68528members
360452posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Diagnosed 29th - Hello Ladies.

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Dear Louise

Oh great to finally get to the last one. It is a great feeling isn't it? Hope the rads go well for you - and try to take it a bit easy with work while you are doing it. Traveling every day is the hardest part as you say. Keep focused on that holiday! Have you managed to fit anything in before Malta? We are looking at Corfu in September when herceptin will be over.

My god - it has stopped raining! Might go and do some weeding....

Loads of love to all

Dilys
xxxxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello Jules, Ruby and all

It is my last chemo this afternoon WAY HEY I am so glad and am truly grateful that I have had no delays with infections and have gone straight through. So in about a week I can hopefully start to think "the only way is up". Rads start on 16th July.

Hope all is going well for you and that the work situation is a bit easier Ruby.

love to all,

Louise x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi everybody

I haven't popped onto this thread for a while but just wanted to say hello.

Louise fab news that chemo is finished - how are you doing now?

Rachy, Juls, Maddy, Shonagh and lovely Dilys hello to you all and hope you're doing well.

love to you all

Ruby xxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi all,
just a quick one, louise good luck and fantastic news that chemo is nearly over,hope its bearable- it will be being the last I can tell you xxxxx

j

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello everyone

Nice to catch up on news from you all. I have my final chemo in about 10 days TAN TARA can’t wait to get the thing over with. I saw onc to get the rads info and am waiting for the planning date to come through. Whilst I take heart from what Dilys says about rads, I have a lot of travelling to do and that’s the bit I am dreading, I have a few good people who will come along too. It will also be hard for me to take such a “block” of time off work; throughout chemo I have worked on and off, as you know but it is impossible for me to get from the hospital to work in the same day and do anything productive so I will do what work from home that I am able. Oh ell, the most important thing ios to get the treatment and get my health back.

Dilys I know what you mean about weaning yourself off the site. We are going to a cancer support group this afternoon, they offer alternative therapies and counselling and relaxation classes. I said to OH well I hope it will be helpful and if so I will continue to go whilst I feel the need but unless I am unlucky enough to develop secondaries then it is important to move my life forward from this illness so I wouldn’t go long term. When is your mammogram?

Rachy My finger is all healed up and so is my foot, thanks for asking. When is your xeloda? Hope you’re having some good days in between.

Julie It is good that life is moving forward for you, hope your check up went well, I can’t wait to finish like you.

Ruby Did you get sorted re work? Hope you are well at the moment

Maddy Good to hear from you, glad Ben continues to be such a joy. Evie is almost 5 months now, she is very determined and is rolling over to get around. We have a grandson due in about 3 weeks so we have had an expensive few months. Sorry to hear about the continuing delay in splint-fitting. Honestly, they can throw mega expensive treatments at us for BC but a more straightforward thing like a splint (which still affects your everyday life considerably) seems elusive! When are you moving to Spain?

Shonagh Wow I am not surprised you are tired after your return to work, when you think about the contrast with being off for an extended period (not that you were off as you did your stationery business) Your London break will be a fantastic treat. Whilst we have the Malta break booked much later in the year, we are dying to get away somewhere before that but have to work it round rads and also when my Mum can come and supervise the kids. The week we were thinking of, she forgot she has said she would come- and now is having a new bathroom fitted lol. I have been much more sleepy with the latest chemo and I spose the effects must be cumulative in that respect. I even passed up the chance of a Friday night out to sit and nod on the sofa, not like me at all. How’s the garden coming along? I watched a programme last night called The 1940s house, it was from about 8 years ago and they made a family live for two months in wartime conditions and there was a lot about digging for victory, I saw a preview of next week’s where the carrots come out miniscule, that’s what happened when I grew veg before so it put me off!

Hope everyone has a good Bank Hol weekend and gets some sun, I know we are luckier with the forecast up here.

Love to all

Louise x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi there ladies,

Well I've discovered the answer to sleepless nights, get back to full time work, I am shattered and looking forward to a long bank holiday weekend. I dont care if it rains or not as long as I get an extra day off!!! Lol!! Luckily my job isnt particularly stressfull and these days I just dont seem to have an annoyed by trivia button to be pressed anymore.

Dilys...Like you I am not here as often, mainly because I am am shattered after work and just crawl into bed.Glad to hear you are feeling ok.
Louise..funny you should dsay that about the porch, although I thought it was more the Beverly Hillbillies. I cant complain though as its keeping Phil busy.
Maddy...Lovely to hear from you and so glad Benjamin is thriving. Our friends who are due 14th June came for dinneron Sunday and brought their 3D scan with them. It was amazing, almost like we have met the baby before it arrives.

My oncologist appointment went well, just the usual grope and are you ok questions, they all seem really please with everything and the pesky cyst seems to be behaving itself. We have booked a long theate break in London a the end of June for the big 40 so am really looking forward to that. Tried to get an appointment or Rigby and Peller for a made to measure none wired bra but they only do fittings mon-wed so I suppose it will just have to wait. I just fancied a bra with odd cup sizes that fitted without having to be filled with something else. But never mind there are more imortant things to worry about that wonky boobs.

