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Diagnosed and awaiting surgery

27 REPLIES 27

Re: Diagnosed and awaiting surgery

Hi Debbie have a fabulous holiday hope you get loads of rest xx

Re: Diagnosed and awaiting surgery

Hi diddy, glad your all done and home recovering, wishing you a speedy recovery, gosh you had a very long day, im going to spain for 2 weeks we booked a villa 18 months ago, family holiday with grandkids, one more sleep lol not that i have been counting ha ha, reality is gonna hit when i get back, the dreaded op will be loomimg.

 

 

All the very best sue for 8th august,

 

Hugs to all you ladies 

Debbie xxx

Re: Diagnosed and awaiting surgery

hi diddy thank you for you reply xx hope you have a good day xx

Re: Diagnosed and awaiting surgery

Thank you Sue.

No there is no drain. I contacted my Breast Care Nurse beforehand and she said drains are not used now. I had my surgery in Dorset. Might be worth speaking with your BCN to check out routine procedures in your area.

Seriously nothing to worry about with procedures. Keep up the analgesia afterwards and you'll be just fine.

Love Diddy xxxx

Re: Diagnosed and awaiting surgery

glad your surgery went well from reading through posts i believe you had a lumpectomy with lymph node removal (what i will have on the 8th August) do you have a drain with a lumpectomy?

wishing you a speedy recovery x

Re: Diagnosed and awaiting surgery

Hi Debbie

Do hope you have a lovely holiday. Where is it you are going and how long for?

 

I had my surgery yesterday. Feeling good. Am keeping up paracetamol and ibuprofen regime so not much pain or discomfort. Probably the worst part of the whole thing was being last on the list and not going into theatre until 16:00 having been there since 08:30. Home at 19:00, straight to bed and slept most of the night.

 

My husband is doing a great job of looking after me. I feel very blessed and loved. Have had such wonderful support from people on this website and friends here at home.

 

Enjoy your holiday. Love Diddy xxxx

 

 

Re: Diagnosed and awaiting surgery

Hi diddy, hope all is good with you, i havent had my holiday yet, i go saturday, cant wait, then my op 25th july xxx

Re: Diagnosed and awaiting surgery

Thank you, thank you. You have so hit the nail on the head in every way.

I have had this sense of otherness since the recall letter arrived and I looked at it and gulped before I even opened it.

I have found the forum excellent and feel so grateful to be able to communicate with others who know.

Up until my blip yesterday I have been telling myself how lucky I am to have had it found so early. I am becoming evangelical now about mammograms and how important and amazing they are. I will never ever moan about having one again.

 

As you say 'one step at a time'. I have 2 beautiful granddaughters I can fill my time with, a really caring husband who is doing his best and lots of lovely events coming up this summer to look forward to. One step at a time. Xxxx

Re: Diagnosed and awaiting surgery

Yeah, to be honest the waiting is the worst of the lot really. My worst bit was not after diagnosis, but after surgery, hoping the node was clear and that he got a good clear margin round the lump. Luckily all was well (As it is for most of us "lumpies" actually) , so my neighbour who drove me to the appointment and I had a celebratory botttle of wine between us afterwards! NOT recommended, but by God it sure felt good. I think you would not be human if you didn't have good days and bad days - having a diagnosis of cancer is never going to make our day is it? But this Forum is a good source of information and support so there will always be someone around who knows what it's like, which family and friends, however supportive, can't really understand unless they've been there. For a while it feels a bit surreal - walking around with a cancer diagnosis, feeling a bit detached from the rest of world going about its business. Interestingly, since my diagnosis, i am amazed at the people I meet who have had treatment for breast cancer that I didn't even know had had it, including  ones who had treatment many years ago and have never looked back. If you haven't already read the relevant posts on here re prognosis, just to let you know that breast cancer is one of the most treatable sorts to have, with many many treatment options depending on what sort you have. Sounds a bit daft for me to say I feel lucky, but I do. Could have been so much worse.One step at a time girl. xxxxxx

Re: Diagnosed and awaiting surgery

Thank you. I am crying writing this but your post is so reassuring and helps a lot.

