Evie - sorry to hear of the drain removal problems and hope you get that sorted quickly.
Fiddlercrab - good luck for Wednesday; presumably you are having your surgery? Sorry if you have already said, my head is all over the place at the moment.
Had blood test yesterday - my neutrophils are a bit lower than they would like but are going up (slowly) and WBC is good so all going ahead today.
Instructed not to eat anything after 6am so had some cereal at 5.30am and now my stomach is grumbling away like a volcano about to erupt. Given that I am not due to be admitted until 12 noon and then it will probably be a couple of hours before I get taken for the op I think I will be flaking out from lack of food.
Just want to get today over and done with. Will let you know how things are as soon as I can.
Oh Evie, that's not good. Fingers crossed it all goes smoothly for you with the removal. My surgeon said the drains would be in for two weeks. I'm not very keen on that idea if they can come out sooner!
It is so ok to come here an moan! I do it and sometimes just writing it down is acknowleges it. Rads are supposed to be the "easy" part of this treatment?? But with everything our bodies have gown through, it is a marathon that just never seems to end. I have found the more subtle the SE's the far harder to deal with.
I am back to see my (new) Cons tomorrow to see what he has planned for the next and LAST cycle next week. Then Rads for me...
Good luck to all!!
From what I remember of having the drains removed I was told to breathe in deeply and when I breathed out the drain was removed - barely felt a thing! Hopefully it will just as easy for you too!!
Fingers crossed for your bloods, Cookie.
Evie - good to hear that you're recovering well and have mastered the wifi! Any idea how long you'll be in for?
Just had a call asking me to go in tomorrow for the radioactive dye injection thing, so they can 'do' me early on this list on Weds. Suddenly seems very real.
I guess we all have a lot on our minds at the moment as we have been a bit quiet lately.
I hope all went well Evie and thoughts are with you for tomorrow Cookie.
Here SE have calmed, now coping with water retention in hands and feet.
Wishing everyone a good week.
Thank you to all those who posted after mine yesterday for your lovely messages and kind wishes. You are all such amazing ladies. As Sara said, we must remember we have "super powers" now. I am going to take that with me all day!
Just in case I can't work out the wifi then I'm going to wish Cookiepuss alll the very best for Tuesday and Fiddlercrab all the best for Wednesday. Cookie - good idea not to think about it and enjoy the weekend.
WMJ - I know yours is the 18th, I really hope to be back online by then! Enjoy your appointment free time.
Right - I know OH will drag me off and tell me to get ready any minute so I had better go.
My love to you all, hope to be back on here very soon.
Hi all you warriors! Im from the Sept/Oct thread.
Your are all battling fantastically against the overwhelming SEs and problems that go with chemo and rads.
It is going through hell and there is no other way to describe it.
Please be comforted by the fact that it will be over soon and you really will get to the stage where it will be over and you will all start to feel better.
I found it extremely difficult. Every moment of every day was bad and I had terrible nausea which I could not get under control.
But it is now 3 months behind me and I am feeling much better even though I thought I would feel sick for the rest of my life.
I am writing this because I did not have anyone clearly reminding me when I was feeling so sick that it was normal to feel sooo bad and that it would definitely be over soon. That I was going to be better. That I was going to get over it.
LennyGK - you are in NI. If you are within distance the MacMillan Centre at the BCH is fantastic. I go to yoga and pilates there and did a couple of their courses. The support is great and I have met a lot of great ladies. It has been a godsend for me and the crack is mighty!!!
Ladies - take care of yourselves and keep telling yourselves it will be over very soon! Big hugs
I just wanted to thank you all for all your wonderful messages of support, they mean so so much and I know you will all be with me tomorrow. Needless to say I'm in a panic and now manically ironing and cleaning stuff, totally bonkers.
I can't seem to get internet in hospital for some reason, so I may be silent for a few days. I have been told that I will probably be in for 3 nights.
But as soon as I can I will come back and reply to you all properly. Til then take good care of yourselves, I'm thinking of you all and sending you loads of love, hugs and thanks for your wonderful support.
Thanks LennyGK.....I have chemo legs too....They are like spare parts, they don't belong to me! My knees ache and they feel like lead weights, literally as though they are telling me not to move them.
understand where you are coming from on that and the eye lashes, hair etc.
Hope you are doing okay today Evie and not getting yourself too worked up about tomorrow. Sending my very best wishes and a virtual hug 🤗
Sorry I haven't posted for a while. I've been reading the thread but have been so tired from daily trips to hospital for my radio and just didn't have the energy to type! Think I'm still tired from the chemo too and still have some side effects such as numb toes, my nails falling off (yuk!), 'chemo legs' as I call it where my legs ache like I've just done 100 squats (I wish!!) and daily disappointment that my eyelashes have not grown back and that I haven't woken up with hair like Rapunzel lol!! Looks like I'll just have some white fluff on top of my head for a while yet!!
Cookiepuss - I really felt for you when you were stuck in hospital and so glad you got through it and back home. Glad you can leave that rotten chemo behind you and focus on your surgery now.
Evie - sorry to hear that you have been stressed about your surgery/node clearance. I hope you get the option that you're happy with and please try not to worry too much about the recovery or possible outcomes of node clearance. I think you will find the recovery much better than you imagine. You can get through anything after chemo - we all have a new inner strength (even though it doesn't always feel like it!). We have been through one of the most awful treatments anyone could have and made it through the other side and we can tackle anything now! It's our new super power!!
SA Lowery / Rooner - I know what you mean - my emotions are up and down too but think that must be normal after all of this. I thought I would just snap back to myself after chemo but think we need to give ourselves time. We have all been focused on getting through chemo and now it can hit us about what actually happened to us and we need to get used to the new 'me'.
WMJ - that's great about your hotspot. Kind thoughts going your way for your node clearance.
Snail - just wanted to mention that when I take Tamoxifen I need to take it with food or I get nausea. Are you taking this or other new medication that could be causing the nausea?
Hope all is good with everyone else and best wishes to everyone who is about to have surgery xox
Thanks Jacquie. I have been referred back to the psycologist so just waiting to here from them; I have been trying to get hold of my onco nurse today for her thoughts but cant get through to her, if I dont feel better next week I will go and see the GP to see what they suggest. Appreciate all your comments; feel better than I am not alone.
I'm Claire. 45 (46 later this month), although at the moment I feel and look more like 76!! I have two boys 15 and 14, and a soon to be 12yr old step son. My OH and I are getting married in August as I've already mentioned and I am a college lecturer in Salisbury.
Compared to last time I am much better, and actually going out! So need to put on big pants and man up!!
Anyways, yes, today was Rads day, and Yes, I am 50!! (I don't feel it though) I am told 50 is the new 30!!
my sister is 50 next April, so we are planning a joint party next year. I may as well add my bit, I am an Independent Midwife, living in Shrewsbury with two daughters 19 & 13. I also have a lovely German stude aged 19, studying A levels and an Italian Midwife helping me out whilst feeling a bit peeky!
Rads appt went very well, noting I didn't already know. Am being booked in for 3 weeks then 1.5 weeks of booster. Hope SE's will be kinder. Met a lovely MW friend, who mentioned the 3rd T, may not be as harsh... and it seems I am coping better with this one than last... fingers crossed.
Bra's, I went to M&S a few years ago thinking I was a 38DD, to find I was a 42C and coerced into buying this very expensive bra. Had to take it back two days later as each time I raised my arms, the bra rode over boobs and they popped out under.... Never went back. But a 38 C is comfy.
Much love to all!