Petal sorry to hear you are having a wobble, hopefully you get good results from mammogram and that everything is fine at BC clinic, please let us know how you get on,
SJB good luck with your mammogram as well.
I don,t know how everyone else is feeling but I seem to be taking two steps forward and one step back all the time and getting really fed up with it.
I have since been to GP as I have been feeling very lethargic and achy etc, they have given me antibiotics and sent me for blood tests for diabetes and thyroid etc. still to get results, if everything turns out fine then I don,t know what is causing me to feel this way since christmas, just dont have any energy and even the smallest task seems like a marathon. I just want my old life back
I'm having a horrible wobble tonight. I went for my lymphoedema check this morning and said how it is odd that my "good" arm is a bit puffy and I am sore under the arm on that side. The nurse has said she will refer me back to the surgeon and the breast care nurses and that has really worried me. The only explanation that helps is that I had a nasty flu-like virus a little while ago which gave me sore glands in my neck and it could be something lingering on in my system - but I don't like it! I had my mammogram this week and it is too early for results and that doesn't check under the arm anyway. I know I panic about it because my original diagnosis was that it wasn't in my lymph nodes and I had to keep asking them to check as my biopsies made it hurt under my arm and then it was found to have gone there after all and was pretty aggressive.
I will have to wait a few days for any response so how on earth do I stop feeling frantic? It has brought it all back in my mind again.
I hope everyone else is ok. Any news on dates yet SJB?
I'm glad you posted on here again but I am sorry to hear you have been struggling, SJB, but hopefully it helps to be in touch. I think every one of us has had low spots and it is hard not to feel selfish but it is also natural to feel fed up that we've had a lot to cope with. I can't imagine how it feels to have lost your breast and not had reconstruction yet - I didn't lose all of mine but I have painful oedema and sometimes wonder if a mastectomy was preferrable - but I guess not. Can you talk to someone about having to wait indefinitely again? There should be counseling people to help if you are able to talk about it, shouldn't there? Perhaps someone on here is in the same boat as you and can give you some words of encouragement. Congratulations on the excellent promotion! You sound like you are coiping well on the outside even if sometimes you feel you aren't on the inside.
I know the hospitals do a wonderful job throughout treatment but the BCNs are hard pushed and it is often the times at home that are difficult. I know I am extremely lucky to have had the support of my local Community Cancer Nurse who has got me thjrough many a difficult time. I have talked about this before and I am well aware that this is a service only available in my particular part of the country. I have been writing letters to various NHS departments, especially cancer ones, and even my MP, trying to raise the question of this service being made available all over the country. The moral as well as physical support is vital and I really think it is when things get quieter after the end of treatment that the enormity of the way our lives have changed hits us.
Barbie, i was looking at hols in the costa del sol too, havent been there before, hope you have a lovely time.
My tattoos have disappeared !!!!! haha.
Petal, thats not good hopefully it,s not too painful, I have had regular pains in my joints since chemo and still sometimes feel like a 90 yr old first thing in the morning. Gone are the days when I could spring out of bed and be quite upbeat and active, instead I now crawl out of bed and it takes me about an hour to get moving so have to set my alarm an hour earlier than normal lol. it,s just the new norm for me now and no point in complaining about it ( no one listens anyway haha)
however I am sick of listening to others complaining about the common cold (it,s winter for heavens sake).
It is so nice having light mornings and evenings now.
Barbie what a great achievement on the weight loss, unfortunately during my meltdown I turned to comfort eating (tut tut) and back where I started haha. But I need to give myself a kick in the but and get myself motivated again, I had lost 17lbs too so hopefully I will be back on track soon. Whereabouts in spain are you going.
Petal it must be really uncomfortable for you to wear the sleeve all day but if it helps thats a bonus, good luck with the mammogram next month.
Really dont know whats wrong with me recently,lots of things are really irritating me, eg I was doing well in my part time job and thought it was great having time to spend looking after my grandson, however I feel the directors are putting a lot more work on to me as they are getting busier before they would bring in another p/t member of staff, so I am getting stressed again trying to rush through the workload in the short time I have, This is not good Plus OH is really annoying lately, think he is going through a crisis because he will be the big (60) next month haha
Well rant over and looking forward to a slimmer, happier spring. ( i hope)
I was hoping no news was good news from everyone but I am sure we all have our scary moments. Glad things sound ok Wyn but keep us posted about the rash. I still have a lot of pain around the scar area and throughout the breast, too, as I can't seem to get rid of the oedema and I am still wearing a lymphoedema sleeve all day every day. Mammogram due next month.
