I haven't been to the hospital for 15 days now - since my pre-op assessment. Probably the longest time since my treatment started!
Hi Jules. Hope you c an update us at some point.
How long were you in hospital for? How long was your drain in for?
My op is tomorrow now, and I'm feeling increasingly anxious. Trying very hard to stay calm, but too much stuff is going round and round in my head. I'm taking a book with me but I have no idea if I'll be able to read while I wait for the op, or if lots of people will be talking to me and prepping me etc.
Thank you everyone for your good wishes.
I feel much better today - my surgery was ok and not as bad as I thought. I see my consultant on Friday evening so not too long to wait.
Best wishes to everyone who is having their op this week - it is another hurdle that is great to cross.
Best wishes and (gentle) hugs,
great news Jules, another hurdle over, take care of yourself and rest when you can,
Petal and SJB good luck with your upcoming ops this week and also anyone else I may have missed.
I am currently waiting on planning appt for rads, oncologist told me I will be having 15 plus 4 boosters.
Take care angels we will soon be able to put this rollercoaster of a journey behind us.
Good to hear from you Jules. I was just about to send you a private message asking how you were feeling.
So glad it's all over for you. I was quite disappointed when my op was delayed, but at least it'll all be over by this time next week for me.
Take care of yourself. Don't feel tempted to do too much. x
Just to let you know I had my op on Thursday afternoon - mastectomy plus node clearance. Back home yesterday afternoon and so pleased it's over. I feel good - was really well looked after in the hospital and just taking things easy now.
Love and (gentle) hugs to you all,
What a difficult time for you. If it was me I would rather know, I find it easier to deal with what is, than what might be. Im sure you will find the strength to supprt your sister but you will only find that if you put yourself in a positive frame of mind for yourself and your treatment. I wish you so many positive vibes, GOOD LUCK xx
Hi Petal, I havnt been on here for ages but was just having a catch up and saw your post about HER2 positive. I am HER2 also, in fact triple positive, but thanks to the wonder drug Herceptin, it gives us the same chance as every one else, in fact I feel so lucky as 5 or so years ago because of the cost it was a post code lottery as to whether you got it or not. So stay positive.
Today is the last day of my rads, I had my op before chemo, its a breeze after chemo, I did during week 2 have a very tired, exhausted time but bounced back week 3 and this is week 4. I have used aloe vero gel from Holland and Barret, and I was also advised to try drinking the aloe vero juice by a friend and I have had no se's at all apart from this last few sessions which where boosters where the skin has gone slightly red, but no soreness at all, so not really worth mentioning. So good luck and stay positive the end is in sight. My life is returning to normal, and it feels so good 🙂
I've got a v-shaped cushion too. Fingers crossed that it gives us some comfort.
Best not to worry about what might happen in the future. Concentrate on getting better now and live each day as it comes.
I don't know about all of you, but I'm absolutely sick of all the publicity about cancer research now. The last few days, every time I turn on the TV or computer, I seem to be faced with cancer mortality statistics. I don't want to hear it. I just want to live!
To be honest, I've been pretty down the past couple of days, but I try very hard to find things to be positive about. Trying very hard not to get depressed. Got far too many problems apart from my health, which I really don't need.
I've had another filling drop out this week and once again have constant toothache. I will be so relieved when I can finally have some dental treatment! Because of all this, I still can't eat anything hard or chewy.
So chocolate is a distant memory, whether it tastes nice or not. i can't bite it and I can't chew it.
Something to celebrate - I like tea again!!!
I kept trying it but it always tasted bitter. Then yesterday I made some and really enjoyed it. Whoopee!
It's odd how several of you mention your pre-admission checks are the day before the op, but my hospital did it 8 days before I was due to have my op, so now it has been delayed that will be 16 days before the op! I wonder if they'll do it again to check I'm still ok. Bet they don't!
In answer to your question about hair growth, Petal, yes my hair is growing. It's less than a centimetre long, but I can now pinch it between 2 fingers.
