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Diagnosed today

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Re: Diagnosed today

Many thx for your message Maggie
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Re: Diagnosed today

Now that is a cheering tale! Sleep tight. Xxx

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Re: Diagnosed today

Thanks for your lovely comments Jane :-))
Still feeling a bit out of sorts but having CT scan Thursday and going looking at hats/false fringe/wigs soon.
Just feel like I am in a nightmare and will wake up and think phew it was just a dream. Fat chance!
Talking to travel agent about rebooking holiday later in the year. Something to look forward to.
Also asked for some of the fab sleeping tablets they gave me in hospital.
Starting to tell my friends and they are all so shocked, I have always been so fit and active. No family history.
The friend who was my bridesmaid 25 years ago came round today. She had stage 4 v aggressive BC 12 years ago, lumpectomy then mx, nodes out, chemo and radio and has been fine since. She coped well with the chemo, even going skiing during it! She will come to my first treatment with me. Cheered me a lot.
Take care all.
M x
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Re: Diagnosed today

Maggie my dear,

I'm not surprised you had a little meltdown, it was probably overdue! And you've just had an op, which always puts the body into a bit of shock.

You strike me as a very loving funny and lovable soul who probably always worries about other people ahead of yourself and actually allowing yourself to be sad just for you is just the thing.

Remember this is TREATMENT to make you better, and the convincing probability is that it WILL!

We will all have up days and down days. I am sure once you actually start chemo treatment you will feel better emotionally (even if sick as a pig!) because you'll be on the road back to health, even with some pitfalls along the way.

Big hug and much much love, thinking of you

jane XXXXXXXXXXXX




@maggie59 wrote:
Thanks Sam.
Have really cried for the first time this evening.
So intent on being strong for everyone else.
Husband is being a pain in the arse but that is nothing new and another story.
Onwards and upwards as they say and think I need some time to adjust to what is to come.
Somehow the discomfort from my op has just paled into insignificance. The team I am dealing with however have been so so kind.
Mx

 

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Re: Diagnosed today

Hi girls had my diagnosis today DIC2 think that's right .? have my op tomorrow radioisotopes first wire location then lumpectomy lump is small less than 1cm so having lympnodes out also to see if there is spread ,so worried my husband is shattered by it all but so supportive haven't told my daughter yet she is pregnant with first grandchild I think I'm going to wait until I have all results and seen oncologist before I tell her ,has anyone else don't that ?
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Re: Diagnosed today

You are a very very brave lady,after my visit to clinic and the waiting for results it was said I had a benign fibroadanoma ,then after looking again said cellular so now saying benign phylloydes and lumpectomy required measures 9cmx 6cms a beauty lol! Consultant did not want to see me for a month to have pre op,I am petrified as last time I had panic attack in the hospital claustrophobic room waiting to be seen by consultant!Thing that worries me is how can they tell it's benign phylloydes ?consultant foreign and I could hardly understand him and breast nurse well??? You have done so well ,easy for me to say keep your chin up the nasty lump has gone and you are on road to recovery love to you Shar xxx
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Re: Diagnosed today

Thanks Annie.
Things just seem to get worse and worse but hopefully once I start chemo the end will be in sight.
Good luck today having your radio active dye thingy and I will be thinking about you tomorrow.
Don't forget those sherbet lemons :-))
Mx
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Re: Diagnosed today

Hi Maggie - been thinking about you all day yesterday and today. Rotten news but having a good treatment plan with a trusted team is a big plus- such a b... the way bc comes totally out of the blue and throws life upside down - old cliches about a roller coaster are so true. It's do-able as others have said - the forum is inspiring. You'll beat it.
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Re: Diagnosed today

Oh honey that bites. Blasted holiday stealing lumps.i know its not that,  but it does add insult to injury.   so sorry you're feeling down,  being strong and brave is so tiring.  Gentle hugs lovely xxx wish it was better news. 

