72.7K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

December Angels 2013

RacingJules
Member

Re: December Angels 2013

Hi Ladies

 

I was due to have my second T today (I've had 3 FEC) but the oncologist has delayed my treatment for a week as I still have numbness in my fingers and toes. 

 

The oncologist is going to reduce the amount of T that I am given next week and thinks I may need to have an "extra" session to make up at the end. I'm obviously disappointed on both counts as it feels like I have taken a step backwards. That said, the tumour has responded well so I am trying to keep positive and just keep going. 

 

Has anyone else had similar problems with numbness on T treatment?

 

Best wishes to all,

 

Jules xx

setareh
Member

Re: December Angels 2013

Hello ladies, hope you're all doing well! I'm getting reafy for my second T tomorrow. Am I happy? Yes and no. I don't like the side effects but it's doing a good job.
Take care everyone. Thinking of you all ♥
Petal88
Member

Re: December Angels 2013

Good luck on Wednesday Kaz. This forum has had quite a lot about nails so I won't repeat but definitely check.
I guess it is good to be prepared but you won't necessarily have lots of pain. Mine has built up over 4 lots of tax and I still only need paracetamol. I flush for the first few days from the steroids but that goes when they stop.
We are all different and all have various aches and pains and it does help to check on here because someone else can usually reassure or offer good tips. I don't think any chemo is a walk in the park and we'll all be glad when this bit is over. Let us know how you get on, we'll be thinking of you.
SJB
Member

Re: December Angels 2013

There are different tips about protecting your finger and toe nails, so ask your BC nurse what they recommend. You must keep them cut short though - if they are long, you are more likely to knock them, which could result in one falling off.

 

The options seem to be:

 

1) Moisturise all your nails regularly

 

2) paint your nails with a solid colour so light can't penetrate them to the bed, but moisturise each time you repaint.

 

3) Wear cotton spa gloves to protect your nails, and moisturise!

 

I'm using E45 aqueous lotion.

 

Just be really careful with them. I'm painting them and removing the paint to remoisturise every 3-4 days. You can lose you nails at any time over the coming year - it takes a long time for them to recover from this, so take very good care of them.

 

You will probably feel fine for the first couple of days after having your T chemo. This is normal - make the most of it. Then on day 3 (day 1 being Wednesday, when you have the chemo), start taking whichever pain killers you use. The best bet is either cocodomol (but this causes constipation) or paracetamol PLUS ibuprofen - take them both together every 4 hours. If you start taking them BEFORE the pain sets in, it won't be so bad, hopefully. It seems to hit around day 4 and lasts a week or so. I was advised to start taking painkillers early, and thought I'd wait and see how bad it was first. Big mistake. It's bad.

 

My BC nurse warned me at my pre-chemo check that it would feel like I had been hit by a steamroller. Well, when the pain hit, I described it like i'd been trampled by a herd of buffalo, been punched in the face by Mike Tyson and had an elephant standing on my chest. So get the painkillers stocked up (on prescription - just ask for them) and get them into your system starting on day 3.

 

You'll probably flush quite red in the face and neck area for a few days - this is normal. If you were sick on FEC, you'll probably be sick on T but I haven't been sick at all yet. So judge that on how you've coped with nausea so far.

 

Oh, and you will have been given your steroid pills to start taking the day before you go for chemo. Make sure you take the first 4 as early as possible on Tuesday and the second 4 before lunchtime, otherwise you won't be able to sleep Tuesday night. I managed to take them at 6am and 11am and slept normally, which is amazing! Don't forget to take 4 early Wednesday as well - the second 4 you'll have to judge around your chemo session - take them before it if it is 11am or later, or after it if it's before 11am.

 

That's about it really. Good luck. It's tougher than FEC, but it's worth it, and we can all do it. I'm now on day 13 post T#1 and although I have woken up with aches around my body, they are NOT pains, so I won't need any painkillers. I only took one lot of paracetamol yesterday. It has eased off a heck of a lot now.

Kaz16
Member

Re: December Angels 2013

Hello everyone
Having finished FEC I am starting my first tax on Wednesday any top tips please ?
SJB
Member

Re: December Angels 2013

I had a fabulous evening on Friday, thank you, Petal. Just what I needed. We all had a really good laugh.

 

I was home and tucked up in bed by 10.30 though, as I was worn out by then!

 

The effects of the taxotere are wearing off now, although I have still woken up with loads of aches and pains this morning, instead of feeling refreshed. I'll be better prepared for it next cycle though. Now day 12 post Tax #1 (chemo #4 of 6). Only two more to go, thank goodness!

