Wyn - great news and must be fantastic to have finished rads. Thanks for the moisturising tips - I am due to start in a fortnight so will bear that in mind. I hope life is starting to return to a new "normal" for you now.
Glad to see everyone is doing well and moving on.
I finished my rads yesterday (15 + 4 boosters) Yayyyy. so glad.
My skin under arm and under breast became very tender last couple of days and sore despite moisturising twice a day with aqueous cream. although it has not broke down yet the nurse gave me a hydrating gel to put on those areas so hope it doesn't get any worse, apparently these are the most common areas to break down so please be careful and put extra moisturiser on these areas.
I hope you are all doing well - you are such an inspiration!
I had my radiotherapy planning yesterday - all seemed to go fine. I start my 15 treatments on the 21st July, so not too far away. Like Petal, I will have Herceptin until next year (every three weeks).
I met the husband this morning of a lady who has just had her first chemo for BC after a recent diagnosis - a reminder of how far we have all come when I think back to when I was in her position.
Onwards and upwards everyone - the home straight now.
I don't know about Herceptin but Tamoxifen is a hormone treatment, so it has all the possible side effects of HRT - which includes depression. Who gives you the prescription? Oncologist or GP? Whichever it is, contact them and tell them it has made you depressed. They should be able to either offer a different hormone pill or something to counteract the depression. Don't live with it.
I've just done my 5th radiotherapy session - 10 more to go. Nearly there now!
Thanks everyone for the helpful comments.
I had my 7th Herceptin this morning so getting there 🙂
The planning session didn't happen unfortunately as the machine had broken. I am due back on Wednesday this week to have that done, so fingers crossed.
Well, I won't have either of those problems, as i have no boob or nipple lol
I would always call my BCN with any problems as she is my point of contact at the hospital and will know who to contact to sort out anything.
I lost my 5th fingernail yesterday, by the way. Anyone else losing them?
My radio planning session was 3 weeks before I started radiotherapy. Anyway, I reckon you now know it'll be starting within the next 1-3 weeks, by the sound of it, Jules. Good luck.
I've had 3 sessions now, and no side effects so far. Let's see how I feel next weekend, which will be half-way.
I have my radiotherapy planning session on Monday, after my Herceptin infusion..................
Can anyone tell me how quickly after planning I will actually start the radio? I am due to have 15 blasts over 3 weeks................
I've asked my mum to call into the local M&S and ask for me. I don't get near it often, so will have to make a special trip.
Had my first radiotherapy session today. The radiotherapy itself was a doddle, but the 45 minute drive there and 70 minute drive home were a nightmare! Am I likely to be able to drive myself there every day or will I need to resort to lifts from friends like I did with the chemo?
Oh, you have to get a referral from your GP for your prosthesis, Jules? My Breast Care Nurse is going to sort mine out with me at the hospital. She asked if I wanted to sort it out before or after the rads, and i said let's leave it till afterwards as i won't be able to wear it while I'm having the rads anyway. So as soon as I've finished and feel able to wear a bra again, she said just to call her and she'll make me an appointment to go in and see her to get one.
Thanks for the advice about waiting till I have ther prosthesis before getting a mastectomy bra, Kim. Don't they mind in M&S that they are taking time to measure you for a bra that you are going to buy somewhere else? I thought you would have to buy one from the shop where you were measured?
SJB - love the profile pic - it's great to see you doing so well!
Petal - I hope you do well with rads - thinking of you.
Wyn - many thanks, that's helpful.
I still haven't got all the movement back in my arm but I am getting there. Looking forward to seeing the consultant to get moving with rads tomorrow. I am also seeing my GP tonight to get a referral going for a prosthesis.
Sounds like everyone is doing well - onwards and upwards! xx
It's good that everyone is either finished treatment or in final stages and soon we can put this all behind us.
Petal - I also had swollen ankles like Joanne four weeks or so after chemo but they settled down until last week when weather was hot. I use aqueous cream twice a day and although I have no reaction my breast has become red and tender now as I am halfway through rads just hope it doesnt get any worse.