I hope everyone is feeling well and taking care of yourselves. Love and Luck to everyone. Shonagh xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi All

Just checking in. I am fine and trying to wean myself off this site! But like you Maddy, still very concerned about Dyzee and her friend Lynne002 who has also vanished. Benjamin sounds just wonderful and about the same age as a good friend's grandson, also called Benjamin

Shonagh - well done being back at work! I just spent an afternoon with two ex colleagues and am so very glad not to have the pressure any more.

Love to all

Dilys
xxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi there BC Babes,
Sorry I haven't been around for a chat for some time - it's good to see that you are all still keeping this thread going and that your treatments are continuing well.

I have been working quite a lot at the museums lately so have not had a lot of time for surfing the internet.

Benjamin is now 5months old - how time flies. He's 18lbs, enjoys sitting in his "Bumbo" (whatever happened to supporting them on pillows?) and is "talking scribble". He's also slowly taking pureed vegetables and doesn't seem to spit out too much ! He has visited several times and actually slept in the cot - grandpa was very proud that all his hard work has not gone unrewarded.

Louise - how goes it as a grandma.

Still not got a splint ! The physio referred me back to my gp as she didn't feel she was helping - I've now got an appointment at the hospital with Orthotics the day before we go on our summer holiday - I only plan to wear it during the night to avoid getting a strange suntan ! It's only been nearly 12 weeks since I was referred !

I have tried to contact Dyzee several times via email but no reply - it may be that she's just exhausted by chemo - but it doesn't bode well that she's so quiet across the web. I did have a mobile number for her on my computer but seem to have lost it - I'm searching hurriedly.

Yes - the weather has been better more recently and we have been doing longer walks and gardening - but I can't wait till we move to Spain to get more of the same !!!!

Take care all
Love Maddy xxxxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello all,

Well I managed to get through my first full week at work but by Saturday evening I was absoluely shattered. One bonus is that I had a really good nights sleep.
We have booked a long weekend at the end of June for my 40th. We are off to London to watch Chicago and have a champagne flight on the London Eye. My oncology appointment went well, just more lying around with my bits out, he seemed happy with everything so its just the tamoxifen and zoladex now until the 23rd June when I have my next check up. Work is going well shame my memory is still shot but never mind.

Louise...really sorry to hear your chemo number 5 has laid you so low and the finger accident sounds nasty. Did you get it sorted.
Dilys...so glad the deflation went well. Is it all a bit more comfortable
Julie...Wow back at work already well done. I've not been too bad on the tamoxifen, I've managed not to put too much weight back on just a couple of pounds but it seems to have levelled off now. I am going to get my stepper back out next week and try to get another half stone off before the big 40 at the end of |June.
Rachy.. Gosh didnt realise you were half way through chemo already, Time has just flown for me since I went back to work, I just hope its gone as quickly for you too.
Ruby..How is the work meetings going. I hope it all went well and the outcome was what you were wishing for.
Hi too to Maddy and Trish hope you are ok and making the most of the improved weather.

Well got to go and get to grips with some ironing, I am on a late shift this week so get all morning to pootle about.
Love to all. Shonagh xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hope your finger has recovered now, Louise. it sounded nasty !!

Rach xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

whoops

happy days everyone,Im fighting through feeling exhausted at the mo, returning to work slowly full time - between now and mid june, but couldnt move today, where are the steroids!!!!!!!!!!!!! no seriously glad to be not taking all that junk, and just want my natural body back..... though i believe tamoxifen could well add to it in weight. hhhhhhhhhhmmmmmmmmmmm.
julie xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi everyone,
Its good to read that you are all nearing another milestone.

Ive got my Tamoxifen in hand as we speak, start today. 2ys of his then 3yrs of Aromasin. Some nipple recon in Septmber - perhaps, Dylis where do you buy stick on ones from????

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Well done on getting your last epi done, Rachy! I have done EC number 5 now and struggling with the usual BLEURGH. I trapped my finger in the wardrobe door last night and this morning it is swollen and got yellow pus all down one side of the nail, so although it sounds stupid, I am off to the GP to nip it in the bud (as opposed to the wardrobe door, lol)

Hope you soon get over the worst epi effects.

Hello to everyone else, how are you doing Ruby? Any more news re work?

Louise x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi ladies all,
Had my last epi yesterday. Hooray !!!! then xeloda. This time next week I will feel ok again I hope. Yes, it is a lovely day today. I have had my schedule through for rads for Sept-oct so things are moving along nicely. I hope everyone is feeling well today.

Love to everyone

Rachy xxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi ladies

Just dropping in to say a quick hello. What a lovely day it is again today please may it continue.

Julie, it's great you've got through the chemo. It's a good feeling knowing that you won't have to have it again.

Louise wishing you the best of luck for this afternoon.

Shonagh, Rachy, Maryfrod hope you are all going strong.

