Hi, SJB I can only imagine how painful your mouth must be but now you have antibiotics you should feel better soon, I hope so, sending encouraging positive thoughts and lots of good luck.
I have had a painful mouth ulcer this week but clearing now with Difflam mouthwash, nothing like your trouble, It was a first for me.
I had my review yesterday and having my 4th(and last) Epirubicin on Fri. Hoping it won't be too bad cos each time has been worse than the last but on the other hand I am learning to cope with diet to help the heartburn (don't want any more meds for that - it made me sick) and must remember to take laxative for constipation and hopeful that the sickness will be less if these things can be controlled better than last time. Fingers crossed anyway.
After this time I start the CMF part which consists of 4 sessions each is 2 infusions day 1 and day 8 then 2 weeks off. I calculate it will be over by early June barring any delays. They told me the tiredness will be worse so by June I don't think I'll be able to keep my eyes open!
Love to all and good luck to you who are having treatment soon.
I went to the doctor, and he said it wasn't an abscess, but it was probably caused by gingivitis bacteria, so he has put me on a week's course of antibiotics.
I also got stocked up with medication needed to face next week's first dose of taxotere.
Here's hoping nothing else knocks me back before then as I am struggling to keep positive at the moment.
Got a new side effect developed since yesterday morning - a large swollen blister on my gum directly under my molars. Very sore. I seem to have really suffered with side effects in my mouth. I was actually thinking I had got away with having mouth ulcers this time round, but I don't know what to make of this.
Does anyone know what it is likely to be? I've never had any kind of blister inside my mouth before, and just tried googling it but couldn't get a satisfactory answer.
Will I need to see my GP or dentist to treat it?
I've been using my Corsodyl mouthwash and Difflam spray to prevent the mouth ulcers, but still this thing has appeared, so they don't seem to help it...any ideas? I can't chew anything, so back on porridge and soup.
I'm now on day 13 post FEC#3, and starting to really get down.
I have no energy. If I go for a short walk, or do a little housework, I am so out of breath, and the last couple of days, I have had a sharp pain in my chest (heart???) whenever I exert myself at all.
I should be pretty much back to normal by now, but I'm still shuffling round like someone 30 years older than myself. It's not fair.
Also, am I right in thinking that I should stock up on co-codomol and ibuprofen ready for the taxotere, which I start on Wed 19th? My doctor doesn't prescribe soluble of either of those, which I need, so I was going to buy Solpadeine Plus and Nurofen Express, when I can get to Boots. So looking forward to this next exciting stage - not!
Petal88, I had a PICC line fitted right at the start. It is a godsend. It doesn't hurt at all to be fitted, though i chose not to watch!
Once it has been fitted, they wrap it up, pad it, and cover it with a breathing sticky tape so it can't be knocked or damaged, and you have a roll of tubular gauze which you cut to length to cover it under your clothes. It has to be flushed and redressed weekly - some go to hospital to have this done, but i have a district nurse visit me at home.
In the chemo ward, they can use the PICC to take blood samples, but if you go to the routine blood test department, the still take blood from under the inside of the elbow, below the PICC.
Personally, I would recommend having one fitted to anyone going through chemo. You go through enough without ending up with sore backs of hands or arms where they slowly destroy your veins with all the canulas. It's much quicker and easier to have your PICC unwrapped and plugged in each time.
If you have any other questions, feel free to ask. x
Third Fec 10 days ago. Anyone else had cysts in their good boob? I found lump on Monday, phoned the BCN who got me into the clinic Tuesday where the surgeon confirmed it was a cyst and drained it for me.
Just thought I'd let you know that cysts appear to be quite common according to surgeon as the chemo plays havoc with hormones.
Definitely feel more tired after this treatment and I am also experiencing bruising and cording in left arm where chemo administered (so now have cording in both arms), Still count myself lucky on the SE's though, so far nausia and tiredness but not actually sick. Got quite a lot of hair really and look like hedgehog with spikey bits on head, helps the beanie hats stay on though as acts like velcro!
Sending you all big hugs on your journies.(((())))
excellent news SJB its great to get a little confidence booster.hope tax se.s are minimal.
Petal hope you are recovering and get out of hospital soon, maybe they will reduce your future doses so that this doesnt happen again.take care
sending hugs to everyone
Just got back from my ultrasound scan. The tumour is slightly smaller, flatter and softer (exactly what I thought) and the lymph nodes in my armpit are also less swollen. This is exactly what i thought would be the case. i am so pleased as it proves I am in very safe hands and everything I am being told should happen is happening.
Feeling very confident about moving onto Taxotere chemo in a couple of weeks now.
I've had my three FEC sessions now and will start my three Taxotere sessions in a couple of weeks. I go for an ultrasound scan tomorrow (Thursday) to see how things are going.
Feeling very optimistic. I know FEC softens the tumour and Taxotere reduces it. Well, my 5cm tumour had felt like a solid egg or golf ball before all this started, and now it feels really soft. so i reckon everything is going to plan.