SJB - sorry to hear you have lost your nails despite looking after them, I had been advised by chemo nurses not to varnish as this could mask infections etc so I only used moisturiser and my nails have been fine with the exception of discolouration, good luck with rads tomorrow.
Jules- My arms are also bent at 90 degrees above head when getting rads.
Sending best wishes to everyone
I'm all ready to start rads tomorrow. I think I have full movement back in my arm now. Amazing how it all comes back in time.
I've lost 4 finger nails now, even though I've kept them painted.
My hair is now an inch long or thereabouts. It had formed a natural mohican down the centre, but that is finally starting to lie down flat, thank goodness. Totally grey, not a sign of any colour in it. My eyebrows have grown back nicely, also grey. Body hair is all growing again now.
Quick question for those of you who had surgery before chemo - when it's time to get fitted for my silicon prosthesis, should I buy a mastectomy bra FIRST or AFTERWARDS? i.e. Do I get myself fitted for the bra with one boob, or wait till I have the prosthesis and get fitted with two boobs?
Many thanks ladies; that's really helpful.
I am having 2 physio sessions this week on my arm to try and get more movement. I am seeing the specialist next week so presume I will have planning soon afterwards!
Onwards and upwards for us all!
I thought I had good movement in my arm until I went for the planning appointment. I found it painful even though I was doing the exercises I was given with ease. So I am now doing my own exercises. You'll need to be able to put your arm straight up above your head, elbow straight, palm forward, then stretch backwards. Do this as an exercise regularly - it will stretch your muscles a lot more than the standard exercises.
Your arm will be bent but it is angled down and backwards behind your head as you lie down. The other arm does it with ease, but the stiff arm...well, that's what you need to work on! I'm hoping I'm there now as it is one week today that I start!
Can anyone help with how far you have to get your arm back for rads planning? Think I have a way to go but am on weekly physio which should help..................
SJB - well done on starting rads soon. I hope all goes well.
I am seeing the oncologist to get moving on rads on the 25th, but mine won't start until early July due to the problems I have had with the seroma. It's finally slowing down so fingers crossed. However, the scar line is quite red (not painful) - does anyone else have this? My physio doesn't seem bothered by it so hopefully it's just a healing thing.
I am back to running - I used to run regularly and train for marathons before BC but obviously haven't been able to do so, However, I have been out this morning for a half hour run and it felt great! A bit of an odd right arm action as I can't swing it properly but who cares!!!
Have a lovely day everyone!
I start radiotherapy on Wednesday 25th June. Last session is Tuesday 15th July. Can't wait to get the other side of it!
Yesterday I kept getting a shooting pain under my arm every time i moved it, but again, I'm assuming it's a nerve settling back down again after being numb or whatever. Very frustrating.
Did I mention that I've met a local lady from this forum a couple of times now. I live in Biddenden, Kent, so I posted in the local areas section for meet ups. She lives in Folkestone, so we've met twice in Ashford now. And this week I'm going to meet a couple of other ladies, one from Tenterden and one from Tunbridge Wells. We're all getting together at a central meeting place - a coffee shop at a local castle. It's lovely to meet others that have been going through the same experience. I just wish someone from this group lived closer to me.
Oh Joanne, I'm so glad you found the confidence to start going out without any headwear. It's too hot now!
I lost a fingernail today. It had been coming loose the last few days and I stuck a plaster over it this morning because it was so loose and sore. I noticed at tea time that it was off my finger and stuck to the plaster so I unpeeled the plaster and it was gone.
There are 3 more that will go the same way within the next 2 weeks. Not sure what will happen with the others. None of them look nice when I take the varnish off.
It is weird. I was fine about losing my hair, fine about losing a boob, but so squeamish about losing nails. go figure!
Woohoo angels, brave pills are working lol, we can do this,
who cares if people stare after what we have all come through we can hold our heads high and be proud we have got this far.