71739members
376347posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Deterioration of this disease

carmcg1
Member

Re: Deterioration of this disease

hi Debs, hope you are feeling a lot better today, you are an inspiration to everyone on this site.

love

Carol xxxxx

Lenny
Member

Re: Deterioration of this disease

just wanted to send lots of love debs and say i hope all functions are getting better.... hope you can enjoy some of the sunshine today,

lenny
xxxx

Marilf
Member

Re: Deterioration of this disease

Hi Debs

So sorry to hear you're still feeling poorly and having more pains, and hope whatever the "?-gate" is gets sorted out for you very soon.

Marilyn x

scottishlass
Member

Re: Deterioration of this disease

Hi Debs, Sorry misunderstood. Glad it's not berrygate though.Love V

debsincornwall
Member

Re: Deterioration of this disease

No it is not the return of 'berrygate' I am all clear there well I was last time I checked!!!!!!!!!

scottishlass
Member

Re: Deterioration of this disease

Hi Debs, Sorry to hear about the the appearance of berrygate. What a lot of crap you have to put up with Debs. I am not longer running to the loo. Haven't been for 2 days now....since I had all the pills to stop me going.....so thinking of having some AGEN Prunes. Have you tried them. They are gorgeous and the best ones are beside the dried fruits in Waitrose. I eat them straight out of the packet but they are good on meusli or your preferred breakfast cereal. Sunny up here in Edinburgh. Will have to move my ass and get out for some fresh air. Actually I should be tackling paperwork but I cannot be bothered and have diddled about all morning avoiding it. LOve to all, Val XX

jaynemh
Member

Re: Deterioration of this disease

Hi Debs
well , it might be time to dust off the dancing shes again ....wish you could 'share' my problem ( up to 6 times a day!!!!!)
But Ripley sounds like she is the expert - although don't you think all those nuts have altered you a bit?
As for the hairstyle girls - you are both trendsetters - mine is unruly curly mass ( about two and a half inches) growing vertically upwards - a bit like wild mad woman.........what a dance troop! Jayne

debsincornwall
Member

Re: Deterioration of this disease

Hi Ripley
you have pinched my hair style, maybe we will see it on the catwalk this season.
Will be sending Ian to get me the pips used to use pumpkin seeds all the time, in my hippy days I dried my own.
I had my chemo yesterday my bloods were good even though I felt rubbish, I find that strange to understand. I am suffering with really bad cramps like labour pains. I do have another 'gate' to report but don't know how much more you can take. So I will sit on it a bit longer literally!
Well it is sleepy day again so will catch up later. Not happy I missed live chat last night hope you all had a good natter I was thinking of you hope you are all doing o.k.
Love Debsxxx

ripley
Member

Re: Deterioration of this disease

Oh Debs, hope you've had some relief by now, or we'll have to start another dance. I like the idea of hibernating and waking up with hair - do you like mine by the way? I think I may try a side parting tomorrow...

Now, getting back to my Mastermind specialist subject - Constipation in the 21st Century. I have had a fixation with pumpkin seeds this chemo - they are fiddly uggers to shell, but are really addictive so I can get through half a packet (or more) a day. I was pleasantly surprised to find myself having a delightful poo on day 2 of my first cycle (effortlessly, I might add), and almost daily thereafter. They were my secret weapon for 3 cycles and then the last cycle I gave them a miss and, lo and behold, 6 days of no pooage. Perhaps they are worth a try?

Rest up whilst you feel subhuman & fingers crossed for some action!

xxx
xxx

debsincornwall
Member

Re: Deterioration of this disease

Well I have not been on much because I have not done much, in more ways than one!
I had my chemo Tuesday and it hit me straightaway, yes hours on the loo and then Wed Thurs sleeping Friday and Saturday not much better but then the pains have started so they wake me up more so I am back on the movicol and all the other vile stuff that is supposed to make you GO.
Has anyone else experience of this vinerolbine am I the only one on it tablet form. I think my problem is 'mental fils'(omentum) I think that is why I can't get it sorted it certainly has a mind of its own. Plus my fingertips type everywhere I don't want them to. It is as if I have gone in to hybernation. Maybe I will wake at the other end well, with hair!
Love Debsxxx

celeste
Member

Re: Deterioration of this disease

Hi Debs, well it's been almost a week now. and I wondering if all the KP activity enabled you to thrive, or be completely shattered.

How are you now? Still very weary or up and about?

debsincornwall
Member

Re: Deterioration of this disease

Hi,
there is a link on page 20 of the Katie Price Asda thread if you click on that it should come up.
Love Debsxxx

bluejules
Member

Re: Deterioration of this disease

Hello Debs

Its lovely news about your new grandson in the making.

