I too was diagnosed on 3 Jan - it looks like quite a few of us had an anxious wait over the Christmas period!
I was back to see my consultant yesterday and now have been booked in for a double mastectomy and lymph node removal on 18 January! Wow it's all happening so quickly. I will have to wait a further two weeks after my op to find out if it has spread and whether I will need chemo 😩 A very scary time!
I echo these sentiments, be kind to yourself,you are at the start of a long journey BUT you will win through. Its alot to take in and you may not hear it all at first. Let it digest, then be informed, before you make any decisions. I remember when i was first diagnosed it was a blur i didnt hear it all, so it didnt sink in, i also couldnt cry or react. Let things digest is the best way before you attack the next stage.
If i can give any words of encouragement do not give up,you will win this battle, Another suggestion, i wrote a diary and wrote each day how i was feeling,not matter how silly that sounds,it made sense. Then after i could read it back when i felt stronger. It really helped my journey.
Dont be afraid to ask questions not matter how small
do your research being informed is very wise.
but do know you are not alone, there are alot of us out here to help you on your journey
Claire and Alex,
This is without a doubt the hardest time but Tuesday when you have all the info you will feel more in control.
Don't get me wrong I still was full of anxiety and to a certain degree still am but think this is human nature.
I had a spinal and brain mri in december due to my m.s but as yet no word.
This too makes me jittery but I truly think its natural. Totally get what you mean about the new slimming world, and that again scares us as why we losing weight.!!! Crazy.
I am usually quite a chilled person but this has shook me to the core, however things do settle and we will get there. Take Care. xxxx Mary
I am also 49 and found my lump myself. It was 3.7cm (4.7cm when they got all of it out) - I kept asking myself how did I miss this lump until it got this big, I check myself all the time (as Mum had BC). But my lump was mobile and moved around, so the bugger kept moving away as I checked myself. If I slept on my side, I still couldn't feel it, it just disappeared.
But, I did find it and they have took it out, so I am lucky I was checking myself.
It's really horrible waiting at this time for results and I like everyone had convinced myself it had spread, especially when the consultant told me it was aggressive and so I had to have a CT scan (when no one else was having one) cause if it had spread it wasn't worth doing the mx. I was so hoping I could have a mx.
lots of hugs
Jules, Im so sorry , its the fear of fears: I feel for us women , and so frightening , hard to tell anyone because its real then...... I find it hard looking my family and freinds in the eyes, Its like my pain and fear is mirrored in them... and I just ball like a little girl...
Also the unbelievable shock of it ! one day walking around with stuff like "whats for tea" and "shall I put a wash on", i mean I got so angry at a speeding ticket i got , now I mean GOD I hope I get loads more and live to drive all over (ps, only doing 55 in a 50 .. on a dual bit ) .... still annoyed with myself actually.... I digress.
Jo .... well done hun , Ace .. lets try and use it.
I was diagnosed on Thursday (5th). I then waited 24 hours before telling my sister and her OH. It was very hard but I got through it. I had to wait 24 hours so I could let my brain take the information in.
This morning I have told my Mum. Had to tell her on the phone as she is 4 hours away. I coped better telling her (maybe 'cos I could see her face!) She was very upset but I now feel more able to tell extended family and work.
I have my MRI scan on Tuesday and then the following week I should know my plan. I have to have 6 chemo sessions. Does anyone know if they are once a month or once evry 3 weeks. I got a bit confused with the nurse as I was in a bit of shock.
Morning girls, hope you're feeling ok today.
Zena - I'm er+ too, what's that about cutting out dairy? Does it help? I've been eating loads healthier too lately! Every little helps!
I love hearing positive stories about people having babies after all this rubbish! Things like that just keep me going.
I've just got my Oncology appt through for next Thursday, I presume to discuss when I'll start chemo?! Eek! xx
Sorry Zena, that made me chuckle, just got a picture in my mind of your poor client sat looking horrified.
Doing your degree sounds like a great distraction without pressure of work.
I know that hearing others experiences is helpful so thought I'd just tell you mine briefly. I'm 41 (and 11 months lol) no kids but 2 horses that have been my life saver, they don;t judge or worry when you cry.......I've had my op, I had a 5 week wait from diagnosisi to op, which was hard! I'm now waiting for an oncologist appointment and still waiting my HER2 result although I know I'm ER+ (I had a 15mm ductal carcinomer with some DCIS and LCIS)......Ive found the whole experience long, I just seemed to constantly be waiting. I stayed at work up to op day though. I work as reception/admin in a chidlrens centre and the girls that I work with are amazing and were soo supportive, it was great to have the distraction as I would have gone stir crazy sitting at home......now I'm back at work again after 3 weeks off, I'm finding it very tiring, which I wasn't prepared for.......
My advice would be to be kind to yourself, don;t feel that you HAVE to do things because you feel that you should....I was ready to throttle the next person who said "stay positive!" What the heck did they think I was trying to do!! But you have to smile and nod....I then avoided those people lol!
Very sorry that you find yourselves here but don't panic, there are lots of us that have been just where you are now. I have been through surgery, chemo and radiation I also have to have Heceptin until July. You will get through this and we will help you but there are conditions. The conditions are that you will help those coming after you that are shocked, tearful and full of anxiety. First of all it is perfectly natural to be in a highly emotional state and to worry about yourself and your children.
You will soon be given a treatment plan and when you know what lies in front of you things get easier. Come here often and ask whatever you like. Express your feelings and get support from others who know what you are going through. Family and friends that have not actually had this diagnosis mean well but they can say stuff that makes you want to scream. Here we will all do our best to help you cope xxx
firstly I am so sorry to hear the news, but you have definitely come to the right place. I was officially diagnosed on Tuesday this week, after having scans and biopsies before Christmas. I was told then that it was 'suspicious' and '90% sure' it's cancer. But nothing actually prepares for when the consultant is telling you how much chemo you'll need!
Its a terrifying time, Im 33 with no children, so I'm being transferred straight to a fertility team to discuss freezing my eggs! My life has just changed dramatically in the space of 3 weeks. I have moments where I feel like panicking, then just feel accepting of it and ready to fight!
We are all here for you, keep us posted, you'll find some amazing support. I only signed up here yesterday and it's already a lifeline! Much love xx