Great to hear how everyone is doing.
I have eyebrows coming back, but no sign of eyelashes yet! I cold capped during treatment so have some new hair coming in with the hair that survived chemo. I am hoping to go for a short style in a few weeks but at least can "get away" without the dreaded wig!
Have had my 6th and 7th seroma drains since I last posted - am having to have it done every third day at present. Both the consultant and BC nurse say the cavity is healing so hopefully it will slow down soon.
Kaz16 -soooo funny,
I have been lucky regarding my eyebrows and eyelashes as I did not lose them completely just thinned a lot so I was still able to apply mascara and touched up eyebrows with pencil. My hair has grown in (salt &pepper), mostly salt lol but very short and a couple of small areas where its really thin. I hate my wig and have refused to wear it the last couple of weeks so just been wearing hats when i go out.
Today I thought to hell with this I am going out without a hat and if people feel uncomfortable then that is just tough so I got to front door being very brave and as soon as i opened door I turned back round and picked up my hat lol.
Maybe I will be brave enough in next couple of weeks (hope so).
Hope everyone is doing well.
hi kaz-16, oh you did make me laugh! i can so relate to your post, if only everyone knew what its like, and setareh i take an hour to get ready too i even take time to do simple things like hanging washing on the line incase the neighbours are watching haha and im hoping to see some hair regrowth soon i cant wait!!! xx
I have some fluid building up along the scar, but not a lot. The surgeon was happy to leave it and see if it disperses into my body naturally. My BCN said that if it hasn't dispersed before I start radiotherapy, she'll aspirate it for me, but we can leave it for now.
I thought I would get a lot building up because of how much was draining each day before they removed the drains, but I guess I've been lucky.
Jules, good luck with the seroma drain, it can only improve, My rads start on 9th June,it feels so strange not having any hosp appts over next two weeks so best make the most of it lol.
Petal - hope you are feeling better
Jinny- you will get the best treatment from your team so hang in there.
enjoy the weekend everyone
NO it nit triple negative its ductal mixed with something like microphillys i cant remember the name but i think if its out does it matter whay type it was? I also have pain in bones of arms i dont know if worried because of the amount of nodes involved
SJB - excelleng news! I am so pleased for you and I hope you enjoy your celebrations!
Back to the hospital today for me for my 6th seroma drain! Let's hope it starts to slow down soon!
Have a great weekend all xx
SJB - fantastic news, so pleased for you and quite right to go to local pub with OH to celebrate.
Jinny - if you are referring to Triple Negative please dont read the negative stories it will drive you crazy and don't google.
Triple neg - only means that it is not receptive to hormone meds or herceptin so would be pointless giving these meds but has been known to respond very well to chemo, if it does not return in first 5 years then its unlikely to ever come back.
I have been diagnosed with Triple neg and after chemo and surgery i was told by my surgeons registrar my outlook was excellent.
Your BC team will look after you throughout treatment and beyond for years to come,so as i said before hang in there and try not to focus on the negative things you read as there are probably many more positive stories.
I am very pleased to report to you ladies that I was told today that the results of the tests after my mastectomy could not have been better.
When I was first diagnosed, back in December, I had a 50mm invasive ductal carcinoma and several infected lymph nodes. My consultant decided to throw me into neo-adjuvant chemo,and that zapped the cancer completely. So by the time they removed my breast and all the lymph nodes, there were no active cancer cells left in the removed tissue.
I feel so good tonight. My husband and I have been over our local pub celebrating. This is going to be a very good weekend.
If you would like to talk things through with a member of our helpline staff please give us a call. The staff are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
feeling shook up again as my cancer has a mix with another cancer i read about it and its prob one of worse ones to get with poorer outlook im just torchering myself day after day
SJB - really good luck to you today. I am struggling with mobility in my arm - feels like everything is so tight still. I think mine is still due to seroma - I am having to have it drained every other day. It's not a medical problem but rather a nuisance in getting to and from hospital, but does restrict movement in my arm and therefore exercises.
Petal - great news - really thrilled for you.
Jinny - so pleased you have spoken to someone. I hope you get a little more encouragement from knowing more.
Wyn - I've lost track of where you are - do you have a date for rads yet? I know you are a few weeks ahead of me - I am not due to see the oncologist until the 5th so suspect I won't start for a while because of the seroma issues.
Love and hugs to all xx
SJB - Good luck with your results.
Jinny - So glad you have spoken to someone and now feeling a bit calmer, you will get stronger each day Onwards and upwards.
Take care everyone
Hi i have spoke to 2 people today including BN went through my report a bit my cancer is 2 different ones mixed together also spoke to another lady who had 21 nodes involved out of 25 and doing well to date. I need to have my scans now so no doubt will worry just waiting for call to start chemo aswell feel bit more calmer and i suppose nobody ever wants to go through it . Good luck snb xx
I'm off to hospital this afternoon to get the results from my mastectomy op 2 weeks ago. I feel so fit and well. My arm is almost back to normal, and I have had no pain. I have just been for a lovely walk across fields and through woods with a friend.
Life is wonderful.
Jinny, talk to someone today PLEASE - call the helpline here or your BCN, but don't continue to suffer in silence. Please let us know when you've spoken to someone.
hi Petal, that was excellent news so happy for you but sorry to hear about your arm I totally understand the pain you must be feeling. A couple of years ago i slipped a disc in my neck and it had entered the spinal coluum damaging nerves,(medical term Cervical Radiculopathy) the nerve pain was intolerable and i could not move my arm at all. I was giving strong meds to help pain but they were not doing any good. My occupational health doc from work advised me to go back to gp and ask for GABAPENTIN OR AMYTRYPTYLINE as they are most suitable for controlling nerve pain, meanwhile i had ben offered surgery by neurologist but refused due to risks involved. I eventually went on to amytryptyline meds and my condition had greatly improved within weeks.hope this is helpful. Why do us women get the short straw lol. take care.