I know I am a bit slow here but I would very much like to see your tv interview. Have only just picked up on this. Can any of the more savvy people tell me whether you can see it on the bbc web site and where it is.

Hope you are feeling well today

Regards

Julie x

Kay123
Member

Re: Deterioration of this disease

Brilliant news about the new grandchildren, Debs and Dawn. I am (very much in secret) extremely jealous!

Enjoy!

Kay xx

rhapsodyangel
Member

Re: Deterioration of this disease

Dawn and Debs - that is such lovely news about your coming grandchildren...:D

Theresa x

diane1w
Member

Re: Deterioration of this disease

Thats great that it is a wee boy, this will give you something to look forward to Debs. Am i right in saying it is 2 girls you have if so I it might be nice to have a boy.

Hope you feel at least functional with chemo if not perfect, just feeling like getting out of bed and being able to eat makes a difference - not to mention getting to the loo!!

And you really did look good on the telly you know, I'm waiting on responses from Westminster at the moment and then my great big round face (the steriod face) may well be on it as well!!

Lots of cyber hugs

Diane

Lenny
Member

Re: Deterioration of this disease

so glad it has been a good week and that you are going to have a grandson, when is he due? sleep well and for as long as you like... you and the lou seem to be having a love hate relationship!! hope tonight is more peaceful,

love and prayers as always,

lenny
xxxx

jaynemh
Member

Re: Deterioration of this disease

Yes! great news Debs - a grandson - how lovely! Jayne x

carmcg1
Member

Re: Deterioration of this disease

congratulations Debs on your future grandson xx

Carol xxx

debsincornwall
Member

Re: Deterioration of this disease

Hi everyone,
well I am recovering from vinerolbine, took it late yesterday and I am very sleepy today after being up most of the night on the loo!
My daughter Donna-Marie has just had a private scan as the one on the NHS the man was a bit stroppy and wouln not wait until 'little bean' would uncross it's legs.
The private scan lady was loads more helpful and as her and James sat looking they both noticed awilly. So we are going to have a little boy.
Well this has been a good week for me hope everyone else is well.
Back to sleepzzzzzz
Love Debsxxxx

Ann hope you had a good holiday, if you follow the Katie price thread a couple of links have been posted on there.

bydand
Member

Re: Deterioration of this disease

Hi all

Just back from hols and missed Debs on TV. Is it on iplayer or is there any other way to get hold of it would love to see it?

Well done Debs!!!!

Love Anne xx

Fionam
Member

Re: Deterioration of this disease

Debs

You pitched it just right on Monday, I hope the experience didn't wear you out too much !

Keeping my fingers crossed that chemo doesn't lay you too low this time.

Fiona xx

debsincornwall
Member

Re: Deterioration of this disease

Snap and they live right near his family as thy are all in Newcastle but this weekend it will be ALL MINE!!
Donna-Marie has her scan as her picture on face book so I look and talk to Bean all the time. How sad is that?
Love Debsxxx

dawnhc
Member

Re: Deterioration of this disease

Hi Debs,

Hope the chemo goes well and effect a bit less harsh now and the Poo Problem stays resolved.

I had my daughter with us this weekend and know what you mean about hugging "little bean". She brought as a photo of the latest scan and bean is minute! but she has been very excited at finding the heartbeat :). This is my first one and I didn't realise how much I wanted it to happen. I feel a bit possessive about 'it'. LOL.

Dawn

debsincornwall
Member

Re: Deterioration of this disease

My best friend is leaving to return to her family in Manchester after lunch it will be sad to see her go. In the last couple of days I have looked a lot better and felt it. My chemo is in the fridge so will take it after lunch hust hope I react better to it than I have done. My youngest daughter is coming this weekend so that will be lovely she should have a good size bump have not seen her since end of June! We speak every day but I just can't wait to hug her and 'little bean'
My granddaughters are still speaking to me even though they are Katie Price fans so that is o.k.
Got a lovely email from BBC thanking me and saying I looked good, still not sure about the scarf but my hair is like an orangutan again!
Hope all your scan results are good and that everyone is o.k.
Jayne good to have you back after your hols hope you enjoyed the break, I know it is difficult to get youngster and teenagers to open up so really glad it helped.
Love Debsxxx

carmcg1
Member

Re: Deterioration of this disease

Debs, you are such a special person, thanks for speaking up for all of us.

Prior to having breast cancer, I always bought Tickled Pink t shirts, I seen them in Asda yesterday and they just put a horrible shiver through me, after all what is tickled or pink about this horrible disease!!!!

take care

love n hugs

Carol xx

rachy7
Member

Re: Deterioration of this disease

I really wanted to see your piece but turned on too late at 8.30am !!!

