Kander came home last night. Day surgery. She's very sore and has a dressing on her throat. They took biopsies from one mass and 7 enlarged lymph nodes. She has been told it will take about 2 weeks to get the results back from the lab.
Hi Den. Have you been given a V-shaped cushion? They are so useful at this time, as you can position it to keep pressure off the sore area.
Kander has her op tomorrow (Saturday). They changed their plan again. Now they are going in through her throat to do a biopsy. I'll let you know how it goes as soon as I hear from her.
Kander finally had a call from the hospital this evening. You would not believe how much they have messed her about. They have told her she will be having an operation within the next 2 weeks. They are going to open her chest and see exactly what is going on under her sternum. No one seems sure if it is cancer or not, but they have decided to get on and sort it out. I'll keep you informed.
Saw an oncology registrar today. She was realy pleased with my recovery. Gave me a thorough physical examination of my scar, remaining breast, under both arms and both sides of neck. All good. She confirmed that my CT scan was all clear. the "thickening" that they had previously seen in my spine was back to normal, so likely a bruise or something at the time.
She said I'll see an oncologist again in a year's time, and I'll have a mammogram next Spring. So that's the end of my treatment, I guess, apart from Tamoxifen, which is definitely giving me hot flushes! lol
It's a wonderful feeling.
Kander has just told us that she went to see her surgeon today. Apparently the last scan showed that not only were the lymph nodes under her sternum enlarged but also there was "a mass", so he intends to perform major surgery to open her chest up and remove the mass and lymph nodes. She won't know until after the op if it is cancer or not, but it sounds like it is.
She now has to wait for the appointment for the surgery to be performed.
I feel so guilty for feeling so fit and well. She's still only 29 - it's not fair!
That sounds good - glad you have your appointment through.
Yes, I went to a LG,FB workshop. They are great, aren't they! I was still having chemo when I went to mine so found it really helpful when I probably felt at my worst. The goodie bag is amazing!
Hope everyone is doing ok!
I had a good day yesterday. First I got my appointment through for that long-awaited follow-up - Thursday 18th September.
Plus, in the afternoon I went to a "Look Good, Feel Better" afternoon. It was brilliant. Have any of you been to one? I thoroughly enjoyed myself, and came away with a bag full of top quality cosmetics worth about £250. Highly recommend it.
Barbie, That sounds awful your employer expects you to move, I would question it as you will be covered under the Equality Act and they cannot discriminate against you due to disability. Even though active treatment is finished you are still covered whilst you go for check ups over next few years.
You must have your hands full with all those lovely puppies, I just love dogs and there's nothing to beat the puupy dog smell, if I had my way I would have the house full of them lol but just have to settle with my border collie.
Hope everyone is keeping well
Kaz16 - I think it is just another name for mammogram or similar, I also had lumpectomy and rads and have found my breast hard and uncomfortable, I have also read lots of posts with people having the same and one lady was told by her consultant it could take up to 18months for it to feel normal again after rads. It's just the new norm in all of us now to question and worry about any changes in our bodies but hopefully through time it won't be on the forefront of our minds,
SJB - thanks for update my thoughts are with Kander and hope she gets good news.
Take care everyone and enjoy the weekend
Just to let you know that Kander's medical team have decided not to waste further time with another scan and to do a biopsy on those enlarged lymph nodes under her sternum. As explained previously, that needs to be done under a general anaesthetic, and is quite an unpleasant procedure. Poor Kander is so worried - it's her 30th birthday in 4 weeks, and she's terrified of getting bad news just before it.
I'll keep you updated.
has anyone found their eating habits and cravings etc changed since treatment ?. I used to eat very healthily and cooked everything from scratch, no processed foods etc etc.
Now I can't get enough of high fat and sugary foods, this is so not me but can't stop myself. haha
It's nice to see the thread more active and everyone doing well.
Petal - thanks for asking about me, I mentioned to oncologist about vertigo and she said she wasn't overly concerned but to keep ane eye on it and if it doesnt settle down over two weeks she will arrange a brain scan (scary), however it is now settling down thank goodness.
I had to cancel interview as my balance and co-ordination was all over the place, so maybe wasn't meant to be.
I am still looking for vacancies though as I have come to the conclusion I don't want to return to my old job as I work in the hosp that I received my treatment and every time I go back in there I feel a kind of panic attack. sounds silly but not sure if I can face it.
take care everyone
hi petal, yes im getting hot flushes, i carry a fan in my bag as i get approx 15 a day! i know when im about to get one as my feet start to tingle then the heat just flushes all the way up through my body, i start back to work on monday, i work in a coffee shop so serving customers whilst 'hot flushing' will be fun haha!
sjb, yes i think you are right no news is usually good news so no worries there with the results of your scan,
Thank you for asking after me too.
The arm pain is still not good and I had an MRI on Saturday. Got the results this evening and it's wear and tear, rather than anything sinister which was the concern. I am on weekly physio and painkillers and hoping things will improve soon.
I have also been referred to the lymphoedema clinic next week as I can't get my rings on my right hand. I don't think it's too bad but am keen to get things going there as soon as possible,
10 Herceptins done now and 8 left. I don't find that particularly easy but only on the day of the infusion.
Glad to hear about everyone's progress - it's been such a journey and definitely a different life when you start to emerge from the other side!
Best wishes to everyone, Jules xx
Thanks for asking after me, Petal. I don't yet have another appointment with an oncologist, no, so I haven't had my scan results yet...but I assume no news is good news.
Kander still doesn't know what's happening about her enlarged lymph nodes. She had a PET scan, but there was brown fat in the way, so they couldn't see them properly. Her medical team are discussing her case again this coming Monday to decide whether to do another scan on not - if they do, they'll give her beta-blockers first so they can see through the brown fat.