Love to all you wonderful lot.

Ruby xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi All

I am deflated! It feels much easier and now moves and is a bit squishy instead of being rock hard as it was. It is still sitting very high and doesn't look at all like a breast to me when undressed. I think perhaps it may take time to droop a bit. But clothed it is fine. I have to see the surgeon again on 1 September so we can decide if it is ok, needs a bit more inflation, or more deflation. He seemed pleased with it though. We are still talking about lifting the other one, and this time he mentioned creating a new nipple! I think not....... I can get a stick on one for those special occasions......

I also have to have another mammogram on the other breast. The thought fills me with horror. Can do this once but the very thought of doing it again is awful. Mind you, surely nothing could have survived that chemotherapy? And the herceptin (on again for that on Thursday).

Isn't it a lovely day again? This weather is so great it really cheers you up. I have been planting gently in my yard this morning - flowers rather than veg in my case. That shed sounds brilliant Shonagh - probably bigger than my house. You enjoy it, and don't overdo it at work.

Good luck with the chemo this afternoon Louise, your are early there, and well done finishing Julie. It is a great feeling isn't it?

Much love

Dilys
xxxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello all

How did yesterday go, Dilys? Hope you feel better for it!

Hi Julie, well done you, I am looking forward to chemo being over, off for number 5 this aft (phew) and can see the light at the end of the tunnel

Shonagh your shed sounds like the house the Waltons used to live in, do you remember, with a porch to sit on? Good luck with the gardening. All our outside jobs are finished now. I did try to grow my own veg once but I failed abysmally, now I am concentrating on finding ways to eat more veg as since I have been doing chemo I have gone off them, so trying to sneak them into bolognese and sauces etc and to up my fruit intake to compensate. I had some lovely rhubarb yesterday so I hope yours turns out Ok.

Love to all

Louise x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

hi dylis hope you are more comfortable since your slight deflation!
thinking of you all,
having tamoxifen appointment and post chemo check up on the 19th may, i feel so much better psychologically now chemo is over.
julie xxxxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi there,

Well another week over and the last of my short weeks so back to the real world on Monday with a week of early shifts and Saturday too. The good thing is I finish at 1pm so when the weather is nice its great to finish at lunch time and get in the garden al afternoon.
I invested in a couple of chillows this week as the hot flushes were becoming a bit uncomfortable. I am having trouble getting used to the one in my pillow but it is amazing and use it all the time at work on the back of my chair.

Louise...Glad to hear you are coping with your chemo and treating yourself too. The shed is now in place and I spent yesterday re painting some wooden recliners we had that were past their best but now they have has a couple of coats of oak stain they look much better and fit on the decking porch on the front of the shed perfectly.
Phil took Thursday and Friday off so he could tinker with the electrics so it now has power, lighting and an alarm and even led lights on the edge of the deck too. I dont know you leave them at home with the switch card and they just cant help the B&Q fix!!!

Dilys...I certainly will let you know if I see Dyzee. She just seems to have stopped posting on all her threads. I hope you deflation goes well tomorrow and you feel a bit more comfortable.

Well off to the garden making the most of the sunshine, I've got my factor 50 (I'm very fair skinned) a magazine and a big jug of water. I am going to sow my salad, radish and beetroot seeds too. The rhubarb is coming along nicely. I've got an appointment with my oncologist tomorrow, not sure what for to be honest. I seem to have an appoinment every 6 weeks with either the oncologist or the breast clinic team. At least I seem to be being well looked after.

Hello to everyone else too, hope you are all feeling well enough to make the most of this weather. Love to all. Shonagh xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello Shonagh, Dilys and all

Great that you had such a relaxing holiday Shonagh, I know you were really ready for it and don’t forget that it will take time to get over the fatigue of rads. I used to live in Scarborough and my eldest was born there. We are hoping to go to Dublin between chemo and rads and I have already told Colin that I am going to do as little as possible, he is quite glad of this as usually I tend to be a bit hyper and get easily bored, whereas nowadays staring into space is a very interesting thing to do, lol.

Dilys it sounds as if you are starting to look at how you want your life to be, I have seen other people do this but I haven’t had the inspiration to do it myself. You will go back to work as and when you’re ready, as you say it is nice to spend time doing other things and I must say I will find it hard to pick up the pieces of my life again, I think I did too much and it is time to slow down.

This chemo (number 4) was much easier to cope with so I will see how I go for number 5. I am very tired these days, not surprisingly. My eyes feel glued together in the mornings! I am working two days this week and also am seeing the counsellor again as well as having an acupressure massage AAAH,

Hope everyone else is Ok, Rachy, Maddy, Ruby, Julie. Trish I have lost track of the date of your op, wishing you all the best

Love to all

Louise

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi Shonagh!

So lovely to hear from you. No news from Dyzee, or from Lynne for that matter. I remain worried about both of them. But lovely to hear you are ok. So glad you had a good time in Yorkshire. Watching films in the bath is under par???? Sounds great to me. Good luck going back to work full time. I am starting to look for a new part time job but am still not hair confident. Thought today might be the day but no - covered up again. Vanity eh? At 56???? Must be nuts.

