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Diagnosed last week....

44 REPLIES 44
tracy2905
Member

Re: Diagnosed last week....

qthanku for the reply... It can become a lonely world i  have come to learn... U sound yourself that you fougbt with the best and have coped really well, which yes i know i will b doing too as will many others.. I try hard to put things to the back of my mind and carry on with life, but the thoughts always appear to squeeze there way back into thought lol which is actually quite irratating when u have a good day...

I have read so many storys on here and they are really pksitive no matter what stage or grade folks are at..

Xxx

Jo1
Member

Re: Diagnosed last week....

Hello Tracy,

 

Welcome to this club which nobody wants to be a member of. Come here for info and a good shout if you need to - everybody is great support, whether or not we have others at home to turn to. It's a great source of info and tips - and plenty of hugs, many of them gentle, as some have been through surgery fairly recently.

 

Don't go looking all over the internet, as much of it can be scary and lots is out of date. Even on this site, don't go looking into all of the other sections too much - you don't know what lies ahead and your case won't be just the same as others. I was sure I would need radiotherapy and/or chemotherapy and read ahead, but really shouldn't have as I imagined I would have this and that and all sorts of side effects - daft me!

 

Many of us are in despair when we first post here - I definitely was when I first posted - 15th June, I think. I had cancer 5 years ago on the other side and got through that OK (but wish I'd had this forum then!) - but this totally different cancer in my other breast was too much for me to cope with - then! But with support and BCC helpline and taking control by doing loads of sorting out at home, lots of cleaning and gardening plus changes to my already healthy diet, I found a good place in myself to deal with it. I have the excellent support of my husband, but only people who've been through it understand our feelings.

 

I was lucky - I don't need either radiotherapy or chemo, but I would have coped if I had needed either or both - we all do somehow. All I need to do is to take hormone therapy for 5 to 10 years, following my mastectomy. Last time I had exectly what you've mentioned and had radiotherapy following lumpectomy.

 

If you need to talk to someone, ring BCC helpline, or if that's tricky because your children are around when they are open, email them - they are hugely knowledgeable, caring and take as much time as necessary to talk, explain and listen. Other than that, come on here. We'll all be around and before you know it, you'll have more info, go through whatever tests you need and be coping well. In fact, you already are - you're throwing yourself into your work, lif'e going on, taking care of your children etc, and you've come on to this forum.

 

Love and gentle hugs (I had my mastectomy 3½ weeks ago), Jo x

Lucy_BCC
Member

Re: Diagnosed last week....

Hi Tracy and welcome to the BCC forums where I am sure you will continue to find support

In addition, please do call our helpliners for further practical and emotional support on 0808 800 6000, lines are open weekdays 9-5 and Saturdays 10-2

Here's a link to the BCC 'Treatments' information and further support ideas which you may find helpful:

https://www.breastcancercare.org.uk/treatment

Take care
Lucy BCC

Downbutnotout
Member

Re: Diagnosed last week....

Hi Tracy - I was told the cancer doesn't grow that fast and so a few weeks won't make any difference. Plus, grade 1 cells are slowest growing so just bear that in mind as well. However, I'm like you in that once I know it's there I just want it removed asap. It really messes with your head knowing it's there and having to wait for surgery. I didn't have the dye as I knew from the outset that it was in my lymph nodes, so you could look at it as being good that there's no symptoms there. I don't have children and so can only try to imagine the added anxiety that causes when you're worried for them as well.

 

Try to do some nice things, pamper yourself and make sure you get some exercise each day while you wait for the appointment - not easy, I know, when you're feeling really scared, but it does help. Keep sharing your thoughts on the Forum. It helps when you can talk to people who understand and have been through the same experiences.

 

Take care.

X

tracy2905
Member

Re: Diagnosed last week....

hi..no I have no one at home apart from my kids,, reading others experiences on here does help u understand more to b honest.. I chuck myself into work most days as life goes on I guess..and waiting is not my best quality... 

CathC
Member

Re: Diagnosed last week....


@tracy2905 wrote:

hi..I a few months ago found a lump in my right boob,had to wait a week to see if it was just my hormones.. Turned out the lump was still there a week later so went to the docs who then made me an appointment. With the specialists and had several mamagrams,, scans and biopsys... I was later told I have invasive ductal carcinoma grade 1...they said a lumpectamy followed by raidiothearpy was the way forward.... I now have my lumpectamy date which is 24  of July which feels like a life time away... I myself know that this cancer lump has been there at least 8 weeks now that I know of... And worried they are leaving it in there far to long...no stage on the lump yet just grade 1.on the date of the lumpectamy they are also doing something with dye in my lympth nodes which I've been told is normal... So worried as I have 2 young kids etc to think about...


