Hi all. I agree, the thread is quiet because we are all getting on with our lives again. It's quiet on Facebook too. We are all getting back to normality after the traumas of the last year-18 months.
Petal, I hope you get answers soon. It's that bloody waiting game again, isn't it. The worst thing ever!
I was doing a lot of walking after my treatment last year, but haven't been going out much lately, due to the cold and wet - I like walking across the local fields but it is way too muddy, even with wellies. So I have done something I've never done before - joined a gym and Health Club! My husband things I'm mad and that it will be a waste of money, but I am still intent on creating this New Me, which is slimmer and healthier than I'd ever been before, and this is the next step. It feels right. The Gym is at the Hotel where I work, and I got 50% discount on membership as I am an employee, so I am very happy.
I've bought a mastectomy sports bra and gym clothes, plus a waterproof prosthesis and swimming costume. I'm going along for my Induction nect Thursday and then I'll be in there regularly. Really looking forward to it.
Just over two weeks till I go back to hospital to see my surgeon. Friday 27th. Very keen to see what gets discussed. Very keen to discuss reconstruction but suspect he won't want to yet. We'll see.
sorry to hear you are having stomache problems Petal, I hope you get things sorted soon, it's easy for me to say try not to worry but I understand and agree we are now more aware of any changes in our body and recognise pain etc more quickly.
i still get breast pain and pains shooting down my arm but I am fed up with family members constantly asking if i am ok, I know they mean well but someties I just want to forget if that makes sense and treat any pain and niggles as I would pre BC, I really don't want to become paranoid about everything.
I may not post on here often but I still come on regular to check any posts so please feel free to post anytime with any worries,concerns or even positive comments and I will respond, sometimes we feel better when we can share our thoughts with someone who knows how we are feeling, as my mum would say ' A problem shared is a problem halved'.
Take care and I am sending you a big ((((HUG))))
Just thought I would pop in again to see how you are all doing, thread is very quiet but hopefully thats because everyone is getting on with their lives.
Petal - how are you doing being off hormone tablets,i hope your side effects have improved.
Jules - you must be near the end of your treatment now, you will be so thrilled ( woohoo)
SJB - well done for all that weightloss that amazing- I am afraid I have went in the opposite direction lol, I have gone from eating healthy to eating rubbish, so will have to get a grip haha.
I have changed jobs twice since november and starting a new part time job next week so hopefully this one lasts, I was going through a stage I didnt know what i wanted so hopefully that's settled now.
I have also booked a holiday to Majorca at end of april so looking forward to sun,sand and cocktails (woohoo).
Take care angels
Just catching up with you all again. Haven't been back to read this thread since my last post, sorry.
I changed my diet after treatment because I wanted to be healthier in the future. This time last year, I weighed 17 and a half stone. I am now just over 13 stone, so over 4 stone has been shed. I've gone down from a size 22 to a size 16, and that's getting looser!
I went back to see my BCN last Friday because my prosthesis was starting to dwarf my real breast. She resized me and gave me a new one. I had gone down from a size 12 to a size 9. I've now been able to order some new mastectomy bras as I've gone down from a 44inch to a 38inch!
I am the Incredible Shrinking Woman! lol
On the whole, I am feeling a lot fitter and healthier, although one ongoing side effect (not sure what of any more) is sore throbbing feet. They are a constant pain. Right now, the souls of my feet are throbbing away. Will it never end?
My fingernails are getting stronger, although I still need to paint them. Under the varnish they are yellow and ridged still. Very unsightly.
I've been taking Tamoxifen since July, and really don't seem to be suffering with it. I had a few hot flushes early on, but hardly ever get one now. But I have said all along, I think it's because I'm on Citalapram for depression,and that drug is also prescribed to neutralise the effects of Tamoxifen. I guess I'm lucky. I hate hearing about others who are suffering so much on Tamoxifen. Seems so unfair.
Can't wait to go back and see my consultant at the end of February. That's my first check up since being given the all clear and being sent on my way. And I am very keen to start talking about reconstruction, especially now that I have achieved the BMI required for it.
Hi Petal, happy new year to you too, hope you had a nice time over christmas and new year. Sorry I cant help with tamoxifen as I was triple neg and therefore do not require any further meds since radiotherapy ended in july as they would not be beneficial to me, I can understand your confusion though so it's a good idea to discuss with BCN,
after a shocking end to 2013, a worrying 2014 lets pray 2015 will be happy and healthy to all december angels,
Fabulous news Barbie!
Over a year since my first chemo and life is oh so different now. I have 3 Herceptins to have in the New Year and then that's it for my treatment.
Wishing everyone a lovely Christmas and every good wish for 2015.
Good luck for tomorrow, Barbie. I am praying for you.
Good luck to you all. Yes, a whole year has passed. I had my first chemo session on Tuesday 17th December, just 11 days after being diagnosed, and I remember being so scared. You lot helped me no end, and calmed me down. A lot of you had already had your ops so had had more time to come to terms with what was happening, but I was going through a whirlwind of hospital appointments for scans etc so they could check the rest of me out. I ended up in hospital on Boxing Day with an infection. I didn't know if I was coming or going.
What a difference a year makes!
Now that I'm working, I feel happy to be part of a team and earning decent money, but I am permanently tired because I'm being pushed to my limit. I wish I could work less hours, but they need me to work the hours I'm doing right now. Apparently it'll be quieter once we get to January. I hope so.
