Good morning ncscooby,
I've just read your post from yesterday and want to wish you all the very best for today when you go for your results.
I understand how having made your mind up gives you some peace - exactly how I feel having made up my mind to have a mastectomy (or two!). But your decision isn't written in stone, so you can change your mind if that's what you come to feel - or not, if that continues to be your decision. You're definitely sounding stronger and that's so important.
Take good care of yourself, thinking of you today, Jo
Hi Lisa97205 - i have been having an ok week, still tears everyday but feeling better within myself, a bit stronger i guess. We seem to be at roughly the same stage - well timeline wise anyway. I am trying to focus on the no spread, as if it had that takes a lot of decisions away. I go back tomorrow for the results from the second op, so anixiety kicking in at the moment :S
Work for me at the moment is my saviour (and i never thought i would ever say that!) it lets my mind rest for a few hours at least. WHen is your second op?
Flori35 - you're right (unfortunately) at some point i will be an old timer and will have been going through this a lot longer than 6 weeks.
I haven't ruled the chemo out completely (even though mentally thinking im not going ot do it is helping at the moment) and will definitley be going to the onc appointment, i mean it could be that they give me a 20% increase and in those circumstances it would be crazy to not do it. But i honestly do not feel that i will cope with it all. Aside from the fetility issue, its all the other stuff, hair loss etc that i think will be too much. I suppose to some people cancer v these, its a no brainer but its the way i feel....
I just want my life back and i cannot wait for the day when i do not think about all of this.
Coming on here and getting my feelings out has been good too, its hard sometimes talking to people that are close. No matter how hard they try they actually cant fully understand - and unfortunately everyone on here does
Thanks ladies xx
Thanks for your good wishes. My appointment is to discuss my results is this Friday too. I was given brief results over the phone by my BCN on May 27th as I was on holiday and wanted to know. Mine wasn't good news and have had a few meltdowns over it.
Hopefully you will receive more positive news 🙂
Been distraught over the thought of chemo, hair loss and its undesirable side effects. But in order to kick cancer's ass it needs to be done. Hoping that by taking control ie getting my hair cut, arranging to get a wig and some head scarves that I will start to feel I can do battle with this.
Wish you luck on your horrid journey too x
Are you scheduled in for another op to try and get the margins?
Ditto re the chemo, i have just turned 36, so they are saying they will still be recommending it (is a national guideline apparently) - the only thing that has kept me going to a certain extent is that i have decided that i am not going to have it. As like yourself the thought of all the stuff that comes with it, i dont think i will be able to cope. The fertility issue is massive for me (according to my sister, i dont have a partner so why am i worrying about that!!?) - this is driving me rouund the twist, its like no one gets how important that is. Yes they can freeze eggs or whatever but then it doesnt stop there does it, you dont just put them back in when this is all over, you then have to go through IVF etc... its never ending.
Remmber thought it is a choice - you can decide not to have it. My nurse keeps telling me that ultimately it is my decision and everyone will have different thoughts and feeling about it, but you are the only one that can decide what is best for you and what you will be able to cope with.
Its completely normal to have good and bad days. Mine are mostly bad, but i am taking hope that there ares some good times that i feel. I wonder when i will feel happy ever again.
It is hard there is no denying. Do you work? I have found that being in the office has kept me sane and is keeping my mind occupied at least during day time hours, which has taken the pressure off a little.
My thoughts are with you
I'm so sorry it's all so very hard for you - like there's no let-up in the waiting and wondering. So many of us have tough times in the waiting periods and we don't hold it together well all the time either. This time around I'm very aware of having a short fuse and I'm finding my eyes filling with tears at the least thing - I've started wearing my specs all the time, hoping the my watering eyes will be slightly disguised. Last time I had breast cancer (other side), somehow I wasn't quite as on the edge all the time, which I think must have been the lack of waiting and wondering time - I had 3 WLEs within 7 weeks, so my feet hardly touched the ground.
The things that seem to be helping me this time are deep breathing, telling myself to put my shoulders down (they seem to be right up there by my ears a lot just now) and using a Rescue Remedy spray. I find counting the days down in my mind helps as well, it's a good feeling to find the numbers slowly going down - 9 days today to go to my op! Other than that, just trying to be kind to myself; I know lots of people recommend warm baths at bedtime and trashy novels and rubbish programmes on TV. Nothing works all the time though. You're definitely not all alone.
I'm also E+ and P+ with a lobular cancer and as you can see it's 04.50, another of those nights when the heebie jeebies have been taking over. You've got this far and you'll manage the rest. I'm sending you lots of hugs and hoping your night isn't too bad and seemingly unending and that tomorrow you'll find some extra strength to keep yourself going on.
