Here's to a better and healthier NEW Year to us all - steadily - bit by bit.
Haven't been here as we went on a visit to see little tiny premature Grandson, probably only chance for some time.
Somewhere OH and I picked up norovirus ohh boy!!! spent yesterday in bed, Midnight in tears about the next year (I'm sure you all know what I mean)and now feeling better in myself, still can't drink a cup of tea though.
Yesterday I just couldn't get to the hospital for the bone densitromy scan. Just phoned up BCN and she has sorted it all out, so much easier than going from one dept to another.
Have the Lymph Node results tomorrow - definitely not postponing that!
Sarah, you sound more positive, OH says every day is a new day, and a new step to recovery,
Matty - B
Rose you've made me cry now So delighted for you and THANK YOU for the hope that it gives me too that not all surgery is a cause for despair!
Big but extremely gentle hugs to you and all the wonderful ladies on here, what a fantastic thread to draw this otherwise horrible year to a close.
By the way i had the big unveiling ceremony about an hour ago before i got into the bath. Massive bruising and some vivid blue splodges, but roughly the right shape, if somewhat smaller!
Hope you're settled in for the night now, and that you get another good night's sleep xx
Hoping everyone ends 2015 in a much healthier position than we end 2014.
It's been an absolute privilege to share this experience with all of you (though obviously I wish we'd met on a lottery winners' forum or something similar, rather than this one).
Love and best wishes to you all, Rose xxxx
So glad to hear all is going well Rose, enjoy that bath!
Happy New Year to everyone here
Ahh a bath - bliss! Enjoy Rose!!! Glad to hear it went OK this morning.
Rachel - hope your check up today goes well and you manage a big bath with a glass of something bubbly!. I only heard about the cold cap recently but thought it would have been offered at each centre? My hairdresser told be about Nioxcin shampoo which is recommended to patients being treated at Western Park in Sheffield so I am going to check that out too. Anything is worth a try! I have been looking at wigs online today just in case the cold cap doesnt work. Looks like I will be starting chemo same as you end January.
I have just had a call from the City Hospital wanting me back in next Tuesday so I will have to gear myself up again!!! They dont want to leave it too long to go back in to remove more tissue as the cavity will start healing. I am just trying to sort out the children, lifts, etc as I am single mum with no family nearby but I do have the most amazing friends though!
This thread is a massive help to us all even though we are at various stages. I cant believe how life has changed in two months...
Karen - sorry to hear you have been so ill after your first session but guessing this is normal. Did they give you some anti sickness medication? I will be interested to hear how you get on with the cold cap as I have read mixed reviews but will definitely give it a try. My breast nurse said it works for some and suggested I get my hair cut short and leave off the colour for better results??
Rose - hope all goes OK tomorrow. Sounds like you have a wonderful surgeon which makes a big difference. I had not heard of that procedure before so had a quick google but its all such a massvie learning curve. Your sense of humour will certainly keep us all going ha!
Feeling drained after today so will hopefully sleep!
As I understand it, because there were 2 separate lumps which were in "awkward positions" they had to take a lot of tissue away, so did what the surgeon described as a "nip and tuck" to try and create a reasonable shape to the remainder. She was adamant that she did not need to take the whole breast, but she may do further reconstruction further down the line.xx
Rachel,I go to have my dressing removed tomorrow. They have done a Therapeutic mammoplasty so don't want me to take off the dressings myself. You'll see from my earlier posts just how much I'm looking forward to seeing what's left! xx
Hi Karen & Rachel
Karen you're a marvel to be so chirpy despite what sounds like a horrible day. I've never heard of the cold cap thingy so that'll be added to my google search list which is growing by the hour. I hope your nausea eases off soon; can your doctors give you anything to help with that?
Rachel I've just read that book/blog too and found it funny/helpful. Followed it immediately afterwards with Dr Susan Love's book but bits of it were all a bit too 'real' to want to dwell on now, although I'm sure I'll be glad of it later. I've put those books away for a while now and turned to Sali Hughes Pretty Honest: The Straight Talking Beauty Companion on the basis that I might have to be unwell for a while but I'm going to do my best not to look it just so I don't frighten myself in the mirror in the morning. Although quite how I'm going to be bothered with how I look when I never have been so far, I don't know but I suppose it's something to aim for.
I sort of want to say how lovely it is to 'meet' you all, except that I wish none of us had ever had this particular reason to 'meet'
Hi Rachel. Welcome back!
Thanks for the book link, I'll track that one down, and in return I'll recommend "Socks and Stuff" by Lynne Mattick, humourous, but with a ring of truth.
Can't help with the FB page, but I believe you need to be invited to join. Karen will be able to help with that.
I'm also waiting for results, WLE/SNB on 22 Dec,hope the Xmas break doesn't hold them up too much. There is already too much waiting time on this journey.
How are you feeling? I'm nowhere near as sore as I thought I'd be and, like you, very relieved to have got step one over with.
Karen, so good to hear from you.