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Re: Diagnosed today

Thanks Sam.
Have really cried for the first time this evening.
So intent on being strong for everyone else.
Husband is being a pain in the arse but that is nothing new and another story.
Onwards and upwards as they say and think I need some time to adjust to what is to come.
Somehow the discomfort from my op has just paled into insignificance. The team I am dealing with however have been so so kind.
Mx
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Re: Diagnosed today

Ahhh Maggie,ms orry it wasn't the news we had hope but sounds as though you have a great surgeon. 4/14 nodes is doable, got to leave the chemo to do its job xx

Sending you lots of wishes, positives and hope .

We are all in this together

Sam xx
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Re: Diagnosed today

OK Girls. Results for me tonight and pretty much what I had feared.
Lump again much bigger than anticipated 5.5 cm! This started as 1 cm! Also 5/14 nodes affected.
The good news is that the brilliant surgeon is sure he has removed all the cancer with clear margins and he has done a great job so that with the old boob hoisted up in a bra they look the same size. He must have taken a massive amount from the poorly one!
So now because of the size of the lump and the number of nodes involved it is bone scan, CT scan then 6 chemos and radio for 3weeks.
All moving quickly and should start chemo as soon as the scans are done.
He was really pleased with my recovery so far (didn't dare tell him about the gig and dancing at the weekend) but the real bummer is that I am not allowed to drive for another 5 weeks and then I will be into chemo so have to be careful then!!!
The other pain is that we have booked a special holiday in June next year and I think it will have to be shelved as the timing is too tight.
Guess I had better tell everyone now :-((((
Mx
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Re: Diagnosed today

Today you have your lovely weekend to recall. Only a week ago your surgery was all to come. You have had a brilliant week - so much achieved! Whatever today brings - tomorrow will feel less scary! Hugs to you.
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Hi Shar
No of course I don't mind you asking...I guess it depends where your lump is and if they are likely to do a node biopsy/removal.
Mine was on the bottom of the breast so underwires are a no no.
I bought a post surgery bra which copes with all eventualities and have found it brilliant. It is a Royce Silver Post Surgery bra which is soft, supportive, high at the sides and has poppers down the front which makes it easy to put on. Because my breasts are now different sizes it eavens them out well.
Look at the Royce web site and you will see the details. Not cheap but you can claim the VAT off post surgery bras and they dispatch same day. Comes in a wide range of sizes and you might find a stockist locally where you can get fitted.
Might be worth checking if your hospital supply a bra, I think that some do.
Good luck with your surgery, if I can help any further please just ask.
Mx
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Re: Diagnosed today

Hello maggie
I am having a wide excision lumpectomy next week fingers crossed,do you think I should get a good support bra as I normally wear under wired ,hope you don't mind me asking you?
Hugs to you Shar xx
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Annie, I have just seen your post re the clothes clear out and you are a very courageous and brave lady.
I haven't yet managed to throw out all the under wired bras that I will never wear again - virtually my entire collection. In fact bizarrely I put the one I wore into hospital in the wash! Why??
I am feeling very angry and out of sorts today. Why me? Why my nodes? Will I ever stop thinking about this? Natural stuff I guess.
Worried about results tonight too....and it's raining, uuugh!
Girls, cheer me up!! :-))
Going to be a long day.
Mx
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Oh soo funny!! No a rather boring Cosmopolitan I'm afraid. Marks and Spencer too...
Could have been Between the Sheets I guess? Haaaa..
Ladies, I think that days 6 to 7 after the op are when you regain your mojo. Much more energy today and no need to take to my bed - well unless I need to escape from husband!!
Cooked a full roast dinner and left him and boys to clear up and feed dogs while I retire to my boudoir to contact you lovely ladies!
Mx
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Ha ha v good- what were the cocktails ?! Singapore sling?
Slippery nipple?
........!
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Sounds as though you are read for action! Don't forget the wine...ha ha only joking!
Seriously though, my husband bless hiss little cotton socks, turned up the evening of the day I had the op, bearing in mind I was only awake at 4.30 with a little cool bag containing two cans of ready mixed cocktails! He thought it would cheer me up :-)) can you imagine the reaction if I had been found drinking them? Crikey O'reilly.... He brought them back the second night too but I declined. When I got home now, ah well that is a different matter :-))
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Re: Diagnosed today

Atta girl Annie!

