put weight on so I can have enough there to use my own tissues to do the op.
I am now 8 stone. Much more there won't be much left of me to treat!
It's madness!
Vicky xx
Tandy 4
Community Champion

Re: December 2015 chemo

Bugger..... Wish I had lost weight!!! I've put on! Round belly, hips, bum!!!! Lack of exercise .... 😧

red_robin
Member

Re: December 2015 chemo

Good to know you are feeling not too bad so far. Sounds like you have had less steroids than my onc wants me to have in the 24hrs before my 1st t. 4 x 4mg tablets twice a day, so thats 16mg twice! Seems a lot.
Hope you carry on feeling not so bad. Btw I have lost a stone since my op in October. Don't want to loose any more so eating pasties too.
Vicky x
Gfnich
Member

Re: December 2015 chemo

Hi everyone,

 

so sorry some of you are feeling so low about this whole journey and having atough time.  The BCC helpline is supposed to be very good might be worth talking over how you feel with one of the nurses, the number is on this site.

 

Had my first T today and was a nothing to worry about to be honest I was so worried about reactions and things but the steroids obviously do the trick.  So heres what happens, I had my steroids last night 8mg and was only dosing most of the night but it was very windy here in Northumberland and our aerial blew off the roof which didnt help.  Got to hospital at 10 and explained since I have taken the steroids I have bee weeing for England, turns out I have a mild water infectin so have given me antibiotics but went ahead with my chemo.  Had the canula in my foot this time as my arm is still sore from the fec. It was ok hurt a little whne they put it in butx was ok.  Then I had the Aloxi antisicknes and steroid injection.  Then they hook up the Docetaxel to a pump and infuse it for an hour folowed hy a saline rinse.  i had no reactions whatsoever and felt fine.  Came home and had a greggs pasty (naughty but they told me I have lost 3 kilos so a treat).  

 

She says to expect any pain etc to be about day 4 or so.  I have lansoprazole for the stomach acid, my antibiotics, my movicol, my steroids, metaclopramide in case I feel sick but am fine so far and codeine incase pain is bad.  I need a granny tablet box !!!  But four down now and two to go.  Hope taht reassures you who need T next, I will keep you posted.

 

gillian x

Gfnich
Member

Re: December 2015 chemo

Tvgirl, sounds like you should ring your help line for advice as you have a few things going on there

 

Gillian

TVGirl
Member

Re: December 2015 chemo

Feeling grotty today and I would welcome some wise words from you. I'm on AC and so I think that only one of you is having the same drugs as me.

 

Today is day 5 after dose 3 (of 4) and I had hoped to be more or less back to normal as usual. My white cells/neutrophils were a bit low the day before chemo and so they had to retest on the day and decided to go ahead with the chemo. I'm wondering now if this was a bad idea but I too was keen to get it over with.

 

Today I have a lowish temperature 36.4 ( normally always over 37.) I took it after I thought I was going to faint on the loo when I got up this morning and had to lie down! Then I sneezed once, coughed once and blew my nose, and tried to tell myself it was nothing to worry about. Then my cheeks and chest flushed red but temperature still normal. Then I straightened my arm and ouch - a painful lump in the vein in the crook of the arm where they took blood the day before chemo. The 5 other puncture wounds in my hand and lower arm where they tried to get the cannula in all look colourful but don't hurt at all. And now I feel queasy and there is phlegm in my throat.

 

So many minor minor things that I would normally ignore but are making me anxious, especially as I've not had them before or not at this stage. I wanted to go out for a short walk but I don't even have the nerve to do that in case I feel funny again. 

 

All in all, a bit down and the lack of sleep doesn't help.  Advice please, fellow travellers!