Petal88
Member

Re: December Angels 2013

Tri, I hope you are feeling a bit better now.
Wyn, I hope it hasn't hit you too hard this time.
SJB, did you have a nice evening on Friday?
Best wishes to all having their next treatment this coming week.
wyn
Member

Re: December Angels 2013

hi ladies,

Its been a while since last posted as I havent been feeling too well. I had my 5th treatment yesterday of tax (only one more to go )hooray. dreading side effects again as last two were not pleasant.

 

Tri - try not to worry as the side effects you are experiencing are very common, I have also had severe pain in legs,spine,pelvic area and sternum as well as horrible taste in mouth and sore tongue,it lasted about two weeks and only started getting relief on third week. I have been taking co=codamol 30/500 prescribed by gp and this has helped.

hope everyone else is coping with se's as best they can and remember we re almost at finishing line so hang in there ladies we will all get through this by holding each others hands and sending virtual hugs.

 

sending hugs

Wyn x

Petal88
Member

Re: December Angels 2013

Hi. As I've said before I am on HTC (Herceptin, Docetaxel, also known as Taxotere, and Carboplatin) and on day 11 #4. I think we all get lots of pains in different places on this type of chemo. It feels like bone pain but I think it is actually nerves being affected. It is to be expected apparently and in my experience has been different each session. My legs and feet are worst for pain but I get lots of weird tingly feelings in my feet and hands as well. My taste buds are shot to pieces and absolutely everything tastes bitter and this time my tongue is tingly all the time but I have used mouthwashes a lot more and haven't had such a sore mouth or all the ulcers. None of this is pleasant but it helps to know others have the same things and they are "normal" whatever that is these days. My consultant said to let him know if the jangly nerves last all 3 weeks as that would mean the chemo is a bit too strong and could lead to permanent nerve damage but don't panic, it should wear off later in the cycle.
Joanne1973
Member

Re: December Angels 2013

Hi tri, you are at same stage as me, 15days post first docetaxel after ec. I had excruciating back and thigh pain from about day 8 to 12. Struggled on with painkillers and hot water bottles etc, was worried. Woke up on day 13 and it had just disappeared. Hopefully yours will too soon. Keep strong. It might be worth ringing your breast nurse before weekend, either for reassurance or to get checked out to put your mind at rest. Hope it settles. Xx
tri
Member

Re: December Angels 2013

Hi I was wondering if someone could help please I am 14 days post first docetaxol after 3 ec I have had a few aches and pains and rotten mouth but over last few days have developed an ache in lower back pelvis and top of both thighs has anyone had this problem as I am really worried . Thank you .
Ro21
Member

Re: December Angels 2013

Evening ladies, sorry to hear you are in hospital Bellablue, hope your levels come back up soon.

Glad to hear your pains subsiding Petal & your coming thru.

Sue have fun on Friday, sounds like just what u need.

I had 2nd docetaxel on Monday & based on cycle 1 expected to be really poorly by today but fingers crossed has not been anything like as much pain this time. Maybe the remains of the FEC affected the new T in cycle one. Painkillers ready just in case tho lol x
Petal88
Member

Re: December Angels 2013

I'm just climbing out of a deep dark tunnel, the tax really got me this time, though for a change I have managed to stay out of hospital. Last two times my bloods went to 0.1 and 0.2 and temperature spikes lasted several days but it does sort itself out eventually. This time I was borderline at 1.1 but after 7 days of G-CSF jabs it is on the up again. Don't you feel like a pincushion with all the blood tests, cultures and cannulas? Just let them look after you Jacx.
Hope the pain is subsiding SJB. I'm not on as many painkillers today and I am a day ahead of you. Enjoy Friday evening.
Petal x
Bellablue1
Member

Re: December Angels 2013

Hi. I had my first T last Wednesday the first few days were fine. I was admitted to hospital on Monday evening with really low bloods 1.0. My temperature keeps spiking and at the minute it looks like I wii be here forever. Can't wait for this to finish, jacx
SJB
Member

Re: December Angels 2013

I've had a tough few days with the side effects of the taxotere, but I think I'm coming out of the worst of it this morning. Just had my best sleep since last Friday night, which has helped a lot.

 

I now know that i need to take the ibuprofen and cocodomol at the same time to counteract the pain. I left it too long before starting, so the pain felt like it was tearing me apart. I spent most of yesterday crying on my bed, wishing I could just curl up and die because i felt unable to cope. Bad day.

