An elderly gentleman in our village stopped me yesterday and asked why I had had such a drastic haircut - had I had it shaved for charity? I laughed and said, no, I'd been getting treated for cancer since December, so I'd actually been bald under my hats that he had seen me in. He said he had no idea because I always looked so healthy every time he saw me! lol
Petal, I was also self concious on first couple of days but now i feel great not having to hide behind head gear.
serateh, I also had long hair past shoulders (highlighted blond) but thought as I cant colour it for several months and will take forever to get back to that length why not bite the bullet and go out as i am.
I have had a very positive response and compliments from people so there is no turning back now. I am sure when you are ready to face the world with your new look you will feel more confident too.
My son said I looked really cool (lol) he has never saw me with short hair in his life, he is now 31.
Tomorrow will be the end of my first week of rads and I must say it's been a walk in the park in comparison to chemo so far.
Hope everyone else is doing well and moving on
thanks jules, you must be so glad you dont have to get seroma aspirated anymore and it's great to have some kind of normality back in our lives,
Well I took a brave pill and I have ditched the wig,caps and scarves and have been out all week with my new very cropped salt and pepper hairstyle, it's amazing that anyone who doesn't know me hasn't batted an eyelid and whose who do said I looked amazing and hairstyle suits me ( my sister said I looked like a celebrity lol).
My eyebrows and lashes have grown back and I can now see" myself" in the mirror again Yayyyyyyy.
Onwards and upwards angels. hope everyone is doing well and moving on.
Wyn - glad the first rads went well - fingers crossed it continues that way for you!
SJB - well done on the seroma - that's great news!
I had my 6th Herceptin yesterday and had the seroma aspirated for the 11th time. That will be the last, as the consultant wants to try and get the fluid to re-absorb so I can start rads. I am also having physio on my arm to get more movement back.
So - pretty good all round. Working in London today so looking forward to a bit of normality!!!
My BCN checked my seroma today and there was virtually no fluid there, so we are going to leave it now. If I feel it building up again, I can call her, but probably won't need it aspirated again. So that was just twice in the end, not bad!
Quick tip for anyone moving on to Tamoxifen. I have been taking Citalapram for quite a while now (anti-depressant), and just found out that it can be prescribed to lighten the side effects of Tamoxifen. Basically it lightens the night sweats and hot flushes. So nice to know that a drug I'm already taking is actually going to help when I start another one!
So if you start Tamoxifen and suffer badly from sweats, you can ask for a light dose of Citalapram to ease them.
Nice to see everyone is doing well. I have just returned from my first radiotherapy session, I was called at 10am and out again 15 mins later, very quick and painless and staff was wonderful, once they line you up in position its just like having an xray so one down and 18 to go.
Thanks for your replies. I've been away from the computer so couldn't reply sooner.
I've had my last chemo yest !! such a good feeling. It went ok execpt I was a bit nauseas and had the terrible trots to the loo before the treatment, I think I was so excited at it being the last! Taking all the meds now which I hate but hey it's not for long and hoping to be feeling better quite soon.
I am menopausal and I was told I would take both Anastrazole and tamoxifen over the coming years. It was left to me which I preferred to start with. I read about side effects and decided on Anastrolzole as it seemed, rightly or wrongly, that I may be better with Anastrolzole and as I am going back to work in the next few weeks it was decided. I am only going back for 12 months or so and then retiring! Hooray by then I may be able to cope better and not have to worry about time off.
I am also getting some hair growth back on my head - and some in places where I wish it wasn;t! Feels good, more normallity to be resumed asap.
I had my 60th birthday not long after my operation last Oct and have not spent money/vouchers I rec'd then , so soon I hope to feel up to going out an spending it - and maybe a delayed celebration! I have been into town once over the last months and felt so vulnerable and a bit wobbly and drove home in an axious state so haven't been since. Just another hurdle to get over as I am waiting to have 2 cataract ops soon, my eyesight has got much worse too. Still enough moaning it'll all be sorted.