Hi ncscooby,I know its really,really hard but try not to worry. I too had 2nd op to clear margins & more lymph nodes as 1 was affected & they got it all 2nd time. I think they put 'markers' in there first time round so they know exactly where to go for next time to clear all. None of this is easy but please take heart that it has not spread. You will get through this. Xxx
I was diagnosed in April with grade 3 invasive, miccromet in 1 of 6 nodes following WLE and sentinel node biopsy.Mine is also hormone responsive and am having chemo which starts next week 😞 then rdiotherapy and tamoxifen .
Just regarding periods and contraception, i have a Mirena coil and have been very happy having minimal periods and both breast surgeon and oncologist recommend it stays in as such a low dose of progesterone and is good to have in whilst on tamoxifen so don't give up thinking you have to suffer with periods if you don't want them !.
Fully understand all your emotions , we've all been there. My sister seems to be in complete denial , I think she just doesn't know what to say to me and I have found it quite hurtful.My mum and friends have been fantastic though with only the occasional inappropriate comment. A good friend of mine is going throught the same at the moment, she is on her 3rd chemo and has been fantastic support ,
i am a few weeks down the line from when you are as as others said and I didint really believe it at the time, the uncertainty is the worst, once you know what is happening you can almost get your head round it and it becomes 'easier' . Might not be saying this after I start chemo next week though lol !!!
Tinker, that sounds so very hard for you - you sound as though you're so strong and thinking positive thoughts amongst the blackness. Lots of hugs, Jo
I know what you are going through I went for a mammogram after finding a lump a week after my 47th birthday and knew from the radiographer that it was cancer that week was the worst and most lonelist week ever, I am too a planner and like to be in control and the only thing I could control was arranging cover for my job for what I expected to be no more than 3 months after sugery but now just waiting to start chemo. My partner who lived in Essex said he would come up and move in with me to be there to support me and he turned out to be a right big let down and it didn't last so I am now on my own with a 12 year old daughter who has completely ignored that I have had two surgeries and pending chemo and expects me to be and do as I was before - and you just can't do that. I find that nights and weekends when she is at her dads for me are the worst as I can't sleep and think things over too much. My parents only see me now as CANCER and all on the negative side, everthing that goes wrong now is down to cancer - apparently. Then I joined Crazy Hats coffee morning, read through this forums and yes this is life changing, it is a journey but along which you will meet and get to know some fantastic people, I will be a different woman at the end of this but it will be the woman that I want to be for me and I will be a stronger person for it - that is my focus. This is the time to think of you and what you want and what you want to be and do at the end of this. Thinking of you.
Ncscooby, just sending you a note to say I'm thinking of you too. I can appreciate that 'out of cotrol' feeling, as I'm also at the edge of what feels like a black hole.
Reading through some of the threads on this forum has given me such a feeling of support. Take care ncscooby, lots of us are with you. Love and hugs, Jo
Hi ncscooby, all the feelings you are having sound very familiar. I am four weeks post WLE waiting to start radiotherapy. I remember and still receive what seem to be very flippant comments. On the one hand you want everyone to be positive and treat you normally, but inside you are screaming and trying to deal with this horrible disease that has so quickly turned your world upside down. You will have good days and bad, it is a huge emotional rollercoaster. This forum is fabulous for helping you feel that you are not alone. The helpline is also great if you need to talk to someone. Keep in touch on here and take care. Sending you big hugs xxx
First post - not even sure where to start....but basically i am 35 yrs old and was diagnosed on 25 april with invasive ductal stage 2, both hormone receptive (poss also herceptin positive, STILL waiting for this ratio to come back). Its all been happening so fast, i went to mammogram and scan expecting to be sent away with a flea in my ear, only to end up having a core biopsy done and then being told to come back for results just a week later and being told i had breast cancer.
Then a week after that the hormone bombshell dropped - my nurse (who couldnt be lovelier) said this is good as they can give me a protection etc with the tamoxifen - but all i can think is how i wont be able to have a baby whilst i am on it (not that i am at that moment in my life right now, but i might be in the near future, who knows). Its as if the propsect of chemo and being infertile isnt enough, now thats on top. They dont have my results from the op yet, but they said because of my age they will want to throw everything they can at it. But to be honest in my head i dont want chemo and making that decision in my mind has kept me going - even though there could be another curve ball and i might not have a choice if it has spread.
I had my op last thursday, he took out tumour with clear margins (well as far as he can tell) and now i am just waiting.
Thing is even though i have great friends and family i feel so terribly alone - i know i'm not and i dont kbow why i feel this way. I dont have a partner and live by myself so have a lot of time to think about all of this. I am really struggling with family a little bit, my sister is so matter of fact - well so and so had it and she is fine, well her sister had it and she had to do that as well...i feel like screaming i dont care about that - which obviously isnt the case, its flippin terrible that anyone has to go through this, but right now i cant think about that. I know that probably sounds so selfish, and i hate that i am thinking like that.
This has been some of the worst 19 days of my life so far. I have tried to draw strenght from here, everyone seems so positive and doing so well, and i just fell like im falling apart as the days go on.
THanks for listening