 

I have something nice to look forward to though. This coming Friday evening I am going to a friend's house for a quiet girlie evening in with a bunch of friends, most of whom haven't seen me since I was diagnosed in December. One of the ladies that will be there, i don't know, but she is a breast cancer survivor and has promised to tal;k me through it and answer any questions I have. Should be a good evening. I just need to get that far! lol (Not physically, as a friend is collecting me and driving me there and back)

 

I hope we are all coping to the best of our ability. I know some of us are struggling more than others and I pray for us all every day.

Ro21
Member

Re: December Angels 2013

Keep hanging in there girls, every day is step neared the end & getting our lives back. Our experience's have changed us all for ever but we can come through this💗 x
Petal88
Member

Re: December Angels 2013

Hi SJB and KAZ. All I can say is be wary as SEs definitely seem to worsen over time and can suddenly hit so rest when you need to. With my HTC I am usually absolutely fine for a couple of days but this time it has hit hard already. Obviously I can't compare with FEC as I haven't had it but I had to go to bed at 8.30 last night and my feet, legs, hands and wrists are aching like mad. Paracetamol helps but I have to be careful as my temperature is slowly creeping up despite already being on the C-CSF jabs and this is the first time I have had to deal with bad nausea. Thank goodness the district nurse is coming to do the jabs each day as I think I would be in a panic on my own otherwise. Hope to be more positive next post.
Kaz16
Member

Re: December Angels 2013

Hi Angels
I am on day 10 FEC 3 and have felt awful today , I have been very lucky so far with SE but today I ache all over and feel liked I have been trampled on by elephants, it has come as a bit I of a shock and I can't work out why.
I don't have a temperature , any ideas ?
SJB
Member

Re: December Angels 2013

My mum felt better by yesterday evening, so it literally only lasted until after lunch for one day. It really took her by surprise!

 

I have felt ok so far since wednesday and even took my son out for lunch and did a bit of shopping today, which is way more than I would have been doing this soon after a FEC treatment!

 

I went out this evening, only to watch a play at our village hall, but I do feel really tired now. I think tomorrow could be a very lazy day to compensate!

Bean14
Member

Re: December Angels 2013

Petal, I think you're right about the se's kicking in earlier each time. I'm sure the effects are cumulative. Makes you wonder how long it will take it take to get all this out of our systems.
Good to hear you're getting that extra blood test on Monday. Think it's so easy to get neutropenic on this regime. The oncologist admitted my dose was too high and reduced it on Wednesday, so fingers crossed for an easier ( if that's possible) weekend. It normally completely floors me on days 3-5, which is apparently a bit early in the treatment.

Hope all the angels are doing well. We are getting there ladies xx

Mel x

Petal88
Member

Re: December Angels 2013

Sorry your SEs were so bad Ro. I do get weird feelings and tingling and some pain and this time have had nausea too. The taste thing is awful and makes it hard to want to eat or drink and I tend to get a bit dehydrated. I'm just desperate not to become neutropenic this time and will be having an extra blood test on Monday to check. I have found everything is starting earlier and more intense each time but I tell myself it will only last a few days.
SJB hope your mum is ok again now? I haven't heard of fumes from chemo before. We've all got to hang on in there.
Ro21
Member

Re: December Angels 2013

Morning ladies,

Sue I hope your mum is feeling better now, x
Petal , I sailed through the FEC with minimal SE but the T threw me for about a week. Bad pains in chest, arm, upper thighs, feet, hands and lower stomach. They kept moving so one area would feel better & somewhere else would flare up. Also felt very bloated and everything tasted awful- even fizzy water tasted horribly metallic & I couldn't drink it. Lasted about a week then the following 2 weeks have been fine apart from an intense bloating when I went out for a meal which lasted about 3 hours. Looking forward to T number 2 on Monday & hoping the SE where due to the remainder of the FEC interacting with the new T last time -well that's what I'm telling myself anyway lol.

Hope your all doing ok, x
SJB
Member

Re: December Angels 2013

My taxotere seemed to take less time overall than the FEC! I felt very good all day, and got another good night's sleep, despite all the steroids. I feel good today, and have been to church this morning. Taking it steady for the rest of the day though.

 

Only downfall is my mum. She always comes and sits with me each time. She rang me this morning to say that she felt dizzy and nauseous this morning, most unlike her. She thinks it is the second hand effects of the chemo fumes in the room. I think she is right, because I know they can affect other people in the room, although this is the first time it has happned. Hoping she feels better by this evening or tomorrow morning!