Hi, tracy

 

I know how scary it is waiting on treatment and just wanting this thing out of you. But you have your date now, something to focus on. The dye is to find the lymph nodes closest to the lump. They check these to make sure the cancer hasn't spread and it's perfectly routine.

 

You say you have young children, but don't say whether you have someone you can talk to at home. It's tough going through this alone, but there's alway someone here to help. Feel free to message me if you want to talk.

 

Ask all the questions you can of the lovely ladies here. They all know so much and they've all been through it.

 

Hugs

 

Cath

CathC
Member

Re: Diagnosed last week....


@wilsbury wrote:
Hi all, thanks for your replies, I'm feeling a bit more positive now! I think you're right & I need to keep busy to take my mind off it! I am very lucky to have my daughter at home, she's been great although I try to stay positive with her so she doesn't worry too much. My son who lives away has also been very thoughtful, haven't told my youngest (19) as he's away travelling around Europe & I don't want to spoil it for him.
I'm so thankful for the support on here, thanks so much!! Xxx

Waiting for results is so hard. I'm glad you have your daughter at home with you, but I can understand you not wanting to worry her too much. You're the parent, you're supposed to be the strong one.

 

It's okay to let go once in a while. Hubby's can be good for that, but sometimes they're more scared than we are and they just want to bury their head in the sand. After all, if they don't acknowledge it, it won't be real. That's why this forum is so great. We can be as honest as we want, as scared as we want and it's okay because everyone here feels the same way, or has felt the same way at one time.

 

I'm keeping you in my thoughts for Thursday and hope you get the best of results.

 

Hugs

 

Cath

tracy2905
Member

Re: Diagnosed last week....

hi..I a few months ago found a lump in my right boob,had to wait a week to see if it was just my hormones.. Turned out the lump was still there a week later so went to the docs who then made me an appointment. With the specialists and had several mamagrams,, scans and biopsys... I was later told I have invasive ductal carcinoma grade 1...they said a lumpectamy followed by raidiothearpy was the way forward.... I now have my lumpectamy date which is 24  of July which feels like a life time away... I myself know that this cancer lump has been there at least 8 weeks now that I know of... And worried they are leaving it in there far to long...no stage on the lump yet just grade 1.on the date of the lumpectamy they are also doing something with dye in my lympth nodes which I've been told is normal... So worried as I have 2 young kids etc to think about...

wilsbury
Member

Re: Diagnosed last week....

Hi all, thanks for your replies, I'm feeling a bit more positive now! I think you're right & I need to keep busy to take my mind off it! I am very lucky to have my daughter at home, she's been great although I try to stay positive with her so she doesn't worry too much. My son who lives away has also been very thoughtful, haven't told my youngest (19) as he's away travelling around Europe & I don't want to spoil it for him.
I'm so thankful for the support on here, thanks so much!! Xxx
Downbutnotout
Member

Re: Diagnosed last week....

Hi Wilsbury - sorry you're feeling a bit down today. Yes, in some ways you've been lucky but the whole cancer business is very scary and particularly when you're waiting for results and things haven't gone as straight forward as you would have hoped. It really is only when you've experienced it that you realise just how terrifying it is. I hope your husband manages to show a little more interest and thought. It's perhaps that he's feeling scared too but trying not to convey it to you? People can be surprising in how they react.

 

The mammogram etc sounds exhausting! Best of luck with Thursday's results.

 

XX

pinky3
Member

Re: Diagnosed last week....

I am glad he is going with you. Is he aware of what your results might be and that you may require further treatment? I suppose he is right in that the best case scenario is that the surgery was completely successful and the dcis was all low grade and you therefore won't need any further treatment. But that doesn't help you feel more reassured.

It is lovely that you have the help and support of your daughter. My children have also been a great help, they are teens and early twenties. When I was first diagnosed we all sat down together and discussed options and treatments and I think it really helped us all.

 

Pinky

Xx

wilsbury
Member

Re: Diagnosed last week....

Hi Pinky3, it's so good to have other people to talk to who understand!
He is coming with me, although he didn't realise that I would be getting any further results, his attitude has been "Don't know what you're worrying about, they've cut it out haven't they?"
He's been totally disengaged with the whole thing, even went to London with work on the day I had my wle so my daughter looked after me. We've been married for 27 years so I have to assume he does care on some level, but it's not really helping me now!!
Xxx
pinky3
Member

Re: Diagnosed last week....