Well done with the weight loss Barbie and how nice to have a holiday to look forward to. I keep trying to eat sensibly but haven't managed to lose anything yet.
Sarahmummy, how are you doing?
Hi Barbie, nice to hear from you. Hope you are well
sorry I havent posted since xmas but I had a wee meltdown for a few weeks due to having severe constant breast pain and a rash developed in my affected breast so you can prob imagine what was going through my head, (when will these fears ever leave us).
Anyway I plucked up courage last week and contacted bcn who got me an immediate appointment at breast clinic. Glad to say everything seems fine ( I Think). registrar say the pain I have been experiencing was along scar line due to nerves been cut in that area ( possibly having mammo in November had irritated the nerve endings) and she wasn't concerned about rash as it seemed to fade when I was lyng on my back !!!!! not sure what that means. but just to keep an eye on it.
She aslo said not to check my breasts too often as this can be more difficult to detect any changes so keep it to every two weeks ( may have a point there).
Feel I need a holiday now haha
Hope all the other Angels are doing well.
Take care Wyn x
So very sorry to hear of your news - I can't imagine what you must be going through. Please stay strong and positive.
We are all thinking of you and sending our love and big hugs.
Oh Sarahmummy, I am so sorry to hear what has happened. You are being very brave about it all but I am sure you must be devastated. All I can offer is an ear through this forum as it is a good place to let off steam or ask for advice or comfort. You must be in turmoil and I wish I could give you a hug. Keep in touch and let us know how the treatment goes and good luck with every stage of this journey. Take whatever strength you can from wherever it is offered and keep up that tremendous fight. We are all behind you. Petal xx
Oh this news is soooo sad, sending lots of hugs to Sarahmummy.
Thanks for letting us know SJB, will be thinking of her
That's terrible news - poor Sarahmummy. I can't imagine what she is going through especially at this time of year but I am thinking of her and sending her lots of love and best wishes.
Mammograms are top of my list, lol I also had 2 mammograms over a period of 6 mths which showed nothing, and my lump was 3cm and very aggressive, was also told they are not 100% accurate. I would also prefer ultrasound but I think it all comes down to budgets.
My SIL is getting there but still a bit shaky and anxious going out, think her confidence has taken a bit of a knock.
Petal - glad you enjoyed Will Young, It was good you got the chance to speak about treatment and give your views for them to understand and hopefully will help other patients in the future.
Barbie I hope you are on the mend, my SIL fell last sunday and had to have staples in her head, she was badly shaken up and her whole arm has been badly bruised and almost black. I was shocked they didnt even xray her at all for goodness sake she is a pensioner (a young one) and suffers from osteoporosis. she is now only starting to feel a little better.
I had received a letter from researchers from a university asking me to paticipate in a survey/ interview on cancer screening for breast cancer,bowel cancer and cervical cancer so I have agreed and a researcher is coming to my home at end Jan to get my views on screening and to discuss any issues,problems and how it can be improved so if you have any ideas/concerns please let me know and i can use this platform to pass them on.
I can relate to hair loss two years ago - how awful those memories are, I remember sitting at the table with my family around me and felt like a freak with the wig and pencilled eyebrows.My emotions were very mixed as I didnt want to be there but was very thankful I was still alive, I am so grateful now that I am able to look back on it as a part of my life that was very challenging but got there in the end and hopefully will continue to get stronger.
This year I will be happy to sit at the table with my shoulder length hair and real eyebrows and will raise a glass to the future for all of us.
Take care everyone
Hi! Will Young was A-MAZ-ING!!
Barbie are you ok? It is such a shock when you fall over let alone banging your head. Take it easy for a while and go to your doctor if you have lasting after effects, won't you?
Today I have been with my cancer nurse to talk to some district nurses about what treatment was like so they have better understanding with patients. It was quite interesting but brought back a lot of memories. It has made me realise that although I am still frequently tired, I have made incredible progress since those awful days after chemo. Onward and upward and looking forward to Christmas (I think!).
Petal - enjoy the concert, I like Will Young and if I was going that would be another grandmother there haha,
Glad your physio has helped and keep doing excercises.