XXX

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Hi Jane and Maggie et al - op is on 19th- 72 hours approx- can't wait to get on with it now. Bought the pjs and sherbet lemons; stacked up the books; created playlists for iphone (soothing one/ inspiring one/ and the the b well get out of bed and get on with life one); practised the meditation tapes ... Bring it on!
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Oh good. I love to think of you enjoying yourself at a gig and clapping so soon after your op.. well done my lovely! It will have done you the WORLD of good.

Jxxx

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Woke up in the night really uncomfortable and first thing I thought about was my arm? Worried that all the clapping and waving it in the air had caused swelling. Not so, just a bit of aching :-))
My bed side table is looking like a chemist shop, paracetamol, ibuprofane, arnica, aloe Vera gel, sleep aid (good stuff)...the list goes on. Oh joy, soon to be joined by emu oil and possibly Moo Goo. Such glamorous days...
Mx
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Re: Diagnosed today

when's your op Annie? Mine is on the 24th....

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Re: Diagnosed today

Oh that sounds splendid, the Mexican food and the dancing! Hope you're managing some rest too. I should think although you'll be really nervous going in for the Onc visit, you'll be more settled when you know exactly what the treatment plan is. 

 

 

I am very up and down. STILL getting myself in a state bout lymphedema and having to watch that arm very day for ever in case it blows up into  a big balloon. But I reckon I always will be worried bout something. Love to all xxxxx

 


@maggie59 wrote:
Thanks Jane. That means a lot to me. I have been feeling a bit battered the past couple of days!
Thankfully my wobble seems to have abated at the moment anyway and I have just had a fabulous night out with my husband and boys. Mexican meal followed by lively concert and yes, I did get up and dance with the girls (now affectionately called Perky and Droopy) safely contained by Royce!. It was a great evening and dancing was so good for me. Might feel it tomorrow though.
I have started taking arnica today and do think that it is helping with the swelling. Something else for the shopping list for you and Annie! Tablets from boots amongst other places.
I get the pathology results from the op on Monday evening so that will be the moment of truth.
How are you doing? Bet you just want to get started?
Mx

 

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Re: Diagnosed today

Re moo goo - got direct from uk supplier - googled address etc. a great night out always worth it!
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Re: Diagnosed today

Thanks I am very worried and will try and put it out of my mind today...it would be nice to get some good news for a change...
Moo Goo? Looks interesting! Did you get it from amazon? I have ordered some emu oil which also seems to be recommended for arms after node removal. If it doesn't work for that I will use it on my poor arthritic knees! Exotic products from Australia!
Good luck to you too for your dye and op this week.
Will let you know how it goes tomorrow.
PS feeling the effects of last night but it was fun :-))
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Wow! V v impressive. Moo goo cream recommended on bc blog here. Smells nice; have not yet tested it out. Arnica is a staple in my medicine cupboard. Good luck for tomorrow
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Re: Diagnosed today

Thanks Jane. That means a lot to me. I have been feeling a bit battered the past couple of days!
Thankfully my wobble seems to have abated at the moment anyway and I have just had a fabulous night out with my husband and boys. Mexican meal followed by lively concert and yes, I did get up and dance with the girls (now affectionately called Perky and Droopy) safely contained by Royce!. It was a great evening and dancing was so good for me. Might feel it tomorrow though.
I have started taking arnica today and do think that it is helping with the swelling. Something else for the shopping list for you and Annie! Tablets from boots amongst other places.
I get the pathology results from the op on Monday evening so that will be the moment of truth.
How are you doing? Bet you just want to get started?
Mx
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Re: Diagnosed today

How are you doing Maggie? Just thinking of you and sending love
Jane XX

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Gosh that would keep you in check!
I have been delighted with mine and think I will order another as I can see myself wearing them for some time and they seem to even out my now different boob shapes. They cover the lymph node scar under the armpit (which is proving to be the most painful bit to heal) and are very soft. Also dry very quickly when washed and put in the airing cupboard overnight.
Sending husband out to get some arnica tablets today to try and help swelling - might be worth putting in the medicine cabinet ladies.
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i have ordered two Royce bras on your recommendation Maggie, and my dear old ma has ordered me a third! I might wear them all at once! XX
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Thanks for your reassurance girls. Chemo seems pretty inevitable.