Otherwise I am fine. Getting the yard and the house in order. And enjoying life generally. Social life getting better and better. It had taken me all this time to realise that I HAVE time for friends now. All those years working were great but there are other things to do.

Over-inflated implant gets let down a bit on 12 May. Yippee! How are you Shonagh my love?

Dilys
xxxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello Ladies,

Just to say hello and pass on best wishes to everyone,

Ruby.. so glad to hear from you and hope you are feeling a bit better now.
Dilys...I know what you mean about Dyzee, i hope she is ok too.
Louise and Rachy hope your next lots of chemo went ok and on schedule.
Maddy,Trish and all hope you are all doing well too and the improvement in the weather has happened in your necks of the woods too.

Yorkshire was lovely, the cabin was a bit under par compared to some of the ones we have stayed in in the past but we had a lovely time anyway. The jaccuzzi bath was enormous so we were incredibly lazy and could watch films while we were in the bath!!! how self indulgent was that. We went to Scarborough for the day on our wedding anniversary and re visited a fish restaurant we went to over 10 years ago and had a lovely meal. The rest of the time we just went for woodland walks and were very lazy with 2 hour hot tub sessions and even managed to get some sunbathing and lots of reading. Just what the doctor ordered before I go back to work full time. I've got another short week this week due to the bank holiday and then its back to full time!!!!

Hope you are all being good to yourselves. Love Shonagh xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi Ruby
Have replied
Thnks

Keep Strong

Mary
x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Oh Shonagh I am so worried about Dyzee! She is such a lovely lady. If you ever track her down send her my best love. Her friend Lynne seems to have vanished too and it is very concerning.

Have a great time in Yorkshire!

Much love

Dilys
xxxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

ah thanks so much Mary. I just replied to you on the other "Terrified" thread. That's very sweet of you.
Hope all is ok with you and please do read what I've said on the other thread.

Very best wishes

Ruby xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi Ruby
Been following this thread,hope you don't mind, but wanted to wish you well

Mary
x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello all

Just a quickie for now. I'm back and doing fine. Thanks for all your lovely messages. Dilys was just such a star to come all that way to see me. Dilys it really was so lovely of you and your hubbie. Hope you aren't too tired now after all of that!

Shonagh hope I haven't missed you. Hope you have a fab weekend - it sounds amazing and happy anniversay.

Louise hope you enjoyed your special lunch.

Rachy good luck for your chemo on Monday. I'm impressed to hear about your tai chi skills.

Wishing everybody a lovely weekend

Ruby xxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

p.s scrap that last info about Dyzee, its just popped up again and it was an old post just bumped up due to a recent posting. Sorry. S x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello Ladies,

Just popping in to say hello and to say well done to Julie for getting this far and thank you for being such an inspiration to me with your determination to carry on with your life regardless of the chemo etc. May may not realise it but you and Louise still working through chemo gave me the added courage I needed to get back to work and although I still have moments when I suddenly think about the last 4 months(usually when I'm poring over speadsheets!!!) getting back to a routine other than This Morning, Loose Women and Dickinsons Real Deal has definately helped me. So a big thank you and please be good to yourself, you deserve it.

Dilys glad to hear your herceptin went ahead but sorry to hear it was so painful, I am a real mardy pants with needles and cringe every time I have my zoladex so goodness knows how you ladies manage especially after chemo. Please pass on my best to Ruby, how lovely for you two that you can meet up even though the circumstances are not what either of you would wish for.

Rachy I used to do Tai Chi we did the long form but the classes clashed with my shift patterns so it went by the wayside, I still do the section I can remember when I am in my kitchen when I'm waiting for the kettle, I get some off looks from the people passing by on canal barges but hey ho who cares!!!

I dont know if anyone has seen the thread but I saw a mesage from someone the other day saying they had had a private message from Dyzee but its gone now I hit it purely by accident. Just in case you are reading this hope you are doing well.

Well I'm off to pack now, going to Yorkshire in a log cabin with hot tub and massive jaccuzzi bath for our wedding anniversary. My rads skin is still a pit pink as its new skin but I managed to wear a bra for the first time this week so am going to make the most of it. Hope you all have a good weekend and week ahead.
Love to Trish and Maddy too. See you in a week or less if we have broadband at the cabin as Phil is taking his laptop to learn dreamweaver to update our card business website. Love Shonagh xxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Oh please give my love to Ruby if you are texting her, Dilys. I bet she was delighted that you visited, hope she gets out today.Sorry to hear that herceptin was a bit ouch (my veins are getting worse with the chemo I must say), just think that's another one over for you.