I do feel a little guilty that my side effects seem less severe than other people's, but I just wanted to remind everyone why we're doing this - it's all worth it!
thanks Ros21 and Maz for your kind thoughts. My chemo has been brought forward to tomorrow as they have overbooked on friday but at least it will be over sooner. this will be my second tax as they only gave me 2 fec and decided to move me to tax earlier, the side effects from last one was really bad but I have heard from other ladies in unit they went through the same but it gets easier after first, Fingers crossedx
hugs to anyone at the chemo bar this week and hope all se's are minimum and for anyone who is having a difficult day/week
Sending good thoughts to anyone under the weather this week. Good luck on Friday Wyn, and hope you are still feeling ok Ro after Monday?
Petal I hope you are felling better, it was good news your tumour shrunk so surely the chemo will be attacking the under arm cancer cells too. You were surely right to insist they checked. I went into this whole thing because I went to Dr with a very slight puckering of skin on my breast which was only noticable when I raised my arm and the dr didn't think it was anything to worry about but sent me to hospital. The dr at hospital sent me for a mammogramm and that didn't show much at all so I had ultasound and they found 2 tumours and I ended up with a mastectomy! Got over that and thought I would be ok by Christmas never dreaming I would have chemo. which, when I was told the odds of cancer returning, was obviously needed. I sometimes wonder why I've put myself through all this as I could be just as I was knowing nothing but I suppose It would have caught up with me eventually. What a ride.
thinking of you all xxxxx
My oncologist told me swollen ankles,hands and puffy face are side effects of taxotere. I have also lost my taste buds as everything tastes horrible but I continue to eat it anyway lol. I know its hard sometimes to stay positive but we are only human and have days when we are feeling very low. We are all behind you to pick you up and help you face another day XXx
Its great that your tumour has shrunk, if chemo has done this to your tumour then it will be mopping up the cancer cells under your arm as well. I wont say don't worry because we all do but i am sure you are getting the best treatment to blast it.
I am scheduled to have 4th chemo on Friday (Tax) and not looking forward to it but it has to be done.
Thanks for your encouraging replies to my moan last week. I've had more sickness over the weekend but now on Day 11 and feeling better at last!
Joanne, CMF is cyclophosphamide, methotrexate and fluorouracil (5FU). I think I will try gaviscon next time round for heartburn although I have been eating just very bland food (living mostly on potatoes in various forms, no appetite anyway) and this helped stopped heartburn. I hope your tonsillitis is not too bad and soon goes away..
Mel, thank you for letting me me know your experience of CMF, it does sound it may possibly not be so bad but know I must remain open minded of SEs. If my hair starts to grow back that would be great so when I return to work hopefully in June I may even have a slight covering? We'll see.
Petal, The positive postings from others are a real boost, Did you get someone to look at your swollen ankles? Hope they have improved and not causing too much grief.
One day at time, each step closer to the end.
Sending many more positive vibes to everyone and hope, like me, you're having a better week ready with renewed vigour (!) for next time.
It seems my social life is around doctors and hospitals. Went to hospital with throat infection and found out I broke my little toe ( not because of chemo) 😞 penicillin and more hospital appointments this week
Take care everyone, we don't need more problems
Ro thinking of you tomorrow. Hope everything goes well with T
Oh no Joanne and petal, hope you're getting better soon! Thinking of you x
I've got a cold and lying on sofa watching tv.
Hope next week we all are well and can do something nice. The word hope is part of my prescription
Thanks Joanne. How are you doing?
The last few months I felt so lonely but now I have my family to support me. Hope you all have someone to care for you. It's not easy time and boring to be alone at home...
It's been a while since I posted on here, been feeling a bit rough after my 3rd epirubicin last Fri. Reading your posts is encouraging and inspiring cos although you have some horrible problems, so it seems to me, you keep going and being positive. I am rather disappointed that no one seems to be on E-CMF which is what I am on and having just completed my 3rd 'E' my friends are saying 'half way there, 3 more to go' Most of you seem to be saying the same and talk about finishing in April. I am feeling sorry for myself as I have 1 more Epirubicin and then 3 or 4 CMF each one having 2 sessions so I can't see an end of it till something like end of May. Still I know I should take one step at a time. I always feel bad on day 3 till day 7 or 8 after treatment. Last time I had heartburn something awful so was given tablets for it but they have upset my stomach and I was vomiting yesterday morning and stayed in bed for the afternoon feeling grotty. Today I am a bit better as I've decided not to take the tablets and suffer with the heartburn if necessary.
Sorry I'm a bit glum, the whole thing got to me this week, sickness, feeling mutilated and no hair to boot! I do feel better today and will pull myself together. Please excuse the moan!
Thanks for reading this and well done to you all
Hi Petal, thank you so much for asking, yes I am feeling back to normal (as normal as can be) still a bit tired. I have come to the conclusion that the se's last approx 9-10 days on tax and although horrible there is light at the end of the tunnel, I think we are all halfway there which is a good feeling.
Thats great news your consultant is happy with under your arm and I hope your ultrasound give you good news as well. Take things easy i think we all try to do more than we should.On a positive note I got results yesterday from genetics and I Do Not carry the BCRA genes which means I will be getting a WLE instead of bilateral mastectomy and oopherectomy,hooray, i was dreading it.
Take care everyone and give yourselves a pat on the back for getting this far on this horrible journey.
Hi Petal, great news about the lymph nodes, very encouraging. I'm so happy for you 🙂 I had one lymph node involed but it seems it disappeared too 🙂 hope your test results will be good. Chemo is not pleasant but yayyyyy we're getting better!!!
Love to all December Angels