I think the boys were hoping that for once I wouldn't be able to embarass them by getting up to dance at the gig - ha, takes more than some evil little (or not so little as it transpires) lump to stop me :-))

I will raise a glass to you ladies as I party to the music...

Very strange experience sitting in my business meeting today - the other people there had no idea at all that I have breast cancer and (fortunately) were blissfully unaware of the glue and stitches that are holding me together under the wonderful Royce brassiere!!! Oh my.

 

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Re: Diagnosed today

Hi Maggie - agree with Katherine / Jane re chemo zapping miscreant cells going awol. I was concerned about that too - asked my consultant - she said that it's unusual for bc to spread beyond primary tumour / nodes - as these days it is usually caught before it spreads far. Enjoy the music and seize the day!
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Re: Diagnosed today

Hi Elaine

Hope that you get good news today.

Keep in touch with us on this forum.

Mx

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Re: Diagnosed today

Hi Maggie,

 

I'm guessing that if any of the microscopic little buggers have got past the nodes then chemo will find tham and blast them before they can set up camp. That's its job.

Good tip for the aloe vera gel.

have another virtual hug, you deserve itXXXX

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Re: Diagnosed today

I am so sorry that you didn't get the results you wanted but do you know what I think the greenhouse coming today is a positive thing once your surgery is over you can start planning what you can plant up and watch the new plants grow as your strength will do ,we as women have real hidden strength and we are amazingly strong people .
I am waiting for results of a core biopsy and by looking at this forum it's making me realise there are many wonderful ladies going through the same things and we can support each other along the way
I wish you lots of good luck for your journey xx
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Xxxx have a lovely weekend. Sing loudly!
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Morning Ladies.
Thank you, the virtual hugs are much needed this morning!
Physically I feel fine but the first thing I thought when I woke up this morning was OMG, suppose this has spread beyond the lymph nodes? To be honest it had never entered my head before because this all started with a small 1cm lump and has obviously escalated to become much more.
The consultants sec called me yesterday and said that she was waiting for the post op results and I will be seeing him early next week. I will be petrified.
Sorry, just having a bit of a wobble. Not like me 😞
I have a work meeting today (husband will have to drive me) and my youngest is back from uni tomorrow and we are all going to a lively music gig tomorrow evening so that should take my mind off things. I probably should be in bed recuperating but what the hell!
Have a good weekend and good luck shopping for bras etc! the other thing I am finding useful is aloe Vera gel. It is green and very cooling and soothing. You get it in boots and super drug.
Mx
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Re: Diagnosed today

Thanks so much for this Maggie. It helps so much to know I'm not alone with this. And yay! for coming through your operatation so well! We'll done and please accept this gentle virtual hug of love and thanks. One hurdle over. Xxxx
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Hi Maggie - many thanks for all this helpful info.
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Hiya.
Like you I thought of all the things that can result from this journey.
I didn't know until I woke up on Monday after surgery that they had to do a full node clearance. Because the node needle aspiration had come out clear I thought that I was home and dry. Not so!
However, the reality is much better than I thought it would be.
I think the fact that you are aware of lymphedema is so important. There is loads of info that will be given to you, especially if you ask. I have made an appointment with a specialist nurse to talk about avoiding it. Apparently the chance of getting it is 30% which in my book means there is a 70% chance of not getting it! maybe less if we are aware.
There are lots of things we can do and I have ordered a couple of wrist bands - I can send you the link if you would like? They are more to remind me that I have a dodgy arm than anyone else!
My surgery was on Monday and I can say in all honesty that three days on I have amazing mobility, little discomfort, the area under my arm is numb but hopefully the feeling will come back in time and I am amazed at how well I feel. I went to see my very elderly parents today and they were so reassured.
You might have to be a bit careful working in your new greenhouse but sure it will be fine :-)) Wear gardening gloves.
Chemo is one thing I don't know about. I have a meeting early next week with the consultant to get my surgery results and suspect that chemo will be on the cards. What started as a small lump has escalated somewhat 😞 Whatever will be will be. At the end of the day I want to see my boys grow into men and I would love grandchildren. I will do whatever it takes to achieve this and I'm sure we are all the same.
Stay strong ladies!
Mx
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Re: Diagnosed today

Thanks Maggie.