 

TVGirl
Member

Re: December 2015 chemo

Thank you Nadz. Fortunately I only vomited that first night so At least I don't have that to cope with now, at least! My body did seem to react differently this time, the red poison came out in my wee so fast that it was back to normal colour by the first day's bedtime rather than taking a full 24 hours to be pale yellow. I guess my body was trying to expel this poison through all possible routes!
red_robin
Member

Re: December 2015 chemo

Nadz and Tina I know what you mean about not showing people how bad you feel. I am lucky in that I have my fiancé here at least on the evenings and weekends. Although last night I showed him how I feel, told him how worried I was about the t and the steroids and it ended up in both of us feeling rubbish and an argument which wiped me out. We are both feeling so frustrated by it all. Sometimes I feel I shouldn't say anything about it to him as he is trying to cope with it all too and because I want to try to keep things as normal as possible for the boys. Sometimes I hold it all in, then I explode in emotions. Also feel after loosing mum 10 years ago like I can't show my dad or sister exactly how bad I feel too as don't want to put them through the mill again. They both did very badly after loosing mum and I had to be the strong one holding everyone together, especially seeing my eldest was only 14 months old too.
I really don't feel I can cope either a lot of the time. Leo made a comment last night of you've done the fec just don't do the t if you are too worried and that made me worse. I said I might as well slit my wrists then as it would be as good as saying I won't be here in 10 years time as it changes all the statistics we saw if I do that. That got him all upset because he thought I was having bad thoughts but I wasn't. I was just upset at the comment and because I couldn't think fast enough to put it better it came out in an extreme sentence. This all sucks I know but on here at least we can talk about anything that is worrying us to each other and sometimes people have tips and ideas that help too.
Not showing emotions to protect people we love or ourselves is what makes us human but here we can. We're all in the same boat.
I want to thank you ladies for all the support so far. We can get through this together. We are all here to help you Tina xxxx
red_robin
Member

Re: December 2015 chemo

Oh Tina. I want to come all the way up there to give you a big hug. I know the feelings. Having much of the same with the hot flush symptoms. Can't believe how bad they have been. Also my temperature doesn't seem to want to get much above 36.3. It was 35.7 last night which usually happens first day but didn't for some reason until then. Is your temperature normal when you get these flushes?
The steroids with fec are to mainly help with sickness effects apparently but I found they also helped the fluid build up (seroma, if I spelt it right) around the operation site. I can only tolerate half that dose and still getting palpitations.
The steroids for the t help prevent allergic reactions to the t. My onc said that it can affect the blood pressure, he is worried mine would go too low without them. It also helps stop a lot of other hypersensitivity allergic reactions apparently. Not sure what like yet. Will know more after spoke with him on 9th.
I think we are getting to that hard point again as it is a change of regime again with all new meds and side effects. I too am very scared again, you are not alone.
If it would help I can pm you my number and we could have a chat. If not now when you have no company. Don't think I will be back to work for a little while yet as still feel much the same as you do.
Big hugs for you Tina xxxx
Nadz
Member

Re: December 2015 chemo

Oh Tina you are too far away for me to visit! I'm down south of England! If we had been closer I would have come and visited xx I know what you mean about not showing your family how bad it is, I tried that at the beginning but it made people think I was grand and being amazing at all of this and it just made me feel even more of a fraud. So I just laid it out straight to my close family and friends about how bad it is and how it makes me feel defeated, like I can't continue with treatment during the early days, that I feel so pathetic and less like the strong person that I want to be, that they imagine me to be. This has made them more aware of my changes - and hasade them become more motivational. There is no longer the dismissive comments about the chemo because they think I'm doing that well that I don't need to talk about it. Instead now I get support, I get questions and they motivate me. It's not all about cancer or treatment, they make sure that I think about the future, even it's just meeting up to go window shopping etc.
After the last chemo- which I really struggled through, especially with partner being away and having my mum here (who is great but as you now know I'm pretty ocd about my house etc) and certain SE''s were worse, I have told all my friends to just visit whenever they want. Before I was strict saying can't see me until im my good week mainly because I didn't want them to see me at my most pathetic , but that last experience made me realise I need to share, they are my rocks and I need them.I will probably try and keep most of the sadness away and like you said, wouldn't want to cry in front of them, but I think the real good friends need you as much as you need them. Plus it stops them from being worried about me and thinking that I don't want to know them any more. -not saying this for you to do, just letting you know that i understand the emotions- and then of course I got carried away, this place is like soup for the soul with all the off loading I do!
I'm so very happy you have your husband and daughter this month, it should help you, having physical contact from loving people or even pets produce the happy endorphins and by golly we all need that!
At lest you are up, washed and dressed Tina, I'm still in my pj's and I'm on my good week! That shows a strength of character that I hope to mimic with my next fec. During those early days I can't even dress or wash. I admire you xx keep it up and enjoy those little accomplishments. Hope the hubby is providing lots of cuddles xx
Tandy 4
Community Champion

Re: December 2015 chemo

Thanks Nadz, 😢 trying not to cry reading your post. I'm in the north of Scotland. I've got lots of offers from friends to come with me, pop in etc..... But I'm feeling I can't face anyone other than close family right now. Think I'd just not stop crying if it was friends or strangers. Thinking its inner strength to stay stronger in front of family? Hubby home now till Thursday, then my daughter home on placement for 7 weeks so I'll have company at home over next month. 

