Hi Shelley, I completed my last fEC today and have been doing the happy dance all day 🙂
I joined the Awesome April Angels who stated chemo in April (surprisingly :)), and they have been a godsend. It's worth reading through this thread as it has all the helpful hints required, many just learnt in the last few weeks , so it would be great for you all to benefit from these.
first hing, it's not as bad as you imagine. Secondly write down your side effects and what time and day they are. I'm with Mandyj on the Emend, wonderful drug and you will fly through the nausea. Also Nossies if the Emend doesn't quite hold it. When the unit phone you before number 2 you will then have all the info and they will adjust your meds to take all you side affects into account, so affectively it should get better as you go on from this point.Fresh pineapple for your mouth, and if possible create a den for yourself where you can lay and sleep/dose. Take your Dexamethazone (steroids ) as early in the day as possible, check with your nurse the earliest they advise, as these tend to be a bit like speed and keep you up all night, hence I am here writing to you now.In the early days just go with your body, do as much as you feel you can and rest when you need to.
telling your children is definately the hardest thing you will ever do, mine are 30 and 12. Both took it hard and in different ways, but they tend to reacexactions reactions. I know it's an old saying about keeping positive, but it really does help the children. On our site when we felt down we tried to lothings two things that went good that day! You will find that you will make great friendships with all the August ladies, you will laugh and cry and moan together. It has certainly made our journey a far better trip.
good luck Philomena xx