Rachyxxx

jaynemh
Member

Re: Deterioration of this disease

Hi Debs
watched at 6.30 and again at 8.20 ( then had to dash into work so hence delay in replying) You were great - so succinct at getting point accross - well done - don't think BCC person came accross so strongly - not until the last statement did she say it was a good thing that KP had withdrawn - but you also looked georgeous and didn't notice any scarf shifting - my daughter ( who finds it v difficult to discuss things came into room and we had a good chat about it and the issues involved - so that was helpful, too - thanks Debs - our absent friends would have been very proud of you , too!

Diane - thank you so much for your reply and describing some of your liver probs - it is all so puzzling and i agree - maybe we do need a thread to work out whats a liver problem and whats other stuff - but your post very helpful to me .....just sending you all the best for tomorrow and results - funnily enough i went on holiday day after last scan and i agree I hope its all good news for you but whatever - need to try and enjoy holiday ----- thinking of you , jaynex

juliet66
Member

Re: Deterioration of this disease

Hear hear to what Geraldine has said.

Just watched ITV. Feel very emotional and very priviledged to know you.

Julie

Gerry69
Member

Re: Deterioration of this disease

Hi Debs - habe just seen you on TV - you were great well done and thank you.

Geraldine

dawnhc
Member

Re: Deterioration of this disease

I want to join in too Debs and say how clearly you put across your points and how lovely you looked. LOL The PINK suits you! I know when you are interviewed for stuff like this it is always hard to look back at it yourself. It never comes out as you expect, but that doesnt mean it isnt good!

Dawn

LesleyLP
Member

Re: Deterioration of this disease

Gaaah, I missed it!!! I'm really annoyed with myself - maybe it'll show up on BBC iPlayer later on. Sounds as though you did a brilliant job Debs, well done

Lesley xx

brightlight28
Member

Re: Deterioration of this disease

You put your points across clearly and succinctly. Well done.
Victoria x

Lenny
Member

Re: Deterioration of this disease

wonderful debs.... you were marvelous so proud of you,

lenny
xxxx

belinda
Member

Re: Deterioration of this disease

You were brilliant Debs..and you looked most glamourous too..fantastic that you got the whole questionning of the naming of the Tickled Pink campaign in so well and so powerfully..disappointed but not the least bit surprised with the BCC response from the BBC breakfast sofa. Love Belinda..x

diane1w
Member

Re: Deterioration of this disease

Hi Debs

Just watched you on the telly, you were great as normal, out our point across well - well done. I know you feel c**p just now Debs and hope you feel better soon, you looked really good on the telly, how did you pull that off is because you've been to the loo I wonder. If only all those millions of viewer know what we do eh

Well done Debs

Diane xx

diane1w
Member

Re: Deterioration of this disease

Hi Jayne

Sorry your not feeling too well, I would also suggest starting another thread on your liver problems as well - there is a lot of us out there and I think it merits it own onee.

Jayne I will be able to let you know more tomorrow as I have a just had a scan and am due for my results tomorrow. However I have had pain in my liver for months now and have needed constant steriods in order to keep the pain under control. I have tried 2 types of morphine and various painkillers that haven't worked at all the doctors have came to the conclusion that it is inflamation on my liver as steriods and nurofen are the only things that work which apparantly are anti inflamatory's. I can't take nurofen(sorry for the spelling!) because my platelets are too low but I have to say the steriods stop the pain but cause all sorts of other problems such as lack of sleep.

The last time I saw my onc I already had this problem, she had a really good feel of my liver - said she'd felt it worse, that my liver functions were fine and didn't seem too concerned did mentioned she was a wee but concerned to hear I was in a bit of pain but certainly didn't want to investigate it any further and didn't worry me about it. I said the same things that you are thinking that it was worrying me that some of the tumours were growing etc but it could also be down to the medication you are taking basically annoying you liver.

My rib above my liver is also sore, I have been told that there are a lot of nerves down there and just like we can all suffer from pain in our shoulder it could also be a nerve that goes to your rib and not your shoulder.

I will let you know how I get on tomorrow, however I am going on holiday on Thursday and getting an extra week off chemo so I have kind of got my mind prepared for no matter what I hear it is not going to ruin my holiday - I just hope I can pull that off. Look out for a new thread on my results I'll let you know.

Thanks

Diane

loopyjack
Member

Re: Deterioration of this disease

Hi Debs,
Looking forward to seeing and hearing you tomorrow and I am sure you won't have made a fool of yourself. As someone else has said you are our 'Superstar'. I wish I could offer the same kind words and support that you do but cannot always express myself as I would wish.
Hope you have a lovely few days with your friend and that the sun shines for you.

