Just wanted all you ladies to know that it's all doable, I was diagnosed Feb last year, inv ductal,1 node,her2,+ER+ and am now on the other side. One more herceptin to go nxt week. It helped me to read the inspiration and hope part of this site when I was going through treatment. As you will see the majority of women get through this and don't forget that, even when you are at your lowest! There is so much negativity and you feel hopeless at times but you will get though it!
Welcome to the forums.
As well as the support you will receive on the forums we also have a free helpline where you can talk things through with a member of staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
I have also attached a link to our One to One service, where you can talk to a volunteer who has been through a similar experience to you
My name is Susan and I was diagnosed nearly 4 weeks ago with Grade 3 HER2 positive like you im not sure if this is good or bad , but im staying very positive as my surgeon and oncologist both say this is a curable cancer and im about to start chemo on Wednesday . I have 2 children as well bit older then your daughter but they are my main concern also . It is good to chat with women who know what we are going through .Be positive and try and stay strong , you will have friends and family who will be there every step of the way , and people in here who understand and will support you to .
I have been diagnosed today with a Grade 3 IDC, and also some cancerous cells from the lymph node under my arm (all right side). They have also found something in my left breast which is not cancerous, but they want to remove anyway. I have been told I am ERpositive and HER2 negative. I do not know now if this is good or bad!! It's been a long day. I'm hanging on to the fact that the surgeon said that this is a cancer he sees a lot and that they can treat me. I'm 51, and my daughter is only 14. I think it is my daughter which is worrying me the most. I so desparately want to be here for her as she grows into adult hood. She's taking a GCSE in the next few months, and of course all her main ones next summer. Does anyone else on here have kids of a siimilar age?
I'm also terrified that my cancer my have spread - they are giving me MRI, CT and bone scans: it all sounds absolutely horriffic. They want to start me with chemo for 6 months but I just want it cut out NOW. Is this normal for IDC, or is there something I'm not being told? I also now feel lumps and pains EVERYWHERE on my right side, so you can see I'm a worrier!
My Macmillan nurse told me about this forum - and I'm so grateful. We went through IVF and I always found the IVF forum I joined to be a fantastic support.
Have you looked at the thread for triple neg cancer? Here is the link.
You might find support and answers to your questions from other ladies with triple negative cancer. Hope you and your mum are coping.
Welcome to the Breast Cancer Care discussion forums, where as you can see you will get some brilliant support from other users of this site. Our helpline team are just a free phone call away if either you or your mum would like to talk to someone in confidence about what your mum is going through. The helpline is open weekdays 9-5 and Saturdays 10-2. 0808 800 6000. They're here to support you both through this.
I don't usually look at this part of the site as I have secondaries now, but was touched by your post and wanted to reply. I was diagnosed 24 years ago with invasive ductal carcinoma, the tumour was 5cm and oestrogen negative, I was told it was very aggressive and growing fast. I am sure I felt a bit like your mum must be feeling now. I never wanted to know what my prognosis was but from various conversations over the years with my oncologists I know they did not expect me to still be here. I have seen the drugs improve a lot over the years and new drugs discovered. I had many recurrences because it was before the days of herceptin, a drug to treat her2+, was available but I have now been on that drug since 2004. If your mum proves to have the her2 gen she will be treated with herceptin alongside chemotherapy. Your support is going to be so important to her in the coming months and although the going can be tough physically and mentally we all get there and if your mum wants to join in on these forums she will find a lot of help and encouragement here.