Hello Wilsbury

 

I really do know where you are coming from. The waiting period is a very difficult time for us all and I don't think there is any advice I can give other than keeping as busy as possible. I am glad that you feel better for putting you thoughts and feelings on here, it is reassuring to know there are people who understand.

Is your husband going with you for your results appointment? 

 

Pinky

Xx

wilsbury
Member

Re: Diagnosed last week....

Hi all, feeling a bit down again today & need to talk to someone who understands!!
I know I've been lucky, my dcis was picked up on a mammogram offered to me as part of a pilot scheme to extend the ages it's offered to (I'm 48) so I would usually have had to wait another 2 years before even being checked.
My initial needle biopsy showed no cancerous changes & I was told that the take home message was no cancer, but they would confirm it in writing as there was a discrepancy they needed to check.
It turned out that I had 2 areas of cells near to the chest wall, and the needle biopsy had only got the ones they were less worried about so I was recalled for a wire-guided biopsy which got the right cells & showed dcis. So I'm lucky they kept checking!
But... Still feel down! Results on Thursday hopefully ( they may not be back by then) & starting to worry about it, especially with the cells being so close to the chest wall. I spent an hour (literally!) clamped in the mammogram machine for both the needle biopsy & wire insertion because the cells were so hard to get at. The radiologist told me I was a very difficult case for them (in a nice way!) when he did the ultrasound.i just don't feel confident about the results at all. And my husband is still useless!
Thanks, I feel better just for writing it all down,
Gentle hugs to you all!!
Wilsbury xxxxx
daiseykins
Member

Re: Diagnosed last week....

Hi I was diagnosed on the 4th June,I was devastated my first thoughts were is this the end for me.but when I got home I started reading the breast pack we were given,I started to think more positive.but it's a shock to the system,I went in for surgery yesterday.had a lumpectomy and biopsy taken.resting at home now waiting for the next step of the jouney the results of the biopsys.you said in your post you were  worried how it was going to affect  your relationship with your hubby friends and family.I know everyone handles the word cancer differently,but I am sure if you have a loving and supportive hubby and friends family you will have nothing to worry about.I find it alot easier talking about my bc,and trying to keep positive.we are all in the same boat in this forum,some have it harder but we will fight this disease together.I wish you all the best for your future treatment,let me know how you get on xx

wilsbury
Member

Re: Diagnosed last week....

Hi, glad the op went well for you & that you're being well looked after! Xx
CathC
Member

Re: Diagnosed last week....

So glad the wle went well, daiseykins. Enjoy all that pampering, you deserve it.

 

Hugs

 

Cath

daiseykins
Member

Re: Diagnosed last week....

Hi,had my wle yesterday,resting at home getting pampered by the hubby!! I could get used to this.thank you from the kind thoughts and everything is going well for you x

CathC
Member

Re: Diagnosed last week....


@Toulula wrote:
I go for my dye injection tomorrow then wire inception next day good luck to you all we will get over this xxxx

Good luck for tomorrow, Toulula.

 

Hugs

 

Cath

CathC
Member

Re: Diagnosed last week....


@wilsbury wrote:
Thanks all for your kind messages, home last night after wle. I think I was expecting a similar wound etc to the wire-guided biopsy, more painful & swollen than I thought! Have been signed off for 2 weeks tho so the rest should help! Should get results on 10/7, fingers crossed!! Xx

So glad the op went well, wilsbury. Rest as much as you can, and dont' be afraid to ask others for help.

 

Will keep my fingers crossed for the 7th.

 

Hugs

 

Cath

Clarissa81
Member

Re: Diagnosed last week....

Fingers crossed try to think about other things although easier said than done at times x
Clarissa81
Member

Re: Diagnosed last week....

Good luck for tomorrow 🙂 xx
Toulula
Member

Re: Diagnosed last week....

I go for my dye injection tomorrow then wire inception next day good luck to you all we will get over this xxxx
Toulula
Member

Re: Diagnosed last week....

Hi yes this site has helped me I go for op in 2days ihave 2ndstage cancer left breast but they have got it early after second mama gram and scan just be glad when it is over it took me 3days just to read my notes cannot talk about it to family friends get upset easy better texting them hope you get on ok all the best we will get over this we are stronger than you think xxxxx
pinky3
Member

Re: Diagnosed last week....

Hello Wilsbury,

Glad to hear op went well. Results on the 10th is great, you haven't got long to wait. 🙂

 

Wishing you all the best for a speedy recovery and good results.