Petal88
Member

Re: December Angels 2013

Everything ok yesterday SJB? Petal
Joanne1973
Member

Re: December Angels 2013

Thank you for your very helpful comments maryland. Very much appreciated x
Petal88
Member

Re: December Angels 2013

Hi, hope you don't mind me posting lots at the moment but I want to say again that Tax doesn't always produce lots of pain though I haven't had FEC first and realise that may make it different. As I have been neutropenic twice I am very aware of not taking paracetamol without checking my temperature first but must be lucky that I actually haven't needed many painkillers at all.

Only after #3 did I get slightly swollen ankles and they say to try and go for a little walk each day but I can't do that on the days in the middle of the cycle when I don't feel so good. It is also advisable to put feet up when sitting. I do get tingly soles of the feet as nerve endings are affected but this usually goes after a week or so though the doctor told me to let them know if it last all 3 weeks. We all react so differently, don't we?

I double checked about nail varnish and my bumph says coloured rather than dark, I had a friend who wore dark for her chemo which is why I do too. I won't post any more on that subject! Hope everyone is ok.
setareh
Member

Re: December Angels 2013

Good morning everyone, 

Thinking of you all who have T this week. I had my first one 7 days ago and I'm still ok. Had a bit of muscle pain but it wasn't bad and didn't need any pain killer. I still feel a bit tired and trying to rest

Take care angels 2 more to go and then goodbye chemo!!!

SJB
Member

Re: December Angels 2013

I know that rule but it's always good to be reminded. Thanks.
Maryland
Member

Re: December Angels 2013

 

SJB
Member

Re: December Angels 2013

My hospital hadn't heard of using nail varnish at all. they simply recommend moisturising. But when I explained the theory about using dark nail varnish, my BC naurse said it sounded like a good idea!

 

thank you for your insight, Maryland. Much appreciated. i'll start taking the painkillers today then! Fingers crossed.

Maryland
Member

Re: December Angels 2013

 

Petal88
Member

Re: December Angels 2013

My info from the hospital definitely says dark varnish to stop uv light getting through
Maryland
Member

Re: December Angels 2013

 

Petal88
Member

Re: December Angels 2013

Thanks Ro, I will apply myself to exercises as I know I have to help myself even if I'd rather be lazy. I am still dealing with the chemo and only thinking occasionally about the op and how it may affect me but I am sure it will come round quickly. I like the sound of massages too. So happy to have had 4 lots of chemo and only 2 more to go. How are you getting on with yours?
Petal88
Member

Re: December Angels 2013

I've just had #4 of tax today along with my other bits. I agree that nail varnish won't stick well on newly moisturised nails. I have had a couple of nails flake away despite covering them all the time but nothing too drastic. I put a base coat under the colour as it stains being so dark -I use Rimmel black cherry and I put a clear coat on top then it lasts quite well. If it chips I patch it up and just remove and start again when it starts to grow up the nail as it is the bed of the nail at the cuticle that is most vulnerable to the uv light. I usually remove and repaint in the evening when daylight has gone just in case and I have a rest from it for a couple of hours and moisturise with hand cream and let it soak in well before starting again.
SJB
Member

Re: December Angels 2013

I'm stocked up on E45 lotion and aloe vera lip balm ready for it.
Bean14
Member

Re: December Angels 2013

Sue,

I just moisturise round my cuticle when I put on hand cream. You can't paint on greasy nails so best to do it regularly after painting and the days in between.
Your skin might get really dry as mine does on the middle week. I get through tonnes of body lotion ( aqueous cream is good and v cheap or if you have kind friends they might treat you) and lip balm!

Don't worry you'll be fine, it's just different to fec xx

SJB
Member

Re: December Angels 2013

Sitting here Painting my extremely short nails ready for my first taxotere session tomorrow morning. Is it practical to moisturise the nails with varnish on them or should I do it each time I repaint? I'm a bit confused. Not really worried about my toe nails but don't want to lose my finger nails if I can help it...
Ro21
Member

Re: December Angels 2013

Petal when u have the lymph nodes removed make sure you do the excercises they give you. I had mine removed in October at the same time as my mastectomy. Mobility in my arm is back to normal, I have numbness under the arm & sometimes get pains in the arm but they do not last. The arm itself is not swollen but there is some swelling still in the chest area near the armpit.