Forgive my little whinge below, it's all too real and happening for you
How are you, lovely? (Apart from the nausea). Are you home now? How long till the next infusion?
Get those boys running round after you! xxxx
Oh I totally understand that Rose, it's just a bit too much reality isn't it and it's hard to see how we are supposed to continue to be 'brave' and 'strong' when we feel so awful Of all my fears, the 'wreckage' (love that term!) is the one that I'm most frightened about too as I'm completely convinced that the cancer is curable, it's just the cost of getting it cured is so high that it's hard to accept that it's necessary.
Truly hope that tomorrow isn't as bad as you think it might be and will be watching out for a post from you in case you want a shoulder to cry on
Thank you, Sharon.
If what's left is healthy, then it really shouldn't matter what it looks like, I know.
Thing is, and this may sound wierd, I don't believe I have breast cancer. I really don't. Right the way through it's been as if they were talking about someone else, and I've just agreed to all the procedures on that other person's behalf. Ok, there have been emotional wobbles, but it is as if it's happening around me, not to me. When I have to look at the "damage" it will be real, and I'm afraid I'll have a proper melt-down.
Everyone says "Oh you're so strong" or "so brave". I'm not. I've just got my head well and truly buried in the sand. Tomorrow I'm going to have to accept the situation and that's scaring me to a ridiculous extent. xx
Hi Rose, I'm with Sarah, I don't think it's vain at all to have reconstruction done if you decide you want it, I know I will! In fact if I can get a tummy tuck and a face lift while they're at it then that's all to the good! Either that or a lifetime supply of calorie chocolate would work wonders at lifting my spirits
I hope the 'unveiling' tomorrow goes well. As you say, just one step at a time.
So sorry to hear that, Lorraine. I'm having to look up all these terms as they crop up, didn't know anything about HER+ and its possibility cropping up in pathology. So much to learn and worry about. Good that they feel you will respond well, but it just goes on and on, doesn't it?
I get my dressing removed tomorrow, really don't want to see the wreckage. My consultant had already put forward the option of reconstructive surgery as she said they would be removing a lot of tissue with there being 2 lumps in "awkward places". Initially I dismissed the idea, as she has more urgent demands on her time and expertise than a "vanity" op, but I'm keeping my options open for now. I feel stupid for worrying about this in the face of your results, but it's one step at a time here. My results are yet to come, things may change, as you found out. it's just worry, worry, worry till they come through. However I looked at Karen's pre-chemo photos on facebook, she looks so amazingly confident and positive. Inspirational!
I am now going to stuff my face with chocolate, and just hope the excess weight goes onto the place I need it to!
Love, Rose xx
Was thinking of you today. How did it go?
Looks like I will be joining you on the chemo!
Maybe going to work the week before your op is a good thing for you and will help take your mind off things. You have the right approach in moving forward and getting rid indeed!
I went for my results today... not what I had hoped for. They found pre cancerous cells in the surrounding tissue so didnt get the clear margin they had hoped for. The surgeon said he can either go back in and remove further tissue which he seemed positive about or have a mastectomy/recon. I decided on a further lumpectomy and if that doesnt work then it will be mastectomy. The other thing is that I am Her2 positive so will need Herceptin/chemo after the op. Bizarrely I was almost expecting this news.
On a positive note, they told me I should respond very well to treatment and my nodes were clear.
Just feel bit miffed by it all but not much I can do about it except get on with it and get myself a sexy wig!
Yes, a move forward to 2015 for us all!
Well said Rose, I'm a recent joiner but that's exactly how I feel - this forum and this thread in particular has been such a source of information and strength and I wish everyone the very best
Thank you for starting the thread! What a 5 weeks it's been, friendships made, advice given and taken, humour, sympathy and empathy, laughs and tears. I know this thing we share is evil, but hasn't it brought out the best in everyone? I know I shall never be the same person again. Gone is the placid people-pleaser, I recognise my own value, and shall continue to challenge any s***t which comes my way.
I hope everyone pops back in here with updates, and that we can all celebrate the start of 2015 in a stronger and healthier position. Love, Rose xxx
Right ladies - again big thank yous to everyone who has posted on my thread :)))
Today the PICC line went in and pre-chemo bloods taken and tomorrow 30th december will be my first chemo cycle - I am active on the facebook group for January so you can catch me there but I do keep checking in here from time to time
Good luck to us all - Karen x
Sorry for the delay in replying. I really hope you managed to enjoy Christmas despite the news on 23rd. There is never a good time to be going through this but over Christmas is awful. Everyone else is in a happy mood and you can only put on a brave face for so long...
I dont know anyone who has had an MRI biopsy but I thought it is used to pick up abnormalities when Mammogram and Ultrasound dont as its too small? You have to keep positive and remember you are in the best hands with a team of professionals looking after your care and more importantly it is being dealt with.
I know it is all very overwhelming but the way forward is bite size chunks.
Are you managing to sleep OK or is it still bad?