 

On top of everything else I am now panicking about lyphoedema (sp) following all my lymph nodes out. Is there anything i can do BEFORE the op to lessen the chances? Any tips anyone?

I am fine about the lumpectomy, i am fine about the radiotherapy, I am fine about the tamoxifan..........it is the axilly clear out (which now equalls lymphoedema to me) and the chemo that i am dreading.

There just seem so mountains in front of me, too many. All for one pathetic little 1 cm lump. Dammit.

hugs



j

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Re: Diagnosed today

I think that hormone receptive is good because post op you can take tablets to help stop the cancer returning eg tamoxifen. Different ones if you are pre or post menopause.

I can absolutely totally recommend a bra. The Royce Silver Post Surgery bra. It comes in loads of sizes, is soft, supportive and opens at the front with poppers. Thankfully the poppers stay done up too :-)) My breast care nurse was very impressed with it and it will deal with whatever surgery you have.
If you look on the Royce web site it gives stockists and I went to be fitted in an independent department store and they were excellent.
From now on in I am going to try wearing soft sports bras.
The other thing the nurse suggested was taking the wires out of my old bras which I might try.

On the subject of sleep, have you thought of having some sleeping tablets They gave me one in hospital and it was truly amazing. Zonked all night and no drowsiness in the morning. Name began with a Z. It's amazing the difference even one nights good sleep makes.
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Re: Diagnosed today

Hi Katherine- you are right - the initial shock is terrible. I found planting spring bulbs very therapeutic - forcing me to focus on normal life post my op next week. Stay strong.
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Ah thank you..

 

I think part of the whole thing is exhaustion as well, I haven't really slept at all for two weeks. My head is going round and round with all the information.
I was prepared to be told I had cancer (the radiologist seemed pretty certain at the biopsy appt) but to be told it was grade 3, although only 1cm, and that there was some lymph involvement just seemed like more bad news than I can handle. Every time I have an appt it's more bad news! They did seem pleased that it was Oestrogen positive, i don't really understand why.

I'm so grateful for this site. I can't seem to talk to anyone without becoming a blubbing wreck, so writing things down seems easier somehow, and reading good news stories here (i am feverishly searching for ALL the good news stories!) is a comfort.

I also seem to have COMPLETELY lost my sense of humour.

Bless you all. Once I've got my act together i hope I'll be able to give some support as well as taking it.  


Talking of which, can anyone suggesr what type of bras should i buy for post lumpectomy and axilla clearance? Any tips? I'm a 40C  (at the moment) so need a bit of support.

jane

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Re: Diagnosed today

Hi Jane
I wish that I could give you a big hug!
Suspect that it has been a massive shock and waiting is the worst bit.
Perhaps it might help to talk with someone - possibly the breast care nurses who will help you through treatment? Our hospital have a team of four and they are really good.
Our natural reaction is to try and be strong in front of our loved ones but expressing your feelings to someone you are not so close to might help?
Thinking of you.
Mx
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Thank you... I have been awake and crying like a complete wet mess most of the night, whilst trying not to wake up my husband. I think I must be in shock or something. Perhaps I'll feel better when if got used to it. I wish we could give each other a hug. 

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Hi Jane I'm in the same boat. Diagnosed with DCIS had lumpectomy two weeks ago. Have a consultant appt Fri to see if it has spread. Will need at least radiotherapy. Like you, I feel sorry for my family my mum, siblings, husband and two daughters 18 & 21. I feel (at the moment) strong and positive. We probably have a long road to travel but we aren't alone 1 in 8 and on the increase. Keep going, keep strong. Elaine xx
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Re: Diagnosed today

Hi Jane
Same for me but lump 4cm, removed along with all nodes. Two boys in their early 20s, elderly parents.
Breast reduction to get rid of the affected tissue two days ago and now home and feeling fine.
It is early days for you but there is loads of help and support here and in the community.
Go out and enjoy that greenhouse! Hobbies keep us sane.
Mx