The Facebook girls have all got some hair regrowth too, varying from an itchy scalp with stubble to hair that is long enough to lie down on the head instead of sticking straight up (that's just one girl - we're all quite jealous!)
SJB - Oh no - really sorry to hear that. At least you will feel stronger and through the side effects of chemo - fingers crossed for you.
Petal - I hope the Herceptin injection goes well tomorrow. I'll be interested as to how you get on. I had my 4th dose today intravenously - 14 more to go! I hope things go well for you this week - it must be really tough with your sister and you are dong so well.
I am due to have my pre admission check either tomorrow or Wednesday and then my op on Thursday afternoon.
Sending best wishes to everyone, Jules xx
Petal and SJB sorry to hear your ops have been postponed for another week but you will both be stronger from se's of chemo by next week,best wishes.
Ro21 great to hear you have almost finished rads it must be a great feeling coming to the end of this very dark tunnel.
Well done to everyone who has finished chemo and good luck to anyone still to finish.
Onwards and upwards ladies
Deep sigh. I've had a call from the hospital this morning, delaying my op. My surgeon won't be available this Thursday now, so I have been put off until Friday 9th May.
Having got myself totally organised and psyched up for it this week, i'm feeling a little lost now.
SJB - yes, I have been told I will go home on Friday afternoon, all being well. All the lymph nodes are going to be taken out too, so it sounds as though we are having pretty much the same procedure.
No decision yet on timing of rads - all the BCN said this morning was that it would be 4-6 weeks post surgery.
It has come quickly but in some ways I am glad as less time to worry about things. The surgeon and BCN said this should be much easier than the chemo I've been through so that's encouraging.
I hope your energy levels pick up - I am not too bad but can't do as much as I would like.
Jules, your mastectomy is the same day as mine. Are you having all your lymph nodes out as well, like I am? I've been told I'm going home again on Friday - have you? Seems too fast in my mind.
Also been told my rads will start first week of June.
It all seems to happen very fast. I still feel really worn out from the chemo.
Wyn - that's great news and reassuring for those of us approaching surgery. I hope you get your appointment through for rads soon - I will have to have that too even though I am having a mastectomy.
I hope you continue to recover well - we will soon be out the other side of all this.
Love and hugs, Jules xx
for all of you waiting for upcoming surgery i thought I would share a bit of positive news and hopefully will ease your minds.
I am Just back from seeing surgeon for results of op. My tumour had shrunk from 27mm to 8mm and op was successful as remaining tumour removed and clear margins acheived.YAAAAY.
Next step is waiting for radiotherapy to commence.
So keep chin up ladies and it wont be long until you have surgery behind you
sending hugs to everyone
Just back from seeing my surgeon - my op is next Thursday, 1st May. I'm scared but did get a lot of confidence from the surgeon so just need to get on with things,
It all seems to move very quickly once chemo is done.
Hope everyone is coping well.
All those that had their ops first have pretty much now started their radiotherapy.
One lady commented that after 8 days of radio, she had suddenly run out of energy. She was not expecting it to wear her down that quickly. That was last week, and she hasn't updated us since.
Things seem to move along very fast after the chemo, don't they.
This is now day 21 post chemo - if I'd been having another dose, it would be tomorrow. But still I'm totally without energy and walking like an old lady, with slow awkward legs. Feet throb all the time and nails are very tender. at least 4 feel like they might come off soon. 😞
Thanks for the update Kaz.
SJB - sounds like I am having the same as you - full mastectomy plus node clearance. I have just come home from an ultrasound which shows the tumour has collapsed and broken up into small pieces - apparently a good response to the chemo given the size of it when I was first diagnosed. I meet my surgeon on Thursday to discuss so just hoping I get a date for the op then too.
Petal - I hope you are feeling better - it took me ages to get over the s/e's of the last chemo and I still have the nosebleeds in week 3 - so not quite done yet.
Wyn - glad to hear all went well and I hope you are recovering now.
Good luck to everyone and sending hugs,
Petal, I don't know when I get the results.