Sending the best of everything to you all
Well, I successfully drove myself the 50 mile round trip to hospital and back this morning. I am now a tattooed lady! However, whereas I thought I was doing really well with my arm exercises, I was horrified to discover that it was intensely painful to stretch it as far above my head as they needed me to. They put the clamped arm rests up as high as they could so that I didn't have to stretch it as far, but there was a single intense pain down below my armpit that would not ease off for the entire time I held it in position. They said it was likely to be a nerve that had not yet settled back into it's natural position - hope it does before I start rads!
They noticed the pocket of fluid that has already reappeared but were pleased that I'm having it aspirated regularly by my BCN now so they were happy to set up and ignored it.
I got really tired on the drive back, and literally went straight to bed when I got home. One of those "battery drained" moments. It's frustrating, isn't it! I have just slept solidly for about 2 hours in the middle of the day!
SJB - I have now had the seroma aspirated 10 times since surgery. My surgeon did it again this morning and said it will probably be another month until it stops completely. However, he is hoping that it will soon start to reabsorb so fingers crossed.
I am seeing my oncologist tonight about starting rads.................
Glad to hear everyone else is coming along well; it's just great when hair starts to grow back and you don't feel as rotten!!!!
Take care everyone
My eyebrows have started coming through in the last 5 days or so, no lashes yet though. And yesterday I noticed growth on my legs and down below. None in armpits yet. My head hair is now about 15mm long but whereas it naturally lies flat round the sides, it still insists on sticking straight up on the top!
Our bodies are slowly getting back to normal.
Had my seroma aspirated yesterday. I am driving over to Canterbury today for the planning session for my rads. Little bit concerned that I already seem to have a small pocket of fluid at the end of my scar again this morning, and hoping it doesn't cause a problem.
Tamoxifen works for both pre- and post-menopausal women, but the others only work for post-menopausal women.
Because I was peri-menopausal when diagnosed with cancer, I am starting on Tamoxifen but was told I will probably be switched to Anastrozol after a few years, if they think I would have gone through the menopause naturally by then. My oncologist said that research has also shown that this switch from one hormone tablet to the other can also be beneficial in preventing the cancer returning.
Hi, I haven't posted for some time. I'm afraid I got rather disheartened as I have had 8 cycles of chemo and most of you who started at the same time seemed to be finishing several weeks before me, I was so envious!
I'm having my final chemo on Friday no radiotherapy so I'm fortunate there. Can't wait for it to be over and I 've been prescribed Anastrozole starting early July. I've been reading up about it but told myself to stop now as the possible side effects were starting to worry me. I should know better! I will take things one day at a time now and keep positive thoughts. I'm hoping to go back to work part time on a phased return at the end of July.
I have have some tight feeling in my chest and mentioned it at my last review. My onc asked me if I was worrid about my heart, I said I was worried about anything the chemo may have caused! She sent me for an ECG and I've heard nothing so presume no news means I'm ok. She couldn't explain the tightness except to say she was sure it is not angina.
Are any of you taking anastrozole I would like to know how you are getting on.
best wishes, good luck to you all, hope you are coping well.
Petal - the seroma is very visible - a build up of fluid where I had the mastectomy done. it feels squidgy and full of fluid and is uncomfortable, rather than painful.
I'm having my 10th aspiration later today and am also starting physio as I don't have enough range of movement in my arm.............
I hope everyone is doing well this week
My seroma has built up really quickly over the weekend, and it is really uncomfortable again now. My appointment to get it aspirated is wednesday afternoon. Wish it was sooner - it is so uncomfortable to sleep at night.
Hope everyone is doing well and enjoying the weekend. I woke up to Yeti legs this morning ( oh well back to the razor) lol.
Got my appointments for my rads today. 15 sessions starting June 25th. looks like I can enjoy a few weeks of health and happiness first.
I had my eighth aspiration today - things seem to be slowing down. However, the BCN said I need physio to help get the range of movement back in my arm - the constant seroma hasn't helped.