I think it is just the thought of even more waiting for results afterwards.

Thank you so much. I love your name "Optimissy". I have been keeping myself optimistic but a little bit of fear broke through yesterday.

Diddy xxxx

Re: Diagnosed and awaiting surgery

Hi Diddy

don't be alarmed about the sentinel lymph node thing - they do it at the same time as the lumpectomy and it is just to test whether it has spread - if lymph node clear then you know your cancer is confined to the breast tumour, which will obviously be reassuring if that is the case. I had WLE and a node out in December and to be honest the surgery was not a big deal. You get a blue boob and blue wee (all temporary!) as the way they indentify which is the sentinel node is to inject you with blue dye during the op then they can see which node the breast drains to first. Modern medicine is so brilliant these days and we are luckier than our ancestors. You're bound to feel wobbly at this point, but just take it steady a bit at a time. You'll probably have radiotherapy, and that too is not so bad, though I am immensly grateful I had it during the winter - flogging up to the hospital daily in this heat would have been a pain. All the very best with your treatment - you'll be back on here in no time, reassuring other newbys that the surgery is nothing to worry about. xxxxxxx

Anniej
Community Champion

Re: Diagnosed and awaiting surgery

Hi Diddy, the waiting is awful, but worth it to get the right help. I had three biopsies on my LN, and was then told to take my holiday rather than sitting and fretting. Which I did 🏖  Had meltdowns at night, but kept busy during the day. The LN are your knights in shining armour. They prevent the cancer spreading, so of course need checking. 2/3 from my biopsy showed signs of cancer, so I had full excision when I had my WLE. How pleased I am that decision was made, as the results of the biopsy were replicated. However, they did their job and it hasn't spread - good job boys! You are entitled to meltdowns, this is a very emotional time. Until you have your results back the uncertainty is dreadful, and your mind runs riot. Once you have your pathway you will feel more in control, and be able to get on with the job. Sending big hugs, and the big girl knickers sometimes needed for hard times. X

Re: Diagnosed and awaiting surgery

Thank you for your lovely response Debbie

Have you had your holiday yet? Do hope you enjoy it when you get away.

Diddy xxxx

Re: Diagnosed and awaiting surgery

Hi diddy i remember feeling the same after seeing my surgeon, i went on a friday and thought of nothing else the whole weekend, i actually rang my breast nurse on the saturday and she arranged for me to go back and see my surgeon, my dilema was i was was worried my op was to close to my holiday and i wouldnt be well enough to go, my surgeon was brilliant and changed dates for me to go, dont worry about the lymph nodes, from what im seeing that is normal practise, and they will just test 2 to 3 sentinal nodes nearest to tumour, im having the same done, i was concerned to start with, but now im releived they are doing it, id be concerned if they wernt doing it now if that make sense, try not to worry you are in the best hands, hugs to you xxx

Re: Diagnosed and awaiting surgery

Hi everyone

Feeling in need of some support.

I went to meet my surgeon yesterday. Was feeling very upbeat, expecting to just be given a date and have an outline plan 're radiotherapy. Feeling as though this is the beginning of the end.

It seems to me now that each appointment carries slightly more complications than expected. Today the doctor said that although my initial diagnosis is DCIS my lesion is not typical in that it is lump forming rather than the usual linear shape. I will be having a lumpectomy WLE and removal of sentinel lymph node. The words lymph node freaked me out. 

Was also told that I will then have to wait for another 2 weeks to get a definitive result, so more waiting and uncertainty. I did have a bit of a meltdown this evening. I just feel wrung out.

Sorry to sound whingeing and whiney but thought I would see light at the end of the tunnel today and now I don't. Diddy

Re: Diagnosed and awaiting surgery

How are you Justine ... ? 

