Hi Petal, so sorry to hear you're feeling like that. I felt the same when I heard I had cancer and the fear of unknown and the waiting time caused me a lot of stress but once I started my treatment I feel less stressed. I live on my own and haven't told my family because my mum is old and is suffering from asthma and high blood preasure but I have a few good friends who are helping me and encouraging me to be positive. If I feel stressed again I'm going to see my GP. Please take care, you're in good hands and I'm sure your medical team are looking after you. Don't be affraid to call them. hope things getting easier. Thinking of you
Petal88, I was a mess waiting for my diagnosis, and when i first got it (3 weeks ago) - if you don't believe me, go check my opening posts in the new members section.
You're having panic attacks, which is perfectly natural. I strongly suggest you talk to your GP about going on anti-depressants. They don't just help depression - they stop anxiety and panic attacks too. I went straight on them, and after a week or so they kicked in. It makes it so much easier to cope. Please do as I say. I'm only on 10mg of citalapram a day, but it has made such a difference. x
I'm sorry to hear you're feeling this way. Our helpline is open again now if you would like to give them a call and have a chat about how you are feeling, they're here to support you through this. Calls are free, 0808 800 6000. The opening times for the helpline for the next few days is below.
Monday 30 December 9am–5pm,
Tuesday 31 December 2013 9am–2pm
Normal opening hours resume on Thursday 2 January 2014 (Monday–Friday 9am–5pm and Saturday 10am–2pm.)
hope you all had a merry christmas
SJB sorry you were unwell, hope the antibiotics kick in and you are feeling better soon,
Had my 2nd fec yesterday and so far so good, just slight nausea with a headache, hope everyone else who had chemo yesterday is feeling ok as well.
Although I had been feeling good since the weekend, I suddenly started feeling ill yesterday evening (Boxing Day). Body aches, headache, hot with shivers - temperature was suddenly 38.2. So I rang the chemo emergency helpline number and then found myself rushing to hospital. I was only there for almost 24 hours, but they gave me intravenous antibiotics and put me on a saline drip, then today sent me home with oral antibiotics. They don't know what it was, but I had an infenction, which I could not fight. I have just started getting a few mouth ulcers, and they said it might have even been those that did it.
An oncologist popped in to see me and said I had done everything absolutely right. I just thought I'd let you all know - you really need to be vigilant of your condition. Do not go to bed feeling ill, thinking you'll feel better in the morning. It doesn't work like that now. x
Hi everyone, Merry Christmas! Lots of love and best wishes for 2014!!!
I'm still recovering from first chemo. My next one is 2nd Jan
Denise, that's great news, what a great Christmas present for you! What's the plan for you now then? Hope the collar bone soon heals 🙂
Petal88 sorry you having been feeling ill and anxious for next cycle. Just take each day as it comes and definitely only think a cycle at a time. Hope you manage to have a peaceful Christmas.
Bellablue 1 Jac, so glad you are feeling better 🙂
I hope each and every one of you lovely inspirational ladies manages to have the best Christmas you possibly can. It all feels very different for each of us this year as we are on our own difficult journeys. But I hope you all manage to keep well, keep drinking-water or wine whatever takes your fancy-and keep wiping those runny noses! 😉
Love Joanne xxx
Sarahmummy I found breaking the news to first members of family very upsetting and that obviously made them feel uncomfortable because they didn't know how to react,however i have since been more positive when talking about it and they are much more relaxed and supportive.
Jonamo it takes a bit of getting used to when you shave hair off,i find looking in the mirror first thing in the morning the worst but when i apply make up and headgear i feel so much better and stronger and feel i can face another day. hope all goes well for 2nd chemo on 27th (same as me). going to hosp tomorrow to have bloods checked prior to chemo so hoping it goes ahead then that will be a third of treatment under our belts.woohoo.
Hope everyone has a lovely christmas
Sarah, you ask how people have coped with family and friends - well, I just made it public so as many people knew as possible, and so far, that has been amazing. Everyone has been relaxed in my company and we have a laugh every time i see them. People generally reflect back what they see in you. If you are scared and shy to talk about it, so will they be. I have been upfront and confident when talking about it. Even discussed chemotherapy in a packed pub earlier, with loads of people listening!
Oh that's a relief, thanks. I'm trying to take it all in.
Don't feel too bad today at all. I just went outside and moved the car, so that's good.
SJB I had said that the tiredness can be cumulative over the course of the cycles, so you can feel more tired on the last cycle than on the first, not that it increases during the first.
