I know I am no expert but I can see their point. If the lymph nodes were clear at diagnosis, then it can't have spread any further. You are lucky.
I am one of many who it had already spread into the nodes for, so I have that fear hanging over me forever.
Her username is Kander, and I'll keep you updated.
I have a CT scan this Wednesday to take a closer look at a slightly thickened section of bone at the base of my spine. I'm sure it'll be ok as I have never felt so healthy, but there's always that nagging doubt...
SJB - that is shocking news, how awful to think you have got over treatment to have a set back like that, my thoughts are also with her,
Glad to hear everyone else is doing well though
I am not a member of facebook etc and therefore only news or information I have is whats on here.
I have never been offered any type of scan despite raising my concerns about it - but the team I was under are adament I didn't need any due to no lymph node involvement- hmmmmm, doesnt stop me worrying that they may have missed something but trying so hard to remain positive.
Take care everyone
well done Jules -you'll be so glad its over. Its been quiet on here which could be a good sign that everyone has now got over active treatment and moving on.
I am thinking of going back to work in four weeks but not sure how I will cope emotionally but the sooner I get some kind of normal routine in my life the better,
Hope everyone is doing well.
Yayyyy!! Rads completed this morning - feels fantastic!
I hope everyone is doing ok and starting to pick up their lives!
Glad to hear everyone is doing well. I am 10 rads down, 5 to go next week. Nearly there!
Has anyone had a bout of mouth ulcers? I have had them for the past few days - small but painful. Just wondered if it's another SE!!!!
Have a great weekend all.
I also have appt with dentist next week, I haven't had tooth pain but a lot of sensitivity. I have still got the slimy feeling in my mouth and tastebuds are not completely normal yet.I have also developed a coating on my tongue ( particularly after drinking coffee !!!) and its making me gag when trying to brush it. I would remember the days when I would panic over this but it seems trivial now lol.
Petal - I hope things are improving for you today. It's so disappointing that you didn't get the treatment you needed over the weekend.
SJB - sorry to hear about your dentist visit outcome. I went a few weeks ago and have 2 fractured teeth from the chemo, which will need to be sorted out once I am out of rads. Like you, I had horrible tooth pain particulary whilst on Tax.
6 rads done - this morning was fine although my arm has gone very stiff. It's not easy to get it into position for rads but hopefully a bit of housework today will help!
Have a good week all,
I just went to the dentist to see how badly my teeth were damaged by the chemo. First chance I've had! Anyway, I have to have 2 teeth extracted as they are dead. The rest can be refilled.
I knew it was going to be bad because of the amount of pain I had from my teeth right through the chemo, but still not looking forward to having two gaps in my mouth.
Sorry you are having a horrible weekend, hope your GP sorts it out tomorrow, I am shocked that despite being told you may need antibiotics by a doctor and then another saying you might be fighting a low infection that you were not given anything for it, you should maybe have been a bit more persistent,you have been through enough already.
The skin under my arm started to peel yesterday (10 days after I finished rads). It's not sore because it's all still numb from the op.
Still moisturising twice a day with E45 lotion.
That's excellent news; you must be thrilled. I am so pleased for you and at least you can start to return to something approaching normality!!!
Rads are going ok - first week done and a third of the way through. I am moisturising like it's going out of fashion and apart from feeling a bit tight, my skin is ok - thank you for all the advice
Have a great weekend everyone!
went for my follow up appt at breast clinic yesterday and they were very happy with overall treatment and outcome, scars are very neat. dont have to go back until Nov for my mammogram (year since dx) and then every year after that (Yayyyyy). She mentioned to expect pain in breast once numbness starts to disappear as the nerves have been damaged and need to repair themselves.
She also said when I see my oncologist for follow up next month I may be discharged from them and just to attend breast clinic yearly for check ups.
Jules- how is rads going remember to keep moisturising, the end is in sight x
Hope everyone is moving on and enjoying this great weather although its strange having to wear high neck clothing to cover up.
Sending hugs to everyone
Hi Wyn, Petal and SJB
Thank you so much for your helpful comments. It's really kind of you and I will take heed of your advice!
Will keep you posted on progress xx
Jules, I also used aqueous cream twide daily, my problem was I didn't moisturise under arm cos I thought it wouldn't be affected as i had no lymph node involvement but I was wrong and therefore burned and peeled.
I had mentioned in a previous post to moisturise this area as well as under breast as they incline to be most sensitive.
Good luck with rest of rads.
My hospital didn't give me any cream and didn't even ask if I was moisturising until I'd had about 10 lots of radio!
Just used my own E45 lotion throughout treatment, 3 times a day. Still doing so in case it gets sore or peels, but hasn't as yet.
Thanks ladies for all your kind comments.
I had my first rads today after Herceptin No 8. All went well - it was a bit uncomfortable with my arms up for so long but fine.