Tai Chi, I am impressed Rachy. I am doing oil painting and singing very loud hymns, have just discovered a little tin of dressed crab my Mum brought me for a treat, guess what I will be having for lunch? yum

love to all

Louise

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi Dilys,
that was such a treasure of you to visit Ruby , you are lovely.
Julie x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi All

Went to see dear Ruby in hospital today and she is fine. Looking and being as gorgeous as ever. It was so lovely to see her and see how well she is looking. I for one had been worrying about her. She is hoping to be out again and back at home tomorrow. But the hospital seemed great. Met her mum and lovely little niece. It was brilliant! Ruby was asking after you lot!

I am ok too. Had a bit of a day out really. Herceptin this morning and another bad vein day. Ouch. But through it now. Then straight on to see Ruby. Am tired now but just fine. Off to bed....

Love to all

Dilys
xxxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

I have started tai chi classes and this has sorted my head out alot recently.

Rachy, the chilled out one

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Nice to hear from you Rachy, well done on your progress, good luck for Monday!

Louise x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi all, 2 epi down 2 more to go !!! Next one on Monday. Cannot wait until they are finished and go to tablets. I am feeling ok at the moment as not working. I hope everyone is ok and good luck to everyone having surgery, chemo or awaiting results.
Rach xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello to everyone

Nice to catch up with the news. As Julie says, I think different members of the group will move on and visit the site less so I haven’t logged on to this thread as often. Wow Julie your last one,well done and good lucky although I am not sure about the 4.3o am stuff! I can’t wait for my last one, had my fourth yesterday, took longer for it to go in so I felt pretty sicky last night but Ok today and am going to spread out my steroids more in the hope of alleviating the “crash”

Ruby great news re your support at work and hope you get a result! How’s the Herceptin going?

Tricia when is your op? Sorry to hear that the diagnosis was worse than you had hoped, but you will get there. We are all living proof. The wedding party was good and my OH went to the christening with the boys and not me, but my stepdaughter came over last weekend and brought the gorgeous baby and the christening video.

Dilys hope you are having some good days now your treatment plan has eased up a bit, how is the inflation? Not long till 12th now!

Shonagh Glad the return to work hasn’t been too bad, I imagine it is a bit of anti climax to get back to “normal” and I guess normal will never feel the same again. I only work in week 3 of each cycle and then only go to the office two or three times and do the rest from home. As my treatment plan is so long then it helps me just to stay in touch and helps my staff to know I have not disappeared. Happy Anniversary and why are you buying Phil an extra gift? Isn’t the shed enough? Lol. Have a lovely Yorkshire holiday when it comes

Love to everyone on this thread or just reading and following it from the sidelines

Louise x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi sweeties,
Im fast approaching the last chemo!!!!!!!!!!!!! neuts 0.8 today, repeat thursday morning prior to chemo 6 if ok. fingers and everything else crossed.
I feel ok, considering Im such a busy bee,OH threatened to put reins on me recently!
We went out ar 4.30am on sat for a 'dawn chorus 'meet in our local woods with otherlike mad minded people, it was a lovely thing to do, having hot porridge and getting back into a warm bed a t 6.00am was much lovelier thing to do tho!!!!!!
Ive been succesful in a critical illness claim- yahooooo, so ,well chuffed, that will reduce my mortgage considerably ....very chuffed.
Had a chat with oncs today about Tamoxifen etc.... 5 yr plan, I wonder if there is an alternative, or if anyone has said no to it, all depends on the statistics and risk factors doesnt it really.I'll start a thread on this one I think.
Ive abandoned my wig, and sold it on an auction site we all know.Will invest in nice scarves for the summer instead, I was calling it squirrel in the end- not good.
Im visiting the site less and less these days, so I will say good luck and eventual good health , you are all an inspiration and thankyou for sharing and listening and understanding and laughing!.

LOL Julie xxxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi ladies

Hope you are all doing well.

Weetricia really sorry you gotta go back for more surgery. I had one lymph node involved, grade 3, 4cm tumour but I strongly believe that my treatment has sorted it all out!

Re my work, I have got really good support. Waiting now to hear back from employers to see what the outcome of the meeting is. You go out and have a lovely evening tomorrow and yes let's hope for good weather.

Shonagh it's good to hear that you have no news - in a funny kind of way though!

Hi Louise, Dilys, Maddy, Rachy - can't keep track of everybody anymore! Hope you're all ok.

lots of love
Ruby xxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi Ladies,

Shonagh- It's good to hear that you're still working away.I'm still in that strange place where I haven't been off long enough to have forgotten about it, but worried that it may forget me as we're going through a change in the staffing structure.What crappy timing on my part to be off during all the consultations and so on! I thought I'd be back next week whilst awaiting my rads timetable.Unfortunately I got biopsy results.Grade 2, 2.6cm and 2 lymph nodes affected.I have to go in for full axillary clearance and will now be having chemo.My wounds are just beginning to feel Ok and I don't look forward to the re-opening.Yeugh! I took a couple of boxes of chocolates up to the ward on Tuesday when I got my results(hubby forgot to bring them when he was collecting me last week!).I've asked the staff if this means I'll get preferential treatment and a room with a view.Well, I can but hope!

