sorry to to hear about your further op, that's bad luck. You sound upbeat though and that's the best way to be if you can. I am doing ok apart from severe hot flushes and night sweats! My hair is coming in thick and fast now and have all of my nails back. You take care and keep intouch
hi all. long time i know i am still with out any kind of pc or laptop so as babysitting nephew i am able to get on line. how are you all doing?
i have being having lots of xrays, mri's and the neculare bone scans since i last spoke. i hope to get results for last scan next thursday.
it is to see what my hip has ben up to wile i was on chemo and what it is like now.
i have lost the use of my left hand and constant pins n neddles in other. plus hearing has taken a battering but all in all ok.
i havent had a holiday yet but will hope to get one in september.
have any of you been away? tc and hope to be hear again soon
Hi Ladies ... remember me
I have finally finished chemo and have had to be operated again as 3 lumps appeared in the same place. They were taken out Monday and waiting now for confirmation that they are not cancerous. Can´t start rads until scar healed so a little wait still.
Had managed to be very strong but now my world is falling apart. Can´t bare to think that soon it will be all over and I have to go back to work. So worried that the work stress will bring it all back. And think that if it comes back, will it be because of the stress of work. I´m only 52 yrs but wish I could retire!!
Hi all...... Yup! Rads finished for me Tuesday 14th. Am bit tender, itchy, very red boob and very very dark underarm! I've a large diamond shape patch where they did the direct boost rads last 4/19 sessions. Skin holding up ok for now though starting to peel under boob and on nipple area 😖 Expecting it to get worse before better. But I'm just relieved active treatment us finished.... For good hopefully!! Seeing my oncologist Tuesday and have my apt for August for rads check up with consultant. Xx
Thanks Gillian, I'm doing ok, rads all done and not too red, so far!
The point about infections etc if important Tina, as I had to delay a week twice, meaning I finished on the 21st April rather than the 7th so consequently, rads started later too. I got the letter with the dates for the rads between my 2nd and 3rd T, it could have still had to change if I'd been delayed again.
You could always wait until chemo is finished and you have your dates for rads, then see if you can book something last minute. If you are going abroad, check you can get travel insurance first and be sure to include everyone who is in you group on the same insurance!
Hi Tina, Amanda,
I had same treatment as Amanda and agree entirely that you need to wait and see how it goes. It only takes a little hiccup like an infection and your dates can easily move. Important thing is to get the darned treatment out of the way.
I finished he'd rads on 26th April and have just come back from a week in Dubrovnik where I felt almost my normal self. My hair only just started comin back mid May so is half a centimetre now and I have eyebrows and eyelashes again albeit short ones.
My advice for chemo especially the T is to give in to it and don't try to plan too much or you get frustrated when you can't do it, oh and avoid people with any infection at all.
Good luck, and hope you are well Amanda xx
Hi Tina J,
It is normal to have about four weeks between the last chemo and rads, but it can vary a bit. You should consult with your breast care nurse or oncologist before booking anything. Also you need to consider travel insurance, especially if you're thinking of going abroad... you may be refused while you are still having active treatment so do phone a few companies and check first. It's not such an issue if you are having a holiday in this country.
Are you having FEC-T? Quite a lot of ladies find the T quite hard, I certainly did and each one was worse than the previous one! The worst symptoms kick in between 3 & 5 days after and my last one saw me unable to do much at all for about a week from the 3rd day, so the first week to ten days can be very rough! (I barely got out of bed for 4 days and spent the next few days after that on the sofa) Your immune system will still be hard hit for a good few weeks, so you'll still have to be very careful.
In my personal opinion, I think it could be a bit too much for you, assuming you're having FEC-T and three cycles of each, your body will be pretty hammered by then. The main thing here is that you are going through all this gruelling treatment to rid yourself of this horrible disease and try to stop it coming back. It may be necessary to put normal life on hold for a while, to give your body a chance to rest and to deal with the treatment I would consult with your BCN or oncologist though.
I didn't cold cap and had a massive hair loss about 13 days after the first FEC. I didn't really lose anything much after that and it was growing back by the time I started the T. My last T was the 21st April and I have a complete covering of hair which is about 1½ cm long. Of course, most of my eyebrows and lashes have gone!
hi all a very long time with no hearing from me. i still have no laptop or pc .so popped to mums to use hers.
my rads are now all done. still no hair grr
how are you all
Hi Vicky! Thanks for info!! I was begining to worry about the swelling I'm feeling under arm and hand!?!..... Could rads affect whole arm even if not directed there!?! I'm going to ask tomorrow. Petrified its lymphodaema!!! Xxx Backnto my CLAN rom early tomorrow, zap number 8..... Roll on 14tg June!!!