Lesley xx

BoneyL
Member

Re: Deterioration of this disease

Thank you so much for putting our views into the public arena. I'm so looking forward to seeing you on the telly - well done, you are one very special lady.

Linda
x

AnneS
Member

Re: Deterioration of this disease

Well done Debs. Can't wait to see it tomorrow - have got it to record the whole programme! So proud of what you're doing.
Take care, hugs xx

Lenny
Member

Re: Deterioration of this disease

well done debs a good days work... we are all so excited to see you in action,

lots of love

lenny
xxxx

jaynemh
Member

Re: Deterioration of this disease

yes - well done Debs - will be watchingtomorrow and enjoy your time with friend,... thanks Kay I am going for treatment on friday and will mention it to them.....jaynex

belinda
Member

Re: Deterioration of this disease

We promise we will NOT notice the moving scarf!
Well done!..xx

Kay123
Member

Re: Deterioration of this disease

Well done Debs - I'm sure you've done us proud. Have a wonderful time with your friend - hope the sun is shining for you in Cornwall as it is here in SUrrey.

Jayne - how are you doing? Still worried about you.

Kay xx

carmcg1
Member

Re: Deterioration of this disease

Im sure you didnt make a fool of yourself Debs, you are the forums wee superstar.

thanks for speaking up for all of us on here.

love

Carol xxx

debsincornwall
Member

Re: Deterioration of this disease

Well it is done and I hope I have not made a fool of myself. It is hard speaking to a hand so if my eyes look to wonder it is because I had to look at the camera mans hand and as he was also holding on to his tripod
he moved and so did my eyes. Plus my scarf moved so it is a bit Monty Phython.
I am now waiting for my friend to arrive Ian has gone to Newquay airport to pick her up.
Love Debsxxx

Kay123
Member

Re: Deterioration of this disease

Hi all

So sorry to hear you aren't feeling well, Jayne. It is so hard to know what is due to the cancer, what is a side effect and what is something else altogether. However knowing what I know about liver mets (and obviously I am no expert), I am concerned that what you are describing is indeed due to the cancer and the liver struggling -could what you describe as bloatedness be due to fluid collecting? Really don't want to alarm you (and sorry if I have) but would suggest you ring for some advice.

On a much happier note, I am really glad to hear that you have had a good day, Jane. When this sh*tty disease steals so much from us, it is hard to find any joy in what is left. And the more it has stolen, the harder it must be to do that. For me though the hope of finding some joy and laughter is what gets me through the darker moments.

I missed "poogate" Debs (been away on an absolutely fantastic Odyssey week - lots of laughter but also tears) but am glad you got relief (and joy!). And once again, good luck with the BBC - you are doing us all proud.

Kay x

jaynemh
Member

Re: Deterioration of this disease

Hi All
yes joy and anguish are good words Jane .....and sometimes it's hunt the joy......elusive little bugger at times ! but happy to hear you have pieced a bit together today - although youhad to look hard and put together - although shower sounds great and glad to see you are keeping up the gormless shopping ....... just taken more immodium .... so hopefully some relief for a few hours!

Thanks for replies everyone - in fact they have bought a little joy - after the last few days and pretending its all ok and not worried to daughter! Juliet - will not quote you but raise the question about other oncs ignoring the guidelines ...thanks Ripley - you have a good memory re my taxol.... apparently the new nice guidelines are only about progression so if you have ben taken off herceptain for another reason you can go back on- I do get heartburn , Ripley but this pain seems to be a bloated stomach with pain under ribcage??? ... are you worried about symptoms of lung mets ....when is your next scan?.....and I agree with you about BBC interview and the big POO - Debs this could put another spin on the interview - maybe slip it in at the end???? ... and glad you have glimmers of joy - I always try this time of year but find the impending darkness hard to get used to ........well hers to chasing a bit of joy - just so we can forget the anguish....for a few minutes!!!! love to all Jayne xx

debsincornwall
Member

Re: Deterioration of this disease

Hi,
yes I think I can relate to the joy factor as you all know mine this week has been able to poo. I am also quite excited about the change in the season, looking at my husband and seeing a relaxed smile on his face instead of fear. Knowing that my best friend is coming to visit for a few days and hoping that once she sees me she will be able to leave me and feel a little more confident that I will make it beyond Christmas. Maybe when we were healthy we just expected too much.
Really glad you are enjoying your new bathroom Jane and it is making life a little easier. Thinking of you and sending love.
Love Debsxxx

horace
Member

Re: Deterioration of this disease

Thank you Jane.I just got back from visiting a dear friendwho is terminally ill in hospital.Reading your post showed me that she may still have some happy times to come.