Louise- How was your wedding and christening? I've already planned a wee bit "Me Time" as well.My friend who went through this 3 years ago gave me a pile of DVD's to watch while everyone else is at work/school/uni. My sister has a pile of books.I've said I'm not fussy,I'll read anything at all just now.I keep forgetting that I'm supposed to be taking it easy and can't stop doing the washing and ironing as the boys and hubby are hopeless. However, I'm not doing too much as my sore underarm prevents that.

Ruby- I hope your bloods are OK.With regard to your work, remember that Employment Law should prevent your employers from treating you badly.Just stick in there! I hope you've got good representation.

Rachy-How's the chemo going? I'm not looking forward to that.

Maddy- Any more thoughts on your reconstruction? I had a(crazy) mate who bought a water bra for £7/£8 at Primark a couple of years ago.She loved it as she had never had any boobs to speak of.the rest of the gang were always waiting for her to spring a leak.She used to tell folk she'd had a boob job.Surprisingly enough,she actually looked pretty good in it.

Dilys-I might need some assistance from you re turbans etc.I have a couple of really nice hats, so no one will be surprised to see me in new headgear, but I want something that won't blow off in the wind if I lose my hair.My dad lost very little hair when he had chemo, so hopefully I've inherited the strong hair genes!

I was at my hubby's mate's Dad's funeral today.He had been ill for several years, so it really was a blessing.Surprisingly I actually enjoyed the day.A few good mates were there and we had a lovely meal and a gab.I also felt incredibly young as there were loads of folk over 70 (probably nearer 80 for the most part!).

Going out tomorrow for a drink and hope we have a sunny weekend.(even if it is cold).Have a fab weekend everyone.

Tricia
XXX

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello Ladies,

Just thought I would pop in to say hello, I have been reading everyones posts but now I am back to work I dont have any news really, just the same old same old pushing paper from one end of the office to the other. I cant believe I have been back at work for 3 weeks already, I'm really glad I'm not in full weeks yet, the early starts and late finishes are tough so I am really greatful for my extra days off.

Louise...so sorry to hear you were feeling yuk and really glad to hear you plan on being good to yourself in the time after number 4 (is it next week?) I see you on other threads being lovely to people and advising them to take it easy and then theres you working and trying to carry on as normal(pot and kettle come to mind LOL!! ) Hope the wedding party went well and you had a lovely time.
Julie...are your bloods behaving and are you on target for number 6?? Hope everything goes to plan.
Ruby..really pleasedyou got your next herceptin. How did the grievance meeting go, well I hope.
Dilys...did you get to see the marathon, I have a friend who ran it and managed it in 4hrs 18mins and 1 second. I was so proud of him and even managed to spot him on the views of the finish lines on the interactive thing on freeview on the BBC. Hope you arent feeling too uncomfortable, is it about 2 more weeks before they take it down a size. I bet you cant wait.
Maddy, Tricia and Rachy Just to say hello and hope you are doing well too and looking forward to the weekend as much as I am.

Well got to go know. I have got orders of service to make before bed time, although I can have a bit of a lie in tomorrow but must get out of my pit and head off to Northwich to get Phil an anniversary present for next while we are away. Its our 4 year anniversary which is flowers or fruit neither of which he would appreciate if I got them so got to get my thinking hat on and pray for inspiration. I want to get hime something special and to say thank youfor being such a star throughout this whole thing. Any ideas!!!

Be good to yourselves girls and hope you are getting some of this sunshine too. Love Shonagh xx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Oh Ruby that's good news (think our posts crossed) and good luck for the meeting on Tuesday!

Louiise x

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi everyone

How are we all on this lovely Saturday morning? When I feel Ok again (ie now) I find it really hard to remember how truly dreadful I felt during those terrible few post-chemo days (and that I have to do it all again another three times, boo hoo) Anyway I have a PLAN. I am getting together a kit of stuff ie painting by numbers, strong aromatherapy oils, Reiki type music, singalong music etc and for those few days I am going to do nothing I would normally do, I am going to shut myself in a self indulgent bubble and see if I get through better that way.

We are off to a wedding party this evening. It is Evie Rose’s christening tomorrow, OH and the boys are going but I am keeping my bald head at home. We were out for a meal last night which was gorgeous.

Dilys thank you for your kind words of encouragement. Will you be viewing the Marathon tomorrow? Is it anywhere near you or closer to the centre?

Shonagh It must be a real culture shock getting back to work. I know what you mean about trying not to talk about it all the time, very difficult when it is on your mind so much, I guess I tend to ask an inane question of someone and let them go on about their “thing” for a while, mind you I took it a bit far the other day and there was a 50 min convo re her work. Good luck with the “shed” or should I say, second home? I am working next week but only going into the office three times, the rest from home. Am also seeing the counsellor again as it was very helpful last time.