 

Feeling so tired this morning, not going out anywhere today what with the heavy rain and very heavy wind!!! Have got washed and dressed. Have developed a painful bruised area in crook of elbow, running along good arm on vein where that cow put canula FEC 2 in pad of thumb area..... 😖 I'll be ok..... Hubby here to keep me going xxx

Nadz
Member

Re: December 2015 chemo

Tina where are you living right now?is there someone close who can call in for a few hours to be with you? I have no idea how to pm on this site-can't find the options.
You have gotten this far, look at how much you have accomplished! 3 Fec!! That shows how strong you are. Could you do me a favour today? Could you find something that would make you smile, listen to music or watch a favourite show or movie. I really wish I could give you a proper hug and help out, but since I can't, those are the only things I could think off.
Tandy 4
Community Champion

Re: December 2015 chemo

Hi guys, what a **bleep**ty roller coaster since Friday's third FEC...... Thought I'd never get through the last hour and quarter. Think it was partly to being the last one in unit, sitting on my own, feeling emotional, sorry for myself and fed up! Cap felt colder, due to thinning of hair? Had silent tears to myself, pulled myself together before nurses saw or I would've not been able to stop crying. Sobbed my heart out when I got home. 

Not sleeping great, I too am getting worse palpitations this time, though nausea eased. Hot flushes are lot more often, though I was told it could happen. Period due, but also told that may not happen. Day 2 felt unusually 'OK', 3 went down emotionally and physically. I got very upset thinking about going through the sessions and cold cap again. Hubby home for few days Sunday night, needed company! Day 4, Still had fuzzy head feeling, very tired, disturbed sleep, eyes feel dry like pee holes in snow!

 

Managed to travel to hospital to see plastics consultant yesterday. He was pleased on healing of procedures and explained that post radiotherapy size, shape and appearance could change. I'm to Let him know when radiotherapy finished to discuss options of reduction on other side if that's what I want to even things up. I'm about a cup size different at the moment. Then if surgery decided on it'll be once rads treatment settled down.

 

Other thing I'm dreading is when this treatment is through the tests again to see if it's all ok....... How the hell do we get through this?!? What happens next? When chemo and rads finished? Another mammogram? MRI?

 

Day 5...... Another disturbed night, hot/cold, face flushes, heart juddering. Let's see what today brings......

Think I'm going to have another look at the SE of these steroids. I've been given same steroids ready to take day before first T (am & pm) and the morning of session. Know what the anti sickness ones for clearly, but can't remember what or why I'm getting steroids? Brain is fried!!!?! The injection? White blood cell reboot? 

 

What meds is everyone on? During this crap I've been given Ondansetron 1x 8mg twice day for 5 doses, Domperidone 1x 10mg up to three times day as required and Dexamethasone 4 x 2 mg twice a day for days 2, 3 & 4, so these finished yesterday at 5:20pm. I've only been having the one injection given by district nurse 24 hr after session on day 2, that being Neulasta 1 x 6mg. 

 

Ive got the same question re cold cap and T sessions..... I'm sure someone mentioned it needn't be on for so long? Dreading the SE to come on it, feeling very emotional about having it on again but told my hair holding up good and don't want to give in...... But the sick feeling in the pit of my stomach every time I think of it again!! 

The smell of it and conditioner...... 😖 Jesus will this ever end?

Keep being told how well I'm doing, don't feel it myself 😢 Trying to find my positivity, so sick of the lot of it, I know I'm luckier than many others, but feel so down and dont want to show family I'm not coping.  