I am going in for my pre-op checks/assessment next wednesday, and then the op is Thursday 1st May. At the moment, I don't have any other appointments.
Although I'm over most of the SE's from chemo now, my feet still throb intensely and my legs are slow and heavy. Knees keep failing to lock so I feel like I'm going to fall over.
Finger nails are very yellow and ridged and a few feel like they are lifting. Toe nails are similar. I wonder how long it'll be before one comes off. Something i'm not looking forward to.
I'm also feeling quite down at the moment. My op is in less than 2 weeks and I still feel worn out all the time. I just wish I could have a break of some sort. It seems relentless.
Hi Petal -
I am doing well thanks I was sore for a day or two but feeling much better now.
I totally get what you mean with final se's and I also hit a brick wall even so that I was scared even on day of op that I wasn't strong enough to go through with it and paranoia set in, however they did blood tests,heart trace etc beforehand and everything went well.
I am still very tired and legs still sore from se's of last chemo but hopefully this will soon fade.
I am sure you will be fine by the time your op is due and if you have any concerns just let them know.
Hope everyone is getting over se's as best they can.
That's great news, Wyn.
I'm back home from my scans. Before I started chemo, my tumour was 50mm and several lymph nodes were very swollen. At the halfway point, the tumour was still about the same size but had collapsed and was pliable like jelly. Today it is only 20mm and all my lymph nodes are back to normal size.
Having said that, I'm still having a full mastectomy and lymph node clearance, but I'm happy with that. I've had the operation procedure explained to me now, and it was the first time they have said I'm losing my nipple, so I guess I'll be having one tattooed on after the reconstruction next year. Weird thought!
Anyway, today has been extremely positive, but I feel very tired. Should sleep well tonight. Roll on Friday, when I have my CT scan to check the other lymph nodes in my body. Doesn't sound like there will be anything to worry about though.
Oh, I was told that you are not allowed to drive for 2 weeks after the operation, according to the restrictions of insurance policies, but after that, it is down to your own common sense depending on how much motion you have back in the arm affected by the op. It's the left side for me, so I need to be able to comfortably change gear and use the handbrake.
Petal - hope you are feeling much better now, BCN told me yesterday it is approx 4-6 weeks from op to rads.
Kaz16 - good luck with final chemo today, its been 4 weeks since last chemo and my nails are also discoloured but havent lost any. I mentioned before about a chemo patient in our clinic who used vicks vapour rub on her nails and they were beautiful so i told my sister who also had breast cancer last year but her nails were still discoloured, she started using vicks two weeks ago and showed me her nails the other day and discolouration has almost gone so I am going to try it.
SJB - I had ultrasound yesterday to insert wire to clip prior to lumpectomy and radiologist was amazed as she could see no tumour left - chemo has blasted it into oblivion. I was so happy I could have kissed her.lol,
anyway ladies the lumpectomy went well and got home late last night. still feeling a little sore today but at least thats another hurdle over, get results next thurs and if everything is good will have an appt to discuss rads.
Hope everyone is getting over se's and take care
Good luck Kaz. It's now 2 weeks since my final dose of taxotere. Body aches are slowly easing but last week was a killer! My nails are yellow and ridged but no signs of lifting yet. I keep them painted. Feet are so sore, they throb all the time, and legs are very heavy and slow.
I have 2 hospital appointments one after the other today. The first is at 1pm with my breast care nurse. She is going to give me my soft prosthesis and talk me through what i need to buy and do to recover from my impending mastactomy and lymph node clearance op (1st May). Then after seeing her, I'm round the the X-Ray department for a mammogram and ultrasound scan to see how my tumour looks now.
Should be home by 4pm at latest depending on delays. Why are there always so many delays?
Just a week since my final Tax and starting to feel a bit more human - although the nosebleeds that I've had right the way through chemo are pretty bad.
Really hoping everyone is feeling better now we are nearing the end of chemo - it's such a good feeling.
Wyn - really wanted to wish you well for Tuesday. Will be thinking of you and hoping all goes well.
With love and hugs, Jules xx