I hope it went well for you xx



 

Re: Diagnosed and awaiting surgery

Ginny

 

And me too, but I did eventually get it that I needed to let people help me, which in a way help them to come to terms with my diagnosis, so keep that in mind as well my dear. 

 

Its my birthday a week tomorrow, I am actually having the week off which is quite unusual but I have worked my normal hours for 8 weeks now and felt I was ready for a rest so decided to take the week off 🙂 🙂

 

Helena xxx

Re: Diagnosed and awaiting surgery

Helena, Yep another Gemini xxx❤️
Work, well I certainly will keep my options open, but I like to feel needed.
I have made a promise to my hubby and said I will pace mysel and go with the flow xx

Re: Diagnosed and awaiting surgery

Ginny

 

I am so glad that it has gone well with telling your youngest and that the school are so on board with supporting him.

 

I know when I was preparing for op I was insistent that I would only need two weeks off, but my boss insisted that I have four weeks, which with hindsight was absolutely the right thing to do, so I would keep your options open with your boss.  I also did reduced hours when I returned to work which I did until after I finished my radiotheraphy in January of this year.

 

Well what a fab thing to look forward to after your op thats awesome. Another Gemini 🙂

 

Helena xxx

Re: Diagnosed and awaiting surgery

Hi all,

 

My surgery date is the 14th, 6 days later is my birthday and I'm off to see ELO in Sheffield ! 

I have two sons one 30 and one 14, I battled with whether I should tell my youngest as we have only very recently suffered the sudden loss of my father.

i sat him down on Friday and just said it, he cried at first, but then as I reassured him he seemed fine, from a selfish point of view I must admit I felt relieved as I felt it was more of a burden hiding it from him.

also I have emailed his head of year and had a lovely email back saying the school will have regular meetings with my son to discuss and assess how he's feeling.

 

It all seems like a dream, like it's real then it's not. But like Paddy, I'm so busy in work it's a very good distraction, so when I was told I could have 8-10 weeks off paid leave I politely refused and said I need normality in my life to get through this.

 

My experience so far is that it helps me to tell people what's going on, not for sympathy but support.

 

In the words of Bob Hoskins "it's good to talk"😄

 

Keep smiling ladies, tomorrow is a new week. X

Re: Diagnosed and awaiting surgery

Hello Justine,

I am new to this too having been recently diagnosed with BC and am having a mastectomy next week (on my birthday in fact - but feeling that getting rid of the cancer would be the best birthday present!). I have 4 children (18.16.15 and 10) and work full time. After much deliberating, we decided to tell our children as my eldest daughter does not finish her A levels until late June and given the amount of tests and hospital visits I have had so far, it felt that it would be difficult to keep it from them. It's a very difficult  and personal decision but I am glad that I told them and they seem to coping well so far. My children's schools have been amazing and very supportive.

I totally agree that it feels slightly surreal carrying on with work and daily life - work has kept my mind so busy, I feel it has been very positive. I am fortunate in that I have my own business with 3 partners and have the capacity to be able to work mostly at home. My plan at the moment is to take each step at a time and try and fit my work around that. 

Best wishes,

R x

Re: Diagnosed and awaiting surgery

Hi Justine,
I'm recently diaognosed and waiting biopsy results next week. We are the the same. My daughter is 16 and half way through GCSEs. I've actually told her. I felt that is was half term week, I was off work. I could keep an eye on her and support. I felt to wait another week for results would be far worse. I'd then have to send her off to exams. She's actually been fine and it's made me less anxious. I think it just depends on individual children and how you feel they'll cope. How you tell them and remaining positive in your approach. I also felt that if I couldn't tell her I couldn't tell the rest of the family. In case they let it slip or told someone out of the family circle. Or she over heard me talking on the phone or saw text messages.
She's coped well. She's carried on as normal. Revised, met up with her friends for lunch, she's been for a summer job interview and had a practice prom hair and make up. So everything running normal in our household. The thought is far worse.
Good luck and hope everything goes well for you.
Xx

Re: Diagnosed and awaiting surgery

Thank you for this! I am confident that I am making the right decision about not telling my daughters. Was your daughter "cross" when she did find out?
J x

Re: Diagnosed and awaiting surgery

Thank you for this.  Most helpful.  Just got to keep my fingers crossed re the lymph nodes!