Hope you guys have a good day xxxx Sorry for the rambling. Xx Tina 

 

red_robin
Member

Re: December 2015 chemo

I think so as some people loose hair with the docetaxel too. I will as it has worked quite well for me and I don't want to loose what I have managed to save so far. So worried about higher steroids. Need to get my mind off it all so I can sleep. Had third zoladex injectors today too. Feeling so emotional but think thats because I feel so c**p.
Xx
Nadz
Member

Re: December 2015 chemo

Aye Gillian, when I went for my first meeting regarding chemo I asked for the super strong anti sickness, they didn't want to give them to me as they are pretty expensive but as soon as I said that I get travel sick in the car, and how I bruise around the eyes due to how bad I vomit after a few drinks. Even mentioned how someone turning round fast can set me off, and she was like yep you definitely need them. Do I've been on emend since the very beginning and even though I still get nauseous I'm not throwing up-bar the first day of chemo!
I also get heart palpatations with the steroids red Robin, so I'm also concerned about T.
Anyone who is cold capping and on fec t - do we have to do it the whole way through T as well? Because I honestly dont think I can deal with it past my fec!
red_robin
Member

Re: December 2015 chemo

Thanks for the pep talk Gillian. Didn't know about the sickness bits you say are on the emend website but that would make serious sense for me. I told Leo it was like morning sickness, drunken sickness and travel sickness all rolled into one!
How are you coping with the steroids other than that. I am having issues with what I have now let alone the higher dose. Have started a thread called steroids, side effects and docetaxel to see if I can get any help with it as it's a big problem for me. Especially the palpitations.
Hope it goes well for you tomorrow Gillian
Hugs xx
Gfnich
Member

Re: December 2015 chemo

Hi everyone,

 

had bloods today and first T tomorrow at 10.00am so have had 2 8mg doses of steroids today.  They make me wee for England and have to dash when I need to go.

 

I met a lovely lady at the look good feel better day who had her first T Friday and she w ent out to lunch today for her birthday, that made me feel better as have been worried.  

 

Will let you all how it goes.

 

Hope you are all ok, not sure if you know but if you are a woman, under 50, suffered morning sickness, suffer with travel sickness and arent use to coping with an in frequent moderate alcholol intake you are at higher risk of suffering with chemo sickness - its on the Emend website. 

 

Keep your chins up girls, there will be a starting in March group soon, we are getting there xx

fredflowerpot
Member

Re: December 2015 chemo

had bloods today ready for Thursday . due to being metastasis i have double fec but as this time i have been pretty poorly i am not having a double lot but a normal does .so pleased to hear this . tho been warned that next lot will knock me for six . oh eck .

 

red_robin
Member

Re: December 2015 chemo

Not with it, it is definitely fair to say. (Took over half hour to type this)
Can't concentrate, so tired. Didn't takr steroids on sat on advice from nurses on chemo unit. Ended up with more fluid build up around reconstruction site than usual. Took 1/2 dose steroids yesterday and today and seems better.
Spoke with onc on phone today re higher dose steroids. Not 100% clear what he was on about so gpong in next Tuesday to see him to discuss further. Think basically the higher dose steroids he wants me to take is the lesser of 2 evils so less risk of allergic reaction. How the hell is my body supposed to cope with that. My heart goes fluttery and funny on them and my stomach cramps as come off. More my heart I am worried about.
Hi Debbie, yeah sounds like we are having similar problems. The not being sick on emend but still feeling sick I think is the best we are going to get it. My advice go straight home. Chill on the sofa, and when you get the warning signs of the wave hitting go to bed and sleep through it. I was in bed from 2:30pm Friday until 7am when the alarm went of for my youngests antibiotics. Woke up feeling a little better. Also the day before, day of and a couple of days after make sure you drink a minimum of 2 litres of fluid. It seems to help. I make sure 1 litre of mine is a homemade veggie/fruit juice. Got a nutripro juicer for early Christmas present and it really seems to help. Didn't get time second one to make one, felt awful still but 3rd with juice and emend not quite so bad on the sickness.
Although not sure if it is due to juice or to the fact I am taking cbd oil. Took 3 drops before chemo instead of 2 like last two and this time has definitely been better for sickness. Been taking 2 drops everyday (when not feeling sick) since diagnosis.
Hope this makes sense. Any questions let me know.

Marina hope it went ok today.