I need to do this before I am considered for rads, so looking forward to getting going. It's a bit frustrating as I have been doing my exercises religiously - I'm a marathon runner (well, I was before I got BC!!) so know how to do exercises well!
Hope everyone has a great weekend,
SJB - I hope you feel better after the aspiration. I'm back again tomorrow for my 8th!
I am still struggling to get full movement back in my arm, so will check with my BCN to see whether I need any physio - hoping not.
Good luck to all - we ARE getting there! xx
Eyebrows are cool! lol (I still don't have any)
I've been to see my oncologist this morning. Should get appointment for the setting up session before radiotherapy in next week or two, then due to start rads in about a month.
My breast care nurse aspirated my seroma for the first time this morning - she virtually filled the kidney bowl! Have another appointment for a repeat syringe next Wednesday to keep it down.
I've been prescribed Tamoxifen to start taking after my radiotherapy finishes. Might be taking hormones for 5 years, but might be extended to 10. Will probably switch to Anastozol (is that right?) after 3-5 years.
It's all good. I feel on top of the world.
Well done Kaz and Kim, thrilled for you both now that you have finished rads (hooray) its time to celebrate.
RO21 - great you have returned to work but hope you take it easy, must be a fantastic feeling of getting some kind of normality back in your life, I am hoping to return on phased return in August (fingers crossed)
everyone seems to be doing well throughout treatments ( amazing where we get the strength from )
to think six months ago we were all scared and anxious about the future, look how far we have come and what we have all been through so keep going angels we will all cross that finishing line (it's in sight).
Jules, my BCN is going to sort out my prosthesis at the hospital. She said I'll get an appointment to see her around the end of June. Odd that you need GP referral to a special clinic!
Petal - I hope you have a lovely time with your family.
SJB - good luck with the return to driving. I started back after 17 days and have been fine - just building up slowly. It makes a lot of difference being able to drive myself to all these hospital appointments!!!
Wyn - I hope all goes well with rads - will be interested to hear how you get along with it all.
We all seem to be having differing things as we are coming forwards in our journeys. I now have to arrange an appointment to go to a clinic regarding a prosthesis following my MX- has anyone done this yet? I have to start off via my GP so although I won't be able to do anything until the seroma has gone down, the referral route may take a while.
Good luck everyone, Jules xx
I'm doing really well here. My arm is almost back to normal. The exercises get easier every day and I can almost raise it directly above my head. No pain at all.
There is some fluid building up now though so they are going to aspirate it (1st time) tomorrow. I have an appointment for 9.30 tomorrow morning to see my oncologist to start arranging my radiotherapy - only got a phone call to make the appointment yesterday.
Going to take the car out for a short drive today to see if I'm ok to drive again (now 20 days since mastectomy) - I feel confident that I am ok to drive, so I should be able to drive myself to the hospital tomorrow. Feels good to be getting back to normal.
My nails look horrible but I still keep painting them. They feel so tender, I can't bear to use them for anything.
Energy levels are back to normal - I have been taking a walk across the fields whenever the weather is nice enough and intend to keep this going to get myself fit again.
Edit: Forgot to say, since I started going out after my mastectomy, I have been going out without any headware. Not using wig any more. My hair is about a centimetre long, and mainly white, but I don't mind. Everyone accepts it, no funny looks, and it is getting too warm for hats!
So true-RO21 the days always seem more bearable if you can find something to laugh at even if its at your own expense.
Talk about horrible nails - I mentioned to my GP today about all my nails being yellow (hands and feet) and deformed she looked at them and gave me a sample bottle to put my nail clippings in and hand back to surgery for them to be sent to lab to test for fungal infection !!!!!!!!!!!!, I would have thought this might be the case for maybe one or two but " 20" lol. I have never heard of anyone providing nail clippings before haha.
She said as immune system is rock bottom during chemo its possible for this to happen, so something else I have learned.
Jules - hope your seroma drains stop soon and good that its healing
Petal hope your arm gets less painful soon and hope your rads are not delayed.
Take care everyone