My Physio was very pleased & said it was because I have done the exercises on 90% of the days since the op - she said so many people stop doing them & this is why they don't recover as much mobility. I've also had 4 back massages as part of my treatment which I found felt quite nice on the back/side on the op side. Good luck x
Petal88
Member

Re: December Angels 2013

Thank you Mel. You have had lots to endure and still sound positive so I shall stop worrying if I can and deal with each situation as it arises. Petal.
Bean14
Member

Re: December Angels 2013

Petal, I've had lymph nodes removed on both sides. I've only experienced some problems with more recent side but I'm hoping it will settle ( cording and mild lymphodema ). You might need help with heavy stuff in the short term but the latest advice on avoiding lymphodema is that you can move weight as long as you work your way up and go straight in with heavy stuff. I did a lot of gym work with weights up until my recent second occurrence and never had a problem. It's about being sensible and body aware. I mow my own lawn etc but it's been gradual.

Take care and I hope the veins improve. I still have a burn from epirubicin leakage more than 10 years ago.

Mel x

Petal88
Member

Re: December Angels 2013

Thanks both of you. As ever it is comforting to know others understand and have positive experiences. I hope all will be well as it is my right arm. I am already wondering if I will need to get someone to cut the lawns for me in the summer. Having lost my husband last year I was just about able to cope with all the things he used to do but now I think I may need some help. Sorry this all sounds trivial but after many years of having someone else cope with the "heavy" stuff I am trying to be practical. I do know others have more to cope with than I do, I will just be thankful to get over this treatment and hopefully be well.

For the painful lump in the vein I have been advised to take some ant inflammatory tablets and/or use ibuprofen gel. Thanks again, Petal
Barbie40
Member

Re: December Angels 2013

Hi petal
I'm having same problem with my veins. I noticed a small lump in my wrist after my first chemo n my arm is quite sore. Last weeks chemo (no.4) was extremely difficult as the nurse couldn't find a good vein he said they were hard. Apparently the chemo damages the veins but its just temporary and they will heal after the treatment is finished.

I had the same surgery (in oct) as what you will be having. I haven't had any problems with lymphodeama. My arm n shoulder was stiff at first n still has some numbness but i use it as I did before, just careful of lifting anything heavy.

Good luck x
Lilyboo
Member

Re: December Angels 2013

Hi, my arm was getting very sore and I could feel tightness and hardness in the veins, the nurse advised me to massage the arm using a non perfumed cream as often as possible, which I have been doing.  Its worked for me Good Luck x

Petal88
Member

Re: December Angels 2013

I'm having a problem now with the vein that I had a cannula in last week in hospital as there is a fairly big, very tender hard lump a little way up the vein. I saw the surgeon today and showed him but he wasn't at all bothered about it. Anyone else had similar and did it get better by itself?

The surgeon says my ultrasound definitely showed the chemo is working (great) so I will have the next 3 lots and then I have a date of 2nd May pencilled in for my operation. The good news is that it should be a wide excision rather than mastectomy but the bad news is that he will have to remove the lymph nodes and says I will have to be told how to try and avoid lymphoedema. This scares me. Has anyone else experience of this?

Hope all Angels are coping with their latest part of this journey. Petal x
Kaz16
Member

Re: December Angels 2013

Had my 3rd FEC yesterday so half way through now !! I asked my onchologist about Emend and she hadn't even heard of it. She then went looked it up and mumbled that they hadn't had any training on it - shocking !
I advised her to read this forum .
I was well prepared though and had been to see my friendly pharmacist who told me if I couldn't get Emend then there was no reason that I couldn't take Ondansetron for the whole cycle which is what I have got, so hopefully it won't feel so sick this time. I have been back at work part time but think I will try to take it a bit easier this time.
Loved to you all it is good hearing about your experiences with T .
Kaz 16


mazbee
Member

Re: December Angels 2013

Hi Joanne,

 

Yes Tomorrow is my 4th treatment, same as you ,  Best of luck

Maz x

setareh
Member

Re: December Angels 2013

Thanks Petal, you're right. Just had my first T, I'm ok.
Petal88
Member

Re: December Angels 2013

Who has scared you about Herceptin and Taxotere? Please don't worry so much as I have had them from the start along with Carboplatin and luckily haven't been sick once. My main problem has been neutropenia so watch out if your temperature goes up after a few days but I'm not sure which bit of mine causes that. I'm due # 4 on Tuesday.
setareh
Member

Re: December Angels 2013

Thanks Joanne, I'm fine, waiting time was tiring today but had no problem with herceptin. I met a few people who had T before and they were ok. We'll be fine. I was very worried about T and talked to my oncologist about it. She said I'll be fine and gave me prescription for the things that worried me like pain, feeling sick,...she also said if I get allergy reaction there would be 60 doctors there and reasured me that they are looking after me. Lets hope we don't get side effects. I remember first fec was difficult, mostly because of unknown but second and third one was much easier