Jinny please contact someone today maybe your breast cancer nurse can go through your pathology report with you and help you with all your fears, hang in there.
I forgot to mention not only was it 2 tumors 28mm and 25mm they were both a different type of cancer my news just got worse then when he said in 9 lymph nodes and grade 3 stage 3 ive been awake all night i just dont know what to do
Hi petal, how are you hope you got good results today.
I went for planning appt for rads today, had CT scan and 3 lovely tattoos, always wanted tattoo (haha) its a true saying be careful what you wish for lol. the appointment did not take long and the nurses were really nice so start rads 9th june.
Take care everyone
Jinny, as SJB said please speak to someone from the helpline or GP,BCN or a councellor to help with your emotional state at the moment.
If the tumours had not been totally removed then it would be my understanding you would need further surgery if they did not get clear margins.
We have all had really bad days when we thought we could not take this anymore but somehow found the strength to carry on and beat this and YOU WILL TOO.
Like RO21 I have allowed this horrible disease take over my life the last 7 months and dont intend to let it take any more.
I remember when I said to an old friend a few years ago "it's a beautiful day today" and he replied "everyday is a beautiful day if you wake up to see it" and that has stuck with me so despite going through this horrible journey everyday has been a" beautiful day" and I intend to wake up and see many many more.
Sending great big ((((HUGS))))
As SJB said, please do give our Helpline a call. They'll be able to offer you emotional support as well as practical information. The opening times are 9-5 on weekdays and 10-2 on Saturdays. The number is 0808 800 6000
Very best wishes
Jinny, have you rung the helpline here on the BCC site? You really should. They can talk this through with you. It is nowhere near as serious as you are convincing yourself.
Please call the helpline and talk to someone there. x
im so scared just so negative it just worse than i thought 2 tumors one was 28mm one was 25mm i asked if he got it all out he sed he removed everything he could see i just wanted to hear something bit more how can i do this feel so weak and negative
We all die one day, Jinny, but none of us are intending to die any time soon.
Two weeks ago I had all the lymph nodes in my left armpit removed, when I had my mastectomy. Tomorrow I get the results from the operation. I do not expect to hear for one moment that I am "going to die".
You need to go and talk to your GP. You can't go on like this. It isn't good for you. You will make yourself ill. You need to be positive to cope with the treatment that you will get to keep you alive. Please listen to what we are all telling you. x
Please stay positive and use everyone here to help out - we all have from time to time and it helps so much.
We have all had our ups and downs but the Forums are such a strong method of support and friendship.
I've found it so helpful to read everyone's stories and successes - it helps hugely.
I was diagnosed end of November 2013 and started chemo on 13 December. That's not so long ago and I am now through chemo, surgery and waiting for rads. I am also on Herceptin and will be until the end of Feb 2015. My care has been excellent and I have been looked after all the way.
Sending hugs and best wishes, Jules xx
Thank u for the positive stories i just think if didnt have node involvement i wouldnt of been as panicky i know people do get through it but it scarey to think how many of us r walking around with this thing and not aware i wouldnt of been due mammogram for 6 more years its alll just to much and not worth thinking bout hope everyone takes care and good luck with treatment x
Hi Jinny, I am so sorry you are feeling this way whilst waiting on your results,the waiting is the worst part,we have all been there so sending ((((Hugs)))) to you. Feel free to shout,scream and cry on here cos we are listening. Please try not to focus on negative stories ( I know its hard not to) but every one is different. Your BC team will give you the best care and treatment and once you know treatment plan you will feel better.
I also thought I will share a couple of positive stories to prove its not all doom and gloom.
My cousin was diagnosed 24yrs ago with lymph node involment and had a double mastectomy - she is still living life to the full and enjoying her kids and grandchildren every day.
My sister was diagnosed 19yrs ago also with lymph node involvement and has been also living life to the full although she was diagnosed almost 2 yrs ago with a new primary in other breast but again has gone through treatment and still enjoying her life again.
I am now going through treatment and focusing on getting my life back and you should too, you have a lot to live and fight for and You Will do it
This must be a very difficult time for you, please feel free to call our helpliners for some practical and emotional support. Calls are free and lines are open now and normal hours are 9-5 weekdays and 10-2 Saturdays on 0808 800 6000.
Everything i read with lymph node involvement always seem to get secondries 5 years later i looked at old posts frightened myself more most had secondries and some passed away its frightening and i wish this wasnt real how the hell do i get through it with so much negativity in my mind soon as kids went to school i just broke down again still sat in pjs feeling like ive never felt in my life
Had my op and full axiallry clearance get results thursday im in a very bad way at moment i know theres lymph node involment my panic attacks are so bad just cant get the thought im going to die out my head everything seems so negative im so scared of starting chemo and everything that comes with it im living a nightmare ive come on here to rant i dont know what to do
I hope you are in less discomfort now. My drains came out the day I was discharged from hospital.
Still have a large seroma; it's massive!
Love and hugs, Jules xx
I'm afraid I can't help you either, as it didn't hurt to remove either of my drains and although the area is a bit sore, it doesn't hurt. I can touch it without wincing.
I can only guess that you had a trapped nerve in there. They say the nerves can be susceptible to pain if they get moved when the lymph nodes are removed. I have really been lucky as nothing like that has happened to me so far.
I would also say take pain relief, but if it gets too much call 111 over the weekend and get someone out to you if necessary. If you can hold on though, leave it until Monday then call your BCN. good luck x