I have been given a tube of aqueous cream to use - can I ask how frequently I should do it? I asked today and the girl just said thinly, twice a day This is a different hospital to where I went for chemo/surgery, so I don't know the staff at all. Is that what everyone else did?
Many thanks - Jules xx
Petal, I am fine now, I started to get sore the last week of rads and had some sharp pains like being nipped but staff said that breast settles after op and the rads mess it up again lol, but then it settles back down.
Its been just over two weeks since finishing and skin looks fine and very little soreness.
Wow, it's great to read all the good news stories on the thread now as opposed to a few months back when we were all feeling down and worried.
Petal - great news about cyst and well done for finishing rads.
Jules - Fantastic you completed the run, it's great what you can do when you put your mind to it.
SJB - wow losing two stones since end of chemo, you must be very proud of yourself, I am sure you will hit target for your recon, keep it up.
my son and his partner took me out for a slap up meal as a celebration of end of treatments and it was lovely to be able to feel back to normality.
Wishing everyone else best wishes and here's to our "new normal" lives.
Well done, Jules! Very proud of you for doing Race for Life this year.
Radiotherapy is a doddle. Just keep drinking the water and moisturising with whatever works best for you. E45 has been fine for me so far. Still just slightly red, and barely itchy at all for me.
I've got an appointment with a dietitian this Wednesday to get proffessional advice on how to lose another 2 stone at least ready for my reconstruction next year. I say "another" because I've already lost 2 stone since I finished chemo in April! It's getting harder now though. I definitely need help.
Should get my silicon prosthesis the following Wednesday. Have an appointment with my BCN to be fitted for it or whatever they do. Not sure if you get it that day or not, but really hope so. I want a false boob that looks like the real thing under my clothes. I'm very conscious of how I look at the moment, whether wearing my softie or a Knitted Knocker - the all sit much higher than the other boob and don't move when you walk. Horrible.
Well done Petal on finishing rads 🙂
Wyn - many thanks. I did Race for Life and finished in 28 mins - ran all of it bar a sharp hill! A lot slower than prior to diagnosis but hopefully I will start to get back to some proper training once the rads are finished. Looking forward to getting started tomorrow,.
Hope everyone is having a lovely weekend.
Hi Petal, just dropping in from February...
I've just finished week 3 (of 4) of rads and my hospital recommends aloe vera only - I get a gel from Holland and Barrett (other purveyors of healthy stuff are available...) So far I'm just a bit pink and occasionally itchy so it seems to be working well. It can be a bit sticky if you put too much on but absorbs quickly and seems to be good stuff.
It's funny that after all we've been through, we celebrate when a scan shows "justa cyst". lol So pleased for you, petal. I too had a cyst...on my liver. Again, nothing to worry about, thank goodness.
For those who have finished treatments - well done and I hope you have planned your celebration of how far you have come and good luck to those who are almost there.
Petal - fingers crossed for you tomorrow, will be thinking of you and hope you get good results.
Jules - good luck for rads on Monday and I admire your strength and willpower to run race for life on sunday, I will be sending you virtual hugs along the way to finishing line, Go girl x
My skin was burned and peeled quite badly and found it sore when clothes were rubbing against it but its now settled down and just looking slightly pink so feeling much better now.
Take care everyone
Well done SJB - must be a great feeling!
I start my rads on Monday so have that to look forward to!
I'm going to do the Race for Life this coming Sunday and will be thinking of all my "December Angel" friends as I do the run.
I finished my radiotherapy today. So glad to see the back of that!
Just as the team were about to leave the room for my final zap, I felt something in my ear and had to ask them to check it out, as I couldn't move. A bug was crawling into my ear! They couldn't believe I managed to stay still!
What a way to finish!
Feel really tired now and intend to rest for a few days. Skin is a little pink and a little itchy but not too bad at all yet. I'm still moisturising, of course.
Good luck, Petal. I finish rads tomorrow.
Skin now slightly reddened but not much. A Little bit itchy - still moisturising 3 times a day so it's very manageable. I started getting really tired towards the end of last week, so the last day i drove myself to hospital was Wednesday. Since then, I've accepted lifts from others. That has helped a lot. I was worn out with all the driving!
Thanks for the positive responses, I couldnt have got this far without sharing the experience and support from you all.
At my review I was told I will see onc approx 8 weeks after treatment and then discharged but will continue to attend breast clinic for follow ups etc. I know I should be delighted at this however I feel the comfort blanket has been taken away 😞 but i know its something we should get used to ( happy days).
Just an update on my skin, Under my arm and scar area looks very badly burned and skin is peeling, it is painful, Just wish I had paid more attention to these areas when moisturising,
I thought as I had no node involvement under my are would not be affected (silly me).
Good luck ladies with rest of rads and remember moisturise,moisturise as much as poss.