I'll update you on both of our situations as soon as I have news.
One lovely bit of news from Kander though - she's only 30 - she just passed her driving test today. 🙂
i was wondering how you are getting on with taking letrozole? I find it ok but my lower back is beginning to get very stiff which makes my legs stiff too, i feel like an 90 year old lady sometimes haha, but actually i dont want to complain because hopefully it will give me a better chance of living longer it seems a small price to pay and im very grateful to be offered it x
SJB - well done for losing that amount of weight since end of chemo.
Jac- Good luck on uplift and mammogram
Jules, sorry to hear you are having problems with arm, hopefully they will get to the bottom of it soon, I had a similar problem a couple of years ago and it turned out I had slipped a disc in my neck and itwas pressing on spinal column causing nerve damage ( cervical radiculopathy), The pain was excrutiating and they tried me on all sorts of painkillers with no help. I was eventually put on amytryptylene and the pain soon settled down, i dont have any bother with it now thankfully.
I have had a little set back as I started taking severe dizzy spells on sunday with pain running down my spine so GP refused to sign me off and advised I tell oncologist tomorrow about vertigo, I am so dissapointed as it has put a spanner in the works, dont think I will be well enough to attend interview now. Lets hope it is just a bout of vertigo and nothing else!!!!!!!!,
Take care everyone
Glad to see everyone is getting on so well.
I have had such problems since finishing radio with ridiculous pain in my shoulder and arm. Initially, I had a stiff and painful neck, but its travelled down my arm and is not nice. I also have lost power in my right arm (the operated side) - the physios think the muscles have switched off as a result of the radio treatment. To be honest, they are all scratching their heads wondering what to suggest, so I am hoping for some answers this week. It's just a cocktail of painkillers at the moment which I don't like, but I need them to get through the day.
I've worked thoughout all my treatment but have to say that I found last week to be the most challenging of them all, with the pain and only being able to use one arm! I am hoping it's just the last push but wondered if anyone had heard of any other lady that has had the same problem?
I had radio in three places - the mastectomy and axilla site, plus my collarbone.
Have a lovely Bank Holiday Monday!
My scan went okay, but I have a huge bruise on my arm where they put the canula in. No results yet. I was due to see an oncologist on Friday 5th September for my results, but got a letter on Saturday cancelling that appointment, and it just said they would send me another appointment when they could fit me in. I assume from that that it is low priority as there's nothing to worry about.
I've now lost almost two and a half stone since finishing chemo in April, but still need to lose another stone at least in preparation for my reconstruction surgery next year. It's going very well, and I'm getting a lot of compliments on my new slimmer look.
Going to see my dentist again this coming Friday. Had to stay away for a month after my first extraction as I had acute gum disease, but it should have cleared up by now, so should have my second extraction soon, I hope. Very keen to get my teeth fixed so I can eat normally again. It has been very difficult with so many holes in my teeth all this time.
Got new glasses now. The optician checked my eyes very carefully because of my treatment but they hadn't been damaged, just my eyesight had gotten significantly worse, both in long distance and short distance. I use varifocals and got my new ones last Thursday, so I'm seeing in high definition again! lol
Kander hasn't said if she has had her PET scan yet, but she hasn't had the results. They now think the enlarged lymph nodes under her sternum are probably because of her weak heart, so fingers crossed. I'll update you when she updates us on Facebook.
Everyone else in the Facebook group is getting back to normal now.
Its good to see everyone moving on as the posts are becoming less now which is a good sign, but still nice to keep up with everyone.
Jo- I know what you mean by wanting to say f***k off to nasty customers but I feel like saying it to most people including family members as well, lol its not like me but I feel I have definitely lost the patience I once had for everyone and feel they are all trying to get attention of some kind or other ( driving me nuts haha).
I am going to GP tomorrow to be signed off and will be returning to work on a phased return next week,( that will be eventful), I have also been shortlisted for an interview on Friday but not sure how that will pan out lol.
My hair is getting longer now and now got chemo curls.
Take care everyone and as petal said hope you are all enjoying bank holiday.
That's excellent news - how exciting for you!!!!
I am doing ok after rads and no problem with my skin. I have horrible neck pain though and find it really painful to turn my head. I think this is because I had a lot of rads there and the radiographer said that the pain and stiffness would probably peak around now. Hopefully things will move in the right direction soon!
Hoping to get my hair done in a few weeks!
Best wishes, Jules xx
Jules - hope you are recovering from rads and still moisturising
Petal - Hopefully you have got over your bad patch and skin is getting better
SJB - good luck on your scan today.
I have had my hair cut and coloured and I can now see me (before dx) in the mirror again lol, my eyelashes and eyebrows have also grown in nicely thank goodness.
Went to dentist for check up and everything is fine and finally thought I would share my best news with you all is that we are due our first grandchild on 12th sept ( I am so excited).
Take care everyone
thanks for keeping us updated SJB and I hope your scan results are good.
I can also see the logic in not giving scans to everyone especially with no node involvment, one of the explanations I was given was they did not want to give further radiation if they don't feel its required. however my sister had lymph node involvemnet 19yrs ago and still going strong but I know someone as well as a couple on this forum who had no involvement but then went on to have secondaries so I dont think there is any rhyme or reason to their decisions but only that they make decisions on each individual case.
I wouldn't say anyone diagnosed with breast cancer whether node involment or not is "lucky" and we ALL face an uncertain future, (sorry if this sounds a moan but felt it needed to be said).
Anyway on a positive note lets all enjoy the rest of the weekend.