J x

 

Re: Diagnosed and awaiting surgery

Hi Justine - I echo your feelings and what others have said. I am similar to you in the fact I was diagnosed with ductal carcinoma and work wise i'm a midwife. My husband told our children (18, 21 and 23) and they took it ok apart from my 23 year old said he didn't know how he could cope with seeing me with no hair! I didn't need radiotherapy or chemotherapy (as I had an mastectomy and clear lymph nodes) so he didn't have to face that fear in the end. I just kept being positive about my situation in front of them and it helped so much. I'm back at work now, knocked the no-break 12 hour shifts on the head (i'm sure you empathise) and life is really back to normal. The early days are the worst but it will all feel easier x
Sue C
Community Champion

Re: Diagnosed and awaiting surgery

Hi Justine
I was where you are now a year ago. And my daughter was going through GCSEs at that time. I chose not to tell her until the exams were finished because I didn't want to distract her (although that was very hard to do). And I think that was the best thing.
I took a year at of work, initially because it took a while to get my head round it all, but also because I have a very physical job. It took awhile to get over the surgery and then when I had chemo, I found the fatigue quite challenging.
I understand this is a very difficult time for you. My advice as always at this stage, is to take one day at a time and then one treatment at a time. It's all very doable and you will get through it.
Sending a hug xx

Re: Diagnosed and awaiting surgery

Hi Justine, sorry to hear of your diagnosis. Yes, the BC thing totally sucks and interferes with your plans. We had to cancel a trip to Canada but decided to spend the money on getting a few treats for the house so I get to enjoy it more whilst I'm stuck here most of the time now. I'm 48, with 2 kids in Uni and I was diagnosed at the end of March (ER+/HER2-, 5cm, locally advanced, invasive, diffuse margins and in 4 local nodes). I told my kids over the phone and managed to be really brave and positive, this affected my Son's concentration for the first couple of weeks so I got a letter for him from my Oncologist for extenuating circumstances. My daughter is really good at channeling any negative energy into her studies so appears to have coped better. As its so close to your kids exams you may want to postpone telling them if you (and anyone you tell) are able to keep up the pretence.  I started chemotherapy at the end of April and I've continued to work full-time from home. As the chemo reduces the immune system it's best to avoid people as much as possible.  I won't be having any surgery until the end of my 8 rounds of chemo so I still have my head in the sand a bit on that one! Just keep yourself nice and healthy ready for treatments and try not to let your mind spiral out of control because it tends to focus on worst case scenarios. (We all do this as part of trying to prepare for the worst but do ourselves more favours health-wise in hoping for the best). It gets easier once you get into your treatment plan. Take care and I wish you all the best as you begin your journey. X

Diagnosed and awaiting surgery

Hello, I am new to this!  I was diagnosed with ductal breast cancer on 17th May.  I am due to have surgery on 14th June.  Wide local and incision and lymph node removal.  On the whole I seem to be coping, however, I have moments when it just seems to hit me all over again.  I am carrying on at work, however, I find it very hard to concentrate (I'm a Nurse!).  It's like I have this disease, but it's not making me ill at the moment.  I have a very supportive partner, however, at this particular time I have decided not to share the news with my daughters - age 15 and 17; mainly due to the fact that the 15 year old is half way through her GCSEs, and the day she finishes is my elder daughter's 18th!  

 

Just wondered if anyone had any advice for me?  Re: working? not telling teennagers? surgery? anything else that you think I should know?  All advice gratefully received.

 

J xx