Maddy Hi there, don’t worry about a change of mind, maybe that is why they sometimes leave it a while, yeah a pity he can’t just do a matching WLE, haha. Mine are not dissimilar in size, the bra cup is just slightly baggy on the affected one. Hope Benjamin has settled down after his teething, we once went away on a much anticipated seaside weekend, my youngest cut 3 teeth in the course of the 36 hours and made life hell for everyone else in the boarding house, not to mention our holiday. Mind you, when you have toothache as an adult you can understand why they scream so much.

Tricia How you feeling? Hope you are letting yourself have enough rest to heal (nag nag) Will you have to wait for another set of results now? The waiting is the worst aspect of all this, I think.

Ruby Did your Herceptin go ahead? Hope it was straightforward this time.

Rachy and Julie Hope today is a good day

Love to all

Louise

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello all

Can't remember if I posted to let you know that I saw the oncologist this week and he suggested that I get a second opinion at another hospital re my bloods and Herceptin etc so end result is I'm going to see somebody at the Royal Free Hospital. In the meantime, the injection brought my white blood count up to an acceptable level so I'm allowed Herceptin on Wednesday - yipee!

Re work, I've got a grievance meeting on Tuesday so a bit nervous about that but am keeping myself very busy in the meantime. Rachy I think you may need to accept that it is really hard to work whilst on chemo. It certainly didn't work for me as I kept ending up in hospital. In fact, I've had 5 hospital admissions in less than a year which is frightening considering I've never been admitted for anything before this.

Weetricia good to hear you are back and doing ok. Louise hope you aren't feeling too bad.

Shonagh you've really been busy which is good but please don't over do it. I'm sure people at work are not fed up with you and you most likely are just being very sensitive which is understandable. It's also quite natural for what's happened to you (us) to come up in conversation after all it's a bit part of our lives and will be for a long time.

Love to you all

Ruby xxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi all,
Working is not really panning out on chemo but if I feel ok i go in and if not at stay at home. it does help that i work down the road from where I live. I may carry on working but I will see how i feel. if it is too mcuh I will stop.

Rach

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello all,
I spent ages yesterday on a post and clicked on the wrong bit andlost it all, got in a strop and decided to post today when I wasnt fuming with myself DOH!!!! so here I am.Must remember to copy as I go along.
Gosh I cant believe its been 5 days since I was here. Its been a wierd few days. I have been on late shifts this week from 1pm to 9pm so havent been getting home from work until past 10pm as Phil and I are lift sharing. He works at Manchester Airport so I have to go past it on my way to work so have decided to lift share on late shifts...saving the planet and all that.
Work has been fine but I am glad I am off today and yesterday. I had a bit of a wierd day on Monday, I share a desk with the person on the opposite shift and we have a little routine but there is a new girl who started just before i went off on the sick and she needed to use a phone so I got moved to another desk. I know it sounds really petty but it really unsettled me. I am really struggling with my memory so a change of desk this early on really threw me. I found myself getting really upset and almost on the verge of tears. I settled down on Tuesday and Wednesday and was ok but do feel people are fed up with me already or perhaps I'm boring myself but I'm finding it hard not talking about the last 3 months (not all the time but it does pop up quite often as its all I've done in the last 3 months) so I am trying hard not to talk about it too much. Had a lovely lazy day yesterday and walked over to big sisters house today and was treated to an unexpected lunch so am feeling much chirpier today after a good old gossip and a brisk walk even though it was in the rain.

Well enough about me.

Dilys...I recorded the torch trip and was most dischuffed they didnt show much of the crowds, I kept an eye out but couldnt keep up with the crowd due to the drama surrounding the torch. Poor Conny Huck (Spelling??). How exciting to be that close to the 2012 games area the opening and closing fireworks will be spectacular from where you are.

Maddy...I cant believe you still havent got your splint but well done you for deciding to change your mind it doesnt matter what you decide as long as you are happy with it. What you have said has certainly given me some food for thought although I have thoughta few time I'm not sure if I want any more ops, I will have to have the oopherectomy within the next two years and feel like I just want leaving alone for a bit if you know what I mean. Has Bouncing Benjamin test driven his seat yet?

Tricia...Glad to here your spirits are being kept up by loved ones after your op and you arent feeling too uncomfortable. Your description of you hospital stay had me in stitches (excuse the term). Hope you managed your lazy TV day.

Louise...well the shed(!!!!) has been chosen and the contract was signed and posted back today. Expected delivery and completion 6th May which is perfect timing because we will be back from our trip to your neck of the woods by then. The shed company are quite excited as its a made to measue and they dont get many. Its from a company in Sandbach called Olympian because the guy who owns it used to be a hammer thrower for GB and has competed in the olympics. There were b/w photos up in the offfice. Very interesting stuff. sorry you had a rubbish time with your chemo but nice to hear you are getting back to speed, are you still working in between.

Ruby..hope your blood count was ok and you are all systems go for your herceptin thinking of you and fingers crossed.

Rachy...Take it easy hun, I'm sure ou know what you are doing but I read somewhere that when you are doing this you should end the day thinking I could have done more. It blows me away you girls who carry on working and dont think I could have so take it easy.

