Well, am calming down now after being told i have invasive ductal carcinoma. i’m 40 and will have lumpectomy, SN biopsy, rad and chemo…anyone in same position?? Would be great to hear…
Hi Trellisick and welcome to the BCC forums.
I have posted a link below to our new resource pack which you may find helpful, it has been designed for those newly diagnosed, just click on the link to access the order form. You can also order more information publications on the same page by clicking on the links on the same page under the ‘quick order list’.
If you would like to speak to someone in confidence please do call our helpline on 0808 800 6000, the line is open weekdays 9-5 and Sat 9-2, our team of specialist nurses and trained helpliners can offer you support and information. Hope this helps.
Best wishes
Lucy
Welcome to the forum Trellisick.We know it,s not the club you would ever want to join but you will find lot,s of ladies here to offer information and support.
Good luck to you on your journey and take one day at a time.
love and best wishes,
Ann xx
Thanks flashann, no its not a group i would have chosen, but am really glad it exists!!! Just want to get on with it now…the waiting is hard.
Hi Trellisick,
I was diagnosed on the 1st of Feb, like you invasive ductal. My surgery scheduled for the 20th - scared out of my mind.
I am 41 with two children, 17 and 13.
Still living in a fog (in a James Herbert horror film kind of fog).
I hope everything starts moving quickly for you.
Marguerite
Hi Marguerite,
Think im past the rabbit in the headlights part, such a strange feeling isn’t it? It was the invasive word that completely freaked me…
I work for CLIC Sargent a childrens cancer charity, so know quite a bit which i think has helped…how are your two???
Good luck for the 20th
Kathy
sent you a PM Kathy
Hi - sending you a PM.
Very kind regards
Lynn
Hi,
also just diagnosed (28th jan) with invasive lobular two tumors and mastectomy surgery due 15th Feb! 45 with 8&10 year old at home! So glad I am not the only one with fog on the brain, sleep also seems elusive, 3am is a scary time…
Still thinking it’s a bad dream but so so glad can talk openly here, as everyone else is just sorry for me.
I know exactly what you mean Tina, bed time is the worst, if i feel a tingle i get freaked that its growing/moving, really just what to get it out of me…
Good luck with your surgery,let me know how its all going.
How are the kiddies taking it??
Kathyx
The boys are very protective, keep telling me they will look after me and be helpful. Trying to be strong so they don’t get scared.
The reality of it all has not fully hit me yet, I feel I am in the wrong movie and someone has made a big mistake! I am going to have a mastectomy and flap reconstructions and all lymph nodes taken out.
So I will be out of action for a while I suppose. But I am grateful that I have access to healthcare and all is being done to put me right again whatever it takes. Keep positiveXXXTina
Trellisick and Tina,I feel for you both so much,it,s a horrible time,waiting all the time.It wil get easier I promise.I was dx xmas eve 2008,wle 7th January 2009 and rads March/April now i,m on Tamoxifen for 5 years,but hey thank God for the NHS.If you want ,you can PM me any time.I,m always here.ha ha
Goog luck to you and love
Ann xx
Wishing you all the best for your surgery Tina
The worst time for me is after that second or two after I wake up when I forget…
You have the right attitude, whatever it takes x
Hi Kathy
I’ve also got invasive ductal carcinoma and had a lumpectomy and axillary clearance 3 weeks ago now. Not actually as bad as I had expected it to be and now just have a stiff/sore arm and armpit really. I went back last week for histology results and they couldn’t get clear margins so I will need to go back for a mastectomy (after chemo and before rads). I have a 7mnth old and a 5yr old so worst time for me is in the middle of the night when they have woken me up and then I can’t back to sleep for anxious thoughts whirling around in my head. Feeling shattered - the only silver lining is tha it’s made stop drinking wine so at least I’m no longer hungover as well! Have you got a date for your surgery yet? Hope you’re bearing up ok.
Best wishes
Hilary x
Hi all
I also was diagnosed with invasive ductal in Oct last year. I’ve had lumpectomy and lymph node removal and now have one chemo left before radio. It is terrifying, but if I can do it, anyone can! My best advise is to do all the exercises religiously and take any drugs they offer you. My side effects have been minor but I guess I’m just lucky with that. Was a bit embarrassing vomiting in my local high street 2 days ago; was only 3 days post chemo and I think I overdid it!
Julia xx
I was also diagnosed with invasive ductal in Feb 2010, l am due a lumpectomy and gland removal in March, you all sound so positive, at the moment l am freaked out.
I feel almost ashamed, you are all so young, l am a 62 year old, but it doesn’t make it any easier. My heart goes out to you all with young children, l have adorable grandchildren, who are very much part of my life. l suppose it is the fear of not knowing, if someone could say. “you will be fine at the end of the treatment” what wonderful words to hear, l can only live in hope, as you all do.
Sandra xx
Hi Sandra, life is precious and no matter what age the cancer diagnosis is so scary! Take all the support you can get and feel reassured that we have great healthcare. Everyone on these forums understands and will help you to get through this. I had my mx and reconstruction 12 days ago with level 1 lymph nodes taken, and start chemo next month. Stay positive, we all have a lot to live for! xxxx