 

 

wilsbury
Member

Re: Diagnosed last week....

Thanks all for your kind messages, home last night after wle. I think I was expecting a similar wound etc to the wire-guided biopsy, more painful & swollen than I thought! Have been signed off for 2 weeks tho so the rest should help! Should get results on 10/7, fingers crossed!! Xx
wilsbury
Member

Re: Diagnosed last week....

Hi daisykins,
Thinking of u today, hope all goes well!
Xx
kels304
Member

Re: Diagnosed last week....

Hi I've recently been diagnosed I've had a lumpectomy 3 weeks ago n I start chemo on the 17th July iam very nervous about it and would like to hear from people who are in the same boat as myself much obliged xx
CathC
Member

Re: Diagnosed last week....


@daiseykins wrote:

Hi clarissa81,I was diagnosed on th 4th June.I am going in for a lumpectomy on tuesday,Monday I have to go to hospital for the dye into my sentinel nodes.I am feeling a little nervous but like you I am starting to feel more positive.good luck with your treatment,we will fight this x

 

 


Hi, daiseykins

 

Wanted to wish you good luck for your appointment today and your lumpectomy tomorrow.

 

Let us know how you got on when you can.

 

Gentle hugs

 

Cath

CathC
Member

Re: Diagnosed last week....


@Clarissa81 wrote:
Thank you was you in much pain after? X

Hi, Clarissa81

 

Yes, there was pain after, but not as much as I expected. I think we always imagine the worst. The underarm pain from the sentinel node biopsy probably was the worst, when I tried to stretch. Doing the exercises helped with that.

 

Cath

daiseykins
Member

Re: Diagnosed last week....

Hi clarissa81,I was diagnosed on th 4th June.I am going in for a lumpectomy on tuesday,Monday I have to go to hospital for the dye into my sentinel nodes.I am feeling a little nervous but like you I am starting to feel more positive.good luck with your treatment,we will fight this x

 

 

Downbutnotout
Member

Re: Diagnosed last week....

Hi Wilsbury - yes, any cancer diagnosis is scary. Hopefully your family will be able to talk a bit more about it once they come to terms with the shock.

 

Don't apologise for 'waffling' - we all need to share our feelings at times. Good luck for tomorrow.

 

X

pinky3
Member

Re: Diagnosed last week....

Hello Wilsbury, just want to wish you good luck for tomorrow.  Hopefully clear margins and a good recovery 🙂

wilsbury
Member

Re: Diagnosed last week....

Hi all,
Was diagnosed with dcis on the 20/6, in for wle tomorrow. My family know but don't seem able to talk to me about it, and I'm feeling quite nervous now! I know it could be a worse diagnosis, but still finding it hard to be told it's cancer of any kind. Already have a 7cm scar & a smaller breast following wire-guided biopsy a month ago, it's still quite sore & can't imagine it being cut again! Feel like I'm waffling a bit but just need to say it to somebody!!
Clarissa81
Member

Re: Diagnosed last week....

Thank you was you in much pain after? X
CathC
Member

Re: Diagnosed last week....


@Clarissa81 wrote:
Hi everyone thank you for your replies, had good news from my MRI scan it's just the one lump which I found which was a huge relief 🙂 I had my preop yesterday swabbed for MRSA Etc spoke briefly about my op. I'm glad that's it now until the 10th which is the day of my operation. In first for the dye re my sentinel node biopsy then up to theatre for my operation. Things are feeling clearer now I know it's just the one lump the next hurdle will be once they've removed the lump and decide wether I need radiotherapy or chemo so that will be a long 2 week wait 😞 but I'm feeling positive xx

Hi, Clarissa81,

 

Good news that they found only one lump. I guess until you get that news your mind runs riot with what can be hiding inside you.

 

I had my op and snb done at the start of June, and while the thought of it was scary, the op itself wasn't too bad. I find, most times, it's the unknown that's more frightening that the actual reality.

 

Good luck on the 10th. If you need to talk, just shout out, there's always someone here.

 

Hugs

 

Cath

Clarissa81
Member

Re: Diagnosed last week....

Hi everyone thank you for your replies, had good news from my MRI scan it's just the one lump which I found which was a huge relief 🙂 I had my preop yesterday swabbed for MRSA Etc spoke briefly about my op. I'm glad that's it now until the 10th which is the day of my operation. In first for the dye re my sentinel node biopsy then up to theatre for my operation. Things are feeling clearer now I know it's just the one lump the next hurdle will be once they've removed the lump and decide wether I need radiotherapy or chemo so that will be a long 2 week wait 😞 but I'm feeling positive xx
CathC
Member

Re: Diagnosed last week....