Julie...are you ok or are you having your bleurgh days. I cant believe it will be just two weeks to your last one.

See I told you it was a long one. Well I hope you all have a lovely weekend and that this weather picks itself up a bit. I've got a friend running in the marathon this weekend so will be mentally willing him on and trying to catch sight of him on the telly. Hope I have more luck seeing him than Dilys.
Love and luck to you all. Sx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi lovely ladies,

I've been a busy girl today.Removed my dressings (painful!) and had a real good look at the scars.Yeugh! At least I'm not squeamish as I nursed around 30years ago.I'm doing my own dressings so that I can do things in my own time.All looks well(ish).Went for a run (in the car-I'm not that fit/daft yet!) with hubby and got Indian takeaway for tea.

Getting tons of emails/texts phonecalls from mates which cheer me up no end!

Louise- Glad you're feeling a wee bit better.Keep your chin(s) up.

Maddy- I hope your bloods are ok. I also watched the elephant man and actually almost felt happy about my scars. Who needs vanity when you're getting the bad stuff cut out.The poor man's life didn't seem worth living. I was very concerned that he'd catch infections living in that terrible hovel.The poor soul!

Ruby- How are you enjoying work now? I've been checking my emails instead of watching movies and reading and I only left last Wednesday.What a saddo eh?

Dilys- How awful that the protesters stole your thunder.So many people tuned in purely to see your turban and were deprived! Tsk! However,her'es hoping you don't need it in 2012!.

I really do intend sitting around reading/watching tv tomorrow.I never get time off and will try hard to enjoy it.

Luv'n'stuff
Tricia
xxxl

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi All

Wow - you have all been busy!

Rachy - glad you are feeling better, though I still worry about you trying to work at this point!

Ruby - good luck with the bloods tomorrow my love. I shall be thinking of you and unusually for me, praying!

Oh Louise I do remember that feeling so well. But it DOES end and it is great when the battering stops. This Thursday will be the first anniversary of diagnosis for me and I can't believe how far I have come. I very nearly didn't put my hat on when the window cleaner knocked at the door this morning, and was quite cross in fact that I did!

The Olympic torch flashed past on Sunday but peacefully here at least and I managed a great photo. Expect it will be back in 2012 as I am on the edge of the Olympic Park, and determined to be here to see it again. Sorry you all missed the smart turban!!!!

Loads of love to all

Dilys
xxxxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hello all, i am at work today ! so a good day today in all. New meds helping me mentally and am getting proper nights sleep now which helps. I hope all you ladies are feeling ok today and thank you for the hugs and messages of good will when I waas at my lowest and most miserable.

Rachy

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Hi ladies

Hope you are all ok today. Can't decide whether to go gyming today (went yesterday).

Maddy I can't wait to have reconstruction but it's a little way off for me still as I was told I'd have to wait at least 2 years for it. It's very nerve wracking and I can completely understand that you may change your mind and that's ok it really is.

Louise pleased to hear you're feeling a little better now. Rachy hope you're not feeling too bad. I so remember how rough I felt especially whilst on Taxotere. I was completely wiped out for about 4 days and all I could do was sleep literally from the moment I got home from hospital and I hated the way it made me feel.

Shonagh hope work is going ok for you. I've got my work meeting next week - kindda dreading it.

To all the rest of you ladies have a lovely day.

I've got blood tests tomorrow then seeing oncologist about white blood count and herceptin. My white blood count should be up now because of the injection I had a week ago so praying that it is so that I can have the herceptin.

Lots of love

Ruby xxx

Highlighted
Member

Re: Diagnosed 29th - Hello Ladies.

Oh ladies - I love reading your stories when I return for a top up - sorry I haven't been in touch. I really do feel for those of you who are having chemo, rads or ops - now I'm out the other side it seems like years since I was going through it all !

I have an apology to make 'cos I think I've been wasting your time recently - I went to see the Restructuring team yesterday. Showed both my breasts to the surgeon and he agreed that I can have my left breast reduced to 'match' in three or four months time -

HOORAH I hear you say ...............................................................................................................
then I drove home..and changed my mind !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

He did such a good job explaining the operation and possible associated problems that it gave me second, third and fourth thoughts about the whole process - especially since the operation will result in much more scarring than the two WLE ops did and as a result will probably not match my other breast anyway ! I'm going to wait until after our summer holiday to see if I feel any different - but I think I'm probably NOT going to risk it. I find it hard to believe that he can't just do a WLE type op around my nipple to make it 'match' - the recovery time is much quicker !!!!!!!

After watching the Body Shock Elephant Man programme last night I began feeling rather shallow for even considering surgery !

Benjamin is teething (!) and driving mummy and daddy mad waking up screaming in pain - just when he'd got a good nightime routine going. He's also just got a baby bouncer to hang in the doorway which he absolutely loves - can't wait to see him in action at the weekend.

Still no sign of a splint!!!!

Lots of love to you all, Maddy xxxx