I'm day 9 now and feel pretty much back to normal. A little more tired than usual. No nausea, appetite fine though feel full quicker. Heartburn after eating my main meal. Still have that mild headache though but probably need to drink more. And my nose will not stop running! Must have very little mucous membranes left up there!
Good luck to all you lovely ladies facing chemo this week, sending you a virtual hug through the ether
Hi I had FEC1 on the 12th Dec, and have to say the lack of sleep has been awful, that and the very hyper feeling my mind racing but unable to concentrate. I did go to my GP yesterday and got some sleeping tablets and stronger headache pills, have to say although I feel a bit leaden this morning I feel so much calmer. Other than this problem I feel fine. Hope you can sort the sleeping out I know how desperate I was beginning to feel x
Barbie, i know what you mean by feeling emotional, the more that came out the more upset i was becoming and it felt as though someone was pulling my hair out (weird) so i bit the bullet and had it shaved off and feel much better for it,( no going back) lol. good thing is we are in the midst of winter so can cover up easily without too much attention.
Jonamo, i am not a member of facebook and wouldnt know where to start lol so i am happy to stay on here.I find the steroids given at chemo had been keeping me awake and if i sleep for a short time during the day i end up pacing the floors during the night.
Who said the tiredness increases during the cycle? I was hoping to get back to some sort of normality soon. I still haven't been sick at all, but am not really sleeping, and have so little energy. It's horrible.
I went out yesterday lunchtime (day 4) just across the road to my local pub. I sat at the bar, chatted to friends, and had a few J2O's to keep my fluids up. Only there for an hour and a half, but it felt great to feel a bit normal for a while.
Hubby and I are meant to be going to the pub for a Christmas meal on christmas Eve. i'm hoping to have a half sensible appetite by then, but still can't tell. I just nibble like a fish at the mo, no real appetite at all...should be the best diet ever!
Can I please join your thread. I was diagnosed as triple negative on 7th Nov and started Fec-T on 4th dec. (3Fec + 3 Decoxatel). My plan is chemo first then surgery then radiotherapy. had SLNB on 9th dec and got good news yesterday stating they were clear.
My side effects from first chemo was not too bad really just slight feeling of sickness and steroids kept me awake for over a week. My hair started coming out in clumps yesterday so got OH to use clippers on it tonight as i felt i was starting to look really ill with strands of hair all over the place,( previously shoulder length) and i now feel better for it, just need to use hats and scarves meantime as wig ordered but will not arrive until after new year. Next chemo 27th Dec and will need to drink more water as nurse found it difficult to get a vein for cannula last time so she said i hadn't drank enough fluid.
You are all doing so well on this journey and keep positive.
I'm feeling much better today (day8) I'm back on the medication and just waiting for a phone call from Dr to get more to last especially over Christmas but also till my next treatment in the new year.
I got my wig today, really like it although as I have so much hair at the moment I have to go back for another fitting and trimming when I've lost most of it. I'm feeling really tired as I didn't sleep well but that's ok I'm pretty upbeat now. What a rollercoaster this is! I have to remember to have my tablet before food and as I'm eating pretty eratically, just when I feel like it, I keep forgetting. Had sandwiches for lunch and a yoghurt which was ok. I'm normally a real chocoholic and ate a kit kat and have felt sickley since that and the funny taste is back. It won't do me any harm to cut out the chocolate!
The doc has just rung and prescribed me 2 months of domperidone so I'm hopeful I'll be ok now ...till the next time.
Yes I agree one step at a time and this first time is a learning curve to see what happens.
Hope the rest of you get this sickness thing sorted.
love to you all
I had my 1st FEC chemo on 12th, next on the 2nd Jan, I am definitely working on 1 at a time, during the 1st 4 days I really couldn't bare the thought of going through it all again, but since then things have improved so much apart from I can't sleep and headaches, I feel like a walking zombie through lack of sleep, I almost pass out by 9pm then wide awake again by 1am and that's it, just can't sleep, my brain seems hyper active, but no concentration, every night the same, and makes me pretty stupid during the day, think I will have to see if I can get any medication.
I tell you what though you are all inspirational, in the depths of the night I don't feel alone and I feel I can tolerate this, and there is an end in sight, and Im so pleased I am going through this at this time of year, its comforting to think somehow, come the spring we will all be well on our way to normal lives again.
I had the cold cap, but too early to tell I guess if its working or not, all hair currently where its meant to be, well what's left of it , I had it cut very short, and it seems to have a mind of its own and sticks up on end, look as if Iv had a nasty shock!!
Feel for you all x