@lyndseyloo wrote:

Hi Cath, did you have any treatment before your op? if not how come you had to wait a month for you op? I've recently been diagnosed (on 20th June) and hoping everything will move quickly although I keep being told I need more tests as they keep finding this and that, I'm 33 years old I have an almost 3 year old daughter and and so scared..... How have you been since your op? xx


 

Hi, Lyndseyloo

 

I know it sounds like a long time between diagnoses and op, but it didn't feel like that at the time. Something was happening every week. 1st I had the results of the op, then I had my pre-op tests, then I had an appointment to discuss everything.

 

I actually thought less than a month was good,- I've heard of people waiting longer. Yes, the waiting is tough. You just want this thing out of you, and you want it out NOW!

 

Have you had any more word on what's happening with you?

 

Sending gentle hugs

 

Cath

lyndsey
Member

Re: Diagnosed last week....

Hi Cath, did you have any treatment before your op? if not how come you had to wait a month for you op? I've recently been diagnosed (on 20th June) and hoping everything will move quickly although I keep being told I need more tests as they keep finding this and that, I'm 33 years old I have an almost 3 year old daughter and and so scared..... How have you been since your op? xx

lyndsey
Member

Re: Diagnosed last week....

Hi Clarissa, I am in the same boat as you, I was diagnosed last Friday, since then have had another biopsy on a lymph node and loads of other tests I was supposed to have an appt tomorrow to discuss everything and where to go from here but this has been cancelled until monday as somethinng was seen on the MRI I had Yesterday so I need another ultrasound on monday hopefully I will know more then,it is the waiting that is doing my head in and now I have to wait an extra 3 days its awful, I'm only 33 and am so scared I have been putting on a brave face for my family as they have all taken it really badly but inside I'm falling to pieces, do you have any results yet? xx

SM75
Member

Re: Diagnosed last week....

Hi Clarissa - I am also new here! Was diagnosed two weeks ago today. Have told all that need to know including my 2 kids . They all cried - I havrn't cried once - like u just feel so numb and apprehensive and a bit angry. I wake every morning thinking omg I have breast cancer and it just doesn't seem real. Feel like no one really understands what I am going through emotionally. I feel well and am carrying on day to day as per normal . Worried how this will effect my relationships with hubby, fwmily and friends - am imagining all sorts. Think this site will really help us all x
Toulula
Member

Re: Diagnosed last week....

That just how I felt did not tell family or friends for a few days trying to get used to the shock my self I go for my preop test today next week dye injection then day after wire invert ion then op I do not feel so started since I have been on this site reading other ladies who are worst off then me they are so brave I have 2nd stage caused by taking hrt for 20years it has been feeding it so weening off them hope all goes well for you you will be ok we are all thinking about you xxx
CathC
Member

Re: Diagnosed last week....

Hi, Clarissa81

 

I know what you mean about feeling numb, it's so hard to get it to stick in your mind that you have cancer. I was diagnosed on the 9th May, had my op on the 5th June and it still doesn't feel real.

 

Talking to the members here, hearing their stories has helped me enormously. I hope it can do the same for you.

 

Good luck with your MRI results.

 

Hugs

 

Cath

 

 

LuckyLass
Member

Re: Diagnosed last week....

I'm new here, too, didn't want you to think nobody had seen your post. I was told at the end of May when I had an ultrasound scan that it was almost certainly cancer, did biopsy then. It was confirmed when I saw the consultant less than two weeks ago. Tomorrow I go for my pre-op assessment.

 

I don't have a lot of family and friends around, but in any case, I have preferred to tell as few people as possible. You are very fortunate to have so many people around who you feel you can talk to - but as you say, here we are in the same boat, so have that extra bit of understanding.

 

The gap between diagnosis and 'something happening' is a bit odd, but as soon as you start seeing the people who will tell you more and work out what to do about it, it does feel better.

Clarissa81
Member

Diagnosed last week....

Hi, not sure what to write suppose I'm just breaking the ice. I got diagnosed with breast cancer last Wednesday currently awaiting my MRI scan results which I had last Friday. All I seam to have done since Wednesday is tell people I have cancer felt guilty at first for upsetting my friends and family, now I feel numb? Everyone keeps saying sorry and offering there help which is nice but they don't know and can't really help, that's why I thought I'd join this forum, hopefully get to communicate with people in the same boat 🙂 xx