Tina I hope you are ok. I am dreading the T and the whole change in medication. So so worried about those steroids. Guess Gillian will be able to tell us more after tomorrow and recovering for a bit.
Gillian you are definitely like our fec t leader in this one. I hope it goes ok.
Thanks for the hugs with my melt down friday ladies. Your support was much needed. So anxious about the t I am sure I will need it again at some point. Couldn't get through without your tips and support.
Hugs xxx
Nadz
Member

Re: December 2015 chemo

Thinking of you today marina xx
Nadz
Member

Re: December 2015 chemo

Fredflowerpot-I've just been making use of being more like myself, so have met up with a friend for a day of shopping and a manicure, went exploring in a new town with my partner and today is meant to be a pj day, but I've been tidying the house like mad. Going to do the bird survey in a bit. How about you?
Where you flying from Marina? I hope you are feeling well enough for the flight come Thursday xx
TV girl -I'm not on the same chemo tx as you but I vomit every time afterwards, despite the super strong drugs. It could just be a build up for you? Or did you do more afterwards chemo-like walk further or tidy etc?hope it has settled now with the steroids kicking in
Marina
Member

Re: December 2015 chemo

Thinking of you Tina & Vicky. So wish they had kept to my Friday schedule instead of moving me to Monday.
Am hoping it's going to be like number 2 and not too bad as I have booked a flight for Thurs to the Uk to visit my sister for 2 weeks. So looking forward to the trip.
xx
fredflowerpot
Member

Re: December 2015 chemo

hows everyones weekend ? have you been up to much ?

TVGirl
Member

Re: December 2015 chemo

I had my third dose of AC yesterday and then vomited in the night; I've never vomited after previous doses. Anyone know why this might happen?

I've just taken the steroids and I hope I can keep them down.

They got the cannula in to my arm on the 5th attempt - not a happy experience!

Still, only one more dose to go, then I am finished.

Hope you all recover quickly from this tiresome process.

Nadz
Member

Re: December 2015 chemo

What boxsets have you all got into, since this whole of rubbish started?
Nadz
Member

Re: December 2015 chemo

Hey Tina and vicky, I'm thinking of you guys today, I'm sure you won't be on for a few days but hope the sickness passes quickly. I'm sure come Tuesday Vicky you will have found the strength for the birthday party, just take it super easy. I do wish none of us had to go through this. Though they do say it's 1 in 3 people for breast cancer, and I have 2 sisters, so I'm glad I got it and not them.
MummyBreenster
Member

Re: December 2015 chemo

Hi RedRobin, I'm from January chemo post, I've just been reading some of December posts and picked up that you haven't been too good with FEC, I think I am having the same symptoms as you! I have just had my 2nd today, they have changed my anti sickness to Emend as I was sick after my 1st cycle, so I thought I would be OK. I was finished my chemo by 11.15, then started feeling sick by 2.30, my head and eyes are also very achy. I'm now lying in bed after taking a metoclopramide anti sickness tablet. It's awful, I really thought I would feel ok this time. Have you just had your 3rd and how are you feeling? Do you have any tips?

Take Care

Debbie x

red_robin
Member

Re: December 2015 chemo

I got home at 12 Tina. Feeling ok ish at the moment. Waiting for that wave to hit which I know it will. Went well although the cold cap felt really cold this time. Probably because hair is thinner.
Need to speak to dr about the steroids. They wanted me to take the same dose but twice a day instead of once. From 24hrs before tax. Definitely can't cope with that. Need them changed and need to speak to him about a prescription for the dressings too as they always have to chance around for the iv3000. The hospital doesn't use them any more but cheaper ones. They make my skin blister.
The nurse said the tax shouldn't be as bad for se's, but thats with the steroids. Cant take dextamrthasone at 2mg 4 tablets once a day for 3 days, let alone 4mg 4 tablets twice a day for 3 days. This is s**t
Tandy 4
Community Champion

Re: December 2015 chemo

Oh Vicky (red robin) I feel you anguish! I'm in at 1pm and have had another **bleep**ty night! Waking every couple hours, feeling awful! My head is aching with the worry of it all, stomach churning and I already feel nauseas before any crap is put in me!!!!   On my own, trying not to have a melt down........ 

 

By now you're there, by time I go in you'll be home Hun...... Rest up.hope your little one feels better soon, and by Tuesday you'll be feeling your starting  getting out if the SE......... 

Half way house for us today..... Just got to keep telling ourselves WE CAN DO THIS!!!!!! 👊🏼

Xxxx Tina