Anyway, I too will take this opportunity to wish you all a very Merry Christmas, and a healthy and happy New Year. Enjoy each day as it comes, and spend as much time as possible with people you love. Be happy. xxx
The thread has been very quiet, hopefully everyone is moving on and getting excited about christmas, cant believe its been a year since we all started this journey and shared all our worries and anxieties on here and now we can look back and be proud of what we have overcome.
I have been very busy spending time with my 3mth old grandson and stared work again part time so all is looking good fingers crossed.
Barbie hope your bone scan results were good.
Just like to wish you all a very merry christmas and a very healthy new year, just because I am not on the forum much now it doesnt mean I dont think about all the angels who have shared probably the worst and best times with me in the last year.
Now just popping off again to wrap a few presents
I was chemo first as well.
I was told that I would be checked six monthly but next mammogram in November 2015.
I still have 5 Herceptins to go so will be on three weekly hospital visits until mid February 2015. Then I guess it really will feel like life has returned to normality.
Can't believe it was a year ago that we all started to post............
Petal and Sjb - I also had chemo first and up til now I had follow up oncology appt in sept and breast clinic and mammogram last week, and I have my appts for next year booked in for oncology in may and breast clinic and mammo in Nov so they are checking me on a six monthly rota, I suppose it depends on where you are being treated - I am in west of scotland.
My new job is going well, thanks Barbie. It's a lovely hotel, and everyone on the staff that I've met are really nice, so it's a good team.
I'm finding it tough to find the energy for it, but hoping it gets easier in time. It's flexible, so I never know how many hours I'm going to get. First week was 20, 2nd week 24, 3rd week 33, and next week (week 4) will be a 40 hour week! *gulp* Determined to succeed with this though, as the money will really help us.
I still find it weird that all of you are having your first annual checks, while I'm not getting a mammogram until next May and not having my first annual check with an oncologist until next September! It's so different when you have your chemo before your op!
Thanks so much for your comments, cant believe its almost a year since we were all posting on this thread.
Jules great news re your mammogram results,its such a releif isn't it.
Barbie and petal, hope everything turns out well regarding your appointments and check ups, I think we have become more aware of different symptoms that probably wouldnt have the same effect prior to dx but I think that is part of the norm now for all of us but best to get all these symptoms checked out.
Sjb, good luck in your new job.
sending hugs to everyone
In my experience, yes you should be fine to go home, Barbie.
The whole bone scan experience was fine. Nothing hurt or had any side effects, other than the fact that you had radioactive wee and needed to drink loads to flush it out as quickly as possible!
Worst bit of that scan is having to be wrapped up in velco so you remain still. It seems to take years for that slow moving machine to scan down your body, but in fact it's more like half an hour.
Hope that helps.
Excellent news Wyn!
I had my first mammogram since surgery on Thursday and it was clear!!! A nervous wait for the results which does pull you back up in your tracks.............
13 rounds of Herceptin done now, with 5 left. I am still having weekly physio as limited range of movement in my arm, but that's a small price to pay. Hopefully it will improve over the next 18/24 months.
Best of luck everyone going for their annual reviews!
Oh Wyn, it is an awful rollercoaster, isn't it. So very happy to hear about the birth of your grandson. Wonderful news. Enjoy every second you have with him! x
So now you know you are clear of Cancer, go for those interviews. Be positive, you can do it. xxx
Nice to see everyone is moving on and doing well.
I havent been on here for a while as I was in a bit of an emotional rollercoaster for the last couple of months,
firstly the negatives -
i had been suffering from vertigo and when i spoke to my oncologist she made a referral for a brain scan so my mind then went into overdrive thinking the worst.
I quit my job then started a new one only to last a couple of weeks as it was not for me
My mammogram and breast clinic appts were approaching so i am sure you have all experienced some of the anxieties i was experiencing.
Now the positives (Yayyyyyy)
My first granchild was born 6 weeks ago (beautiful boy) sooooo happy.
I had my brain scan and mammogram today and were both normal (hooray)
consultant at clinic said everything felt normal and will see me in 12months. (Yipee).
and finally when i got home i had two messages inviting me for interviews.
Life is most certainly moving forward and I hope we can all put this terrible year behind us and start to enjoy what we have.
Take care and sending hugs to everyone
More news from the Facebook group - Bean14 got married last Friday. She showed us a wedding photo - they looked so happy! It brought a tear to my eye.
And I decided after getting the "all clear" to look for a part time job and I got one! I did wonder if being almost 50 and having had cancer would make it difficult, but I fell into a lovely position. I am now a Hotel Receptionist, and will be working between 16 and 30 or so hours a week. Started last Friday. Prior to getting ill, I was working for my husband, as he is self employed, so i was keeping his accounts etc, but we had been struggling financially, and it was really tough through my illness, so this is such a relief.
Great news re Kander!
Petal - I hope you feel better soon................
I am two thirds of the way through Herceptin - 6 more lots to go. I am still very restricted movement wise in my right arm and am having twice weekly physio on it. It was the radiotherapy that tightended things up a lot but I am doing all I can.
I hope everyone else is doing well,
We can all breathe a massive sigh of relief. Kander got her biopsy results today. It wasn't cancer.
She has finally been told she is cancer-free.