Barbie - great your in a good place and good luk in your interview, just make sure your not taking on too much, I was diagnosed on 31st October ( halloween will never be the same haha). I am loving my job and only work 3 days a week so have the other four to myself , dont really know where I got the energy from previously holding down a full time job. I have lost a stone now and just over half a stone to go to target but I am determined to get there haha, how are you doing?.
SJB - nice to see you popping in, sorry you have to wait a bit longer for reconstruction but time passes very quickly You have also done very well in losing all that weight.
Glad to hear Sarah Mummy is on the mend and we all send our best wishes.
I am very organised this year for xmas, most of pressies are wrapped so looking forward to having Christmas dinner at my son's so I will definately be putting my feet up this year with a little wine in one hand and chocs in the other haha ( Diet!!!!!!!! what Diet lol).
Take care angels
Hi everyone. Sorry I just don't seem to check in very often at all these days. Quick update...I had a blood test when I saw my oncologist, which came back with the result that I am now post-menopausal at 49. So I've been switched to anastrozole already, and will be on it for 10 years. My next appointment with my consultant keeps changing and will now be in March...wonder if it'll get pushed further back as it started off in January!
I've been on quite a downer. I had told you that I was due to have my reconstruction on January 7th. Well, it's not happening. Someone at East Grinstead cocked up. They gave me a date on the phone but it was never put in the official diary. I'm not even scheduled yet. Currently the surgeon's list goes to July next year so it's going to be after that. I don't even know if it'll be in 2016 or 2017! I just have to be patient. I wrote a letter complaining to PALS at the hospital but haven't even had a reply, let alone an apology.
I've been dietting again. I originally lost 4 stone after my treatment and went down from a size 22 to size 18, then my weight plateaued out. Well, the hotel where I work runs an amazing weight loss scheme for the health club members. It's free to be in the group, and every week for 12 weeks they weigh you (2 weeks to go) and for every kilo you lose, they donate £20 to the charity of your choice. If you reach 5 kilos, they double it! So far,I've lost 5 kilos so if I can keep it off by week 12, £200 will be going to the Friends of William Harvey Hospital, where I had most of my treatment. And I'm now a size 16 and everything is still getting looser, so I'm hoping to get down to a size 14!
Sarahmummy seems ok now. She went through the wars, and lost both breasts, but she's getting back to normal now.
Petal thanks for asking, thankfully i didnt have the cold for long and it never really came to anything so yes I am feeling much better. Hope you are well and your physio etc has helped.
Barbie- Great that you have been feeling good recently (long may it continue)
when we hear bad news it reminds of the dark place we were all in 2 yrs ago but thankfully it passes quite quickly when our minds are distracted with something else.
I have also seen a marked improvement in my health both physically and emotionally, The constant aches and pains have almost diminished albeit it has taken such a long time, lets hope we all continue to get stronger,fitter and happier in the years ahead.
Have a nice weekend, I am off to do some xmas shopping lol cant keep putting it off.
Hugs Wyn x
Glad to see you all getting good news re results.
I also had mammo today and saw consultant at breast clinic and happy to say all is good.
Wrapping up in front of TV tonight as have a bit of cold and the weather is horrible.
Barbie are you still with slimming world, I have now lost 11lbs hehe, no doubt it will be back on at xmas.
Glad to hear of everyone's progress; it's always a tough time when it comes round to November.
I had my mammogram and consultant check up this morning; all fine which is such a relief.
I am amazed how far we have all come and it's so nice to just be getting on with life.
Sending big hugs to everyone xx
I am back teehee, got myself a new laptop ( only cheap one as I dont use it for much now).
Barbie I was suffering lower back pain travelling down my leg way back in May ( I thought it was sciatica) so when I casually mentioned to onc she immediately referred me for whole body bone scan and blood tests. Like you it set me back with worry and stress. Glad to say everything was fine and as petal says its good they are still looking after us. Hope everything is fine for you too.Please let us know
Petal. glad you had a nice week, you are right in saying we tire more easily since treatment so you are not alone there. You do have a busy week but will all be done before you blink an eye. this year has just flown by. My Mammo and breast clinic appt is on 12th so getting slightly anxious already.
Everyone around me is doing xmas shopping and organising events etc and I still havent thought about it so need to get myself a bit more in the fesitve mood this year. maybe I will go to one of the lights switch on events to get me in the spirit.