Well done to all of you who are finished. Be patient and don't be too hard on yourselves, it takes a few weeks to get your stamina back. I am trying to walk 5 miles a day now and even managed to cycle 10 miles on Monday!
Off to Dubrovnik for a week in the sun next week and thinking about not wearing my wig in the day, my hair is coming back very slowly but it is thickening and the wig gives me even more hot flushes. Have a nice cotton hat though to keep the sun off, Gillian x
Hi Nadz..... And everyone else..... Yes it's a bloody pain explaining why though chemo finished we feel so tired, nauseas, fat and yuk still!!! My onc nurse said I may still have niggling SE anything up to 3 month or more! My finger nails are 'ridgy' too, and strange colour. Though hair coming back (grey, baby soft and wrinkly) WHY ARE MY EYEBROWS STILL THINNING?!?! I've noticed this more this week!?! And no sign of my lashes returning either!!??! 😒😢 My legs are still very achy and I'm desp to lose some weight!
My zapped boob got quite itchy today!?! I'm using Aveeno moisturiser and also told to put on at least twice day.
I've got my daughter home now Nadz and I'll be leaving her on own next week when I return to CLAN Haven till Friday..... 😏 Still, I must remember the **bleep**e long drive there and back would be draining everyday! and try and find things to stop the long hours. I've got a hairdresser visit Monday and reiki booked to look forward to this week and a Look good feel better afternoon next Monday. I'll book another therapy for week after when I'm there Monday. Two down, 17 to go.......... 😏
I had FEC T and suffered with really aching fingers. Since I have stopped the new nail is growing fine but about half of each nail near my fingertip has gone white and is lifted from the bed. Eventually they break off and leave the attached bit behind. To be honest they don't hurt, are just unsightly but a bit of polish makes them look better and I am told they will grow out. Gillian xx
Hi.... Amanda I've still got niggly SE.... And my fingernails are a lovely shade of purple, thumbs and index worse. My big toe nails still feel like someone has stamped on them, my left big toenail is half black/purple and hoping it's not going to come off. My eyebrows seem to still be thinning!!! But my hair coming back slowly. But the grey!!!!!! Can't wait to get it coloured and cut again!!
Feeling tired, but think Mainly boredom due to being on own! 😏
I haven't lost any nails...yet! My middle toe nails on both feet have a red/purple mark from the cuticle upwards, and are tender, too, so maybe they are going to be lost!
Which nails did you lose and what happened? How long after the last chemo did you lose the first one? (Were you on FEC-T?)
Still get quite tired by mid afternoon and in the evening and have various mild SE's but nothing to write home about. Rads start on Monday, I'll be glad to get them done, as I still have a bladder prolapse & possible hysterectomy to think about...next gyno appointment is at the end of June, should find out more about what they are planning then!
I had my tattoos removed the first time I had rads. There is a Laserase clinic in Newcastle who are private but they remove cancer rads tattoos free of charge. The advice at my unit is you must wait six weeks after rads to have them removed and have your oncologists consent. I was told that when I rang them just yesterday
It hurts for a few seconds, bit like being twanged with an elastic band.
Seems like each area is different but in general nhs units don't have the machine or resource to do it. Look up Laserase there are others. Oh and as for might need them, they use the scans to work out where they treated, my onc showed me on my previous scan Fromm 2008 and this one how they made sure they didn't treat the same are twice.
how are you all feeling? Anyone losing their nails? I have lost 4
I think you will need to be gently persistent to get them removed, Vicky. May be more receptive about it after your treatment? It seems strange that you were told that they might need them again, they don't usually treat the same place twice. And as you said, it was hardly a positive or encouraging thing to say!
Concentrate on getting through the treatment and tackle the removal once you have recovered from that. I hope your BCN gets back to you soon.
Well done Nadz, it's such a relief to finish, isn't it! Knowing each day that passes, once the last set of SE's have mostly gone, that you're body can start recovering and won't be knocked back again!
Hi Fredflowerpot, what a nuisance with your laptop! Glad to see you are on rads now, how are you finding them? A few of the December chemo ladies are also on the May Rads thread, so you could check in there, too.
Vicky, I have a small lump a bit like you describe where my picc line was, it just seems a bit like a scab u dear the skin really. No aches or pains though. The skin was very dry where the dressings were always on for a couple of weeks but with lots of moisturiser has recovered now.
Where are you Nadz, haven't heard from you in quite a while hope you're ok?